Lighting Survivor Journal Entries 10-12 Dec 2018

Dec 10

6:32p doing too much today. Can feel my face turning red. Walmart doesn’t have enough wheelchairs. Managed to walk behind buggy but it was a bit much. I hurt all over. Headache. Skin is flushing. Chilling sensation at base of neck. Hands swollen. Brain foggy. Face hurts. Need to rest quite a while. 

Sipping peppermint tea to help with easing pain. 

8:00p so congested and face hurts. Decided to do nasal cleanse. Now my nasal passages and eyes are burning!!!! 

9.24p It’s funny when your son actually asks for coal for Christmas (not because he was naughty). LOL!

Dec 11

12:26a still wide awake. Left leg muscles cramping. Neck hurts. Toes cold. Just read disheartening email that Jordon’s basketball season has been cancelled. He’s gonna be heartbroken. I just wanna cry that’s the biggest reason we chose that co-op. I’ll have to have Joe call to see what’s up. 

11:45a – attended funeral today. Met another person that was struck by lightning (Pastor Williams). I knew he looked familiar but not know why. He was Pastor in Ocala Fl while my Dad was in Dunnellon, Fl. He was struck while talking on phone (Shockley).  

1:04p unexpected stinging sharp pain in lip like it was being tazzed. Ugh!

6:15p wasn’t feeling well at store. Had to lay down for a while ended up sleeping  for about 2 hours

7:00p decided to string popcorn for tree tonight…tree needs to be finished.  Only able to get bout dozen pieces on before back started throbbing and stinging. Dezirae took over for a while.

10:30 decided to clean up kitchen a little and work on blog. Back began feeling icy. Rt ear hurts. Sniffles. Headache. Legs cramping. Face hurts. Taking antibiotics for sinus infection – not that I really want to but I do want to feel better than I have been. Tired but still awake.

Dec 12

6:30a – woke but don’t want to get up or out from under covers. I’m freezing! 

Hands swollen and achy. Eyes blurry. Toes freezing. Legs cramping. Loud noises bothersome. Bright lights bothersome. I carry sunglasses everywhere now to give eyes a break.

10:53a – at Dr with son for blackout episodes. Bp fine. Temp fine. Did EKG. EKG looks gorgeous. Bloodwork.

11:12a- center of chest hurting. Lights bright & bothersome.

*Nurse’s aunt was struck by lightning several years ago. She has no lasting side effects.

Referral for MRI & echocardiogram. Referral apt to pediatric cardiologist.

That’s enough to wear anyone out. He has to limit sports activity & no driving. Bummer.

7:00p – made batch of Grinch Christmas cookies. We were invited to friends home for lunch after The Nutcracker on Friday. I’m looking forward to it. 

10:00p- ‘twas gonna diffuse lavendar, but cord to diffuser missing. Made kids help look for it – after a few moments told them to go to bed and we’ll look for it in morning. I can feel my nerves tensing bc I’m upset not being able to use diffuser. Ugh! 

Gonna use pain roller blend on chest. Back is throbbing too. 

10:36p – I’m a hurting for sure too much activity today. Center of chest throbbing. Hands swollen and achy. Neck hurts to move. I’ve taken my pain rx (thankfully I have a spare in purse bc I’m not sure where script is I just got filled…strange) & melatonin. Hopefully it’ll help me go to sleep. I think to myself though I may be suffering so there are others worse off than me. Haven’t done much research lately. My schedule is all out of whack and it’s throwing me off.

I think to myself I see eyes of blue and red roses too what a wonderful world. Thank you Lord for another day. Please heal my son. My heart bleeds for him as he is so disappointed in not being able to play basketball this year. I just want to cry for him. Thank you Lord for directing our paths even when we don’t understand what’s going on.

Lightning Survivor Journal Entries 7-9 Dec 2018

Dec 7

7:00am -Joe scared me awake around 6:30. Woke me up from bad dream…

Chest hurts, rt side cramping, headache (wish I could get rid of them for good). Muscles twitching in left side.

