Lightning Strike Recovery Journal Entries 2019 Feb 27-28

Feb 27

8:45a- woke at 6:30 muscles spazing in legs. Back throbbing. Headaches. Spring is in the air my sinuses are amuck. Neck and chest hurt when I cough. Co-op today for kids. They are so excited they want to be there early! For the moment, I choose to be thankful for God’s faithfulness and mercies for they are new every morning. 

1:00- co-op went well today. Bunch of families out sick. I enjoy the US Geography class. Kids learning states and their capitals. I was able to do the game with kids today. Had fun. 

The class really stretches my brain and gives headache. Have to rest a while when I get home.

Feeling weak, rt hip throbbing, tailbone throbbing, headache, rt arm hurts, hands swollen and achy, neck hurts, shoulders tight, pain in left center of chest. 

Cat nap lasted about 10 minutes if that. Received call from Jakob. Got cut short because Joe was calling him. Figures.

9:51p- Jakob called back later. Needed help with his taxes. Unable to comprehend all he’s telling me. He said just him being able to talk it out with me helped. It probably would be better if I could see what he’s talking about. It was nice to be able to talk with him bc it’s been a long time since we talk that long. I miss my Bubba.

I’m exhausted but awake. In bed by 9:30. Lower half of body throbbing and tingling. Upper left side of chest throbbing. Rt shoulder hurts. Thrush still there. Headache. Dr apt tomorrow. Left shin & foot going numb feels weird.

10:15p- arms stinging

Feb 28

5:51a- woke at 2am & 5am. Woke from unsettling dream (only thing I remember is that I had argument with best friend and I was driving down wrong side of road thinking I was on right side). Muscles randomly twitching thru body, tears escaping my eyes, headache, need to get some sleep.  

7:42a- pain is great today…must be dreary weather. Nervous about Dr apt. Need to have him fill out paperwork for atty. Don’t recall being asked any of the questions before. Lord, I need thee every hour!

8:45a- Dr apt. Bp 113/69 hrt 69 weight 198 temp 97.7

The nurse, Joseph, had never met lightning survivor. Struggling remembering how old I am. I think it’s irrelevant, but they keep asking me. Still trips me up everytime. Mom had to explain why I had trouble remembering. Jospeh (I can remember his name bc it’s my husband’s name☺)

Saw someone familiar in hallway but I couldn’t place why I knew him. Told nurse that he looked familiar but I have no clue why. Dezirae kindly reminded me that he was from my TBI group. Oh, but I still don’t remember his name. 

When mom explained why I had struggle with memory. The guy got excited. He thought it was cool but not cool I was injured.  I told him I understood – it’s cool from a medical aspect. He never met a lightning survivor so he asked for my story. 

Thrush has improved but I have to wait one week then take 2nd round of medicine. I’m sick of medicine. 

12:05p- Dr didn’t fill out paperwork. Atty said not to worry. They’ll build case on medical records.

Chest in between shoulder blades just below chin just popped. Ouch! Feet are freezing!

7:25p- sharp pain left center of chest

Lightning Strike Recovery Journal Entries 2019 Feb 22-24

Feb 22

6:51a- Had Joe rub pain relief essential oils blend on back and I cried myself to sleep last night around  10pm. Not sure what time I fell asleep but I slept soundly until 5am. Pain had diminished but I still hurt greatly. 

Legs feel like lead but I haven’t even gotten up yet. Middle and lower back throbbing. Neck hurts. Headache not as bad but still there. Eyes watery. Lft ear ringing. Stomach stopped hurting. Muscles twitching throughout body. Need to get mind off pain. Stuffy nose. Calves throbbing.

Thank you, Lord, for the sweet sleep.

Tender moments of my husband’s care make me love him all the more. ❤

5:30p- Joe was sweet and brought home pizza for dinner. He makes my heart skip beats. ☺

Found this article interesting.

Are You a Human Barometer?  Feeling the Migraine Pressure

https://www.migraineagain.com/human-barometer-pressure-

10:13p- Still trying to work on Dezirae’s room. Washed 5 loads today. Told her that was too much. Needs to purge. Feeling it now. I’m really hurting all over! 

News had a story about a pastor that was struck by lightning in Birmingham recently. He had a short stay in the hospital but no lasting effects. 

Tried new regimen for getting rid of candida. Baking soda water mouth rinse. Take probiotic. Wait 15 minutes. Take Diatomaceous Earth. Wait 1 hour. Take morning meds. D.E. gave me some energy today. I guess that’s why I felt like I could do the laundry. Got to remember to not push it. Ugh! Now whole body is throbbing. Chest and torso pain so much. Need to take pain rx, muscle relaxer, night meds and go to bed. Gotta muster up strength to get out of chair to go to bed.

Feb 23

9:38a- woke in great pain…arms hands legs back neck. Migraine. Gait is wobbly. Need something but don’t know what. Stomach hurts.  

Managed to make waffles for breakfast for kids. I ate scrambled egg.

So sleepy.

11:42p- migraine starting to ease. Lft cut on ring finger is oozing pus. Need to put baindaid on it. Overall lethargic.

