Tag: tingling

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LS Memoirs – 4-6 March 2021

March 4

500 stinging pain thru body…stronger than usual. Achy and stiff at first. Sinuses congested at times making me nauceous. Headache minor. Neck hurts. Hands ache.

Bible reading: Deut 14-16, Joshua 1:9, Psalm 18:50

♫It’s a good thing to give praise to the Lord and sing praises to His name…♫

650 morning juice – 1 apple, 1 orange, 1/2 lemon, 10 baby carrots

Straighten living room some. Load in washer. Wash hair. Exhausted and out of breath. Need to rest a while. Ears ringing. Hands throbbing. Legs and feet stinging throbbing and icy cold.

Goals today: post to blog, declutter one kitchen cabinet, wash 2 loads clothes, dinner in crockpot, get ready for church

130 oh, boy. Just realized I forgot to eat today.

Tried something new today. Ordered curbside pickup for Chick-fil -A. Rae had to help. Pretty cool.

Info searched:

Taking Niacin (B3)

  1. Does it cause flushing?
  2. What are benefits?

https://m.facebook.com/groups/Niacin/permalink/970036589824137/

 

Joe informed Rick we would sing without piano tonight bc

Can bloodshot eyes be related to migraines?

https://www.migraineagain.com/migraine-red-eyes-link/

Symptoms today: stinging needle pain, headache, rt ear & jaw hurts, hands ache, severe pain from waist to head – I just want to scream!!! Chilling tingling sensation in center of chest, pounding headache – otc not helping. Stabbing Pain in under arms. Neck throbbing. Lights bright. Eyes blood shot and hurting almost burning. Upper back stinging needle pain. Feet freezing.

Taken naproxen, morning meds, 4 ibuprofen, stress relief tea, and relpax

March 5

Headache not as intense as y’day but it could get there if I’m not careful. Eyes still very sensitive to lights and bloodshot.

Lost 4 lbs this week. Yay! Now to pray I keep it off.

Bible reading: Deut 17-20, Ps 78:38, Deut 6:4-10

Juicing – bolthouse blue goodness

Goals today – visit LM, apt with CPA, get food for lunch at church tomorrow

Symptoms: stinging pain thru body. Periodic intense Muscle spasms (st side, under let rib, rt jaw, neck) – had to freeze in place until it eased some then work it out. A bit before dinner eyes started burning more. Burning continued to increase as it did vision bit more blurred. Put eyeglasses on to see if it would help. Didn’t at first. Eyes burned and watered for good 30 minutes a while after dinner. After they watered good burning began to ease but eyes still hurt and bloodshot. Headache intensified as day progresses so does pain in body. Deep stomach pain returns. Sinuses congested. Rt ear hurts. Had trouble swallowing pm meds – capsule got stuck midway in throat. Think it may be food sensitivity.

Had allergic reaction symptoms at lunch time after eating 3 chicken fingers, fries, garlic toast, & 1/2 tea 1/2 lemonade.

Taking Benadryl for allergies.

Skin itchy all over. Quite bothersome at times. Lower lft leg tourniquet tightening feeling with tingling down leg to toes. Hands throbbing.

March 6

Woke to hands being numb and tingly. Mild stinging thru body. Back itches. Sinuses congested. Lower rt abdomen crampy pain. Tired.

Bible Reading : Ps 51:12-13, Deut 21-23, Isaiah 25:1

Juice: Chocolate milk with ice, chia seeds, & D.E.

Work Day at church.went well. I did more than I was suppose to and and feeling the consequences. They were able to get 3/4 of teen room emptied in SS Bldg. Guys took off 2 truck loads to the dump. Jordon & I took load of cardboard to recycle center and 4 boxes donations to Goodwill. Also 3 trash bags in dumpster.

Once we got home, I crashed for an hour or so. I couldn’t push no more. Worked on bulletins, brunch sign up, & printing Easter Flyers. Rested rest of night.

Symptoms: headache, hands tingly, hands swollen & throbbing, sharp stabbing pain in rt thumb, stomach cramping pain, rt hip throbbing, tingling pain thru body, legs throbbing, low back intense throbbing, skin itches all over, brain fog, exhausted, tired, skin hypersensitivity, sinus congestion, etc.