11:30a- got stressed over typing up Dezirae’s Bible quiz & both kids needing my help at the same time. Needed to pick up my rx at pharmacy. Told Joe I needed some therapy & I’m going to the Thrift store. Found a few Christmas presents. Rx ended up being more than I expected. Back home before Joe had to leave for work. 

1:42p- getting chilling sensation at base of brain down back of neck & left ear – second time today

11:50p- had a decent day not too much pain unless I was doing too much. Vaccumed under part of bed. Had to have Jordon move bed back even though it was on wheels bc my back was hurting. Hurt my rt arm trying to reach object under bed. Had to have Dezirae get it out for me. Frustrating bc I used to be able to rearrange & deep clean my room in one day. Not anymore. It’s been over a year since my room was deep cleaned. Now I have to do it in spurts. Oh bother.

Headache.  Stuffy nose. Muscles randomly twitching in legs. Skin itches. Eyes watery. Tailbone just popped. Low back aches. Rt hip hurts. Feet freezing though I have socks on. Neck aches. Upper back stinging needle pain. Wide awake. Ringing in ears.

Dec 8

12:11a- stabbing pain in center of rt thigh. I need a new doctor specialist. Need one that cares enough to learn with me or try to research answers.

1:57 still wide awake

https://emedicine.medscape.com/article/433682-treatment#d9

9:20a- so much pain!!! Rt arm & hand numb but tingly, swollen hands & pain. Upper back stinging needle pain. Low back throbbing. Feet tingly and pain. Upper arms ache. Stuffy nose..trouble breathing. It’s raining outside so I’m sure that’s part of it. At least my toes are warm. Oh, the pain.

2:27p neck is all knotted and hurting. Headache won’t go away. Bp is 100/73 at least that’s good. Last time I remember seeing it that low was before children. Yes! 

11:30p turned in bed caused extreme painful cramp in right side couldn’t move for a few minutes

Dec 9

8:00a woke with headache. Neck hurts to turn. Tired of headaches

9:30- having trouble playing Christmas hymns today. They’re gonna be the death of me so frustrating. Lord, please send us a pianist that can play better than me. Eyes blurry. Toes freezing. 

2:00p took kids to Bayou la Batre Christmas parade. Went into store while waiting for parade to start. Parade was kind of cute and short. Been a rainy month so all others had been rained out.

3:30p – sharp stabbing pain in center of chest. Tensed up and wanted to hunch over from the pain but knew I couldn’t bc iz driving. Oh in need of neck massage. Neck muscles so tight shoots pain down neck and body. I’m so tired.

9:18p – center of chest stabbing pain. Chilling sensation at base of neck and shoulders area.

Lightning Survivor Journal Entries 4-6 Dec 2018

Dec 4

10:00 tbi mtg (therapeutic recreation svc- Suzie , Bunny, Misty)

Played apples 2 apples

1:00p – recvd upsetting letter from mtg co. Joe trying to get me to make decision about going to Jackson with him. It’s stressing me out. 

2:11p – my brain hurts. I’m exhausted. 

2:50p – weird icy sensation inside both ears and head

6:22p- its 72 degrees inside but I’m freezing!!! Not feeling very well.

10:00p – Joe came home gave me kiss said that I feel warm and look like I don’t feel good. Told him I didn’t.

Dec 5

10:30a- not feeling well. Muscles twitching randomly thru body. Fingers throb and tingly. Legs ache.

If I turn too far to the right or left too far my sides cramp up painfully.

1:00p- Joe was sweet and stopped by store on his way home from hunting. He got sprite and ramen soup for me. He got a deer. Yeah!

7:50pm – starting to feel like I’m freezing again!!! Must have a virus or something. Not done much of anything today.  Goose bumps everywhere. I’m still in my pj pants, fuzzy socks, & a sweater – still freezing.

10:23pm – painful chilling sensation in center of chest – weird bc I’ve done nothing today. Second thought the only productive thing I’ve done was print and cut letters for bulletin board.

