Category: My Healing Journey

Nov 10

5.30a woke to Joe’s alarm. Woke from strange dream. Can’t fall back to sleep.)

Nose stuffy. Insideds shivering. Rt hip throbbing. Headache. Whole body aches. Eyes watery.

6.30 inside I’m excited about the day but my outward body is having trouble moving. Thankful God’s plans are best. It’s been great having friends staying with us. It’s nice to have a friend that gets what your feeling or going thru (she got double concussion from bad car accident several yrs ago. Experiencing some of same issues I’m dealing with from my tbi). Gotra get up and going…I can smell Joe searing the roast for lunch.

10.30 brain feels like its swimming today…vision extra blurry on edges, dizzy, unstable – almost fell few times, but able to grab something to catch self

11.00 easily distracted – had hard time playing offertory bc someone was talking. Turned head too fast and got dizzy. Irritated me so much I wanted to stop and tell person to shut up. Ugh! Remembered piano teacher’s instruction to keep mind on piece and play best you can til piece is finished

6.30 sudden sharp pain in lft abs & center of chest. Lasted about 13 minutes

10.30 sharp stabbing pain in rt side. Rt hip throbbing! Hands swollen and achy. Headache. Center of chest hurting. Took pain rx. Muscles spasming in upper lft leg. Skin itching upper lft leg.

Nov 11

6.30 rough night. Fell asleep sometime after midnight. Woke every two hours thereafter.

Joe asked if I was okay before leaving for work. Told him I was hurting all over. Asked why. Told me I had bad nightmare last night. All I remember is being stuck in same dream over and over. I feel like I’ve been beat up. Headache and exhausted.

9.00 I finally fell back to sleep around 7 and slept til 9. Still tired.

Decided to push past comfort zone and do extra chore – fixed box fan bc cover coming off & cleaned it, hung load of towels. Not so sure hanging towels good idea (its such a nice day) bc I’m really hurting now.

1.00p decided to take kids to Krispy Kreme for rewards of good grades. Stopped at thrift store. Found 2 t-shirts for Jordon’s quilt I want to make him for Christmas. Still need a few more but I’m getting there.

10.00p I really hurting now. Definitely not too good idea pushing to do extra day before having to report for jury duty. I’m hurting almost to tears. 

Gotta figure out herbs/oils to reduce nerve pain.

Nov 12

 5a so not today ready for today

7.30a never been to court house. It’s so big. Lots of people here. I have no idea where to go. Officers have all been so kind. People several giving me compassionate looks like they’re sorry I have to be here. Anxiety starting to fester. I’m overwhelmed & scared. Balance is off keep having to adjust and gain my balance so I don’t fall. 

Thankful for the tall pillars to lean on. Strange guy asks me where to go. I tell him I have no clue bc I’ve never been here. He says oh and disappears into the large crowd ahead of me. 

Crowd starts moving. Not sure where they’re heading. I decide to follow. Oh, they’re heading to elevators. Officer is letting jurors only on elevators at this time to go to 8th floor. Oh, that’s me. I guess I’ll follow. 

Once off elevator, another officer instructs people to make sure that jurors have summons filled out & hands out instruction manuals. Once filled out, instructed to wait in long line to enter courtroom. I only made it halfway down long hallway of line of people and had to sit in chairs to rest a while before I could walk more. Eyes began to well up with tears. Told myself not now. Quoted “What time I am afraid I will trust in thee”. Tears got bigger. Not helping. Gave self pep talk. After resting, got in long line. Boy, there’s a lot of people here. Tears started leaking from eyes. Can’t fall apart now haven’t even made it in courtroom. 

Finally made it to doors. Lady checks my summons to see if filled out right. Explained to her that I’d never been here before. Tells me it’s ok and to take summons to blonde lady. I ask her which blonde lady bc there’s two up there. She chuckles and says she didn’t notice. Asked which colored blouse. She didn’t answer. I proceed to slowly enter room and walk towards front. I’m exhausted, getting dizzier, Lord, please give me strength.  After approaching the lady, I asked her to check regarding my summons.  I explained that I had been struck by lightning and am still dealing with after effects.  I wrote letter but never heard back.  She checked computer.  She informed me that I had been excused and apologized for the inconvenience of having to come downtown.  I thanked her and was glad to get out of there.

I got so turned around when I left the court room I had no clue where to go or how to get out of there.  I had to ask an officer how to get out of here.  He kindly escorted me to the elevator and to main lobby on bottom floor.  I thanked him for his service.  He smiled. 

Glad that my Mom had come with me because I knew it was going to take me a long time to get back to the vehicle.  Had to stop frequently to rest to get enough energy to keep going. Thankfully, the bus driver that brought everyone from the parking lot to the courthouse spotted me attempting to return to our vehicle.  She stopped the bus in the middle of the road and told us to hop on.  I thanked her repeatedly for her help.  She smiled. 

Thankful for God looking out for me today and all the help along the way.  I do not want to experience this again in the future.  Extra stress adds exponential pain to the scheme of things.

10.53 I’m exhausted and really hurting. Rt hip throbbing

Nov 7

6.00 took a while to fall asleep. I think the peppermint tea helped me fall asleep before midnight. Woke at 3.30 to severe sharp pains in center of chest. I’m so hurting all over!!! I don’t feel like moving at all. 

2.00 having very off feeling day. Hard to focus or get motivated to do anything. Got Joe’s rebate request in mail. Started planning lesson for school got side tracked several times. Know I’m suppose to be doing something important but can’t remember it. Checked to do list – it’s not written there. Need to get better plan of cleaning upset. 

4.30 we were suppose to leave already for church and I’m not even ready. Entire functional system has been slow moving today and I’m really hurting. Dezirae tried to get my help in science and I couldn’t even push through brain fog to understand to help her. 

6.00 rt hip is throbbing worse than toothache. Pain rx not even touching it.

11.50 insides feel like they’re spasming, whole body hurts, hands throbbing, rt hand itches, very tired, feet cold, tummy growling, lft thumb crampinf, lower lft leg tourniquit tighten feeling with some numbness, rt hip throbbing, Elbows stinging.

Nov 8

7.00 relived lightning strike incident in my dreams last night except this time we call 911. I wouldn’t let them take me until Joe got home from work. I’m in much pain this morning. Hurts to move. Feet are numbish. 

