530 apparently I set my alarm bc I didn’t know when I was suppose to wake. I’m tired. Need deep sleep.
Oldest having financial woes and isn’t handling it too well. This in turn is grieving my heart and stressing me into a headache. May have to show him some tough love. I have such a headache! Took two Tylenol and drinking Stress Relief Tea.
700 decided to take shower to see if it’ll help. Forgot what a chore it is. I’m exhausted, out of breath, arms fatigued and throbbing, whole body throbbing. Tingling burning in legs and feet. Headache still bad. Ears ringing. May have to take a margarine relief. Need to rest a while.
830 two loads clothes washed & hung. One load folded – still need to put away. Cat fed.
1030 Meeting with TBI coordinator, Krystal, went well. Very friendly. She’s coming back out in two weeks. Wants to start working with me on memory & comprehension.
TBI testing rescheduled for January 6 @ 8am. Mtg was about an hour. Headache worse. Chilling tingling sensation down spine. Feet cold. Back is icy to the touch. Tingling sensation in top & center of brain.
1033 need to put dinner in crockpot.
100 exhausted. Heart beating hard and fast. Resting on couch. Head pounding.
300 friend dropped some pecans off for me. Yay! Elliotts.
“Nightmares are dreams that are threatening and scary. For trauma survivors, though, nightmares are a common problem. Along with flashbacks and unwanted memories, nightmares are one of the ways in which a trauma survivor may relive the trauma for months or years after the event.”
1120 very tired. may fall asleep. Hurtingball over. St side cramping. Neck & head hurt. Feet freezing.
Nov 6
700a woke from nightmare. It was awful.
My arms are throbbing. Whole body aches. Feet feel like I’m standing on broken chards of glass. Low back throbbing. Sporadic muscle spasms thru torso & legs. Skin itchy.
930 met ladies at church to decorate for the church photo op tomorrow.
500 body starting to tell me that I did too too much today. Enjoyed being with the ladies though. Headache. Chest throbbing so much it hurts to move. Muscles spasming greatly in middle of back. Had Joe feel it. Hands and wrists swollen and throbbing. Legs throbbing. Feet hurt and tingly. Neck throbbing. Chest feels as if elephant beat me up and sat on me.
1045 getting really sleepy. Drank chammomile tea. Skin feels like ants crawling. Dizzy. Stinging pain in back.
430a woke freezing. Hurt to move to try to get covers back on. Joe covered me back up. I thanked him.
630a oh I hurt so so much. Do too much y’day. Entire back throbbing and muscles spasming. Hands throbbing. Bad headache. Hurts to move.
700a headache quickly getting worse. Took relpax and laying back down few minutes. Muscles randomly spasming thru body. Eyes watery. Stuffy nose. Lights bothersome. Sharp pain in lft jaw. Lft side of chest hurts. Tummy hurts.
747 starting to get tingling chilling sensation down spine from neck down to tailbone…prominent in center of back. Feet chilly. Putting on socks.
858 forcing myself to eat bkfst. Tummy still hurting.
Measured waist – lost 2″ in one week.
901 received phone call from PC repair shop. Motherboard died and they can’t find replaceable part for it. Told her I didn’t know what to say but had bought it from them earlier this year. I’ve lost all my precious memories. 20+ years of photos, homeschool info, info for church. I’m at a loss.
1030 received phone call from TBI coordinator. Dr who was scheduled to do my TBI testing on Thursday called needing to reschedule. wants to reschedule tomorrow or next Tuesday. Tell TBI person tomorrow too soon maybe next Tuesday. I call Joe at work. He in turn has to check with his boss bc he had to ask off for Thursday. I check my calendar. Next Tuesday won’t work. Kids have Dr appts and I had hard time getting them scheduled -cant reschedule them. Let Joe know. Ugh!
I can’t handle all of this info. I’m melting.
TBI lady called back to let me know next available not until next year. I tell her that’s okay. I try hard to hold it together but end up crying while she’s on phone. Think I concerned her at first bc she wouldn’t hang up phone and kept asking if I was okay. I ended up blubbering what events had transpired today. She understood and assured me that it was normal reaction. I told her I just had to cry a while and then I’ll be okay. She told me she would stop by on Thursday to check on me.
I was home alone (which is very rare) for few hours today. Able to cry it out – cried to Jesus and imagined I was curled up in His arms crying my heart out.
Once I was done, God gave some clarity of thought and my migraine had eased. Able to call PC repair guy to ask about data retrieval. He will retrieve what data he can. Praying my important to me documents will be salvageable. Will have to save $ for while to buy a new one.