Decided to post to blog today. Every time I work on it my eyes get blurry and I get a headache.

I have mixed emotions looking back. I’m glad I heed advise to journal my days bc I don’t remember alot of things. I’m sad because I wish I could remember without the journal. I’m thankful for the support my family has been to me. 

Current medications/supplements:

Propranolol, Zyrtec, Calcium, Magnesium, Probiotic, Turmeric, Naproxen, Flexeril, Melatonin, Edarbyclor, Alpha Lipoc Acid, B Complex, MSM, B12 melt tabs.

11:33p- still awake-even after taking Melatonin. Center of chest throbbing. Headache. Body aches. Fingers hurts. Low back aches. Rt hip aches. Shoulders hurt. Trouble getting comfortable.

Dec 6

8:48a – rough night woke every couple hours. Dream of lost things…last lost thing was my keys. I just had them to open trunk of car, but when I was done they were no where to be found!

Joe woke me up at 5am because he couldn’t find his uniform pants. I wrote note and put it by coffee pot. He didn’t see it yet. Didn’t know it’d take an hour for them to dry. Ugh! So much for trying to be nice. I think he thanked me for trying to take care of him.

Woke to feeling like my skin was crawling with ants on top of head. Not a good feeling. Whole body stiff and hurts. Neck aches. Headache. Stuffy nose. Face hurts. Muscles in legs twitching.

5:00p asked family to help with decor at church. Joe helped me with taking bulletin board down. He also help me put up red foil for backdrop. Traced manger silhouette onto poster board and cut it out. Bulletin board finished just in time for church to start.

7:23p- I am hurting!! Center of chest throbbing pain with center tingling. Neck throbbing and tense. Eyes blurry. Brain foggy.  Chest feeling icy. Exhausted. 

10:43pm – skin itches all over almost feels like ants crawling all over me.  I hurt all over

Lightning Survivor Journal Entries 1-3 Dec 2018

Dec 1

7:45am – couldn’t fall asleep until after 2am. Woke at 7am thinking I was late.

11:15am – I’m exhausted. Can’t keep my eyes open. Gonna lay down for a bit.

12:45pm fell asleep for 1.5 hours

6:00pm – made dinner (cheesy beef empanadas) my back is throbbin like a toothache now. Joe cooked the veggie.  Had trouble grabbing things & ended up dropping things. Ugh!

6:45pm – nosebleed

9:30pm finally finished bulletins for tomorrow. Head hurts. Had to keep taking breaks bc my eyes felt crossing

9:51pm decided to change nail color on toes. Had trouble reaching toes to do so. Toes are freezing! Lower back still throbbing. Need to figure out stretch exercises to strength core.  Tire but wide awake. 

10:20pm cramping in left feett & toes ouch! 

10:34pm crampung in rt butt cheek area. Tingling sensation in hands. 

https://en.m.wikipedia.org/wiki/Lightning_injuriesu

Dec 2

7:09am very rough night…up every hour or so. So tired. Ears ringing. Nose itches. Neck hurts. Hands tingly. Eyes crusty. In bad mood…not good today is church. 

11:00am getting hugs & kisses from the kids at church brighten my day especially when one of them says, “You’re my favorite.”  

2:49pm musclez twitching in buttocks area. Toes freezing

3:35pm decided to make majority of Christmas gifts this year. Neighbor gave me a large bag of materials. Started with making coasters. I have ring marks on my table. Like having ice in my cold drinks. To combat I’m making coasters. Decided to make them into presents for Christmas. Have made 4 sets so far.  Figured out how to recover potholders. Now making my Mom matching potholders

Dec 3

12:55am still awake. I’m tired of journaling my symptoms but I know I need to. Headache. Rt hip hurts. Periodic muscles twitching throughout body. Need some sleep. Low back hurting.    

2:30am woke in a sweat. Had bad dream. Head hurts.