Took naproxen, 1/2 pill meloxicam, am & pm meds

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Lightning Strikes Journal Entries 04-06 January 2021

Jan 4

6am woken to phone call. Not ready to get up. Whole body aches deeply, but not as bad as weekend.

700 laying back down. I’m so tired.

Read Genesis 19-21. Took cat nap.

800 ready to work on organizing recipes so I can find them quicker for meal planning. Washing comforter in new to me washer. Yay! Prepped veggies for crockpot soup.

School starts back up today. I’m not ready. Stressed over activities of new couple of weeks…dentist, cognitive test, birthday party, start gathering info for taxes, etc. Ugh!

1030 chest hurting, body sore

130 face feels flushed, chest sore, brain feels foggy, tired and need a nap.

250 at bank depositing checks. St middle back cramping. Can’t seem to wiggle right to get it to stop. Headache. Tired. They do not have enough tellers working today. Three lines open and currently 12 in lines and it grows. There were only 9 in line when I approached. I’d go inside if it were allowed. Ugh.

Face feels flushed and cheeks feel on fire. Don’t know cause.

916 going to bed early. Tired and hurting & very cold. Tummy bloated and feels like it’s going to pop. Face itches. Skin hypersensitive…hair on Joe’s arms feel like sharp needles poking mine. Rt inner ear hurts & itches. Low back & rt hip throbbing. Tops of feet freezing even with socks on all day. Toes stingy-tingly and starting to chill.  Cramping lower rt abdomen.

1020 can’t sleep. Pain keeping me awake. Decided to look up info about testing on Wednesday.

https://verdugopsych.com/neuropsychological-evaluation-of-traumatic-brain-injury/

Too much info to read right now. Increases headache.

 

Jan 5

500 rough night. Woke at 1am with extreme pain in abdomen. Had to use restroom.

Woke again at 5am with milder pains.

645 strange sounds coming from abdomen. I just want some sleep.

Tummy upset and bit nauseous. Took ginger capsule to settle stomach.

700 chilling sensation up and down spine. Feet freezing.

1000p bad headache.. Much pain. Low back & rt hip throbbing.

 

Jan 6

630 rough night. Trouble falling asleep and kept waking up thinking I overslept. Detest alarm noise it irritates me to wake up to need to change it. Very tired. Whole body aches. Sinuses congested. I wonder if the zyrtec is even helping anymore. Moderate headache. Nervous about testing. Mixed emotions.

2p neuropsychological testing went longer than expected.  (appointment lasted from 8am-1pm). Dr told my husband that I look exhausted and need a break. I will have to go back Friday to finish (it’ll be another hour). I will get results at end of month. I am flat exhausted and will most likely be down rest of day.

Eyes started watering mid testing. Brain began fatiguing had trouble answering simple questions I should’ve known. Fought falling asleep on girl giving test. Periodic ears ringing.

345p Series of puzzles, drawings, matching, math problem, memory tests, defining words, spelling, repetition of numbers and words, naming object and animals. Thinking about it now tires me out. Bad headache, exhausted, rt hip throbbing.

https://www.ncbi.nlm.nih.gov/books/NBK305230/

745p just found PDF on neuropsychological testing wish I found it earlier

Neuropsych_FAQ.pdf

https://www.brainline.org/article/guide-neuropsychological-testing

 

God is so good in providing this testing. It can be an important tool for helping understand my injury and how to better help me improve and overcome.

800 going to bed early. Been dozing off and on since we’ve been home.

Learned my husband thought I was as smart as Stephen Hawking prior to my LS. I didn’t recall who he was. Just looked him up. He was a pretty smart guy. I guess that’s a pretty huge compliment. Awh.

840 trouble falling asleep. Asked Joe for some herbal tea to help me sleep.

935 Tummy hurts horribly again. Trots again. Ugh! I forgot Chammomile tea relieves constipation.

945 exhausted. Brain hurts. Headache. Whole body aches. Rt inner ear hurts. Low back & rt hip throbbing. Lower abdomen stabbing sharp pain. Legs ache. Feet sting. Toes tingling. Hands sting & tingle.

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Lightning Strikes 7-9 December 2020

Dec 7

620 woke from deep sleep I think strange dreams. Thought it was later than it is. In much pain.

830 tingling sensation in back of head (covers entire back half of head) will chilling tingling sensation down spine. Both ears ringing.

1100 chilling stinging sensation in back penetrating thru body to front chest.