Wearing sunglasses inside.

3:30p- managed to eat ramen soup for lunch. Had kids make their own lunch. Crashed on chair in livingroom while watching movie. I know I have things that need to be done, but I don’t function well with migraine in tow. Headache eased slightly.  Dezirae hung out with me. Think she took nap too. Mom came over to check on me. I woke when she opened door. 

5:00- Mom made spaghetti for us for dinner to help me out. Sweet. Realized why I hurt so bad – overdid it yday – cleaned my bathroom floor and washed 5 loads laundry. Gotta remember to only do so much when I do feel good. 

11:29p- Dezirae’s been wanting to make homemade face mask with bentonite clay and asked me to do it with her. I checked ingredients. Thought it was okay. Dezirae had a reaction and made her face all red, burning feeling & itchy. Had her wash face with cool water. My face not as bad of reaction. Applied aloe no good. Wash face with warm hypoallergenic soapy water and cloth. Gave benadryl. Took 30 minutes or so face to calm down. Apply hypoallergenic hydrating lotion. Be while for trying that again. 

As I was finishing up bulletin and posting on blog heard thunder. Frightened me. Hurried up and turned off electronics and unplugged them. Going to my safe place.

Chest throbbing, indigestion, stomach hurts, throat hurts, hands swollen and achy, rt hip hurts, headache, feet cold, pain rx not easing pain. So sleepy, lack of concentration, low back throbbing.

Feb 24

12:30a- stinging pain in hands and wrists, calves throbbing, stinging needle pain in back, rt ear ringing

8:19a- woke around 6:30 thinking I overslept. Calves throbbing. Muscles twitching thru body. Hands swollen and throbbing. 

Discovered if I eat something small before I take my meds my stomach doesn’t hurt as bad. Stuffy and congested. Headache.

Cut on lft ring finger is now blistering just like the burn on my thumb did.  Thunb 

12:30p- actually played 2 hymns this morning with more than 2 sharps. I usually can’t do this but recenlty not able to explain how or why can transpose some hymns and play it. I only ever took about 1 year of piano lessons when little. Everything else I learned on my own. Not good with timing only play how I’ve heard it sung before.

4:30p- took nap after lunch about 2 hours. Dezirae helped me prep mission house for missionary on Thursday. Finding if I make lists of things I need to get done it helps me stay focused enough to complete tasks.  

6:23p- eyes blurring, headache, coughing, rt ear ringing, feeling a bit dizzy

10:27p- case of hiccups are giving me stinging needle pain in my back. Ouch!

Lightning Strike Recovery Journal Entries 2019 Feb 19-21

Feb 19

 Mom took me to GNC – no, no scratch that – took me to Health Hut to talk to the guy about my thrush. he said when he was younger (so wish I could remember the details. So much information to process is hard to retain. It’s not that I’m not trying to focus I look people in eye so they know I’m trying too much info at once gets lost in my brain somewhere or maybe it goes out the other ear) somebody that he knew had thrush she would take liquid acidophilus. He said I needed to alkaline my system and suggested I take a teaspoon of baking soda in water use it as a mouth wash in am wait 15  minutes then take probiotic. Wait for 5 to 10 minutes before eating early in morning.

I’m sure I messed up some of that info but this is what comes out. Supposedly a goo roo dr in either Birmingham or Atlanta says that besides reducing gluten, yeasts, processed foods, sugars one also needs to avoid block cheeses and vinegars because they’re made with yeast. Good grief!  

Feb 20

9:07a- Crazy morning! I set my alarm for 6:30 so I could be ready to leave for co-op by 8:40 but that didn’t happen. I never heard the alarm! Woke at 7:30. Had to get a pkg ready for mail but too big for mailbox. Ugh! 

Gluten free toast for breakfast. Tasted pretty good. 

Getting bag ready for co-op realized I forgot to laminate the maps for geography class. Have to bring my laminator and pages with me. I can do it first hour. 

I was going to freshen my memory for the Bible study I’m doing with another mom but that didn’t happen. Ugh!  Lord, please go before me and help me say the right things. Help me be an encourager and show You can be our strength in time of need. I am nothing but You are everything.

11:15a- Missed 2 phone calls because hands were full. I found the check I misplaced. It was right where I put it (computer bag). Phone calls were reminders for Dr apts tomorrow and that I have Rx ready to be picked up. 

Bible study went well. It was encouraging to me as well. I enjoy being able to talk about God without reservation. I also like learning. If money were no option, I’d be a lifetime student. Need to find a hobby.

Slight headache.  Eyes feel blurry. Scattered thoughts. Hands swollen and achy. Rt hip throbbing.

3:00p- felt odd after eating late lunch  yucky feeling all over and as if I were to faint. I don’t ever remember fainting so that would be weird. Decided to lay down for half hour. Never fell asleep.

Remember that I needed to mail pkg at p.o.  Burning pain in middle of lower back. Wore out from todays events. 

10:39p- wide awake, hands swollen and achy, lower & middle back aches, head hurts. 