300p Went to vote after picking Jordon up. Line was around bldg out to street and into lot next door. I tried standing in line using just my cane and occassionaly grabbing Jordon’s arm when I felt I was gping to lose balance. Stood in line almost 15 minutes then asked him to get wheelchair bc I couldn’t stand any longer…pain just too much to bear. Once he retrieved the wheelchair, a couple ladies informed me that a couole police officers told them that handicaps could go to front of line. I asked what to do. Jordon pushed me to door. Guy in front of line graciously opened the door for us to go in. Thankful to not have to wait much longer.
Came home and crashed in chair.
1115 don’t know voting outcome yet it’s close. Dezirae getting upset bc the biased media saying Biden’s leading. She asked about electoral votes verses majority vote. Had to Google info in order to figure out how to explain. Printed her out map of US and how many electorals per state. Said it helped some. Still too close to see either way. Also not sure how the mail in ballots work being they have until Friday to be counted?
Migraine has eased but still have headache. Tingling sensation inside brain and down spine. Bloody nose has eased. Tummy pain has eased. Stiffness all over and still in much pain thru body. Hands throbbing. Need rest. Night meds taken plus 2 Tylenol.
Nov 5
530 apparently I set my alarm bc I didn’t know when I was suppose to wake. I’m tired. Need deep sleep.
Oldest having financial woes and isn’t handling it too well. This in turn is grieving my heart and stressing me into a headache. May have to show him some tough love.
I have such a headache! Took two Tylenol and drinking Stress Relief Tea.
700 decided to take shower to see if it’ll help. Forgot what a chore it is. I’m exhausted, out of breath, arms fatigued and throbbing, whole body throbbing. Tingling burning in legs and feet. Headache still bad.ears ringing. May have to take a margarine relief. Need to rest a while.
830 two loads clothes washed & hung. One load folded – still need to put away. Cat fed.
1030 Meeting with TBI coordinator, Krystal, went well. Very friendly. She’s coming back out in two weeks. Wants to start working with me on memory & comprehension.
TBI testing rescheduled for January 6 @ 8am. Mtg was about an hour. Headache worse. Chilling tingling sensation down spine. Feet cold. Back is icy to the touch. Tingling sensation in top & center of brain.
1033 need to put dinner in crockpot.
100 exhausted. Heart beating hard and fast.
Resting on couch. Head pounding.
300 friend dropped some pecans off for me. Yay! Elliotts.
10.50 “Nightmares are dreams that are threatening and scary. For trauma survivors, though, nightmares are a common problem. Along with flashbacks and unwanted memories, nightmares are one of the ways in which a trauma survivor may relive the trauma for months or years after the event.”
7:00a- slept good last night. Still tired. Low back, neck, & rt hip throbbing.
11:45a- had to take it slow on visitation…moving head wrong kept making me wobbly even with cane…almost lost my balance couple times (if it weren’t for cane I would’ve fallen)
2:00p- guys went to Jackson. Dezirae & I watched Hallmark movie. I fell asleep for about half hour. I was tired.
202p I’ve managed to perplex Dr’s once again. Throat culture came back negative – meaning I do not have thrush. While this is good news, it doesn’t explain the lesions on my tongue and down my esophagus.
6:00p- had parents over for dinner. Chicken, rice, peas, & rolls. Enjoyed fellowship.
10:57p- neck throbbing, low back & rt hip throbbing. Feet freezing. Lower left leg tourniquit tighten feeling with slight numbness. Center of chest hurts. Feeling wobbly and uneasy.
June 23
11:26a- can’t figure out why some days it’s harder for me to focus on things than others especially when it comes to playing piano. Rt side started cramping and rear end become painful while playing piano. Wonder if there’s a way to pad the bench tactfully. Have headache causing unlevel feeling. Rt hip aching. I finally have nails painted. Funny how a little thing can brightn your attitude. Center of chest & upper back hurts/aches.
11:55a- rt leg cramping. Sharp pain in rt neck & shoulder
1:45p- need to lay down for a piece…feel lightheaded like I’m crashing
4:00p- tried hanging tapestry by myself
6:30p- realized while playing piano (attempting to anyways) that I forgot to put my shoes back on. Lol
10:44 – just took tick off Joe. Jordon stung by wasp twice. Applied baking soda paste. Keep eye on him…he seems to be okay. Noted tick bite in calendar told boys to check themselves.
My eyes are burning. Bright lights bothersome. Pain level a 7 or 8. Did too much with putting letters on bulletin board and hanging tapestry. Couldn’t finish tapestry…had to ask for help bc lifting arms above my heart cause intense pain in arms, neck, shoulders, and chest.