200p choked on water

330 Chemical compounds in foods can inhibit a key Sars-CoV-2 Enzyme

https://news.ncsu.edu/2020/11/food-chemical-compounds-can-inhibit-a-key-sars-cov-2-enzyme/

Decided to get few groceries before picking up Jordon’s rx. Took me 1.5 hrs and I still forgot things. Try again another day. Need to prep for ladies mtg tomorrow.

830 Dezirae & I tried our hand on new Christmas cookie – Peppermint Candy Spritz cookies. Didn’t turn out exactly the way we expected but they tasted good. We will tweak recipe a little next time.

I had to keep sitting down bc my back is hurting horribly tonight.

1100 crashing quickly. Exhausted and in much pain.

 

Dec 8

Woke at 6am excited about the Ladies Christmas Cookie Exchange. It’s freezing inside!. Actually it’s 64 and I feel like a popsicle almost. Back under the covers I go until I warm up a piece.

Will read my Bible. Today is 1 John 4 & 5. Read couple devotionals & pray. Check emails. Post verse to church Facebook & devotional tid bit to my page.

Helped Dezirae with Math. Well, I tried at least. Thankful for Teaching Textbooks. Couldn’t make it through without that. Math alone now hurts my brain and make me feel cross eyed. I have to rest a while afterwards.

For part of Home Ec, Dezirae helped me make Peanut Butter Blossoms. Had her do math by doubling the batch so I could have some for home too. She will also be cooking Shepherd’s Pie for dinner.

1230 middle of my back has icy burning sensation. Had Dezirae feel my back to make sure I wasn’t just imagining it. She said ideas freezing cold.

130 I’m exhausted and need a nap for tonight.

Dec 9

500a woke an hour earlier than I was suppose to bc I got my days mixed up. Ugh.

Reset alarm.

600 I’m exhausted and don’t want to get out of bed. Feet hurt upon standing. Whole body aches. Slept decent last night. Strange dream.

Have bad headache. It feels as if someone has pair of XL vice grips clamped on my head and is squeezing. Took 2 Tylenol.

700a decided to start straightening around house. Fleeting thought to attach dryer vent for heat in house but decided against it bc I didn’t want chest to hurt. I’m really putting off grading papers. This school year has been wacky & throwing me off mentally. I don’t like it.

1030 spent couple hours working on school stuff. Somehow Dezirae’s grades missing from 1st quarter. Can’t seem to find them. Thankfully, I have things on paper as well. Had to retype and save. Ugh. Brain hurting & vision blurring. Tingling in brain. Middle of back icy sensation and it’s making me cold. Turned heater on to take chill off in house. Need a blanket. Feet are cold even with socks on.

Exhausted. Feel like I’m going to crash.

1100 laid down on couch. Crashed quickly and slept for 20 minutes. Dezirae said I dell asleep fast and started snoring immediately. Lol. I have never fallen asleep that fast. Good thing I chose to lay down.

500 made twice baked spaghetti for dinner. It was a hit.

1030 I’m exhausted. Need my beauty sleep.8

Bad headache. Neck.hurts. Hands  throbbing. Back & rt hip throbbing. Legs ache. Feet tingling. Chilly burning sensation in middle of back moat of day. Ears ringing. Crashing soon.

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Lightning Strikes – November 5-6, 2020

Nov 5

530 apparently I set my alarm bc I didn’t know when I was suppose to wake. I’m tired. Need deep sleep.

Oldest having financial woes and isn’t handling it too well. This in turn is grieving my heart and stressing me into a headache. May have to show him some tough love.  I have such a headache! Took two Tylenol and drinking Stress Relief Tea.

700 decided to take shower to see if it’ll help. Forgot what a chore it is. I’m exhausted, out of breath, arms fatigued and throbbing, whole body throbbing. Tingling burning in legs and feet. Headache still bad. Ears ringing. May have to take a margarine relief. Need to rest a while.

830 two loads clothes washed & hung. One load folded – still need to put away. Cat fed.

1030 Meeting with TBI coordinator, Krystal, went well. Very friendly. She’s coming back out in two weeks. Wants to start working with me on memory & comprehension.

TBI testing rescheduled for January 6 @ 8am. Mtg was about an hour. Headache worse. Chilling tingling sensation down spine. Feet cold. Back is icy to the touch. Tingling sensation in top & center of brain.