8:00am woke every couple hours. Bad dreams. Low back throbbing. Hands ache and tingly. Eyes blurry. Neck throbbing.

10:00 went to try to see white pelicans at langan park. It was a chore but worth every step. Upper back stinging needle pain. Rt hip hurts. Low back aches. Legs feel heavy.  Slight headache.

11:35pm feet went numb. Low back throbbing. head hurts. Fingers hurt. Legs ache.

White Pelicans at Langan Park 2018

Praise Ye the Lord

Psalms 149:1
Praise ye the Lord. Sing unto the Lord a new song, and his praise in the congregation of saints.

Psalms 150:6
Let every thing that hath breath praise the Lord. Praise ye the Lord.

In every circumstance, we should praise the Lord. There is always something for which to be grateful.

How should He be praised?
With our hearts, mouths, and every instrument (Psalm 95:1; Ephesians 5:19; Psalm 71:23; Psalm 33:2).

When should He be praised?
Continually (Psalm 34:1). We should praise the Lord in all circumstances not just on Sunday morning.

Where should He be praise? Everywhere (Psalm 150)

Why should He be praised? For His excellent greatness and mighty power (Deut. 3:24)

Who should praise Him?
Everyone that breathes (Psalms 100:1; 150:6).

Praising the Lord helps us to re-center our thoughts and minds onto God. It helps us to set aside the worries and cares of this life. It helps remind us of what God has done for us. It helps to strengthen our faith.

What are you praising God for today?

Lightning Survivor Journal Entries 28-30 November 2018

Nov 28

7:00am- woke to slightly bloody nose. Neck is hurting. Chest hurts when I yawn. Broken sleep last night. Woke at 3am not sure why. It’s 33 degrees outside & I’m freezing.

9:53am- still have headache. Please go away!

11:25am- eyes are hurting. Loud noises hurting head. Headache getting worse. Thirsty. Feet freezing (have socks & boots on inside). 

Traumatic brain injury info

https://mayfieldclinic.com/pe-tbi.htm

12:10pm- Christmas play practice went well. Now having Christmas co-op luncheon. It’s amazing how much sound effects the brain. Wearing sunglasses inside to keep headache from becoming migraine. Sitting on sideline until crowd for food subsides. Don’t want to have meltdown.

Friend, Melina, told me she saw a video about someone getting struck by lightning wanted to know if I had that type of scarring. Told no but I do have scar on head though not sure if it’s the entrance or exit wound. Let her feel the indentation.

8:01pm- rt hand going numb & tingling

Lower back is throbbing

Nov 29

1:36 am – my lower back is killing me!  Decided to help with dishes. Now I’m regretting it!! Still have headache but its eased maybe. Missing my hubby. Him & buddy went hunting. 

He’s been such a trooper through all of my ordeal. I’ve been very moody at times and he’s been so gracious most of the time. 

Rt leg hurts, rt hip & thigh ache, low back throbbing, neck hurts, limited turnability in neck

8:18am – woke at 7:30. It’s chilly and hard to get motivated to get up. Neck is throbbing. Rt hip aches & rt leg hurts when I try to sit indian style. 

Bloody nose at 8:15am. Wish I could figure out what’s triggering them. 

Still have a headache.

1:00pm- had to type up biz mtg minutes for church, but had to look up verbiage bc I wasn’t computing how to word it. Took me long time. Brain started feeling squirly and eyes were blurry and tunneling. Joe said he could tell bc my eyes were starting to look glossy.

Nosebleeds after Concussion

You need to get couple of blood test done which include CRP, RF, CBC, BT, CT, INR. That should help.

https://www.practo.com/consult/nosebleed-after-concussion/t

CRP – checks for inflammation

RF – Rheumatoid factor

CBC – Complete blood count which checks overall health

BT – Bleeding time which checks how quickly your blood clots to stop bleeding

CT – cat scan??

