Lightning Survivor Journal Entries 28-30 November 2018

Nov 28

7:00am- woke to slightly bloody nose. Neck is hurting. Chest hurts when I yawn. Broken sleep last night. Woke at 3am not sure why. It’s 33 degrees outside & I’m freezing.

9:53am- still have headache. Please go away!

11:25am- eyes are hurting. Loud noises hurting head. Headache getting worse. Thirsty. Feet freezing (have socks & boots on inside). 

Traumatic brain injury info

https://mayfieldclinic.com/pe-tbi.htm

12:10pm- Christmas play practice went well. Now having Christmas co-op luncheon. It’s amazing how much sound effects the brain. Wearing sunglasses inside to keep headache from becoming migraine. Sitting on sideline until crowd for food subsides. Don’t want to have meltdown.

Friend, Melina, told me she saw a video about someone getting struck by lightning wanted to know if I had that type of scarring. Told no but I do have scar on head though not sure if it’s the entrance or exit wound. Let her feel the indentation.

8:01pm- rt hand going numb & tingling

Lower back is throbbing

Nov 29

1:36 am – my lower back is killing me!  Decided to help with dishes. Now I’m regretting it!! Still have headache but its eased maybe. Missing my hubby. Him & buddy went hunting. 

He’s been such a trooper through all of my ordeal. I’ve been very moody at times and he’s been so gracious most of the time. 

Rt leg hurts, rt hip & thigh ache, low back throbbing, neck hurts, limited turnability in neck

8:18am – woke at 7:30. It’s chilly and hard to get motivated to get up. Neck is throbbing. Rt hip aches & rt leg hurts when I try to sit indian style. 

Bloody nose at 8:15am. Wish I could figure out what’s triggering them. 

Still have a headache.

1:00pm- had to type up biz mtg minutes for church, but had to look up verbiage bc I wasn’t computing how to word it. Took me long time. Brain started feeling squirly and eyes were blurry and tunneling. Joe said he could tell bc my eyes were starting to look glossy.

Nosebleeds after Concussion

You need to get couple of blood test done which include CRP, RF, CBC, BT, CT, INR. That should help.

https://www.practo.com/consult/nosebleed-after-concussion/t

CRP – checks for inflammation

RF – Rheumatoid factor

CBC – Complete blood count which checks overall health

BT – Bleeding time which checks how quickly your blood clots to stop bleeding

CT – cat scan??

INR – International Normalized Ratio 

Test for blood clotting time (for those using blood thinners)

Info on Traumatic Brain Injury

https://mayfieldclinic.com/pe-tbi.htm

https://www.brainline.org/article/what-impact-will-moderate-or-severe-tbi-have-persons-life

9:15pm 

I was sitting on my chair in livingroom trying to relax. All of a sudden my right thumb started burning. I looked at it and it was turning white! It’s burns like crazy & feels like it’s on fire!  I’ve tried rinsing with water. I have not done any cleaning today. I don’t know what to think.

Went over to mom’s for help. Joe at church. Rinsed with cool water. Made me drink glass of water. Still burning. Rinsed some more. Applied aloe vera. Soaked in egg white. Starting to look a little better but still burns. Rinsed in cool water. Soaked in egg white again. Rinsed again. White ash look gone. Not burning like before. Tender to touch. 

Joe came home & checked counters. They’re dry. Joe smelled bleach on some of drinking straws. Possibly my straw had some & didn’t realized it.

Applied Lavender oil to help soothe. 

11:10pm

Hands tingling, headache, neck hurts, exhausted, can’t sleep, low back throbbing 

Nov 30

5:17am woke just before 5am. Center of chest is hurting. Headache. 

6:30am decided to get up since I wasn’t sleeping. Made door draft stopper for front door. Washed load of clothez. 

10:00am- bloody nose

Journal Entries 25-27 November 2018

Nov 25

6:54am- woke the first time at 5am went to rr and back to bed. 