1033 need to put dinner in crockpot.

100 exhausted. Heart beating hard and fast. Resting on couch. Head pounding.

300 friend dropped some pecans off for me. Yay! Elliotts.

  1. “Nightmares are dreams that are threatening and scary. For trauma survivors, though, nightmares are a common problem. Along with flashbacks and unwanted memories, nightmares are one of the ways in which a trauma survivor may relive the trauma for months or years after the event.”

https://www.veteranshealthlibrary.va.gov/142,41554_VA 

https://www.sleepfoundation.org/articles/how-trauma-can-affect-your-dreams

1120 very tired. may fall asleep. Hurtingball over. St side cramping. Neck & head hurt. Feet freezing.

Nov 6

700a woke from nightmare. It was awful.

My arms are throbbing. Whole body aches. Feet feel like I’m standing on broken chards of glass. Low back throbbing. Sporadic muscle spasms thru torso & legs. Skin itchy.

930 met ladies at church to decorate for the church photo op tomorrow.

500 body starting to tell me that I did too too much today. Enjoyed being with the ladies though. Headache. Chest throbbing so much it hurts to move. Muscles spasming greatly in middle of back. Had Joe feel it. Hands and wrists swollen and throbbing. Legs throbbing. Feet hurt and tingly. Neck throbbing. Chest feels as if elephant beat me up and sat on me.

1045 getting really sleepy. Drank chammomile tea. Skin feels like ants crawling. Dizzy. Stinging pain in back.

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Lightning Strikes – November 3-4, 2020

Nov 3

430a woke freezing. Hurt to move to try to get covers back on. Joe covered me back up. I thanked him.

630a oh I hurt so so much. Do too much y’day. Entire back throbbing and muscles spasming. Hands throbbing. Bad headache. Hurts to move.

700a headache quickly getting worse. Took relpax and laying back down few minutes. Muscles randomly spasming thru body. Eyes watery. Stuffy nose. Lights bothersome. Sharp pain in lft jaw. Lft side of chest hurts. Tummy hurts.

https://www.healthline.com/health/headache-and-nosebleed#diagnosis

747 starting to get tingling chilling sensation down spine from neck down to tailbone…prominent in center of back. Feet chilly. Putting on socks.

858 forcing myself to eat bkfst. Tummy still hurting.

Measured waist – lost 2″ in one week.

901 received phone call from PC repair shop. Motherboard died and they can’t find replaceable part for it. Told her I didn’t know what to say but had bought it from them earlier this year. I’ve lost all my precious memories. 20+ years of photos, homeschool info, info for church. I’m at a loss.

1030 received phone call from TBI coordinator. Dr who was scheduled to do my TBI testing on Thursday called needing to reschedule. wants to reschedule tomorrow or next Tuesday. Tell TBI person tomorrow too soon maybe next Tuesday. I call Joe at work. He in turn has to check with his boss bc he had to ask off for Thursday. I check my calendar. Next Tuesday won’t work. Kids have Dr appts and I had hard time getting them scheduled -cant reschedule them. Let Joe know. Ugh!

I can’t handle all of this info. I’m melting.

TBI lady called back to let me know next available not until next year. I tell her that’s okay. I try hard to hold it together but end up crying while she’s on phone. Think I concerned her at first bc she wouldn’t hang up phone and kept asking if I was okay. I ended up blubbering what events had transpired today. She understood and assured me that it was normal reaction. I told her I just had to cry a while and then I’ll be okay. She told me she would stop by on Thursday to check on me.

I was home alone (which is very rare) for few hours today. Able to cry it out – cried to Jesus and imagined I was curled up in His arms crying my heart out.

Once I was done, God gave some clarity of thought and my migraine had eased. Able to call PC repair guy to ask about data retrieval. He will retrieve what data he can. Praying my important to me documents will be salvageable. Will have to save $ for while to buy a new one.

300p Went to vote after picking Jordon up. Line was around bldg out to street and into lot next door. I tried standing in line using just my cane and occassionaly grabbing Jordon’s arm when I felt I was gping to lose balance. Stood in line almost 15 minutes then asked him to get wheelchair bc I couldn’t stand any longer…pain just too much to bear. Once he retrieved the wheelchair, a couple ladies informed me that a couole police officers told them that handicaps could go to front of line. I asked what to do. Jordon pushed me to door. Guy in front of line graciously opened the door for us to go in. Thankful to not have to wait much longer.