6.30p friend arrived safely from out of town. Glad they’re here.

11.59p rt hip giving me a fit. I so hurt and so tired.

Nov 9

7.00 slept fair. Whole body hurts. Headache.

8.00 Joe sweet enough to make breakfast – made pancakes. 

9.00 blew nose. It’s bloody. Ugh! Bp 127/76 hr 70 Not sure what’s up. So tired and I haven’t done anything.

1.30 Joe, Jakob, & Dad left for church. Meeting other preacher’s on ordination counsel about ordaining Joe. Upset I can’t be there. Jakob going to take pictures for me. He’ll be presented church & bible tomorrow before church tomorrow. Exciting day!

2.00 rock n roll playing in thrift store is making my nerves jumpy and hurting!!! I must vacate premises. This noise is bothersome.

7.30 nose bleeding. I’m feeling weak. I don’t know why it happens.

10.00 extremely tired. Joe thinks the naproxen is cause of nosebleeds. Said the three months I was granted permission to take tramadol the nosebleeds went away. I’m thinking he may be right. 

I don’t see how the gabapentin is helping at all. There’s gotta be a combo of natural remedies that will reduce nerve pain. 

Nov 4

5am woke from horrible nightmare I don’t want to remember to abdomen spasming & cramping bad. It hurt so bad it hurt to move and emotionally I just want to cry.

6.30 Whole body aches. Kept reliving nightmares after I fell asleep. Why is my brain bringing that situation back up again? I’ve dealt with it, had counseling for it, and have forgiven my trespassers. Is my brain trying to relieve trauma suppressed in muscles to memory where it won’t hurt anymore? 

12pm spent morning writing excuse request for jury duty due to current medical and mental issues, making phone call to check on something, washed two loads, & put dinner in crockpot – I am exhausted. In need of a nap. Whole body aches. Temp was about 60ish when I got up. 

6pm took kids to bank and store. Glad they had wheelchairs at store. Kids helped me do little grocery shopping. By time we got home, I was really hurting and exhausted. Kids helped bring groceries in and put some of them away. Thankful I had put dinner in crockpot this morning.

Center of chest throbbing. Whole body aches. Sipped some peppermint tea so hopefully, that’ll help ease the pain and woo me to sleep. Can’t take any more Ibuprofuen bc I took my limit today.  (I hope I’m using right emojis…certainly don’t want to say something I didn’t mean to. Is there a dictionary on emojis the wonder?? Pushed through some of my pt exercises. Tourniquit tighten feeling with some numbness about six” up from ankle down to foot on lower left leg. Headsche. Muscles spasming in upper lft leg. Low back throbbing. Rt hip aches. Throbbing pulsating pain in rt foot. Rt jaw aches.

Nov 5

3.30a woke from nightmare. I was being attacked. My body feels like I was beat up badly. I almost fell out of bed too. 

5.00 must have been moaning in my sleep. Joe asked if I was okay. Told him I had bad dream. He came and laid down near me, hugged me, and kissed me several times. So sweet. Helped me feel safe again. 

10.30 TBI mtg. Had mtg with Ron & Theresa to catch them up on what’s been going on. Encouraged me to change atty. Need to find Dr to work with me. Could’ve had a stroke being off bp rx like that for two weeks. Not safe. Ron going to work on getting set up for an actual neuro testing for TBI. Teresa going to reach out to local organization that may have some $ to help me get copies of my medical records. 

Nov 6

6.30 rough night. Trouble falling asleep then wake up every couple hours. Whole body aches. 

8.00 decided to make stew for dinner. Trying to use up items in freezer to prepare for new deer meat. Didn’t label bag not sure if it’s pork or deer bones. Arms hurting from prepping veggies. Need to leave for co-op soon. Taking pain rx to last. 

11.20 hands, arms, low back throbbing from washing few dishes from last class. I’m exhausted too. Jordon misplaced my key fab. Ugh! 

3.30 decided to make pumpkin cookies. Had to ask for help. Got cookies dropped on sheet and realized I forgot to add sugar. Ugh! Think I need to stop and rest my brain and aching body a while.

10.00 kids helped me process carved pumpkin we were given today. From cutting into chunks, to baking, to peeling off skin, to cutting in pieces, to pureeing, to putting in bags for freezing. It took about 3 hours. We got about 20 cups of pumpkin puree. Thankful for their help. Couldn’t have done it without them. I’m exhausted and hurting, but feel accomplished. Looking forward to the pumpkin goodies to be made in future. Also, trying to dehydrate some of puree to make pumpkin powder. We shall see. I hope my muscle and body don’t regret extra work tomorrow. I hurt from head to toe.

Nov 1

7.00 woke several times from nightmares in the night. My whole body hurts!!! Eyes watering. They seemed so real!

8.00 Woah! It’s cold outside in November -38°! My bones hurt. It hurts to move.

5.55 stomach has been hurting all day. Back’s been stinging for bit now. Chest hurtz. Hands swollen and achy.

Managed to use bread machine to make pizza crusts for homemade pizza tonight. Wanted to do more today but its hard to push thru the pain sometimes

9.00 back pain has increased exponentially!!! I’ve barely been able to move. Stomach severly bloated. Periodic sharp pain lower lft abdomen. 

10.00 Joe helped me to bed. Daughter asked if pain level was a 20. Told her by Dr scales it couldn’t be a 10 bc I’m not asking to go to ER. She chuckled and said that’s funny bc you’d never ask to go to ER. (I wasn’t being funny). Told her by Dr’s scales it’s probably a 9. She then made comment that she could tell I felt bloated bc she could see it even under the covers.  

I’m hoping that’s its bad case of constipation rather than I did too much today. Either way I think a cup of chammomile tea sounds good about now. Maybe I can drink my way to better health thru herbal teas. 

https://www.medicalnewstoday.com/articles/322624.php

Nov 2

Woke not hurting as bad as last night but still pretty bad. Whole body hurts.  As long as I don’t move much center of chest & back pain is medium. 

8.00a family went to yard sale before visitation. I really wanted to go but couldn’t force myself to go. Knew it’d be better to rest up for church tomorrow.

9.00 ate 2 hard boiled eggs for breakfast & glass water. Gave me indigestion. Ugh!