Woke 2nd time at 6:30am. Taking shower was such a chore. Every inch of my chest feels really swollen and throbbing. Head hurts. Thought hot shower would help. I don’t think so…now I’m out of breath and chest feels tighter. Neck aches and sharp pain shoots down back if I move too far in any direction. Might have to ask dr for steroid shot if still hurting by Friday. So tired of hurting all the time. Right now just want to drop my sword and cry for just a while. 🙁

8:00am – I’m gonna have to find $ so I can go back on the propranolol. I’m tired of having headaches twice daily. I don’t like the potential side effects are but until I can figure an alternative I’ll have to take it for now.

Trying to find remedies for yeast overgrowth & balance hormones.

10:30am- Talina tagged me in a post about lightning strike survivors. Made me cry. The article explains what I have trouble explaining.

https://m.ranker.com/list/what-is-being-hit-by-lightning-like/laura-allan?utm_source=facebook&utm_medium=historypost&pgid=642850749204637&utm_campaign=what_happens_to_your_bod

This explains what I have trouble explaining to folks about my lightning strike anomaly. Reading makes me cry all over again. There are some differences in my experience than what’s in the article, but it sure does help explain some of the after effects that I experience on a daily basis. I wish doctors would study it out enough to better help those who do survive.

I do thank the Lord that His mercies allowed me to live to tell the tale and that they are new every morning. Great is His faithfulness. Lamentations 3:22-23

Questions:

How does one replenish the water that was zapped out of you?

11:41 rt foot itches like crazy!

6:15pm – my entire back is throbbing!! 

Both hands and wrists so swollen that my loose bracelet iz making indentations in my skin. 

Nov 26 – no entries

Nov 27

220a Found tiny bugs on floor by bed. Made me paranoid for a while. Can’t sleep

7:00am Took me long time to fall asle. didnt sleep long. Woke when Joe got in bed from working overnight. He was freezing! Couldn’t fall back to sleep.

Arms & hands were numb and tingly. Slight headache. 

9:40am phone interview stressed me out. Lady seemed to be in hurry and didn’t want to give me time to write things down or ask questions to understand what’s going on. Have major headache now and don’t feel too healthy. Indigestion. Center of chest hurts. 

11:00am started washing Dezirae’s linens, but had to wait for her to help exchange them between units. Had Jordon pull her bed away from wall so she could vacuum floor under bed. We put D.E. down. She’s been getting marks on her torso that kind of look like strawberry freckles. They don’t really look like bug bites. Precationary measures don’t hurt either. 

4:30pm – have to take Jordon to basketball practice & play practice. I think I’ll take Dezirae with me to thrift store before we pick up items Joe asked me to get at grocery store. My favorite store is the bargain thrift store where it’s buy it by the lb! 

Found some goodies. Went looking for materials to make door draft stoppers for our house instead of using our clean blankets. Found a dog bed I’m gonna upcycle. Dezirae found a Therapedic electric blanket throw. It’s every soft.  Found a few other things too (material to use for homemade presents, binders, clip board, stainless steel mixing bowl, etc). Spent $15. I think we did pretty good!

7:01pm – Headache all day. Toes feel frozen periodically thru day. Center of chest hurts and feels icy periodically.

8:30 – took shower. That was a chore. Seems lately that most things seems to make me get out of breath. Chest is bothering me.

9:00p – decided to work on blog. Need to add couple more posts.  I found yet another book I started journaling about my lightning strike in. Good thing I’m working on putting it all in one place. It’s too confusing to keep up with all.   

Looking back at even a month after strike – I don’t even remember half of it all. My mind thoughts were sporadic a best. It’s amazing to make sense of it.

10:53p – just discovered I forgot to take meds last night.

Feet are freezing. Thankful for heating pads to warm them up. Neck hurts. Entire back aches. Fingers aches. Center of chest throbbing with sdporadic sharp stabbing pain on left side. Headache (just took migraine pill since others aren’t helping any – oh wait I don’t recall taking any rx pills today. Actually been scatter brained. Started to work on designing postcard invite for church christmas program and ended up finding a website that had christmas programs for free to download. Got 9 or 10 I think plus christmas color pages and activities. Probably saved over $300 for church. Yipee! I love saving every penny I can. 