Came home and crashed in chair.

1115 don’t know voting outcome yet it’s close. Dezirae getting upset bc the biased media saying Biden’s leading. She asked about electoral votes verses majority vote. Had to Google info in order to figure out how to explain. Printed her out map of US and how many electorals per state. Said it helped some. Still too close to see either way. Also not sure how the mail in ballots work being they have until Friday to be counted?

Migraine has eased but still have headache. Tingling sensation inside brain and down spine. Bloody nose has eased. Tummy pain has eased. Stiffness all over and still in much pain thru body. Hands throbbing. Need rest. Night meds taken plus 2 Tylenol.

Nov 5

530 apparently I set my alarm bc I didn’t know when I was suppose to wake. I’m tired. Need deep sleep.

Oldest having financial woes and isn’t handling it too well. This in turn is grieving my heart and stressing me into a headache. May have to show him some tough love.

I have such a headache! Took two Tylenol and drinking Stress Relief Tea.

700 decided to take shower to see if it’ll help. Forgot what a chore it is. I’m exhausted, out of breath, arms fatigued and throbbing, whole body throbbing. Tingling burning in legs and feet. Headache still bad.ears ringing. May have to take a margarine relief. Need to rest a while.

830 two loads clothes washed & hung. One load folded – still need to put away. Cat fed.

1030 Meeting with TBI coordinator, Krystal, went well. Very friendly. She’s coming back out in two weeks. Wants to start working with me on memory & comprehension.

TBI testing rescheduled for January 6 @ 8am. Mtg was about an hour. Headache worse. Chilling tingling sensation down spine. Feet cold. Back is icy to the touch. Tingling sensation in top & center of brain.

1033 need to put dinner in crockpot.

100 exhausted. Heart beating hard and fast.

Resting on couch. Head pounding.

300 friend dropped some pecans off for me. Yay! Elliotts.

10.50 “Nightmares are dreams that are threatening and scary. For trauma survivors, though, nightmares are a common problem. Along with flashbacks and unwanted memories, nightmares are one of the ways in which a trauma survivor may relive the trauma for months or years after the event.”

https://www.ptsd.va.gov/understan.d/related/nightmares.asp#:~:text=Of%20those%20with%20PTSD%2C%2071,may%20have%20them%20quite%20often.

https://www.sleepfoundation.org/articles/how-trauma-can-affect-your-dreams

1120 very tired.may fall asleep. Hurtingball over. St side cramping. Neck & head hurt. Feet freezing.

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Lightning Strike Recovery Journal Entries 2019 Feb 27-28

Feb 27

8:45a- woke at 6:30 muscles spazing in legs. Back throbbing. Headaches. Spring is in the air my sinuses are amuck. Neck and chest hurt when I cough. Co-op today for kids. They are so excited they want to be there early! For the moment, I choose to be thankful for God’s faithfulness and mercies for they are new every morning. 

1:00- co-op went well today. Bunch of families out sick. I enjoy the US Geography class. Kids learning states and their capitals. I was able to do the game with kids today. Had fun. 

The class really stretches my brain and gives headache. Have to rest a while when I get home.

Feeling weak, rt hip throbbing, tailbone throbbing, headache, rt arm hurts, hands swollen and achy, neck hurts, shoulders tight, pain in left center of chest. 

Cat nap lasted about 10 minutes if that. Received call from Jakob. Got cut short because Joe was calling him. Figures.

9:51p- Jakob called back later. Needed help with his taxes. Unable to comprehend all he’s telling me. He said just him being able to talk it out with me helped. It probably would be better if I could see what he’s talking about. It was nice to be able to talk with him bc it’s been a long time since we talk that long. I miss my Bubba.

I’m exhausted but awake. In bed by 9:30. Lower half of body throbbing and tingling. Upper left side of chest throbbing. Rt shoulder hurts. Thrush still there. Headache. Dr apt tomorrow. Left shin & foot going numb feels weird.

10:15p- arms stinging

Feb 28

5:51a- woke at 2am & 5am. Woke from unsettling dream (only thing I remember is that I had argument with best friend and I was driving down wrong side of road thinking I was on right side). Muscles randomly twitching thru body, tears escaping my eyes, headache, need to get some sleep.  