10:00a- letting kids go with Mom & Holly to the beach. I’m still wore out from y’day. Having trouble moving. I ache all over.
11:00a- worked on typing up my journal notes for February 2018. I know I need to post to blog but my brain has been taxed by buysiness lately it doesn’t want to be on computer. I’ll try more tomorrow.
12:20p- knowing kids were on way home decided to do it scared and take a shower while no one home. Thankfully, I didn’t fall, but quite wore out. It hurts to wash my hair or bend over to shave. Bathing has become such a chore. I don’t usually take shower/bath unless Joe’s home in case I fall. Feeling like I accomplished a feat today.
4:00p- starting birthday dinner for Dezirae. Moving very slowly today.
6:39p- Just finishing up eating dinner. Had to ask for help in preparation. Couldn’t open the green bean jars. 🙁 tourniquet feeling on lower left leg to foot with numbness most of day. Feel so lethargic. Forgot to take D.E. today – that helps me feel halfway human with a little gumption (not word I’m trying to think of).
7:00p- decided to take slo-o-ow walk with Joe, Dezirae, & Holly. Met part of new neighbors family. Need to make them some bread. Talked with other neighbor a piece. Thankful for the stops to catch my wind.
10:00p- my babies leave in am on excursion with my Mom & sisters. I’m gonna feel lost without them. My eyes are leaking already :(. Praying for their safety and hoping they have fun. They’ve been a BIG help with my being physically challenged now. They deserve a break.
I hurt all over. Low back throbbing, rt hip throbbing, neck hurts, toes hurt, feet cold (had socks on for hours), legs throbbing, head hurts slightly (that’s odd for me – it’s usually pounding by days end).
Still need to do my exercises trying to get motivated.
11:15p- upper back & shoulders burning, center of chest throbbing, ankles burning.
When I breath deep, I’m feeling fluttering in left chest. Feels weird.
Muscles randomly twitching throughout body
June 13
5:00a- babies left for trip this morning! I’m full of emotions – nervous, scared, worried, excited, proud, etc.
4:15p- entire back is tingling, lwft lower leg tourniquit feeling, rt ear hurts, tired
4:51p- started getting ready for church. . .out of breath just getting dressed. Both arms are throbbing after trying to fix my hair and makeup (Dezirae helps me fix my hair now). Lower left leg is now becoming numb. Headache. Need to rest in order to finish.
6:28p- rt hip throbbing – putting ice cold water bottle on it to see if it’ll help
Neck throbbing, tired/lethargic contemplating drinking coffee to see if it’ll ease tiredness and headache. One cup shouldn’t hurt.
So-o-o the half cup of instant coffee gave me some energy, but didn’t touch headache. Brain feels swirly & trouble focusing. Started to play intro to one of hymns for church and forgot the tune. Tried playing notes anyways to fuddle thry but it sounded aweful in my ears. I apologized explained reason and started intro at beginning of chorus. Ugh!
10:13p- I’m exhausted and hurting. Rt hip throbbing, legs throbbing, lower lft leg tourniquit tighten feeling with some numbness, knees ache, hands swollen and achy, neck aches, headache, sharp pain rt hnd, feet cold, lft foot tingly
*I’ll have to think on that one for a bit, but it certainly would be nice to only have to take one pill a day rather than many $35.40/60 capsules.
7:36a- yawned and stretched caused cramping in left side. Ouch!
11:00a- hanging clothes on the line hurts my arms something fierce, it wears me out to near exhaustion. Not feeling my best today.
Upper shoulders and neck burning pain. Need to lay down a piece.
30 min cat nap.
2:29- sewed binding back on Jordon’s blanket. Took a while to figure out.
Folded load of clothes. My hands and arms are throbbing! Not put away yet. Need to rest before I can do something else.
9:48a- upper back stinging needle pain, thighs ache, tourniquit feeling on lft leg just above ankle, very tired
10:07a- apparently I fell asleep on chair…Joe woke me up to go to bed. I’m freezing. Rt hip throbbing. Hands swollen and achy. Upper back stinging. Lft lower leg tourniquit tightening feeling stronger. Still have lump just above ankle. Center of chest hurts like I lifted too much today. Headache.
Periods of trouble remembering what I’m suppose to be doing, starting several projects but finishing few…actually not sure if I finished any. Only one load put away others still in basket waiting for me to fold. Tomorrow’s another day. Feel like I’m forgetting something but don’t know what.