INR – International Normalized Ratio 

Test for blood clotting time (for those using blood thinners)

Info on Traumatic Brain Injury

https://mayfieldclinic.com/pe-tbi.htm

https://www.brainline.org/article/what-impact-will-moderate-or-severe-tbi-have-persons-life

9:15pm 

I was sitting on my chair in livingroom trying to relax. All of a sudden my right thumb started burning. I looked at it and it was turning white! It’s burns like crazy & feels like it’s on fire!  I’ve tried rinsing with water. I have not done any cleaning today. I don’t know what to think.

Went over to mom’s for help. Joe at church. Rinsed with cool water. Made me drink glass of water. Still burning. Rinsed some more. Applied aloe vera. Soaked in egg white. Starting to look a little better but still burns. Rinsed in cool water. Soaked in egg white again. Rinsed again. White ash look gone. Not burning like before. Tender to touch. 

Joe came home & checked counters. They’re dry. Joe smelled bleach on some of drinking straws. Possibly my straw had some & didn’t realized it.

Applied Lavender oil to help soothe. 

11:10pm

Hands tingling, headache, neck hurts, exhausted, can’t sleep, low back throbbing 

Nov 30

5:17am woke just before 5am. Center of chest is hurting. Headache. 

6:30am decided to get up since I wasn’t sleeping. Made door draft stopper for front door. Washed load of clothez. 

10:00am- bloody nose

Journal Entries 25-27 November 2018

Nov 25

6:54am- woke the first time at 5am went to rr and back to bed. 

Woke 2nd time at 6:30am. Taking shower was such a chore. Every inch of my chest feels really swollen and throbbing. Head hurts. Thought hot shower would help. I don’t think so…now I’m out of breath and chest feels tighter. Neck aches and sharp pain shoots down back if I move too far in any direction. Might have to ask dr for steroid shot if still hurting by Friday. So tired of hurting all the time. Right now just want to drop my sword and cry for just a while. 🙁

8:00am – I’m gonna have to find $ so I can go back on the propranolol. I’m tired of having headaches twice daily. I don’t like the potential side effects are but until I can figure an alternative I’ll have to take it for now.

Trying to find remedies for yeast overgrowth & balance hormones.

10:30am- Talina tagged me in a post about lightning strike survivors. Made me cry. The article explains what I have trouble explaining.

https://m.ranker.com/list/what-is-being-hit-by-lightning-like/laura-allan?utm_source=facebook&utm_medium=historypost&pgid=642850749204637&utm_campaign=what_happens_to_your_bod

This explains what I have trouble explaining to folks about my lightning strike anomaly. Reading makes me cry all over again. There are some differences in my experience than what’s in the article, but it sure does help explain some of the after effects that I experience on a daily basis. I wish doctors would study it out enough to better help those who do survive.

I do thank the Lord that His mercies allowed me to live to tell the tale and that they are new every morning. Great is His faithfulness. Lamentations 3:22-23

Questions:

How does one replenish the water that was zapped out of you?

11:41 rt foot itches like crazy!

6:15pm – my entire back is throbbing!! 

Both hands and wrists so swollen that my loose bracelet iz making indentations in my skin. 

Nov 26 – no entries

Nov 27

220a Found tiny bugs on floor by bed. Made me paranoid for a while. Can’t sleep

7:00am Took me long time to fall asle. didnt sleep long. Woke when Joe got in bed from working overnight. He was freezing! Couldn’t fall back to sleep.

Arms & hands were numb and tingly. Slight headache. 

9:40am phone interview stressed me out. Lady seemed to be in hurry and didn’t want to give me time to write things down or ask questions to understand what’s going on. Have major headache now and don’t feel too healthy. Indigestion. Center of chest hurts. 

11:00am started washing Dezirae’s linens, but had to wait for her to help exchange them between units. Had Jordon pull her bed away from wall so she could vacuum floor under bed. We put D.E. down. She’s been getting marks on her torso that kind of look like strawberry freckles. They don’t really look like bug bites. Precationary measures don’t hurt either. 