Trying something different to get rid of thrush. Swishing with baking soda water in am. Taking 50 billion culture probiotic (has to be refrigerated). Wait 15 minutes to eat breakfast. Swishing with baking soda water in pm. Taking 1 Tbs Diatomaceous Earth in pm. I think tongue is already looking better. I hope to be over this stuff soon. 

Chest hurts, neck hurts, rt side aches.

Feb 21

Edarbyclor $203.57 (3) =610.71

Dexliant $202.66 (1) = 202.66

Relpax $64.27 (5) = 321.25

Nasonex $69.83 (3) = 209.49

Fluconazole $12.67 (7) = 88.75

Total =$1,432.86

Cash paid – $19.50

Amount saved – $1,413.36 WOW! Thank you, Lord!

Lightning Strikes Journal Entries 2019 Feb 10-12

Feb 10

2:18a- woke up at 6:30. My alarm didn’t go off as normal my phone just vibrated but I heard it. Snoozed like 3 times before getting up. Took shower. Got ready. Took rx. Swished with coconut & oregano oil for thrush. Tongue looking much better just a little more to go. I’m feeling better.

9:00a- went to check on mission house to make sure it was ready for a missionary this afternoon. My world was turned upside down and off kilter. Looked like someone got in house left crumbs on table & stove that molded. Someone turned off a/c units and mold was everywhere! I told Dezirae we were gonna have to clean it. Went & told Joe. Entire family jumped in to help wipe whole house down & clean it back up. Need a better vacuum & dust pan. Got it clean but am exhausted and hurting! 

1:00p- Upper back is stinging needles. Can’t sleep when it hurts like that. Have to also start decorating for Valentine’s dinner on Thursday. 

11:00p- I’m exhausted but having trouble falling asleep. Whole body hurting. Hands swollen and achy and tingling. Skin itchy, eyes watering, rt hip throbbing like toothache, low back throbbing. 

Had dinner with missionaries. Enjoyed listening to everyone talking. I’m ready to crash just wish I could.

Feb 11

7:00a- woke with headache. hands swollen, achy, & tingly. Rt hip & back aches. Muscles twitching throughout body. Eyes watery. Chilling sensation in center of chest. Face itches. Center of chest hurts. Neck hurts. Slightly congested. 

9:00a- kids were sweet and brought me breakfast in bed.

10:30a- able to get Valentine’s care package in mail for Jakob today.

11:30- working on next item for taxes…my brain and eyes are already feeling blurry and my speech is messed up (making up words, reversing letters & numbers, etc). Called tuna “turkey” and told the kids to squinch it to make it go farther. Jordon asked what that meant. I told him I had no idea just made it up. I meant to tell them try to make it go farther but couldn’t remember word to use. Lol!

*It’s important to learn to laugh at ones self or you’ll die of frustration and embarrassment. Don’t misunderstand bc I do get quite embarrassed at times especially in public, but I’m working on learning how to love myself inspite of my shortcomings.  

12:30- turned wrong and whole body cramping. Severe cramping on right side. Oh, it hurts so!!! Joe told me to check to make sure I’m taking enough calcium and magnesium. Told him I expected it bc  I overdid it this weekend with walking too much on Saturday, having to clean mission trailer unexpectedly on Sunday and decorating for Valentine’s dinner. 

2:59- need to rest a bit. Brain is swimming & headache in beginning to surface. Upper back is throbbing and stinging slightly. Neck hurts. Legs and feet are freezing. It’s 71 inside. Craving fried lentils. Weird. 

8:00p- spot on head hurting bad. Checked in mirror. Barely touched and it popped. Ugh! Cleaned it as best I could. Can only hold my arms up for a short while before they throb like a toothache. Applied Frankincense oil to keep infection away. 

11:49p- stinging pain in hands, skin feels itchy, headache, and head hurts, chest feels like my ribs are caught together. My body feels hot to touch but I’m freezing.

It’s really hard to fall asleep when there’s stinging pain. When I overdo it, I suffer for next two or three days depending on how bad I overdo. It’s just my new normal. 

Not complaining in the least. I pray God can use this for His glory. If I can bring awareness and help others along the way then so be it. Tonight is one of the nights I’ll probably have to take pain rx & relaxer to get to sleep. 

Feb 12

7:00a- woke from a nightmare! Hands numb & tingling. Neck hurts. Tired. Cold.

7:59a- sitting in bed reading. Nose starts bleeding. So wish I could figure out cause. Nerves are tingly thru body.

8:05a- nosebleed lasted about 3 minutes. Now I have a headache.

🎶It’s a good thing to give thanks to the Lord and sing praises to His name🎶 (if only I could remember rest of the song). 

10:07a- having seemingly allergy attack this morning – major trouble with sinuses all of a sudden. Only things I’ve had so far is my medicine/vitamins (Edarbyclor, probiotic, alpha lipoic acid, b complex, propranolol, b-12), grits n egg, water. I don’t understand. Drinking cup of hot green decaf tea with peppermint and copabia oils to see it’ll help. Gotta figure out how to heal my neurological system. 

11:19a- Just finished posting rest of journal entries for September 2017. Need to rest my brain. Eyes & brain feel blurry and swimish. 