Shoulder hurting, neck throbbing, muscle randomly spasming/twitching throughout body. Feet freezing. Hurting all over. Took pain rx. Took night vitamins/meds. Bright lights bothering me.
May 16
5:30a- woke in intense pain all over! Skin oversensitive. Everything touching it hurts. Feel like I must of broke fever over night. Remember freezing and having all covers on me next thing I know I’m burning up and only have top sheet on me. It’s a burning stabbing pain all over body. I dislike hurting this bad. Can I sleep it away? Took 800mg ibuprofuen hopefully that helps. Don’t want ta move.
8:40a- Jordon surprised us with breakfast in bed. He’s such a sweetie. I still hurt but not as intense as earlier. Guess hanging 3 loads of clothes was too much work for my nerves. They’re revolting (Don’t think that’s right word but not thinking what word should be). Wish I knew how to get past this.
John 14:27 Peace I leave with you, my peace I give unto you: not as the world giveth, give I unto you. Let not your heart be troubled, neither let it be afraid.
John 16:33 These things I have spoken unto you, that in me ye might have peace. In the world ye shall have tribulation: but be of good cheer; I have overcome the world.
Even when we are in the middle of a storm God can give us peace. We all have struggles in our lives that cause us to worry or fear. The best way to combat that is to pray with thanksgiving unto the Lord (Philippians 4:6-7).
Go ahead – tell the Lord what burdens your heart and mind. God cares about you.
Real peace comes when we trust that God knows what’s best and has everything under control. When you start to worry, stop and pray.
7:00p- our family went to church to work on preparing bldg and grounds for Homecoming Sunday. We got a lot done but still a lot to do. I’m exhausted and really hurting but feel like we got things accomplished. Headache. Lots of trouble with speech today – thoughts to words mixed up, saying wrong words, stuttering, etc.
8:45a- woke at 6:30 muscles spazing in legs. Back throbbing. Headaches. Spring is in the air my sinuses are amuck. Neck and chest hurt when I cough. Co-op today for kids. They are so excited they want to be there early! For the moment, I choose to be thankful for God’s faithfulness and mercies for they are new every morning.
1:00- co-op went well today. Bunch of families out sick. I enjoy the US Geography class. Kids learning states and their capitals. I was able to do the game with kids today. Had fun.
The class really stretches my brain and gives headache. Have to rest a while when I get home.
Feeling weak, rt hip throbbing, tailbone throbbing, headache, rt arm hurts, hands swollen and achy, neck hurts, shoulders tight, pain in left center of chest.
Cat nap lasted about 10 minutes if that. Received call from Jakob. Got cut short because Joe was calling him. Figures.
9:51p- Jakob called back later. Needed help with his taxes. Unable to comprehend all he’s telling me. He said just him being able to talk it out with me helped. It probably would be better if I could see what he’s talking about. It was nice to be able to talk with him bc it’s been a long time since we talk that long. I miss my Bubba.
I’m exhausted but awake. In bed by 9:30. Lower half of body throbbing and tingling. Upper left side of chest throbbing. Rt shoulder hurts. Thrush still there. Headache. Dr apt tomorrow. Left shin & foot going numb feels weird.
10:15p- arms stinging
Feb 28
5:51a- woke at 2am & 5am. Woke from unsettling dream (only thing I remember is that I had argument with best friend and I was driving down wrong side of road thinking I was on right side). Muscles randomly twitching thru body, tears escaping my eyes, headache, need to get some sleep.
7:42a- pain is great today…must be dreary weather. Nervous about Dr apt. Need to have him fill out paperwork for atty. Don’t recall being asked any of the questions before. Lord, I need thee every hour!
8:45a- Dr apt. Bp 113/69 hrt 69 weight 198 temp 97.7
The nurse, Joseph, had never met lightning survivor. Struggling remembering how old I am. I think it’s irrelevant, but they keep asking me. Still trips me up everytime. Mom had to explain why I had trouble remembering. Jospeh (I can remember his name bc it’s my husband’s name)
Saw someone familiar in hallway but I couldn’t place why I knew him. Told nurse that he looked familiar but I have no clue why. Dezirae kindly reminded me that he was from my TBI group. Oh, but I still don’t remember his name.
When mom explained why I had struggle with memory. The guy got excited. He thought it was cool but not cool I was injured. I told him I understood – it’s cool from a medical aspect. He never met a lightning survivor so he asked for my story.
Thrush has improved but I have to wait one week then take 2nd round of medicine. I’m sick of medicine.
12:05p- Dr didn’t fill out paperwork. Atty said not to worry. They’ll build case on medical records.