We wouldn’t have been able to survive this long without God helping me learn to live frugally. I’m enjoying the Proverbs 31 Bible study I’m doing with Dezirae right now. It’s pretty interesting. 

Eyes are hurting. I have brightness all way down & night owl activated on my phone and phone is still too bright. Wish my headache would go away.

Probably should take a Melatonin and pain rx so i can get some shut eye tonight. Fingers aren’t working right…keeping hitting wrong button and habe to use spell correct. Ugh! 

We have busy morning tomorrow. Oh wait I better set my alarm before I forget again dont wantvto wake up late. Need to change battery in key fob. one day I’ll get to it.

11:15 oh, bother. Indigestion has creaped in. Thankful for papaya enzymes.  

1250a Joe & Dezirae went hunting. Got a small doe. Yeah! Meat for house.

Ache all over today. Random muscle twitching. Random muscle cramping in calves and thighs. Itchy skin.  Hands numb and tingly when I awoke.  Feet freezing ice cold for several hours this afternoon. Had to use heating pad couple times today. 

Journal Entries 22- 24 Nov 2018

Nov 22
6:30a – took melatonin around 1:30 bc I was still wide awake.
Woke with rt hip throbbing, low back throbbing, base of neck achs, both ears ringing, chest hurting, hands swollen and achy, stuffy nose.
Took cinnamon rolls out of fridge and set in warm oven to rise. Guys are out hunting. Praying they get a deer or two. Jakob’s bday is today.

Revlation 12:10-11 And I heard a loud voice saying in heaven, Now is come salvation, and strength, and the kingdom of our God, and the power of his Christ: for the accuser of our brethren is cast down, which accused them before our God day and night. And they overcame him by the blood of the Lamb, and by the word of their testimony; and they loved not their lives unto the death.

Thankful that we have the power to overcome any obstacle in our lives. God is so good!

821a Signed up for free video course “Hacking your Healthcare”. Starts December 10th. Its about learning how to work with your doctor to get the healthcare you need.

Dr. Hyman explains how you can use your own doctor (no matter where in the world you live) to harness the power of Functional Medicine and tackle the root causes of chronic disease.

Discover how and why illness occurs and chart a path to holistic health. Don’t wait for the medical system to fix itself—transform your own healthcare, now!

8:50a Thanksgiving tradition…homemade cinnamon rolls for breakfast. Thanking the Lord for bread machines to help me do the tough part. Learning to find ways to make life a little bit easier these days and still enjoy homemade foods. 😊

Homemade Cinnamon Rolls. Yum!

9:00am – took some cinnamon rolls over to mom & dad. Short of breath walking across street to their door.

10:50am – short of breath, chest throbbing, low back & rt hip aching. Have to rest in between items I’m cooking for today (cinnamon rolls, sweet potatoes in crockpot – had help, crescent rolls now rising)
Have already used heating pad on back & chest. Will have to take pain Rx to continue thru rest of day.

10:53pm – had a decent day. Upcyled two of Mom’s potholders for her. I enjoyed doing it. May start doing as hobby – sewing. Currently working on making coasters for Christmas. Learned I can make broth from neck and gibblets. I used to cook them up for dog. Now can do both.
Symptoms
Both legs hurting, rt hip & upper thigh throbbing, low back aches, feet cold, head & skin itchy some, rt wrist & arm swollen and achy, base of neck aches – if turn too far sends shooting pain down torso, periodic ringing in ears.

Nov 23

8:30am – fell asleep sometime after midnight woke one in the night I think.
I’m hurting all over. Rt elbow throbbing. Rt hand and arm swollen to elbow and throbbing. Fingers freezing. Neck & back aches. Neck feel swollen especially on rt side. Low back aches.

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11:00am- went to help my Mom make phone call reminders for her work so it wouldn’t take so long. Had some trouble bc I kept mixing up numbers, but managed to make half calls while she did other half.

12:10pm – took Mom the pot holders I recovered for her and downloaded cc cleaner on her computer.