4:30pm – have to take Jordon to basketball practice & play practice. I think I’ll take Dezirae with me to thrift store before we pick up items Joe asked me to get at grocery store. My favorite store is the bargain thrift store where it’s buy it by the lb! 

Found some goodies. Went looking for materials to make door draft stoppers for our house instead of using our clean blankets. Found a dog bed I’m gonna upcycle. Dezirae found a Therapedic electric blanket throw. It’s every soft.  Found a few other things too (material to use for homemade presents, binders, clip board, stainless steel mixing bowl, etc). Spent $15. I think we did pretty good!

7:01pm – Headache all day. Toes feel frozen periodically thru day. Center of chest hurts and feels icy periodically.

8:30 – took shower. That was a chore. Seems lately that most things seems to make me get out of breath. Chest is bothering me.

9:00p – decided to work on blog. Need to add couple more posts.  I found yet another book I started journaling about my lightning strike in. Good thing I’m working on putting it all in one place. It’s too confusing to keep up with all.   

Looking back at even a month after strike – I don’t even remember half of it all. My mind thoughts were sporadic a best. It’s amazing to make sense of it.

10:53p – just discovered I forgot to take meds last night.

Feet are freezing. Thankful for heating pads to warm them up. Neck hurts. Entire back aches. Fingers aches. Center of chest throbbing with sdporadic sharp stabbing pain on left side. Headache (just took migraine pill since others aren’t helping any – oh wait I don’t recall taking any rx pills today. Actually been scatter brained. Started to work on designing postcard invite for church christmas program and ended up finding a website that had christmas programs for free to download. Got 9 or 10 I think plus christmas color pages and activities. Probably saved over $300 for church. Yipee! I love saving every penny I can. 

We wouldn’t have been able to survive this long without God helping me learn to live frugally. I’m enjoying the Proverbs 31 Bible study I’m doing with Dezirae right now. It’s pretty interesting. 

Eyes are hurting. I have brightness all way down & night owl activated on my phone and phone is still too bright. Wish my headache would go away.

Probably should take a Melatonin and pain rx so i can get some shut eye tonight. Fingers aren’t working right…keeping hitting wrong button and habe to use spell correct. Ugh! 

We have busy morning tomorrow. Oh wait I better set my alarm before I forget again dont wantvto wake up late. Need to change battery in key fob. one day I’ll get to it.

11:15 oh, bother. Indigestion has creaped in. Thankful for papaya enzymes.  

1250a Joe & Dezirae went hunting. Got a small doe. Yeah! Meat for house.

Ache all over today. Random muscle twitching. Random muscle cramping in calves and thighs. Itchy skin.  Hands numb and tingly when I awoke.  Feet freezing ice cold for several hours this afternoon. Had to use heating pad couple times today. 

Journal Entries 22- 24 Nov 2018

Nov 22
6:30a – took melatonin around 1:30 bc I was still wide awake.
Woke with rt hip throbbing, low back throbbing, base of neck achs, both ears ringing, chest hurting, hands swollen and achy, stuffy nose.
Took cinnamon rolls out of fridge and set in warm oven to rise. Guys are out hunting. Praying they get a deer or two. Jakob’s bday is today.

Revlation 12:10-11 And I heard a loud voice saying in heaven, Now is come salvation, and strength, and the kingdom of our God, and the power of his Christ: for the accuser of our brethren is cast down, which accused them before our God day and night. And they overcame him by the blood of the Lamb, and by the word of their testimony; and they loved not their lives unto the death.

Thankful that we have the power to overcome any obstacle in our lives. God is so good!

821a Signed up for free video course “Hacking your Healthcare”. Starts December 10th. Its about learning how to work with your doctor to get the healthcare you need.

Dr. Hyman explains how you can use your own doctor (no matter where in the world you live) to harness the power of Functional Medicine and tackle the root causes of chronic disease.

Discover how and why illness occurs and chart a path to holistic health. Don’t wait for the medical system to fix itself—transform your own healthcare, now!