11:45a-  I have a headache. I have a headache. hey-hey-hey-hey

12:43p- serious indigestion. Eating yogurt to calm it.

3:00p- managed to paint 2nd wall in Dezirae’s room, but I’m done for rest of day. Out of breath, brain swimming, unable to focus much, gait off, need to rest.

5:00p- trouble getting rice to cook. Forgot to replace lid so it took like forever to cook – way past 30 minutes. Kids had my kitchen hijacked to work on their valentine boxes for co-op tomorrow. I have no idea what we’re going to bring.

6:49p – Second wall painted today. I know pic isn’t very good. It’s coming along.

11:19p- lower back is throbbing like toothache. Took rx & melatonin. May need heating pad, but I’m really hot so I’m trying to avoid more heat. Even turned on box fan which I’m not feeling much of. It’s on Joe’s side. Head hurts. Hands tingly. Skin itchy. Feet hurt. Neck hurts. Diffusing Lavendar oil.

Thrush still not completely gone but it’s much better. Taking Echinacea. Though I think I forgot to today. Did swish with oil of oregano & coconut oil this morning. Upper chest aching & tense. Rt side cramping. Feet throbbing. Hiccups?  

Lightning Strikes Journal Entries 2019 Feb 4-6

Feb 4

6:49a- woke thinking I was late. Upper chest tight muscles, legs throbbing, low back throbbing, rt hip aches, rt ear hurts, hands swollen and achy, lft hand numbish. Tired and feel worn out.

🎶I will meet you in the morning over there🎶

7:30a- Dezirae came to tell me that she thinks she found lice in her hair. I’m not up to this. 

8:00a- spent 30 minutes or so trying to find/remember where I put the fine tooth comb. Can’t find it. Ugh!

12:00p- spent most morning checking her hair and treating with tea tree, lavender, and peppermint spray. I cut 6″ off her hair it was so long! My head started itching too so I had her check my hair too. Nothing. Thank the Lord!

Put dinner (ham & scalloped potatoes) in slow cooker. 

All my nerve fiber endings are pulsating!!! I hurt all over. I’m exhausted!! Time for lunch and a break. 

2:52p- decided to try to dust bookshlef in my room. Only able to dust and declutter 2 shelves. Whole upper body throbbing. Need to rest. It looks like a year’s worth of dust! Oh, wait I haven’t been able to do this since I was struck that’s 18 months ago!! 

2:53p- mom called to see if I was up to going to produce stand. Told her to give me 5 minutes. I need potatoes.

4:25p- Got home just before Joe text me he was on his way home. Kids helped put food way. I had to repkg chicken to meal size. Time to finish up for dinner.

6:00p- sitting with heating pad on back and shoulders. They’re throbbing.

7:00p-  tried to watch some TV but it’s nothing but trash

Feb 5

Scripture Valentine for today: Jeremiah 31:3

Call unto me, and I will answer thee, and shew thee great and mighty things, which thou knowest not.

10:00a- TBI support group

Bryan Dewberry with Southern Brain Injury Clinic. Beriactric Oxygen Chamber Treatment. 

Wonder if stabilized liquid oxygen could work instead? Must research it out.

Talked with Bo’s Aunt.  Don’t remember her name. Able to share some of information. 

2:00p- brain overloaded & foggy feeling, slightly dizzy, headache, body hurts. Need to rest a while – laying down on bed

3:00p- Mom picked Dezirae & I up to go with her to run errands. 

7:53p- Dezirae cooked dinner – tacos. Yum! Tried to ask for spoon for the sour cream instead it came out need a fork for the mayonnaise.

9:46p- think I need to pick another day to post my brain is crossed. Words aren’t coming out right.

I’m exhausted. 

Joe came to give me kiss goodnight. Said my forehead was warm like I have a fever. My head was feeling warm, but my feet are freezing. I think it’s time to go to bed and try again tomorrow.

Asked Jordon to close the walls instead of close up and turn off lights.

Oh, co-op tomorrow. 

Temp is 99. I wonder why? 

Symptoms: headache, center of chest hurts, upper back aches, indigestion, periodic ears ringing, rt ear hurts, cough, feet freezing, skin sensitive to touch, uncomfortable, rt hip aches, low back aches, exhausted, stuffy nose, still dealing with thrush (last dose of 2nd round tonight), nasal discharge, itchy skin, calves cramping pain in center of back.

Fork for the mayonnaise instead of spoon for the sour cream?  (Oh the mixed up sayings that come out of my mouth sometimes. LOL!)

Feb 6

7:00a- rough night up at 2:30 & 5:30

Rt hip throbbing, legs ache, muscles in rt arm twitching, low back throbbing, hands swollen and achy

9:05a- tailbone down to feet are throbbing! 

10:50a- Jordon came to give me a hug. Told me he loved me. Then he told me, “You don’t look to good.” Thanks.

10:55a- Dezirae came and gave me hug & kiss on cheek. Sweet kids.

11:00a- itching is fierce today. Forgot my orange for a snack (not hungry though). Lft eye looks droopy to me today. Middle of back has icy sensation giving me cold chills and headache.