10:30pm – spent most of afternoon with two younger kids organizing & putting up Christmas decorations.
Symptoms
Back is throbbing. Left elbow is swollen and throbbing. Fingers & toes frozen. Muscles in legs cramping. Neck and shoulders ache. If I bend neck too far it sends sharp pain down back. Headache off and on. If I feel headache starting and start to suck on a peppermint it seems to ease it some.  

Nov 24
3:30am – woke at 3:00am. Guys going hunting. I’m wide awake presently. Rt hip & rt elbow throbbing horribly! Face feels swollen. Chest aches & feels bruised. 
7:00 woke again at 7am to hearing what I thought was a vibrating phone. I can’t find where it was comimg from. Ugh!  Now out of breath.
Both hands numb and tingly. Chest hurts. Upper back aches. Neck aches. Slight headache. Wish whatever keeps buzzing every 5 minutes would stop!
9:44am -low back hurting. Had to sit and rest. Chilling sensation at base of neck down spine and spreading through upper back. Oh, how I wish a dr or someone could ecplain this to me!
If I could only figure out simple exercises that would cause me undue pain and be beneficial for my increasing stiffness. 

1050a not saying I have this but exercises may help alleviate my increasing neck pain and other upper extremities pains and symptoms:
https://www.medicalnewstoday.com/articles/172015.php
Neck stretch exercises can help to moderate the impact of the condition and alleviate pain or feelings of stiffness. However, they will not cure cervical spondylosis.

8:28pm- I’ve had to ice down my elbow twice. Swelling and pain a bit much. If I do anything at all, it swells back up like I’ve sprained it.
10:21pm – it’s 70 something degress in house & I’m freezing! Slight headeache. No nap & wide awake. Fingers and hands ache. Rt elbow throbbing. Feet freezing. Rt hip aches. Neck aches. Skin randomly itchy.

Journal Entries 19-21 Nov 2018

Nov 19

1023a Rough night. Didn’t sleep well…hurting a lot. Rt hip throbbing. Upper back aches. Lower back throbbing. Toes cold. Eyes watery. Finger tips cold. Center of chest aches. Base of neck aches. Slight headache. Stomach innards ache.

1131p Whole day thrown off. Decided to change sheets but couldn’t find top sheet. Spent few hours trying to locate it…never did. Had to improvise. Did manage to get window covering up with mom & Dezirae’s help. Some how cut my pinky finger and don’t remember how I did it. It hurts like dickens right now. Did too much today hurting all over for it. I’m exhausted. Mayb3 tonight be better for sleeping.

10:43 Jakob called to chat. Looking forward to seeing him for Thanksgiving.

Nov 20

6:30am woke with headache. Seems as if I’m gonna have to get migraine rx filled again. Can’t really afford it right now. Headaches regular not helping either. 

10:30 TBI Support Group Session – Group of college students from South Alabama come once a month to help & learn

Minute to win it (puzzles of cereal boxes)

* I was thinking this ought to be interesting. I know I won’t win because I can’t even suduko right now. I got cocoa puffs puzzle. It was a struggle but I was able to get 3/4 of puzzle done in a minute. They deemed me winner because I had most done. Who knew?! 

Left right center game

*This game was actually fun. After two rounds, I had a bad headache and didn’t really want to play anymore.

Push the yam

*This one not only was just silly but I think it also tests hand eye coordination. I won!!


Leisure Studies for Occupational therapy (Misty) *She told me what it was, but I’ve already forgotten


ASCCA camp off hwy 280 Must have buddy
Spoke with Susie (person in charge of South Alabama students) They come out to help one a month. Had good conversation. She seemed very intrigued with my rare situation. Seemed upset that my drs only tell me to live every day life when I ask for therapy. 

Physical therapy /neuropsychologyBe my own advocate. Tell dr that I need pt because I’ve lost strength and am struggling to get it back. 