8:50a Thanksgiving tradition…homemade cinnamon rolls for breakfast. Thanking the Lord for bread machines to help me do the tough part. Learning to find ways to make life a little bit easier these days and still enjoy homemade foods. 😊

Homemade Cinnamon Rolls. Yum!

9:00am – took some cinnamon rolls over to mom & dad. Short of breath walking across street to their door.

10:50am – short of breath, chest throbbing, low back & rt hip aching. Have to rest in between items I’m cooking for today (cinnamon rolls, sweet potatoes in crockpot – had help, crescent rolls now rising)
Have already used heating pad on back & chest. Will have to take pain Rx to continue thru rest of day.

10:53pm – had a decent day. Upcyled two of Mom’s potholders for her. I enjoyed doing it. May start doing as hobby – sewing. Currently working on making coasters for Christmas. Learned I can make broth from neck and gibblets. I used to cook them up for dog. Now can do both.
Symptoms
Both legs hurting, rt hip & upper thigh throbbing, low back aches, feet cold, head & skin itchy some, rt wrist & arm swollen and achy, base of neck aches – if turn too far sends shooting pain down torso, periodic ringing in ears.

Nov 23

8:30am – fell asleep sometime after midnight woke one in the night I think.
I’m hurting all over. Rt elbow throbbing. Rt hand and arm swollen to elbow and throbbing. Fingers freezing. Neck & back aches. Neck feel swollen especially on rt side. Low back aches.

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11:00am- went to help my Mom make phone call reminders for her work so it wouldn’t take so long. Had some trouble bc I kept mixing up numbers, but managed to make half calls while she did other half.

12:10pm – took Mom the pot holders I recovered for her and downloaded cc cleaner on her computer.

10:30pm – spent most of afternoon with two younger kids organizing & putting up Christmas decorations.
Symptoms
Back is throbbing. Left elbow is swollen and throbbing. Fingers & toes frozen. Muscles in legs cramping. Neck and shoulders ache. If I bend neck too far it sends sharp pain down back. Headache off and on. If I feel headache starting and start to suck on a peppermint it seems to ease it some.  

Nov 24
3:30am – woke at 3:00am. Guys going hunting. I’m wide awake presently. Rt hip & rt elbow throbbing horribly! Face feels swollen. Chest aches & feels bruised. 
7:00 woke again at 7am to hearing what I thought was a vibrating phone. I can’t find where it was comimg from. Ugh!  Now out of breath.
Both hands numb and tingly. Chest hurts. Upper back aches. Neck aches. Slight headache. Wish whatever keeps buzzing every 5 minutes would stop!
9:44am -low back hurting. Had to sit and rest. Chilling sensation at base of neck down spine and spreading through upper back. Oh, how I wish a dr or someone could ecplain this to me!
If I could only figure out simple exercises that would cause me undue pain and be beneficial for my increasing stiffness. 

1050a not saying I have this but exercises may help alleviate my increasing neck pain and other upper extremities pains and symptoms:
https://www.medicalnewstoday.com/articles/172015.php
Neck stretch exercises can help to moderate the impact of the condition and alleviate pain or feelings of stiffness. However, they will not cure cervical spondylosis.

8:28pm- I’ve had to ice down my elbow twice. Swelling and pain a bit much. If I do anything at all, it swells back up like I’ve sprained it.
10:21pm – it’s 70 something degress in house & I’m freezing! Slight headeache. No nap & wide awake. Fingers and hands ache. Rt elbow throbbing. Feet freezing. Rt hip aches. Neck aches. Skin randomly itchy.

Journal Entries 19-21 Nov 2018

Nov 19

1023a Rough night. Didn’t sleep well…hurting a lot. Rt hip throbbing. Upper back aches. Lower back throbbing. Toes cold. Eyes watery. Finger tips cold. Center of chest aches. Base of neck aches. Slight headache. Stomach innards ache.