Chest in between shoulder blades just below chin just popped. Ouch! Feet are freezing!
6:51a- Had Joe rub pain relief essential oils blend on back and I cried myself to sleep last night around 10pm. Not sure what time I fell asleep but I slept soundly until 5am. Pain had diminished but I still hurt greatly.
Legs feel like lead but I haven’t even gotten up yet. Middle and lower back throbbing. Neck hurts. Headache not as bad but still there. Eyes watery. Lft ear ringing. Stomach stopped hurting. Muscles twitching throughout body. Need to get mind off pain. Stuffy nose. Calves throbbing.
Thank you, Lord, for the sweet sleep.
Tender moments of my husband’s care make me love him all the more.
5:30p- Joe was sweet and brought home pizza for dinner. He makes my heart skip beats.
Found this article interesting.
Are You a Human Barometer? Feeling the Migraine Pressure
10:13p- Still trying to work on Dezirae’s room. Washed 5 loads today. Told her that was too much. Needs to purge. Feeling it now. I’m really hurting all over!
News had a story about a pastor that was struck by lightning in Birmingham recently. He had a short stay in the hospital but no lasting effects.
Tried new regimen for getting rid of candida. Baking soda water mouth rinse. Take probiotic. Wait 15 minutes. Take Diatomaceous Earth. Wait 1 hour. Take morning meds. D.E. gave me some energy today. I guess that’s why I felt like I could do the laundry. Got to remember to not push it. Ugh! Now whole body is throbbing. Chest and torso pain so much. Need to take pain rx, muscle relaxer, night meds and go to bed. Gotta muster up strength to get out of chair to go to bed.
Feb 23
9:38a- woke in great pain…arms hands legs back neck. Migraine. Gait is wobbly. Need something but don’t know what. Stomach hurts.
Managed to make waffles for breakfast for kids. I ate scrambled egg.
So sleepy.
11:42p- migraine starting to ease. Lft cut on ring finger is oozing pus. Need to put baindaid on it. Overall lethargic.
Wearing sunglasses inside.
3:30p- managed to eat ramen soup for lunch. Had kids make their own lunch. Crashed on chair in livingroom while watching movie. I know I have things that need to be done, but I don’t function well with migraine in tow. Headache eased slightly. Dezirae hung out with me. Think she took nap too. Mom came over to check on me. I woke when she opened door.
5:00- Mom made spaghetti for us for dinner to help me out. Sweet. Realized why I hurt so bad – overdid it yday – cleaned my bathroom floor and washed 5 loads laundry. Gotta remember to only do so much when I do feel good.
11:29p- Dezirae’s been wanting to make homemade face mask with bentonite clay and asked me to do it with her. I checked ingredients. Thought it was okay. Dezirae had a reaction and made her face all red, burning feeling & itchy. Had her wash face with cool water. My face not as bad of reaction. Applied aloe no good. Wash face with warm hypoallergenic soapy water and cloth. Gave benadryl. Took 30 minutes or so face to calm down. Apply hypoallergenic hydrating lotion. Be while for trying that again.
As I was finishing up bulletin and posting on blog heard thunder. Frightened me. Hurried up and turned off electronics and unplugged them. Going to my safe place.
Chest throbbing, indigestion, stomach hurts, throat hurts, hands swollen and achy, rt hip hurts, headache, feet cold, pain rx not easing pain. So sleepy, lack of concentration, low back throbbing.
Feb 24
12:30a- stinging pain in hands and wrists, calves throbbing, stinging needle pain in back, rt ear ringing
8:19a- woke around 6:30 thinking I overslept. Calves throbbing. Muscles twitching thru body. Hands swollen and throbbing.
Discovered if I eat something small before I take my meds my stomach doesn’t hurt as bad. Stuffy and congested. Headache.
Cut on lft ring finger is now blistering just like the burn on my thumb did. Thunb
12:30p- actually played 2 hymns this morning with more than 2 sharps. I usually can’t do this but recenlty not able to explain how or why can transpose some hymns and play it. I only ever took about 1 year of piano lessons when little. Everything else I learned on my own. Not good with timing only play how I’ve heard it sung before.
4:30p- took nap after lunch about 2 hours. Dezirae helped me prep mission house for missionary on Thursday. Finding if I make lists of things I need to get done it helps me stay focused enough to complete tasks.
6:23p- eyes blurring, headache, coughing, rt ear ringing, feeling a bit dizzy
10:27p- case of hiccups are giving me stinging needle pain in my back. Ouch!