11:28a- Joe working lots of hours next two weeks. It’s frustrating bc of juggling the car with co-op & Dr apts. Need to remind myself that this too shall pass and the extra money is needed.

1152a Oil of Oregano

Now trying Oil of Oregano to get rid of thrush

Morning – 1 tsp coconut oil & 1 drop oil of oregano. Swish in mouth and spit out.

https://www.disabled-world.com/medical/alternative/oregano-oil.php

3:00p- crashed couldn’t keep eyes open anymore slept for an hour

4:00p- still tired having trouble getting motivated to get up

5:00p- decided I needed to figure out dinner. Got really hot & opened kitchen window & door. Couldn’t remember how to bake oven fried chicken had to look up recipe. 

6:00p- attempted to plug in box fan in kitchen to circulate air. Bent over to plug in fan. Holy cow! I about fell over in pain. Had to sit a minute to catch my breath. Extreme pain in center of chest!!! Costochondritis flairs up if I overdo in slightest amount. This has been one of the frustrating parts of this endeavor. Learning what my limits are quite challenging especially when I want to improve and get better but my Dr’s just tell me to live everyday life.  

8:00p- finally remembered to pay phone bill online. One day I’ll get better at juggling everything.

10:29p- breathing sounds funny not sure how to explain. Three doses of coconut oil & oil of oregano swish today. Tongue already looking better. I don’t remember last time I saw a pink tongue. Taking Bio-Cleanse & Echinacea as well. Also, have been limiting my gluten & sugar intake. Doing this for 11 days now. 

Trying to drink lots of purified water (goal is one gallon daily but I’m only half way there). One glass of hot decaffeinated green tea in am. Water during day. Cold decaffeinated green tea at dinner. I’m a southern gal. Gotta have my tea.

Symptoms: headache, low back throbbing, skin touchy, center of chest hurts, hands swollen and achy, eyes watery, tired but awake, rt hip hurts, brain hurts from todays activities

11:16p- feet throbbing, legs cramping, upper shoulders stinging

Lightning Strikes Journal Entries 2019 Feb 1-3

Feb 1

5:00am- gotta take my husband to work. It’s too early. 

6:00a- I already have a headache. 

7:00a- can tell I haven’t driven in a while bc my legs cramped up driving home. Wore me out too. Taking nap. 

Muscles in legs twitching horribly. Need to calm so I can sleep it off.

9:00a- oops! Slept longer than I planned. Need to check on kids. 

10:59p- day got away from me. 

Goals today were: write “thank you” cards, clean window, 

I’m exhausted. Legs cramping, neck & shoulders ache, rt hip hurts, cramping in lower abs especially when I cough, low back throbbing, gas, hands swollen and achy

Writing down daily goals and completing them make me feel better

Feb 2

7:25a- I hurt all over! Head hurts too. Body feels chilled. There are times I get tired of hurting all over all the time.

🎶It’s a good thing to give thanks to the Lord and sing praises to His name. 🎶 

*wish I could remember rest of lyrics

8:00a- having a rough morning. I’m a basket case. Tears flowing. 🙁  

Joe trying to get things going this morning but it’s just rubbing me roughly. Trying my best to mind my verbiage so to not cause argument. 

I don’t understand how I can go to bed happy and calm and wake up sad and upset.

Got a sweet message from Emma this morning that’s she’s praying for me.

9:15a- riding with Dad & Mom to visitation this morning. Radio going, Dad talking, Mom talking – I hear it all but none of it is registering. It’s all just scrambled noise – too much going on to focus on one thing. Crazy!

10:00a- chilly tingling sensation in center of chest. Toes tingling and cold with sensation moving slowly to cover whole foot.

🎶Who can cheer the heart like Jesus, by His presence all divine? True and tender, pure and precious, O how blessed to call Him mine! All that thrills my soul is Jesus, He is more than life to me; And the fairest of ten thousand In my blessed Lord I see.🎶

10:33a- gotta get my brain out of fight & flight mode. All my anxieties and fears come flooding to the forefront!!! Praying constantly for protection!!! Beehives (I’m allergic), big dogs (I’ve been attacked -thankful my husband was near to get mean dog to let go of my foot!). Go boldly (I’m a chicken right now). Greater is He that is in me than he that is in the world (good thing bc I’m a feeble soul). One possible prospect.

I’m an overcomer. With God’s help I can do this.

12:22p- made pasta salad for lunch. Dezirae helped me cut the black olives up. I’m resting now. Legs throbbing! Neck hurts. I’m tired. 

10:05p- rested by watching a movie after lunch. Spent rest of day doing bulletin, monthly prayer list, printed nursery schedule & procedures list to laminate, made chili & rolls for dinner. 

Legs are throbbing and sore. Two days left of nystatin oral rinse and thrush is still not completely gone. Don’t know what to do. 

I didn’t know that echinacea can keep candida at bay. I need to start that regimen back up – 3 weeks on 1 week off

Feb 3

7:00a- Upon waking, my lower legs throbbing as if I had worked out heavy and hard for a long while. Rt hip throbbing. Hands swollen. 

I’ve forgotten what piece I was gonna play for offeratory today. Know I didn’t write it down. Ugh!