1131p Whole day thrown off. Decided to change sheets but couldn’t find top sheet. Spent few hours trying to locate it…never did. Had to improvise. Did manage to get window covering up with mom & Dezirae’s help. Some how cut my pinky finger and don’t remember how I did it. It hurts like dickens right now. Did too much today hurting all over for it. I’m exhausted. Mayb3 tonight be better for sleeping.

10:43 Jakob called to chat. Looking forward to seeing him for Thanksgiving.

Nov 20

6:30am woke with headache. Seems as if I’m gonna have to get migraine rx filled again. Can’t really afford it right now. Headaches regular not helping either. 

10:30 TBI Support Group Session – Group of college students from South Alabama come once a month to help & learn

Minute to win it (puzzles of cereal boxes)

* I was thinking this ought to be interesting. I know I won’t win because I can’t even suduko right now. I got cocoa puffs puzzle. It was a struggle but I was able to get 3/4 of puzzle done in a minute. They deemed me winner because I had most done. Who knew?! 

Left right center game

*This game was actually fun. After two rounds, I had a bad headache and didn’t really want to play anymore.

Push the yam

*This one not only was just silly but I think it also tests hand eye coordination. I won!!


Leisure Studies for Occupational therapy (Misty) *She told me what it was, but I’ve already forgotten


ASCCA camp off hwy 280 Must have buddy
Spoke with Susie (person in charge of South Alabama students) They come out to help one a month. Had good conversation. She seemed very intrigued with my rare situation. Seemed upset that my drs only tell me to live every day life when I ask for therapy. 

Physical therapy /neuropsychologyBe my own advocate. Tell dr that I need pt because I’ve lost strength and am struggling to get it back. 


2:00 had melt down when I got home after discovering unexpected charge on our bank account. I struggle with remembering dates, appointments, etc. When unexpected events occur, it throws me off my game for a bit.  Have a cry and then try to find positives. Lady at bank was very understanding and helped walk me through it all.
11:00pm – trouble with muscles cramping and spazing off an on today. Chest hurting and swollen.  Headache. Took muscle relaxer & pain rx. Also my pm supplements. Cuddling up with heating pad. Hopefully, I’ll get decent amount of sleep tonight.

Nov 21

8:30 fell asleep after midnight. A whole muscle relaxer knocks me out. I don’t like taking them bc of the bad dreams that come with it. Dreamt I was fighting for my life…so though I slept that long it wasn’t very restful & woke up tired. Hands swollen and achy, headache…

9:00am need to cook pumpkin pie today. Have to find easy way to make pie crust without all the upper body work. Found website that gave instructions on how to make in bread maker. Sweet.https

https://www.breadmakermachines.com/recipes/pie-crust-recipe/

It took 30 minutes til paddle stopped (I know bc I set stop watch to know how long to make notes for remembering later). Now refrigerating for 30 minutes or so. 

1:35pm – Mom called to see if I had any cool whip for tomorrow. Oh, no! I completely forgot! Asked to borrow her car to go get some – can’t have pumpkin pie without cool whip. Jakob’s bday is tomorrow too. I’m making pineapple upside down cake. I remember he likes pineapples. 😊Wish I could figure out how to export my journal logs from phone – sure would make life simpler for updating my blog/website.

Symptoms: have had headache most of day. Chewing gum helps ease it. 

8:30pm Jakob made it home from college. Glad he able to come home for holidays. 

9:02pm I’m wiped but wide awake. Made cinnamon rolls for tomorrow morning. Thank the Lord for bread makers. Made 2 pumpkin pies. Used bread maker to make pie crusts. Made 6 homemade coasters for Christmas presents. Dezirae found pillow cases I was suppose to fix for a friend, but completely forgot about them. So I sewed them this evening. Most of activited had to rest in between.

Symptoms:Center of chest throbbing & chilly hot sensation. Shoulders hurt. Slight headache most of day. Muscle cramps in legs periodically today. Fingers ache. Eyes feel blurry. Feet feel cold even though I have socks on. Neck hurts. 

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