Thinking combination of new exercises, doing little much, and cold weather aggravated costocondritis again. May neex to do Ibuprofuen regimen again.

10.50p taste buds off tonight. Sleepytime tea tastes disgusting to me. Only able to get down half cup. Head pounding. Whole body aches. Center of chest sharp pains if I move wrong otherwise throbbing thru to back. Legs ache. Muscles randomly twitching in legs. Feet cold. Neck throbbing. Turn radius small – shooting sharp stabbing pain in body if turn neck too far. 

Nov 3

6.30 woke thinking I overslept. Had several nightmares – all of the ones I can remember parts of I thought I saw someone I knew but when started towards I couldn’t find him. On a horse farm riding horse in one; in a quaint small town near downtown in another.

Whole body aches and I have headache. Chest sore. Took Ibuprofuen 800mg. Gotta kick out the costo so don’t have to do steroids. Dropped on of extra pt exercises last night hoping that’ll help too.

7.30 decided to eat oatmeal for breakfast. Need more fiber.

8.00 trying to get ready and I’m wearing out quickly but I don’t have time to rest in order to be on time. Need to remember to set my alarm. Bp 119/78 hr 87

9.30 A headache I do have. My right hip is starting to hurt more.

7.50 My rt hip is throbbing with pain shooting down to foot. Ugh!

Oct 28

7.00 woke from nightmare to headache, calves cramping, and muscles twitching randomly in body. Whole body aches and stiff. Eyes watering.

7.28 still laying in bed reading my Bible chilling burning sensation in center of chest

8.00 doing morning pt exercises. Lft shoulder back area cramping. Ugh! Hurts to move. Very tired. 

11.00 PT today. Blair checked out some of my exercises to see how I’m doing. Entire back from neck down is very tight. Adjusting exercises. Need to wake up core muscles to get them strong again. Back muscles very tight in neck and shoulders area and tight down spine. 

Tara checked my vestibular system. Blair asked to give brief background and what going on with dizziness. 

Tara said she could see my eyes skipping in exercises she asked me to do.  Amazing that she could see when my peripheral vision got blurry. 

Tara suggested I seek out a neurooptimologist. They specialize in vision problems. This helped to validate some of issues I’m having. Blair said this type of Dr would be good to have on my team.

7.00p- reclining in chair in livingroom using heating pad. Back muscles cramping and stinging. Need to relax them.

9.00 wore out from today. Going to bed early. 

9.30 indigestion kicks in ugh! Muscles randomly twitching thru body. Sinuses congested. Hands throbbing. Butt hurting. Low back throbbing. Shoulders and neck tight and throbbing.  

Oct 29

12.00 still wide awake. Whole body hurts. Pain rx not touching it. Taking muscle relaxer. Think I’ll take a benadryl instead.

7.30 Joe & Jordon cooked dinner for me. Dezirae made cheese cake for dessert. Yum!

8.30 drinking sleepytime tea with heating pad on back.

9.15 Crashed in chase lounge for 30 minutes shortly after drinking tea. Guess I was more tired than I thought

10.00 whole body hurts!! Rt ear aches. Hurts to move. It’s been raining off an on all day. 

Tweaked PT VOR exercises are making headache worse. 

11.00 muscles thru body stinging. Pain rx and melatonin taken. Hope to fall asleep soon so I don’t feel the pain.

Oct 30

7.30 oh, my body hurts!!! I don’t want to get up. Muscles randomly twitching in legs. Cramping in rt side. Rt hip throbbing. 

Gotta figure out how to overcome the nightmares just about every night. 

It’s most likely spiritual warfare. Ephesians 6:12. 

8.00 it’s raining and cold front is on its way. No wonder I’m hurting. Gotta push thru as I can.

https://www.healthline.com/health/nystagmus#types

6.00 I am so hurting right now!! Pain from head to toe. Soaking in Epsom Salt bath for while. Taking pain rx too. Major indigestion too. Ugh!

10.50 bp 114/82 hr 78 at least my bp is down in spite of muscle and joint pain. 

11.43 looking into nystagmus and how it relates to TBI. 

http://www.scielo.org.za/scielo.php?script=sci_arttext&pid=S0256-95742017001100013

https://www.neuroskills.com/brain-injury/mtbi-and-concussion/visual-dysfunction-related-to-mtbi/

https://www.aao.org/eyenet/article/traumatic-brain-injury-visual-disorders-what-every-2

Oct 31

5.00 woke in much pain from strange dream. Thunderstorms wreak pain to my bones and muscles. Decided to read Bible and devotional book on phone.

6.30 limbs keep going numb and tingly. Gonna try to sleep little longer while I pray.

Oct 25

6.00a woke to migraine! eyes throbbing, brain feels swollen like its going to pop out of my head!!! Took bp 151/99 hr 64. Took Tylenol and Edarbyclor. My bp needs to come down now. This is ridiculous. Eyes crying from pain. 

6.30 Joe rubbing my neck, head, & shoulders to relax the muscles. Feels good. 

7.00 migraine eased from 10 to 8 but pain is still pounding. Eye throbbing. Took relpax. Migraines can be debilitating. Ugh! 

7.30 Joe sweet. Made me breakfastin bed. Two egg biscuits with provolone. I’m not hungry but I ate them anyways. I’m loved❤

8.00 I feel aweful. Joe told me I had to stay in bed all day. Normally I would contest but I don’t even have energy to. Think I’ll take a nap.

10.00 feel worse than before. Head pounding!!! Bp 158/108 head hurts to lie down anymore

2.00 soaking in Epsom Salt bath for while. Don’t feel any better but at least I’m clean 😊

2.32p Dr agreed to let me resume taking the Edarbyclor for my blood pressure. Thank the Lord! Hopefully it’ll come down soon so I can start feeling better. 

3:00 muscles randomly twitching in legs

5.00 a friend so kindly brought dinner for us tonight. It worked out wonderful for us. Never heard of Cowboy Grub before, but it was delicious.

11.45p trouble falling asleep. Bad headache but not migraine as previous in day Neck hurts. Hands ache. Rt arm aching. Rt hip throbbing with pain shooting down rt leg. Low back throbbing. Lower left leg tourniquit tighten feeling. Feet tingling. Muscles feel stiff and ache.