I’m determined it’s still gonna be a good day.  

Tongue feels funny. Check in mirror. Thrush is worse than yday all because I gave in and ate three yeast rolls for dinner! This is ridiculous. I’m tired of not feeling well. I’ll ask my wellness friends for suggestions.

– Oil of Oregano, Echinacea, Grapefruit seed extract, 

9:00a- practicing hymns for today. Ugh three sharps are not my friend. Started trying to play and asked the Lord to help. I cannot explain it but was able to transpose to flats and play that one song.

I think forcing myself to keep playing piano has actually helped my brain. 

Brain feeling foggy and blurry already. Wish I could get someone to explain the how’s and why’s of this injury. I may look normnal but I’m far from it on inside.

Shoes I’m wearing are killing my legs! I may have to be a country chic and go barefoot for services. I can’t torture myself this way. They aren’t even heals. I don’t get it. 

11:00a- checked on food to see how it’s cooking in crocpkot. Discovered that I forgot to plug it in!!! I dislike when I do that. It’s frustrating. Plugged it in and on high. Hope it works but got feeling it won’t be ready.

12:30p-  food is nowhere near ready. Guess we’ll have to back up and punt. Decided to go to store pick up fried chicken & a few groceries. Kids big help getting it done quickly. 

2:15p- I’m exhausted. Need to rest a while. 

9 :57p- cat nap lasted about 15min. Hard to sleep when you hurt so much. Chose to do some work around church. Trimmed up the roses bushes. Typed up some things for Joe. Had Jordon & Dezirae to each help do something too.  Had good services today. 

Had lunch for dinner. Surprised Joe tonight.  Legs still sore and throbbing. Lower back aches. Rt side hurts. Hands swollen and achy. Rt ear hurts. Parts of skin crawling. Feet hurting.

Lighting Survivor Journal Entries 10-12 Dec 2018

Dec 10

6:32p doing too much today. Can feel my face turning red. Walmart doesn’t have enough wheelchairs. Managed to walk behind buggy but it was a bit much. I hurt all over. Headache. Skin is flushing. Chilling sensation at base of neck. Hands swollen. Brain foggy. Face hurts. Need to rest quite a while. 

Sipping peppermint tea to help with easing pain. 

8:00p so congested and face hurts. Decided to do nasal cleanse. Now my nasal passages and eyes are burning!!!! 

9.24p It’s funny when your son actually asks for coal for Christmas (not because he was naughty). LOL!

Dec 11

12:26a still wide awake. Left leg muscles cramping. Neck hurts. Toes cold. Just read disheartening email that Jordon’s basketball season has been cancelled. He’s gonna be heartbroken. I just wanna cry that’s the biggest reason we chose that co-op. I’ll have to have Joe call to see what’s up. 

11:45a – attended funeral today. Met another person that was struck by lightning (Pastor Williams). I knew he looked familiar but not know why. He was Pastor in Ocala Fl while my Dad was in Dunnellon, Fl. He was struck while talking on phone (Shockley).  

1:04p unexpected stinging sharp pain in lip like it was being tazzed. Ugh!

6:15p wasn’t feeling well at store. Had to lay down for a while ended up sleeping  for about 2 hours

7:00p decided to string popcorn for tree tonight…tree needs to be finished.  Only able to get bout dozen pieces on before back started throbbing and stinging. Dezirae took over for a while.

10:30 decided to clean up kitchen a little and work on blog. Back began feeling icy. Rt ear hurts. Sniffles. Headache. Legs cramping. Face hurts. Taking antibiotics for sinus infection – not that I really want to but I do want to feel better than I have been. Tired but still awake.

Dec 12

6:30a – woke but don’t want to get up or out from under covers. I’m freezing! 

Hands swollen and achy. Eyes blurry. Toes freezing. Legs cramping. Loud noises bothersome. Bright lights bothersome. I carry sunglasses everywhere now to give eyes a break.

10:53a – at Dr with son for blackout episodes. Bp fine. Temp fine. Did EKG. EKG looks gorgeous. Bloodwork.

11:12a- center of chest hurting. Lights bright & bothersome.

*Nurse’s aunt was struck by lightning several years ago. She has no lasting side effects.

Referral for MRI & echocardiogram. Referral apt to pediatric cardiologist.

That’s enough to wear anyone out. He has to limit sports activity & no driving. Bummer.

7:00p – made batch of Grinch Christmas cookies. We were invited to friends home for lunch after The Nutcracker on Friday. I’m looking forward to it. 

10:00p- ‘twas gonna diffuse lavendar, but cord to diffuser missing. Made kids help look for it – after a few moments told them to go to bed and we’ll look for it in morning. I can feel my nerves tensing bc I’m upset not being able to use diffuser. Ugh! 

Gonna use pain roller blend on chest. Back is throbbing too. 

10:36p – I’m a hurting for sure too much activity today. Center of chest throbbing. Hands swollen and achy. Neck hurts to move. I’ve taken my pain rx (thankfully I have a spare in purse bc I’m not sure where script is I just got filled…strange) & melatonin. Hopefully it’ll help me go to sleep. I think to myself though I may be suffering so there are others worse off than me. Haven’t done much research lately. My schedule is all out of whack and it’s throwing me off.