2:00 had melt down when I got home after discovering unexpected charge on our bank account. I struggle with remembering dates, appointments, etc. When unexpected events occur, it throws me off my game for a bit.  Have a cry and then try to find positives. Lady at bank was very understanding and helped walk me through it all.
11:00pm – trouble with muscles cramping and spazing off an on today. Chest hurting and swollen.  Headache. Took muscle relaxer & pain rx. Also my pm supplements. Cuddling up with heating pad. Hopefully, I’ll get decent amount of sleep tonight.

Nov 21

8:30 fell asleep after midnight. A whole muscle relaxer knocks me out. I don’t like taking them bc of the bad dreams that come with it. Dreamt I was fighting for my life…so though I slept that long it wasn’t very restful & woke up tired. Hands swollen and achy, headache…

9:00am need to cook pumpkin pie today. Have to find easy way to make pie crust without all the upper body work. Found website that gave instructions on how to make in bread maker. Sweet.https

https://www.breadmakermachines.com/recipes/pie-crust-recipe/

It took 30 minutes til paddle stopped (I know bc I set stop watch to know how long to make notes for remembering later). Now refrigerating for 30 minutes or so. 

1:35pm – Mom called to see if I had any cool whip for tomorrow. Oh, no! I completely forgot! Asked to borrow her car to go get some – can’t have pumpkin pie without cool whip. Jakob’s bday is tomorrow too. I’m making pineapple upside down cake. I remember he likes pineapples. 😊Wish I could figure out how to export my journal logs from phone – sure would make life simpler for updating my blog/website.

Symptoms: have had headache most of day. Chewing gum helps ease it. 

8:30pm Jakob made it home from college. Glad he able to come home for holidays. 

9:02pm I’m wiped but wide awake. Made cinnamon rolls for tomorrow morning. Thank the Lord for bread makers. Made 2 pumpkin pies. Used bread maker to make pie crusts. Made 6 homemade coasters for Christmas presents. Dezirae found pillow cases I was suppose to fix for a friend, but completely forgot about them. So I sewed them this evening. Most of activited had to rest in between.

Symptoms:Center of chest throbbing & chilly hot sensation. Shoulders hurt. Slight headache most of day. Muscle cramps in legs periodically today. Fingers ache. Eyes feel blurry. Feet feel cold even though I have socks on. Neck hurts. 

Think On These Things: TRUE

Philippians 4:7-8 –  And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus. Finally, brethren, whatsoever things are true, whatsoever things are honest, whatsoever things are just, whatsoever things are pure, whatsoever things are lovely, whatsoever things are of good report; if there be any virtue, and if there be any praise, think on these things.

Let’s begin with verse 7…

And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus. Philippians 4:7

The Peace of God is a quiet rest that dwells in our soul.  This peace keeps our hearts and minds focused on Christ.  It is that peace that causes no anxiety or excessive care about things of this world when we commit wholly to the Lord.

Verse 8 gives us a list of things we are to keep our minds and hearts focused upon. 

Finally, brethren, whatsoever things are true, whatsoever things are honest, whatsoever things are just, whatsoever things are pure, whatsoever things are lovely, whatsoever things are of good report; if there be any virtue, and if there be any praise, think on these things. Philippians 4:8

The first one is – TRUE.

The King James Dictionary defines TRUE as being in accordance with the actual state of things; conformable to fact; as a true relation or narration; a true history; genuine; pure; real; not counterfeit.

We can only have an effective personal relationship with Christ as a believer if we focus our eyes upon Christ.  We do this through prayer, meditating on Scripture, and submitting our thoughts and imaginations to Christ.  We are encouraged to yield every thought to Christ (Romans 6:13, 2 Corinthians 10:5).   Let our minds dwell on Christ and not allow our hearts to control us.

Righteous living depends on keeping our minds on Christ.

When anxious thoughts begin to flood our minds, we should immediately STOP what we are doing, THINK “Is this pleasing Christ?”, and PRAY asking for God’s help.  Yet too often we allow the anxious and fretful thoughts to take over and bog us down.

Let’s choose to focus our minds on things that are true.  Forsake the lies of the devil and allow the Lord to control our thoughts. 

Fill your mind with the truth of God’s Word.