Severe thunderstorms today. Ended up with two separate tornado warnings for our area. One actually touched down amd did damage north of us. Skin feels like its crawling periodically. Unnerving. Calves cramping. Wish I could find something naturally effective to wipe out the headaches for good. Bloated and gasy. Rt side cramping

Oct 26

7.00 woke to pounding headache. Hurts to lift head. Whole body aches.

8.00 Joe sweet decided to make pancakes for breakfast. Took am meds. Decided to make cup of decaf coffee w almond milk. 

10.00 bp 139/93 hr 65

10.20 conversation with son. Son asked opinion. Dad gives opinion. Son expressed his having trouble with opinion. I told son to “Wipe your sleeves off your feelings” instead of “Wipe your feelings of your sleeves”. Lol!

12.15 starting to remember more things about past. It’s almost like I’m coming out of an episode of amnesia or something. It’d be great to be able to regain old memories. I feel sometimes like I lost a lot of things.

3.00 Joe took us to cbc fall festival towards end so there wouldn’t be as many people. Able to visit with few friends. Nice to be out of house for change. Got 2 pumkins given to us. Yay! Get to make homemade pumkpin pie for Thanksgiving. 

10.00 heading pounding again. Of course, that probably comes from taking rest of evening to do bulletin. Had to ask Dezirae to help finish them. Thankful she likes helping me and wanting to learn things I do.

 Neck muscles and upper shoulders tight and throbbing. Hands ache. Low back & rt hip aches. Feeling some better than yday. At least bp going in rt direction now. Legs ache. Muscles randomly twitching thru body. Feet hurt.

Oct 27

7.00 whole body aches. Strange dreams. Woken before I could finish…might be a good thing as weird as it was. Head hurts

7.30 decided to eat hard boiled egg for breakfast. Ended up choking on it and having sharp chest pain making me stop in tracts. Oh, that hurts!!!

8.00 Bp 128/82 hr 65 Headache worsening. Took pain rx. Need to find something that actually works. Morning meds taken. 

9.53 I’m exhausted. I could use a nap. Eyes hurt. Head hurts.  

12.48 feel like I’m going to crash. Need to lay down a bit. Nerves tingling all over body. Vertigo acting up. Headache. 

1.20 neck popped and now I have tingling sensation in my lft ear

3.00 tingling in ear lasted bout half hour. Only slept bout thirty minutes. 

5.00 worked on love for little bit. Headache. Rt hip throbbing. 

6.00 brain hurts and vision blurred. Messed up playing hymn…stopped before I was supposed to…thought we finished. Oops. Hard to follow where we’re at in song. Next song I almost played too many verses. It’s virtually  impossible presently for me to see keys, notes, and song leader at same time. Then there’s my hands not playing keys my brain thinks it should be.

9.30 frustrated bc I’m struggling to plan meals like I used to, I’m upset at myself bc I can’t remember what a traditional Thanksgiving dinner is suppose to consist of let alone plan one for church (at least I have last yrs sign up sheet saved on computer – but I don’t think that’s even right), my mom is telling my story and is messing it up. I’m just in bad mood and everything’s rubbing me wrong way.

10.00 having bad moment and bad attitude where I don’t feel adequate. Started trying to read book. I’m in middle of second chapter and I can’t even remember what I’ve read. Ugh! The only thing that has stuck is Psalm 61:2 and that’s because I have read that verse multiple times to myself (preaching to the choir) about leaning on the Rock when I’m overwhelmed.

Oddly enough the second chapter of book is titled “Admit That You Are Stuck and Struggling”. Oh, I admit that in a heart beat. I’m stuck in my short term memory and don’t know how to fix it. I’m struggling with balancing everything and trying to figure out how to relearn things and adapt to my new self. 

Thankful the Lord has brought me thus far and has protected me. There’s been plenty of times I could of and probably should have had a heart attack or stroke since lightning strike especially with the blood pressure issue. 

Lord, please help me to learn to adapt to the new me and overcome where I can. Help me to be a vessel of honor leading others to You even in my valley.  

11.45 headache. Neck throbbing. Shoulders and upper back throbbing. Lower back throbbing. Rt hip aches. Legs ache. Hands swollen and achy. Lower lft leg tourniquit tighten feeling with some tingling. Burning tingling pain in center of chest. Very tired but brain not slowing down. Pm pt exercises. Nerves in lft hand and back stinging.  

Oct 22

6a woken by musles spasms in legs. Had nightmare. Headache. Low back throbbing. Pins and needles sensation in hands, forearms, and feet. Very thirsty. EO Pain Relief roller apply to back of neck.

7:09a I guess some sleep helped a little. Bp 133/87 hr 63 currently. 

7.45a Head pounding. Electrical pulsating sensation in arms and legs (almost as if I had tens unit on and turned up tad too high). Pain in left side of chest for brief moment. Whole body aches. I feel miserable. Ears ringing. Lights bothersome. Dizzier than normal.

10:29 mom took me to food pantry. Took Bp after putting food away. Bp 131/93 hr 76

12.00p Bp at Dr office was 141/88 hr 71. Bp with my machine 142/88 hr 72. Mom let them know about the Left Ventricular Hypertrophy. But I can’t remember date of diagnosis. Nurse will let Dr know and give me a call this afternoon.

Interestingly, nurse was able to pull up my records on her screen. Saw the ER report that says patient was struck by lightning. Hmm? I know I was bc I’m dealing with and feeling the after effects. Maybe I should start gathering my records so I can read over them at my pace. It’s important to be an advocate for your health.  

I’m probably confusing Dr’s bc my bloodwork came back normal. Yay me! I think the homeopathic things are helping (eg. Diatomaceous Earth milkshakes with chia seeds, the intermittent fasting, thyme tea, red raspberry leaf tea, green decaf tea, colloidal silver – of course, not all at the same time) keep my organs functioning properly and me off antibiotics.  

Major headache, neck hurts, vision feels blurred on edges of eyes, trouble thinking straight, lightheaded, dizzy, muscles randomly twitching thru body, back aches, lft side hurts like I pulled a muscle, feel like I’m running fever but I don’t

10:00p rt hip throbbing like toothache with sharp pain shooting down leg to foot, low back throbbing, headache bad (I don’t know what to take to get rid of it), lower lft leg just below chin tourniquet tightening feeling with some tingling to foot, upper back hurts, random sharp stabbing pains in rt elbow, eyes & brain feel blurry, neck throbbing, tingling in lower legs, hands ache, tired but awake. Night rx taken.