Mom took me to GNC – no, no scratch that – took me to Health Hut to talk to the guy about my thrush. he said when he was younger (so wish I could remember the details. So much information to process is hard to retain. It’s not that I’m not trying to focus I look people in eye so they know I’m trying too much info at once gets lost in my brain somewhere or maybe it goes out the other ear) somebody that he knew had thrush she would take liquid acidophilus. He said I needed to alkaline my system and suggested I take a teaspoon of baking soda in water use it as a mouth wash in am wait 15 minutes then take probiotic. Wait for 5 to 10 minutes before eating early in morning.
I’m sure I messed up some of that info but this is what comes out. Supposedly a goo roo dr in either Birmingham or Atlanta says that besides reducing gluten, yeasts, processed foods, sugars one also needs to avoid block cheeses and vinegars because they’re made with yeast. Good grief!
Feb 20
9:07a- Crazy morning! I set my alarm for 6:30 so I could be ready to leave for co-op by 8:40 but that didn’t happen. I never heard the alarm! Woke at 7:30. Had to get a pkg ready for mail but too big for mailbox. Ugh!
Gluten free toast for breakfast. Tasted pretty good.
Getting bag ready for co-op realized I forgot to laminate the maps for geography class. Have to bring my laminator and pages with me. I can do it first hour.
I was going to freshen my memory for the Bible study I’m doing with another mom but that didn’t happen. Ugh! Lord, please go before me and help me say the right things. Help me be an encourager and show You can be our strength in time of need. I am nothing but You are everything.
11:15a- Missed 2 phone calls because hands were full. I found the check I misplaced. It was right where I put it (computer bag). Phone calls were reminders for Dr apts tomorrow and that I have Rx ready to be picked up.
Bible study went well. It was encouraging to me as well. I enjoy being able to talk about God without reservation. I also like learning. If money were no option, I’d be a lifetime student. Need to find a hobby.
Slight headache. Eyes feel blurry. Scattered thoughts. Hands swollen and achy. Rt hip throbbing.
3:00p- felt odd after eating late lunch yucky feeling all over and as if I were to faint. I don’t ever remember fainting so that would be weird. Decided to lay down for half hour. Never fell asleep.
Remember that I needed to mail pkg at p.o. Burning pain in middle of lower back. Wore out from todays events.
10:39p- wide awake, hands swollen and achy, lower & middle back aches, head hurts.
Trying something different to get rid of thrush. Swishing with baking soda water in am. Taking 50 billion culture probiotic (has to be refrigerated). Wait 15 minutes to eat breakfast. Swishing with baking soda water in pm. Taking 1 Tbs Diatomaceous Earth in pm. I think tongue is already looking better. I hope to be over this stuff soon.
2:18a- woke up at 6:30. My alarm didn’t go off as normal my phone just vibrated but I heard it. Snoozed like 3 times before getting up. Took shower. Got ready. Took rx. Swished with coconut & oregano oil for thrush. Tongue looking much better just a little more to go. I’m feeling better.
9:00a- went to check on mission house to make sure it was ready for a missionary this afternoon. My world was turned upside down and off kilter. Looked like someone got in house left crumbs on table & stove that molded. Someone turned off a/c units and mold was everywhere! I told Dezirae we were gonna have to clean it. Went & told Joe. Entire family jumped in to help wipe whole house down & clean it back up. Need a better vacuum & dust pan. Got it clean but am exhausted and hurting!
1:00p- Upper back is stinging needles. Can’t sleep when it hurts like that. Have to also start decorating for Valentine’s dinner on Thursday.
11:00p- I’m exhausted but having trouble falling asleep. Whole body hurting. Hands swollen and achy and tingling. Skin itchy, eyes watering, rt hip throbbing like toothache, low back throbbing.
Had dinner with missionaries. Enjoyed listening to everyone talking. I’m ready to crash just wish I could.
Feb 11
7:00a- woke with headache. hands swollen, achy, & tingly. Rt hip & back aches. Muscles twitching throughout body. Eyes watery. Chilling sensation in center of chest. Face itches. Center of chest hurts. Neck hurts. Slightly congested.
9:00a- kids were sweet and brought me breakfast in bed.
10:30a- able to get Valentine’s care package in mail for Jakob today.
11:30- working on next item for taxes…my brain and eyes are already feeling blurry and my speech is messed up (making up words, reversing letters & numbers, etc). Called tuna “turkey” and told the kids to squinch it to make it go farther. Jordon asked what that meant. I told him I had no idea just made it up. I meant to tell them try to make it go farther but couldn’t remember word to use. Lol!