I think to myself I see eyes of blue and red roses too what a wonderful world. Thank you Lord for another day. Please heal my son. My heart bleeds for him as he is so disappointed in not being able to play basketball this year. I just want to cry for him. Thank you Lord for directing our paths even when we don’t understand what’s going on.

Lightning Survivor Journal Entries 7-9 Dec 2018

Dec 7

7:00am -Joe scared me awake around 6:30. Woke me up from bad dream…

Chest hurts, rt side cramping, headache (wish I could get rid of them for good). Muscles twitching in left side.

11:30a- got stressed over typing up Dezirae’s Bible quiz & both kids needing my help at the same time. Needed to pick up my rx at pharmacy. Told Joe I needed some therapy & I’m going to the Thrift store. Found a few Christmas presents. Rx ended up being more than I expected. Back home before Joe had to leave for work. 

1:42p- getting chilling sensation at base of brain down back of neck & left ear – second time today

11:50p- had a decent day not too much pain unless I was doing too much. Vaccumed under part of bed. Had to have Jordon move bed back even though it was on wheels bc my back was hurting. Hurt my rt arm trying to reach object under bed. Had to have Dezirae get it out for me. Frustrating bc I used to be able to rearrange & deep clean my room in one day. Not anymore. It’s been over a year since my room was deep cleaned. Now I have to do it in spurts. Oh bother.

Headache.  Stuffy nose. Muscles randomly twitching in legs. Skin itches. Eyes watery. Tailbone just popped. Low back aches. Rt hip hurts. Feet freezing though I have socks on. Neck aches. Upper back stinging needle pain. Wide awake. Ringing in ears.

Dec 8

12:11a- stabbing pain in center of rt thigh. I need a new doctor specialist. Need one that cares enough to learn with me or try to research answers.

1:57 still wide awake

https://emedicine.medscape.com/article/433682-treatment#d9

9:20a- so much pain!!! Rt arm & hand numb but tingly, swollen hands & pain. Upper back stinging needle pain. Low back throbbing. Feet tingly and pain. Upper arms ache. Stuffy nose..trouble breathing. It’s raining outside so I’m sure that’s part of it. At least my toes are warm. Oh, the pain.

2:27p neck is all knotted and hurting. Headache won’t go away. Bp is 100/73 at least that’s good. Last time I remember seeing it that low was before children. Yes! 

11:30p turned in bed caused extreme painful cramp in right side couldn’t move for a few minutes

Dec 9

8:00a woke with headache. Neck hurts to turn. Tired of headaches

9:30- having trouble playing Christmas hymns today. They’re gonna be the death of me so frustrating. Lord, please send us a pianist that can play better than me. Eyes blurry. Toes freezing. 

2:00p took kids to Bayou la Batre Christmas parade. Went into store while waiting for parade to start. Parade was kind of cute and short. Been a rainy month so all others had been rained out.

3:30p – sharp stabbing pain in center of chest. Tensed up and wanted to hunch over from the pain but knew I couldn’t bc iz driving. Oh in need of neck massage. Neck muscles so tight shoots pain down neck and body. I’m so tired.

9:18p – center of chest stabbing pain. Chilling sensation at base of neck and shoulders area.

Lightning Survivor Journal Entries 4-6 Dec 2018

Dec 4

10:00 tbi mtg (therapeutic recreation svc- Suzie , Bunny, Misty)

Played apples 2 apples

1:00p – recvd upsetting letter from mtg co. Joe trying to get me to make decision about going to Jackson with him. It’s stressing me out. 

2:11p – my brain hurts. I’m exhausted. 

2:50p – weird icy sensation inside both ears and head

6:22p- its 72 degrees inside but I’m freezing!!! Not feeling very well.

10:00p – Joe came home gave me kiss said that I feel warm and look like I don’t feel good. Told him I didn’t.

Dec 5

10:30a- not feeling well. Muscles twitching randomly thru body. Fingers throb and tingly. Legs ache.

If I turn too far to the right or left too far my sides cramp up painfully.

1:00p- Joe was sweet and stopped by store on his way home from hunting. He got sprite and ramen soup for me. He got a deer. Yeah!

7:50pm – starting to feel like I’m freezing again!!! Must have a virus or something. Not done much of anything today.  Goose bumps everywhere. I’m still in my pj pants, fuzzy socks, & a sweater – still freezing.

10:23pm – painful chilling sensation in center of chest – weird bc I’ve done nothing today. Second thought the only productive thing I’ve done was print and cut letters for bulletin board.

Decided to post to blog today. Every time I work on it my eyes get blurry and I get a headache.

I have mixed emotions looking back. I’m glad I heed advise to journal my days bc I don’t remember alot of things. I’m sad because I wish I could remember without the journal. I’m thankful for the support my family has been to me. 

Current medications/supplements:

Propranolol, Zyrtec, Calcium, Magnesium, Probiotic, Turmeric, Naproxen, Flexeril, Melatonin, Edarbyclor, Alpha Lipoc Acid, B Complex, MSM, B12 melt tabs.