Oct 23

7:15 woke with a bad headache. Sinuses congested. Whole body aches. Low back & rt hip throbbing…at least no shooting pain presently. Nightmare – trying to escape from somewhere. 

I need to get better. I need to be able to function properly. Sipped some Thyme tea with peppermint and copabia oils. 

9.00 Bp 151/92 have horrible headache. Took Tylenol sinus.

11:30 Need some food in house. Decided to go to Sam’s with Jordon. No way I can walk Sam’s yet used wheelchair. Just that little bit wore me out. Legs throbbing. Sinuses in face hurt horrible. Buttock ache, arms soar. Couldn’t lift 6lb box of spaghetti noodles. Had to get Jordon to do it. Nerves pulsating thru body as if injured and wanting attention. Rt hip aches. Toes cold. Eyes watery. Tired. Neck hurts. Need to rest a while.

4.50p face feels flushed and cheeks feel like they’re burning, headache still bad, short of breath after making batch of stain remover (recipe on my botlle) & helping Dezirae put tablecloth on table, nerves in hands and arms stinging, muscles randomly twitching in legs Bp 146/99

5:07 Told Joe I couldn’t get rid of headache. Joe said to take 2 aspirin. Doing so.

6:30 head still pounding. Lights bright. I feel like I’m burning up. Going to lay down in dark room for while. Took migraine rx. 

7:00 dinner. not hungry eating bc I need to been drinking mostly fluids. 

7:30 applying ice pack to head and heating pad to throbbing rt hip. 

11:00 having trouble going to sleep 

Marker exercise and x to x making headache worse PT. If doc don’t do anything tomorrow I’m going back on Edarbyclor. Maybe once bp is back down to normal I can cut pill in half. Indigestion kicking in. Chewing papaya enzymes. Sinuses severly congested.

Back muscles stinging. Hands swollen and achy rt wrist throbbing. Lower lft leg tourniquit tighten feeling. Low back aches. Heart feels like its racing. I’m exhausted. Feel like I’m falling apart from inside out. Ears ringing. 

Lord lead me to the Rock that is higher than I for thou has been a shelter for me. Please give me sweet rest tonight. This poor soul is weary and heavy laden and I need rest from this pain. Lull me to sleep with Your sweet lullabys so I may wake tomorrow rested and ready for another day. Thank you, Lord. 

Oct 24

8.00 slept until 5am then off an on rest of night. Strange dream. Woke up very tired at 7.30a. Hit snooze few times. Hard time waking up. 

Read Bible & devotion book on phone. Prayed a while.

Galatians 6:9 – And let us not be weary in well doing: for in due season we shall reap, if we faint not. 

Still have headache but not as bad as yday. Ydays was causing tears. Neck tight and hurting. Chilling tingly sensation in back of head, neck, upper back, and back of upper arms. Ears ringing. Whole body stiff and achy. Low back & rt hip hurting.

10.00 bp 161/101 hr 64 

Decided to try to rest a bit. Did morning PT exercises. Laid on chase lounge for while in livingroom. 

2:00 almost forgot to eat lunch. Chose to eat ham & cheese with tomato and lettuce tortilla wrap & hb egg. 

4:00 Bp 156/94 hr 74

Headache. Upper back stinging. Feeling flushed. Cheeks feel like their on fire. Upper chest feels like it has itchy hives. Look in mirror upper chest is splotchy. Hands throbbing. Rt hip & low back throbbing. Bloated majorly – jean skirt that’s normally loose is almost too tight. Legs ache.

9.26 muscles in rt side spasming. Headache worsening. Lights bothersome. Feet getting cold & I have socks on. Cheeks feel hot. Bloated.

Oct 19

7a- I’m in so much pain!!! It feels like if I inflame any more I’ll explode out of my skin! Headache. Pain level 8/9.

7.30- took Naproxen 500mg. 

8.00- Bp 128/82 hr 59 Bp slowly rising. Sharp pains in my abs, chest, & rt side when I sneeze. I think this new Drs instructions are going to be the death of me.

8:57a pain rx not touching it. Nerves feel like they’re randomly jolting thru body. Physical hard to move. Headache worsening. Going to sip on thyme tea to see if that’ll help.

10.25a I don’t think I’m going to last the week without my bp rx. I have beginning migraine now and bp is 144/85 hr 59.

10.40 called Drs office. Msg being relayed to Dr. Stinging needle pain all over. Headache is now migraine. Took Rx. Toes tingling & cold. Cold slowly expanding over feet. Tingling burning sensation in back. Legs, rt hip, & low back throbbing. Neck hurts. Lips extra dry. Mental cloudy (can’t think straight).

11.11a Just got call from on call Dr. Explained what’s going on and that I’m a lightning survivor. He said my Bp is currently not high enough to do anything. Asked how high it needs to be. He said 160/100 before he can warrant starting me on Bp rx. Have to call Dr Meadows on Monday to ask what to do. Can take migraine rx for the migraine. 

Dr I spoke with doesn’t think Hydrochlorothiazide is a sulfa drug. I told him it was a sulfa drug and I’m allergic. Yet my pharmacist said it was and the info on internet says it is and my body reacted as if it was. Hmm?? 

Even the paper that comes with it precautions “may contain inactive ingredients such as sulfites”. Case closed.

So frustrating!! I need personal Dr in private practice that will care. God please help!

https://www.everydayhealth.com/drugs/hydrochlorothiazide

Joe talked to pharmacist. She said sometimes Drs will do this to see how bad the blood pressure issue really is to try to give better diagnosis. Need to stay away from caffeine & salt. Drink lots of water.

5:18 soaked in hot Epsom Salt bath for quite a while. Wore out. Arms & hands ache. Rt arm cramped washing hair…had to take breaks. Hands feel crampy. Short of breath. Headache eased some. Neck sore. Legs ache. Checked Bp 129/77 hr 65. At least bp is down for now.

10.50p- bp 116/91 hr 80 going to bed. Praying tomorrow is a better day. 

