Memoirs of June 25-27, 2022 – pain increases

June 25

12:27 neuropathy has increased and changed. It’s now stinging burning pain throughout body and it’s keeping me awake. Took two ginger capsules.

12:50a got up and brewed myself a cup of chamomile tea

1:00 back in bed. I start to pray for everyone that pops in mind. I get distracted because my eyes start watering which makes me wonder if my bodily fluids are toxic for 48 hours are my tears toxic too? Oh, I probably shouldn’t be wiping my eyes with my bare fingers. I don’t have the energy to go wash my hands every time and hand sanitizer will just burn my eyes more. Mind begin going miles a minute. I wonder how I can write a devotional on toxic tears? What should my next topic of scripture journaling be? I pray more. Lord, please help give me wisdom there. Help me fall asleep soon. Ease the indigestion.

5:00 not sure what time I fell asleep. Woke in a sweat and needing to use restroom. Front of stomach hurts. Indigestion. Nasal passages are clear and I can breathe easy for first time in I don’t know how long. Post nasal drip is causing nagging cough. Took Dexliant and sucking on a ginger chew.

6:24 nausea setting in. Feels like I’m going to loose my crackers. Took zofran.

1 Kings 17-19; Jeremiah 23:24;

Suddenly very sleepy. Dosed off while journaling. Reworked around 11:00am Took morning meds and vitamins. Noted on sheet. Drank carrot juice with Moringa Leaf powder.

12:56 I’m getting very sleepy again. It’s thundering outside, but hasn’t rained yet. Muscles in body stiff and keeping randomly spasming about the same time thunder roars – mainly in torso and legs. Neuropathy (tingling burning sensation) is at a 5 presently. Coughing. Lethargic. Exhausted.

3:15 Joe woke me to drink some fluids and brought me jello

3:18 Holly called to check on me. Offered to bring over dinner for tonight. Sweet. Rae going to go help cook. After using restroom (had good bm), I noticed in mirror that my face and neck are flushed. That part feels really hot to me, but rest of body freezing. I wonder if I should be writing all this on paper for when I see the doctor in two weeks?

About 5:00pm I started hearing a regular dripping kind of sound. To me it sounded like water dripping at regular intervals. I mentioned it to Joe. We both thought it might be the ac window unit. About 25 minutes later, I’m still hearing the dripping and it’s driving me crazy 😧. Joe checks outside but it wasn’t dripping on anything. Asks if I still hear it. I say yes. I get up and move to his seat only to hear it as loud as before. I look at the clock and realize it’s the thing on my arm administering the neurolast medicine (it will help my body increase my white blood cells to fight the cancer). Oops! I’ve been spelling it wrong. It’s Neulasta. https://www.drugs.com/neulasta.html

Rough night. Chills since 3pm. Began having small fever around 5/6pm. Temp at one point went up to 103°. All three thermometers couldn’t agree. Called Dr. Dr. suggested I take something to try to get it to come down because some of the drugs can cause small fever. If I’m still running fever in 4 hours go to ER. Only thing is ER is not really good place for me right now. I agreed. Took 800mg ibuprofen. Woken a couple times in night by thunderstorm. One time I realized my phone was charging so I unplugged it.

 

June 26

2:00 Joe took my temperature. I vaguely remember, but no fever. Praise the Lord. 8:00 Joe says I feel hot but the thermometers read 99°. I feel lousy like I have the flu, but different than the upper respiratory infection. Bones ache deeply. Low back throbbing. Bad headache. Took one Excedrin. This is going to be a rough ride. Joe wants one of the kids to stay home with me. Both want to go to church. Cool. I suggested they take turns.

8:20 Need to try to drink lots of fluids today. Not going to be doing much today. Using the fitbit app to log fluid consumption.

Leviticus 19:18; 1 Kings 20-21

9:00 getting nauceous. Took Rx. Sucking on ginger chew. Tummy hurts.

9:04 Joe calls to let me know the A/C’s are out at church. Nice. Devil sure is fighting overtime. Asked Dez for piece of toast to have something on my stomach. Trouble eating it. Playing wholetones music.

1100 my chest is hurting. I think it might be from heaving but I’m not 100% sure

11:30 dry heaving again

4:49 dry heaving again – I’m actually coughing up phlegm but that’s about it. Sipping on cold water and eating small bites of unsweetened applesauce. It tastes different than I remember. Whole body riddles with deep bone pain. That was the one thing I didn’t want.

5:05 severe pelvic pain comes and goes

 

June 27

4:50 throat hurts. Small sips of cold water seem to help the best. Lips chapped. Slight bloody nose. Whole body stiff and throbbing moderately strong.

5:00 had to take another nauceous pill. Have slightly bloody nose is making me gag causing me to dry heave or cough up phlegm. I know why they suggested the miracle mouthwash now. Your throat hurts horribly from vomiting. Ugh. Sipping cold water. I’m exhausted so I’ll close my eyes momentarily.

8:30 alarm sounds and I’m still very sleepy. Severe sharp stabbing pain in pelvic region. Joe wants me to let him know how I’m doing every couple hours. Teens go to camp this week. The lethargy feels just like when I was first struck by lightning except I have more of mental clarity now than then. Gonna have to figure out how to muster up energy.

1 Kings 22; 2 Chronicles 18; Matthew 16:25: Psalm 91:1

As long as I keep up with the anti nausea medicine I’m not dry heaving or coughing up phlegm. Managed to wash load of towels and load of my clothes out of necessity. Have the trots and didn’t realize it until too late. Bone pain is miserable and making it difficult to get comfortable. Applying heat for few minutes helps a little bit, but it comes right back. Drank 4 oz pomegranate juice which gave me fierce indigestion. Ugh. Able to sit in chair in living room for couple hours before tiring out. Voice little raspy this morning and now I’ve about lost my voice. I sound like a squeaky mouse. Lol. Several family members came to check on me. I enjoyed it as I was able. Able to hold down dinner – leftover fried rice with ground beef added. Only able to eat half the bowl.

Received “Happy Mail” from a fellow Pastor’s wife. Psalm 91 Tshirt and ginger chews. I just told God this morning that I needed more ginger chews.

Thankful for:

1. Happy Mail

2. Feeling a little better

3. Gifted some $ y’day anonymously

4. Teens going to camp this week

 

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