11:33p- still awake-even after taking Melatonin. Center of chest throbbing. Headache. Body aches. Fingers hurts. Low back aches. Rt hip aches. Shoulders hurt. Trouble getting comfortable.

Dec 6

8:48a – rough night woke every couple hours. Dream of lost things…last lost thing was my keys. I just had them to open trunk of car, but when I was done they were no where to be found!

Joe woke me up at 5am because he couldn’t find his uniform pants. I wrote note and put it by coffee pot. He didn’t see it yet. Didn’t know it’d take an hour for them to dry. Ugh! So much for trying to be nice. I think he thanked me for trying to take care of him.

Woke to feeling like my skin was crawling with ants on top of head. Not a good feeling. Whole body stiff and hurts. Neck aches. Headache. Stuffy nose. Face hurts. Muscles in legs twitching.

5:00p asked family to help with decor at church. Joe helped me with taking bulletin board down. He also help me put up red foil for backdrop. Traced manger silhouette onto poster board and cut it out. Bulletin board finished just in time for church to start.

7:23p- I am hurting!! Center of chest throbbing pain with center tingling. Neck throbbing and tense. Eyes blurry. Brain foggy.  Chest feeling icy. Exhausted. 

10:43pm – skin itches all over almost feels like ants crawling all over me.  I hurt all over

Lightning Survivor Journal Entries 28-30 November 2018

Nov 28

7:00am- woke to slightly bloody nose. Neck is hurting. Chest hurts when I yawn. Broken sleep last night. Woke at 3am not sure why. It’s 33 degrees outside & I’m freezing.

9:53am- still have headache. Please go away!

11:25am- eyes are hurting. Loud noises hurting head. Headache getting worse. Thirsty. Feet freezing (have socks & boots on inside). 

Traumatic brain injury info

https://mayfieldclinic.com/pe-tbi.htm

12:10pm- Christmas play practice went well. Now having Christmas co-op luncheon. It’s amazing how much sound effects the brain. Wearing sunglasses inside to keep headache from becoming migraine. Sitting on sideline until crowd for food subsides. Don’t want to have meltdown.

Friend, Melina, told me she saw a video about someone getting struck by lightning wanted to know if I had that type of scarring. Told no but I do have scar on head though not sure if it’s the entrance or exit wound. Let her feel the indentation.

8:01pm- rt hand going numb & tingling

Lower back is throbbing

Nov 29

1:36 am – my lower back is killing me!  Decided to help with dishes. Now I’m regretting it!! Still have headache but its eased maybe. Missing my hubby. Him & buddy went hunting. 

He’s been such a trooper through all of my ordeal. I’ve been very moody at times and he’s been so gracious most of the time. 

Rt leg hurts, rt hip & thigh ache, low back throbbing, neck hurts, limited turnability in neck

8:18am – woke at 7:30. It’s chilly and hard to get motivated to get up. Neck is throbbing. Rt hip aches & rt leg hurts when I try to sit indian style. 

Bloody nose at 8:15am. Wish I could figure out what’s triggering them. 

Still have a headache.

1:00pm- had to type up biz mtg minutes for church, but had to look up verbiage bc I wasn’t computing how to word it. Took me long time. Brain started feeling squirly and eyes were blurry and tunneling. Joe said he could tell bc my eyes were starting to look glossy.

Nosebleeds after Concussion

You need to get couple of blood test done which include CRP, RF, CBC, BT, CT, INR. That should help.

https://www.practo.com/consult/nosebleed-after-concussion/t

CRP – checks for inflammation

RF – Rheumatoid factor

CBC – Complete blood count which checks overall health

BT – Bleeding time which checks how quickly your blood clots to stop bleeding

CT – cat scan??

INR – International Normalized Ratio 

Test for blood clotting time (for those using blood thinners)

Info on Traumatic Brain Injury

https://mayfieldclinic.com/pe-tbi.htm

https://www.brainline.org/article/what-impact-will-moderate-or-severe-tbi-have-persons-life

9:15pm 

I was sitting on my chair in livingroom trying to relax. All of a sudden my right thumb started burning. I looked at it and it was turning white! It’s burns like crazy & feels like it’s on fire!  I’ve tried rinsing with water. I have not done any cleaning today. I don’t know what to think.

Went over to mom’s for help. Joe at church. Rinsed with cool water. Made me drink glass of water. Still burning. Rinsed some more. Applied aloe vera. Soaked in egg white. Starting to look a little better but still burns. Rinsed in cool water. Soaked in egg white again. Rinsed again. White ash look gone. Not burning like before. Tender to touch. 

Joe came home & checked counters. They’re dry. Joe smelled bleach on some of drinking straws. Possibly my straw had some & didn’t realized it.

Applied Lavender oil to help soothe. 

11:10pm

Hands tingling, headache, neck hurts, exhausted, can’t sleep, low back throbbing 

Nov 30

5:17am woke just before 5am. Center of chest is hurting. Headache. 

6:30am decided to get up since I wasn’t sleeping. Made door draft stopper for front door. Washed load of clothez. 

10:00am- bloody nose

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