Toes tingly and hurting. Legs ache. Rt hip & low back hurting. Upper back pins and needles chilly burning sensation. Shoulders & neck ache. Arms and hands throbbing. Rt ear throbbing. Headache. Rt jaw throbbing. Muscles randomly twitching in legs. Indigestion so bad I feel nauceous. Took 15ml m.o.m. out of desperation.

Oct 20

6.30 Fell asleep sometime after 1am. I’m so tired.

7.56a I have bad headache. Whole body aches. Nose congested. Eczema spot on belly red andbbothersome. Rt ear throbbing! Bp 129/82 hr 68

9.00 getting ready for church wore me out. My rt jaw throbbing. I feel like I need nap. Tylenol not help headache.

11.00 brain feels weird today – it feels foggy but also unstable like the inner crystals knock out of place. I’m dizzy feeling easily to knock over.

1.30p exhausted. Glad when I get the gerd rx in. Seems like everything I eat caused severe burning indigestion. Lft side sensitive. Blanket twisted under me felt like knife stabbing side. Wish I could figure out the affiliate marketing thing to make money from home.

Pins & needles sensation in back, arms, and legs. More prominent in back. Feels like I’m being electrocuted multiple times.  

10.00p Bp 130/89 hr 73

I’ve had headache all day. Brain felt like it fell off pedestal and was floating in water. Rt ear throbbing most of day. Rt jaw throbbing like toothache. 

Rt hip throbbing with intense sharp pain shooting down rt leg! Toes cold make that freezing. Have heating pad on them now. Legs ache. Muscles randomly twitching in legs. Red eczema spot near belly button hurts.

11.00p legs are cramping been sneezing like crazy trying not to bc sneezing hurts my whole body like the dickens when I do. Congested. Took benadryl seems to be helping

Oct 21

8.30a Bp 136/89 hr 56 

Fell asleep sometime after midnight. Woke with headache and muscles in legs spasming. Whole body aches and stiff. Hard to get moving. Don’t really feel like moving much. Neck & rt shoulder throbbing. Feet cold. Took Tylenol for headache.

9:46a put dinner in crockpot. My hands and arms are throbbing. Head pounding. Lights and noises bothersome. I feel plain aweful. Low back throbbing. Legs & feet ache. I’m wore out and breathing is heavier than usual like I’m out of breath. Now laying down in dark room to rest. Need to get rid of headache. Bp 133/89 hr 65 

10:00a Tylenol not helping. Taking migraine rx.

This is ridiculous. I can’t get anything done down in bed all the time. Gotra find a natural remedy for migraines. Cold pack applied to head.

3.10 bp 153/106 hr 69 bad headache and short of breath when try to do something. Legs throbbing. Can’t think straight. Called Dr to let them know. Explained what’s going on. Asked if I could just take my old Bp rx to get Bp down. She said she’d ask.

https://www.healthline.com/health/high-blood-pressure-low-pulse#causes

4:22- Nurse called to say Dr was going to put me on Lisinopril 20mg. Had to tell them that I couldn’t take it bc it caused bad cough. She’s going to talk to Dr & call again.

4:45p Nurse called asked about Amlopidine. Told Dr at Victory tried that but it caused severe swelling in legs and feet. She asked what other bp rx I’d been on. Told her I knew it was 4 but not remember. Told her I’d call pharmacy to ask.

4:47p called Publix to find out what Bp Rx’s I’d been on prior.

4:53p Nurse called. Said Dr said to come in for BP check and bring machine. Told her I just got off phone with pharmacy. Previous meds were Lisinopril, Amlodipine, Losartan & Propranolol that I’m on for migraines. Said she get this in my file and call in am. 

5:00 Bp 166/109 hr 68 Thinking about it. I never got answer about taking Edarbyclor. This is ridiculous! Need to tell them about lft ventricular hypertrophy.   

7.00p- even the littlest physical effort causes fatigue, general feeling of unwellness, shortness of breath. Currently experiencing chilling burning sensation in center of chest. Legs tingly.

10:28p- I feel horrible. Head pounding, sneezing, neck hurts, hands ache, rt side cramping, low back throbbing, heart feels like its beating hard, short of breath, center of chest aches, arms ache, rt hip aches, legs throbbing, muscles in legs twitching, pins and needles sensation in lower legs to tips of toes as if being electrocuted, wore out tired, skin extra sensitive, lights and noises bothersome, thoughts scattered, can’t seem to think straight

I’m scared. I don’t want to end up in ER again. I need a Dr that will care. Lord, what time I am afraid I will trust in thee, feeling jittery

https://fox28media.com/news/local/doctor-explains-how-a-lightning-strike-can-damage-the-body

Oct 16

3a- woken from nightmare by feeling heart beating in chest. Have pounding headache. Rt hip throbbing with pain shooting down rt leg to knee. Went to bathroom. Decided to take bp rx (edarbyclor 1/2 pill) to see if that’ll help. Feels like bp headache no fun! 

5:40a bp 138/89 still have pounding headache. Still awake wishing I could sleep. Rt hip throbbing with pain shooting down to thigh. Muscles spasming in legs and arms. Burning stinging nerve pain in back and legs. Neck throbbing rt side. Chest aching. Low back throbbing. Lower lft leg tourniquit tighten feeling with some numbness & tingling. Took 1/2 pill bp rx and pain rx. 

Good news I think my stomach has calmed down. Water tastes good and isn’t upsetting it so far. 

Brain singing “Oh I want some sleep wishing it in my head there Id be able to rest this weary body and my tired head then my symptoms might just calm down a piece cares all past hope at last if I’d get some sleep.” Lord, please make it so.

6:30a- think I doze off for 2 minutes then jerked awake thinking I overslept.

7:20 cancelled appointment for today. 🙁 

8:30a- still awake. Unable toget comfortable. Pain in head and nerves still screaming. Decided to steep some chammomile tea to ease muscles. Lights bright even with screen brightness all way down and night owl activated. Seems like I’m hearing all the noises in neighborhood. Turned on box fan for white noise to hopefully drown out all other noises. 