Zacchaeus’ Change

Luke 19:1-5
​ And Jesus entered and passed through Jericho. And, behold, there was a man named Zacchaeus, which was the chief among the publicans, and he was rich. And he sought to see Jesus who he was; and could not for the press, because he was little of stature. And he ran before, and climbed up into a sycomore tree to see him: for he was to pass that way. And when Jesus came to the place, he looked up, and saw him, and said unto him, Zacchaeus, make haste, and come down; for to day I must abide at thy house.

Zacchaeus was a tax collector. The Roman Empire had imposed steep taxes on everyone. Tax collectors were some of the most unfavorable people in Israel.

Jews who chose to work for the Romans were considered turncoats. This made Zacchaeus a very unliked man. In every society, there are people who are unloved or deemed untouchable because of their behavior or lifestyle.

In spite of his disposition, Jesus loved Zacchaeus. Jesus loves you. Jesus loved the whole world enough to give His life that we may be able to go to heaven with Him one day.

For God so loved the world, that He gave His only begotten Son, that whosoever believeth in him so not perish, but have everlasting life. John 3:16

Zacchaeus heard that Jesus was coming through Jericho. He wanted to see what the fuss was all about. But because of his short stature, he had to climb a tree to see above the crowds.

Little did he know that he would not only meet Jesus, but Jesus would also be coming to his house. What a difference it made in his life the day he met the Saviour!

Have you met the Saviour? If so, has your faith caused a change? If not, what changes do you need to make?

I will ever be grateful for the day that Jesus entered my life and changed it forever. Thankful for His redeeming grace.

Journal Entries 16-18 Nov 2018

Nov 16

Well today didn’t exactly go as planned.

I intended on canning pumpkin to make pies, cakes, etc for the holidays & beyond.
Around 8:30am, I started cutting up the pumpkin, but after cutting off top and 3 chunks I started hurting horribly. Had to ask my daughter to help cut rest of pumpkin up in chunks.

Prepped jars, lids, water, & supplies. Got pumkins cubes in jars and pressure canner wouldn’t seal & leaking water. Ugh!

Ended up calling my mom for advise. We ended up changing out every possible part. All the while praying for help.

It’s 11:55 pm. I still haven’t figured out the problem. I’m beyond pain, exhausted, ready for bed. Hopefully, I’ll get a decent amount of sleep.

Did I mention that both kids are sick too? Thankfully, one is on the mends while the other is just coming down with it.

Thankful tomorrow is another day & the Lord’s mercies are new every morning.

Finally got it to seal after turning lid around, but rocker still won’t jiggle.  I’m perplexed, beyond hurting, exhausted, over it all. Decided to give up for night. Lid on canner got stuck and wouldn’t come off!!  Ugh!! After following internet suggestions to no avail, I ended up unscrewing one handle to get lid off.  My entire body is throbbing!!! Center of chest hurts like the dickens. Been using pain rub all day & taking more pain rx than normal. Stomach muscles hurt deeply. Back throbbing. Stuffy nose. Toes clod (cold).


Nov 17 – no entry

Nov 18

1202a Took me all day to make sweet potatoe pie & pumpkin dump cake for tomorrow. Bulletin almost finished. Waiting on proof. Have to finish printing in morning. Lord we have needs please supply. Legs are throbbing. Stomach innards aching off and on all day. Hands ache. Rash on left hand worse. Feet cold. Using heating pad to warm them up. Extremely tired. Skin dry & itchy. Female itch bothersome.

1120a Having neck issues. Hurts to turn too far either way. Bones pop easily. Constant pain at base of neck. Swollen lymph node on sides of neck. Dry skin. Headache. T rouble focusing especially on faster tempo song. Stomach inards hurt. 

251p Multitasking  is nearly impossible. Can’t hsrdly (hardly) see straight. 

3:00 feel like I’m gonna crash. Need to lay down for a while.

6:24 that was long nap. Woke with headache & cold.

11:10p chest hurts with sporadic icy sensation. Feet cold. Pain at base of neck worse. exhausted. Fingers tingly. 

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