*It’s important to learn to laugh at ones self or you’ll die of frustration and embarrassment. Don’t misunderstand bc I do get quite embarrassed at times especially in public, but I’m working on learning how to love myself inspite of my shortcomings.
12:30- turned wrong and whole body cramping. Severe cramping on right side. Oh, it hurts so!!! Joe told me to check to make sure I’m taking enough calcium and magnesium. Told him I expected it bc I overdid it this weekend with walking too much on Saturday, having to clean mission trailer unexpectedly on Sunday and decorating for Valentine’s dinner.
2:59- need to rest a bit. Brain is swimming & headache in beginning to surface. Upper back is throbbing and stinging slightly. Neck hurts. Legs and feet are freezing. It’s 71 inside. Craving fried lentils. Weird.
8:00p- spot on head hurting bad. Checked in mirror. Barely touched and it popped. Ugh! Cleaned it as best I could. Can only hold my arms up for a short while before they throb like a toothache. Applied Frankincense oil to keep infection away.
11:49p- stinging pain in hands, skin feels itchy, headache, and head hurts, chest feels like my ribs are caught together. My body feels hot to touch but I’m freezing.
It’s really hard to fall asleep when there’s stinging pain. When I overdo it, I suffer for next two or three days depending on how bad I overdo. It’s just my new normal.
Not complaining in the least. I pray God can use this for His glory. If I can bring awareness and help others along the way then so be it. Tonight is one of the nights I’ll probably have to take pain rx & relaxer to get to sleep.
Feb 12
7:00a- woke from a nightmare! Hands numb & tingling. Neck hurts. Tired. Cold.
7:59a- sitting in bed reading. Nose starts bleeding. So wish I could figure out cause. Nerves are tingly thru body.
8:05a- nosebleed lasted about 3 minutes. Now I have a headache.
It’s a good thing to give thanks to the Lord and sing praises to His name (if only I could remember rest of the song).
10:07a- having seemingly allergy attack this morning – major trouble with sinuses all of a sudden. Only things I’ve had so far is my medicine/vitamins (Edarbyclor, probiotic, alpha lipoic acid, b complex, propranolol, b-12), grits n egg, water. I don’t understand. Drinking cup of hot green decaf tea with peppermint and copabia oils to see it’ll help. Gotta figure out how to heal my neurological system.
11:19a- Just finished posting rest of journal entries for September 2017. Need to rest my brain. Eyes & brain feel blurry and swimish.
11:45a- I have a headache. I have a headache. hey-hey-hey-hey
12:43p- serious indigestion. Eating yogurt to calm it.
3:00p- managed to paint 2nd wall in Dezirae’s room, but I’m done for rest of day. Out of breath, brain swimming, unable to focus much, gait off, need to rest.
5:00p- trouble getting rice to cook. Forgot to replace lid so it took like forever to cook – way past 30 minutes. Kids had my kitchen hijacked to work on their valentine boxes for co-op tomorrow. I have no idea what we’re going to bring.
6:49p – Second wall painted today. I know pic isn’t very good. It’s coming along.
11:19p- lower back is throbbing like toothache. Took rx & melatonin. May need heating pad, but I’m really hot so I’m trying to avoid more heat. Even turned on box fan which I’m not feeling much of. It’s on Joe’s side. Head hurts. Hands tingly. Skin itchy. Feet hurt. Neck hurts. Diffusing Lavendar oil.
Thrush still not completely gone but it’s much better. Taking Echinacea. Though I think I forgot to today. Did swish with oil of oregano & coconut oil this morning. Upper chest aching & tense. Rt side cramping. Feet throbbing. Hiccups?
6:49a- woke thinking I was late. Upper chest tight muscles, legs throbbing, low back throbbing, rt hip aches, rt ear hurts, hands swollen and achy, lft hand numbish. Tired and feel worn out.
I will meet you in the morning over there
7:30a- Dezirae came to tell me that she thinks she found lice in her hair. I’m not up to this.
8:00a- spent 30 minutes or so trying to find/remember where I put the fine tooth comb. Can’t find it. Ugh!
12:00p- spent most morning checking her hair and treating with tea tree, lavender, and peppermint spray. I cut 6″ off her hair it was so long! My head started itching too so I had her check my hair too. Nothing. Thank the Lord!
Put dinner (ham & scalloped potatoes) in slow cooker.
All my nerve fiber endings are pulsating!!! I hurt all over. I’m exhausted!! Time for lunch and a break.
2:52p- decided to try to dust bookshlef in my room. Only able to dust and declutter 2 shelves. Whole upper body throbbing. Need to rest. It looks like a year’s worth of dust! Oh, wait I haven’t been able to do this since I was struck that’s 18 months ago!!