10a head not pounding but still have headache. Chilling burning sensation down spine. Bp 124/93 hr 74

3:53p Bp 125/93 hr 99 trying to get ready for church. Getting dressed wore me out. Laid down for 10 minutes. Legs cramping. Feel flushed. Still have headache. Rt hip hurts. Nerves tingling burning. Random muscle spams in legs.

9:00 Bp 133/88 hr 85 still have bad headache

11:07p- believe I have paperwork ready for hearing tomorrow. I’m so nervous. The idea of having to admit publicly to strangers regarding my physical limitations has been so humiliating. 

All this added stress has exasperated my symtpoms. Its so draining having to try to remember everything it hurts my brain so so much. Time limits how long can you sit, stand, walk is so exhausting. Who takes the time to time how long you can do any of those things for periods of time anyways?

My whole body is throbbing. I’m crying bc I’m stressed out. Muscles randomly twitching thru body. Low back throbbing. Rt hip throbbing. Hands ache. Stomach aches. A. Flow showed up tonite. Neck throbbing. Feet freezing. At least Im no longer nauceous…just need to get bp back down. No matter the outcome God is in contol. 

I need to destress and relax so I can sleep at least a little. Psalm 62:2; Lamentations 3:22-23, I Timothy 1:7

Psalms 18:3 – I will call upon the Lord, who is worthy to be praised: so shall I be saved from mine enemies.

Oct 17

6:00a- woke exhausted and hurting all over – bones, muscles, joints hurt. Have bad headache. Indigestion. 

My hearing is today. I’m nervous but have put it in God’s hands. 

Verse of day:

Psalms 25:14 – The secret of the Lord is with them that fear him; and he will shew them his covenant.

Song popped in mind…

♫Why should I feel discouraged? Why should the shadows come?

Why should my heart feel lonely And long for heavenly home When Jesus is my portion?

My constant friend is He His eye is on the sparrow And I know he watches me

His eye is on the sparrow And I know He’s watching me

I sing because I’m happy I sing because I’m free For His eye, is on the sparrow

And I know He’s watching me♫

Sang that in my head all way to SS office.

8:30a- There’s a long line in front of SS buliding waiting for doors to open. I hope it’s not too long wait my back is throbbing and I need to sit and rest. Parking was free. PTL!  

Had to sign in upstairs. Thankful for elevator bc I wouldn’t have been able to walk all those stairs! Person in front of me was giving officer hard time. He seems very kind. She had audacity in rude tones to tell him he had bad attitude. Whoah! Not using good manners.

He asked me how I was doing. Told him I was nervous. He assured me there was nothing to be nervous about and explained that it would be just me, my atty, judge in room. Nothing to be nervous about. It was calming somewhat. Chairs were very hard to sit in with all the pain was in. I kept fidgeting trying to get somewhat comfortable. 

I was first on docket. Atty called us into separate room to discuss case. His demeanour was very disturbing to me. He came across smug to me. It was upsetting to me. Basically, since my doctor’s did not notate correctly their findings in my file and did not have proper testing done there was not enough evidence to prove my case. Frustrating!!! Lightning strike injuries are so not understood by the medical field. I wish someone would take interest to study it out. 

The atty was talking way over my head. I used to know the lingo, but I’ve managed to forget it all. Why can’t I understand anymore?? I had to keep having him repeat himself. He gave me impression that he felt like my case was a waste of time. Why couldn’t he tell me before now? Why couldn’t suggest routes to take to help my case? The judge was kind enough to give me options before making final decision that would hurt me in long run. I told myself I wasn’t going to cry but I ended up crying the whole time. I really tried to suck it up but couldn’t.

It didn’t turn out the way I was hoping for, but at least it wasn’t a definite denial. 

Now I’m back to searching for Dr that will work with me, believe me, get the proper testing done, and be affordable. This journey is definitely not for the faint of heart! 

11a- back home again. I’m exhausted hurting and have pounding headache. Laid down on bed to rest. 

11:30a- Joe sweet to make me fried egg sandwhich.

11:45a- got up to recline on heating pad in living room hoping it’ll ease back pain. The warmth feels good on my back.

1:00p- can’t keep my eyes open anymore. My head is pounding and I’m exhausted. Going to go take nap.

4:00p- wasn’t planning on sleeping that long. I’m still tired and hurting. If only I could ease the pain for just a while.

6:00p don’t feel like cooking. Decided to go get pizzas. 

11:59p- pain is keeping me awake. Headache has eased but still there. Neck throbbing. Upper back icy stinging pain. Low back throbbing. Legs throbbing with random muscle pain. Left eyelid little droopy. Hands swollen and achy. Indigestion bad. Sipping on chammomile tea. Lower lft leg tourniquit tighten feeling with some numbness. Toes tingly. Arms ache. Rt ear aches.Basically pain from head to toe.

Oct 18

1a Joe wakes long enough to tell me I need to try to get some sleep. The pain so much it’s hard to sleep. Not sure what time I finally nod off.

4:30a pain wakes from a nightmare. Indigestion is still there but not as bad as before I fell asleep.

 4:54a Indigestion burning sensation in esophagus. Chew 4 papaya.

6:50 Bp 123/74 hr 65 wt 195

Random muscle spasms/twitching mostly in legs. Gotta drop Dezirae off at school. She has volleyball tournament today. I sure wish I was able to go, but my body isn’t able to handle all that yet. I’ll be routing her on in my prayers from home. 

11a- since my bp is down and my headache has eased decided to slice celery so I don’t lose it. Slicing celery made chest hurt horrible with beginning stabbing pain. Had to take ibuprofen to ease pain. 

10:27p I have pain from head to toe! Bp 128/77 hr 72 Headache, neck throbbing, shoulders throbbing, back hurts, arms ache, hands swollen and achy, low back & rt hip throbbing, legs ache, feet ache, Indigestion, period pain aweful. Currently sitting on heating pad hoping it’ll ease lower back pain. Keeping close eye on bp this week. Muscles in legs spasming/twitching randomly. Tips of feet Butt are twitching randomly.

Oct 13

7:19a- didn’t hardly sleep last night tossed & turned all night trying to get comfortable. Whole body hurts. Sinuses severly congested. Hard to breath. Face hurts. Rt hip throbbing. Chest pain has eased some. Neck hurts. Had nightmare when I did sleep. 

Don’t want to get up.

2:00p- I’m exhausted and hurting. Taking a nap…or trying at least. 

3:00p- Keep tossing and turning. Hard to sleep when you hurt so much. 

Thyme tea apparently has a lot of benefits.

Haven’t read artilce yet but I did feel better less dizzy when I was drinking it.

5:30p- rt hip throbbing 7/8 can’t sit comfortably or stand comfortably. Took 3 ibuprofen. Apply cold pack on hip. 

Headache 5; Neck 5. Applied pain roller to back of neck 

8:30p- headache now 9/10. Taking migraine rx and going to bed. Indigestion. Taking 4 papaya enzymes.

9:00p- migraine still bad. Applying heating pad to head & ice pack to back of neck. Still in bed. Had kids get them for me. Indigestion burning. Chewing 1 tums.

10:30p- migraine beginning to ease. Pain in rest of body from neck to toes increasing. Now 9/10. Taking cyclobenzaprene (sp?). I know it as Flexiril easier to spell too. Still have indigestion. Taking 4 more papaya enzymes.

11:10p- pain in body feels like I’m being stung all over!!! Taking 2 Ibuprofuen. Hoping the muscle relaxer kicks in soon bc that will knock me out of my misery for little while.

Oct 14

7:00a- woke at 4ish tossing and turning to get comfortable. Fell back asleep. Woke at 7am. Whole body stiffy and achy. Trouble waking still tired. Muscles randomly twitching thru body. 

Went to bathroom and laid back down.

9:00a- brewed cut of hot tea. Sat on chase lounge to sip. Back hurting 5 – low back throbbing, upper back stinging

10:00a- chest starting to throb 6, rt hip throbbing 5. Taking Naproxen. Applying ice pack. 

Neck aching 5 – applying pain roller

11:30- morning PT exercises. Tired afterwards laid down to rest a bit.

12:30p- son prepared lunch. I ate.

1:30p- son put laundry on bed. daughter helped fold laundry and put it away. Wore out.

Back and arms throbbing. Have headache 5. Need to take Tylenol before it gets worse.

2:15p- Whole body aches. Brain hurts and bit foggy. Legs cramping. Hands swollen and achy. Neck hurts. Low back hurts. Tired. Need to lay down a while to rest.

4:00p- chilly, burning sensation in center of back. Trying to help with dinner just made it worse. Resting on heating pad.

6:00p- rt hip throbbing like toothache. Applying cold pack. Have to keep fidgeting trying to get comfortable. Heads starting to hurt.

9:00p- full blown headache. Feet getting cold. Neck hurts rt side. Rt hip throbbing with pain shooting down rt leg. Back & rt side cramping. Hands ache.

10:20p- Head still pounding. Taking Tylenol. Took night meds (Propranolol, Gabapentin, Cyclobenzaprene, magnesium, calcium d3, & turmeric). 

I don’t like the Cyclobenzaprene. It may help ease the muscle spasms and help me sleep, but I feel like it makes the nightmares wores. 

Oct 15

5:30a- woke around 4:30 from bad dream. Have bad headache. Whole body aches. Rt hip hurting. I’m so tired. If only I could fall back to sleep for a while longer.

6:45a- headache turned migraine. Lights bothersome. Nauseous. Taking migraine rx. Applying cold pack to back of head & heat pad to feet. Feet cold. Laying down in dk room for while.

Ears ringing. Stinging needle pain in forearms & calves area. Rt hip throbbing. Butt hurting.

9:00- I’m very tired & sleepy. Headache has eased though to tolerable range. I’m still nauseous. Sipping on herbal tea hoping it’ll help.

10:00- still nauseous. Trying piece of burnt toast. 

11:00a- a storm must be on coming. I so hurt thru my whole body!!! It feels like all my nerve endings are tingling and I’m being poked with needles eveywhere!!!

My Mom came over to help me prepare a little for my hearing on Thursday. I’ve gotten used to living with this daily pain and trying to work thru it. It’s hard trying to focus on it again to explain to judge why and how it has affected my daily life. It hurts my brain to think so much. My headach is bad again. Ugh!

Leaning on heating pad. Taking Tylenol sinus. Drinking water. Closing eyes for while.

12:00p- put tea on stove to brew and forgot about it. Forgot to put timer on to remind me. Thankfully, Dezirae noticed and turned it off. Jakob willingly finished making it for me. 

12:30p- I need a nap. Probably should eat lunch first. 

1:00p- had daughter make pbj sandwhich bc I’m not feeling well and dizzy. Sandwhich not agreeing with me. Still nauceous. Taking ginger to see if that helps. Oh, I’m out. Ugh!

1:23p- called pharmacy. I’m having allergic reaction to rx. Have to call Dr.

Dry heeving. Laying down for now.

1:30- dry heeving has caused center of chest to hurt and icy sensation to begin in center. Whole body aches. Head hurts. Ears ringing. Mom suggested papaya enzymes.

2:40p- chilling tingling sensation in upper body, arms, and head.

3:50a- bad headache still have, arms and hands stinging pain, dizzy, feet freezing w/socks on, legs throbbing, rt hip aches, stomach hurts, nauseous still slightly. Muscle cramping mid section, throat hurts, sleepy

Dr not read file why not? Allergic to sulfa drugs not she see?? Lord, please help!!

4:07p- Dr finally called back. I’m to stay off the hydrothoro… (can’t recall name) & come in for BP check in one week. Asked so I’m not suppose to take any bp rx or do I go back on the other rx. Answer no stay off the Hydrochlorothiazide (it popped up in auto select) and come in for BP check. Do I need to make apt? No just tell them at front desk you’re here for BP check. 

Decided to check bp. It is currently 135/90 hr 64. 

I just got Bp regulated and doing good. Now this!!! Ugh!! 

6:42p- able hold down dinner so far. Still have bad headache. Nerves stinging thru body. Rt hip throbbing. Face feels flushed. 

My nerves are stinging burning in torso. Wish I knew how to explain the screaming nerve pain pulsating thru my body right now. 

11:00p- just as my headache was easing a thunderstorm decided to roll through causing migraine to flare up. Nerves tensed causing burning sensation in body. I’m so exhausted and hurting. Took 2nd Benadryl still slight nauceous. Took 2nd relpax bc migraine came back. Hope to sleep soon. Lightning keeps making me jump.