2:53p- mom called to see if I was up to going to produce stand. Told her to give me 5 minutes. I need potatoes.
4:25p- Got home just before Joe text me he was on his way home. Kids helped put food way. I had to repkg chicken to meal size. Time to finish up for dinner.
6:00p- sitting with heating pad on back and shoulders. They’re throbbing.
7:00p- tried to watch some TV but it’s nothing but trash
Feb 5
Scripture Valentine for today: Jeremiah 31:3
Call unto me, and I will answer thee, and shew thee great and mighty things, which thou knowest not.
Wonder if stabilized liquid oxygen could work instead? Must research it out.
Talked with Bo’s Aunt. Don’t remember her name. Able to share some of information.
2:00p- brain overloaded & foggy feeling, slightly dizzy, headache, body hurts. Need to rest a while – laying down on bed
3:00p- Mom picked Dezirae & I up to go with her to run errands.
7:53p- Dezirae cooked dinner – tacos. Yum! Tried to ask for spoon for the sour cream instead it came out need a fork for the mayonnaise.
9:46p- think I need to pick another day to post my brain is crossed. Words aren’t coming out right.
I’m exhausted.
Joe came to give me kiss goodnight. Said my forehead was warm like I have a fever. My head was feeling warm, but my feet are freezing. I think it’s time to go to bed and try again tomorrow.
Asked Jordon to close the walls instead of close up and turn off lights.
Oh, co-op tomorrow.
Temp is 99. I wonder why?
Symptoms: headache, center of chest hurts, upper back aches, indigestion, periodic ears ringing, rt ear hurts, cough, feet freezing, skin sensitive to touch, uncomfortable, rt hip aches, low back aches, exhausted, stuffy nose, still dealing with thrush (last dose of 2nd round tonight), nasal discharge, itchy skin, calves cramping pain in center of back.
Fork for the mayonnaise instead of spoon for the sour cream? (Oh the mixed up sayings that come out of my mouth sometimes. LOL!)
Feb 6
7:00a- rough night up at 2:30 & 5:30
Rt hip throbbing, legs ache, muscles in rt arm twitching, low back throbbing, hands swollen and achy
9:05a- tailbone down to feet are throbbing!
10:50a- Jordon came to give me a hug. Told me he loved me. Then he told me, “You don’t look to good.” Thanks.
10:55a- Dezirae came and gave me hug & kiss on cheek. Sweet kids.
11:00a- itching is fierce today. Forgot my orange for a snack (not hungry though). Lft eye looks droopy to me today. Middle of back has icy sensation giving me cold chills and headache.
11:28a- Joe working lots of hours next two weeks. It’s frustrating bc of juggling the car with co-op & Dr apts. Need to remind myself that this too shall pass and the extra money is needed.
1152a Oil of Oregano
Now trying Oil of Oregano to get rid of thrush
Morning – 1 tsp coconut oil & 1 drop oil of oregano. Swish in mouth and spit out.
3:00p- crashed couldn’t keep eyes open anymore slept for an hour
4:00p- still tired having trouble getting motivated to get up
5:00p- decided I needed to figure out dinner. Got really hot & opened kitchen window & door. Couldn’t remember how to bake oven fried chicken had to look up recipe.
6:00p- attempted to plug in box fan in kitchen to circulate air. Bent over to plug in fan. Holy cow! I about fell over in pain. Had to sit a minute to catch my breath. Extreme pain in center of chest!!! Costochondritis flairs up if I overdo in slightest amount. This has been one of the frustrating parts of this endeavor. Learning what my limits are quite challenging especially when I want to improve and get better but my Dr’s just tell me to live everyday life.
8:00p- finally remembered to pay phone bill online. One day I’ll get better at juggling everything.
10:29p- breathing sounds funny not sure how to explain. Three doses of coconut oil & oil of oregano swish today. Tongue already looking better. I don’t remember last time I saw a pink tongue. Taking Bio-Cleanse & Echinacea as well. Also, have been limiting my gluten & sugar intake. Doing this for 11 days now.
Trying to drink lots of purified water (goal is one gallon daily but I’m only half way there). One glass of hot decaffeinated green tea in am. Water during day. Cold decaffeinated green tea at dinner. I’m a southern gal. Gotta have my tea.
Symptoms: headache, low back throbbing, skin touchy, center of chest hurts, hands swollen and achy, eyes watery, tired but awake, rt hip hurts, brain hurts from todays activities
11:16p- feet throbbing, legs cramping, upper shoulders stinging