7:42a- pain is great today…must be dreary weather. Nervous about Dr apt. Need to have him fill out paperwork for atty. Don’t recall being asked any of the questions before. Lord, I need thee every hour!

8:45a- Dr apt. Bp 113/69 hrt 69 weight 198 temp 97.7

The nurse, Joseph, had never met lightning survivor. Struggling remembering how old I am. I think it’s irrelevant, but they keep asking me. Still trips me up everytime. Mom had to explain why I had trouble remembering. Jospeh (I can remember his name bc it’s my husband’s name☺)

Saw someone familiar in hallway but I couldn’t place why I knew him. Told nurse that he looked familiar but I have no clue why. Dezirae kindly reminded me that he was from my TBI group. Oh, but I still don’t remember his name. 

When mom explained why I had struggle with memory. The guy got excited. He thought it was cool but not cool I was injured.  I told him I understood – it’s cool from a medical aspect. He never met a lightning survivor so he asked for my story. 

Thrush has improved but I have to wait one week then take 2nd round of medicine. I’m sick of medicine. 

12:05p- Dr didn’t fill out paperwork. Atty said not to worry. They’ll build case on medical records.

Chest in between shoulder blades just below chin just popped. Ouch! Feet are freezing!

7:25p- sharp pain left center of chest

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Lightning Strikes Journal Entries 2019 Feb 16-18

Feb 16

8:30a Thankful that I have unlimited access to my Heavenly Father on a daily basis.

9:00a- Fell asleep just after midnight. Woke around 4:30 am in serious pain! Doze off and on rest of night. Terrible dream that turned crazy. 

Serious pain all over. Rt hip throbbing! Pain rate 9. Need pain rx to move much.

 11:42p- Treated kids to Marble Slab. Tasted a little of their ice cream but held back on ordering one for me. I’m trying so hard to get rid of this thrush. Joe not convinced it’s just thrush could be geographic tongue too. I’m confused. Just want it to go away. 

Ended up having a long discussion on my research about getting better. Didn’t understand what Joe was trying to say and took it the wrong way. All I want to do is get better. I’m tired of not being able to do things that I know I used to be able to do or think I should be able to. Joe wants me to stop stressing myself out trying to research what to do and allow my brain and body to rest so it can heal. I just want explanations of what’s going on. I guess I just need to learn how to balance it all.

Feb 17

1:37a- very rough morning. Woke with a migraine. I down spiraled from there. Overwhelmed by previous night’s conversation and not getting better. Tongue is getting worse again. I’m exhausted and tired of fighting it all. I’m discouraged but not defeated. Can’t seem to think straight or keep things straight.

Ended up arguing with Joe. Anxiety overtook and I did something dumb – getting out of car while it’s moving. Almost fell in process. I need help but don’t know who or where to turn. Keep quoting Lord lead me to the rock that is higher than I for thou has been a shelter for me.

9:45p- solemn day. Took two hour nap this afternoon. Joe actually had to wake me up. Took nap on mattress in nursery. I’m still tired. Trying to relearn some music for offeratory. Coming along slowly. Singing same songs repetitively is irritating to me. Just want to be held and told it’s gonna be okay. I’m so tired. 

Gonna call dr in am to see if they can test for strand candida and cost to see if we can get rid of this junk once and for all. 5 bites of ice cream and this much reaction is insane (tongue slightly swollen, difficulty swallowing, more rash patches on tongue, etc)

Low back throbbing, headache has dimished but not gone, exhausted, discouraged, hands swollen and achy, rt hip aches. 

10:55p- hands and arms went numb had to change position, legs throbbing, feet pulsing throb, blankets feel like lead, skin itchy. Took melatonin and pain rx

Feb 18

5:30a- long night. Up since 3am. Fell asleep close to midnight. I’m exhausted and in much pain. Rx didn’t do much. Can tell I’ve run out of MSM. Having more muscle pains and spasms. Odd how one thing can affect the whole.

6:24a- still an emotional basket case… tears leaking out of mine eyes.  I guess it’s worse when I don’t get much sleep. Gonna try to take nap before kids get up. Did Bible reading. Will do devotions a little later. I’m freezing right now. Need to warm up.

9:30 1/2 muscle relaxer knocked me out for three hrs. Got to get up. So sleepy.

11:57a- I’m so tired. Two loads washed. Jordon helped me finish making bed.  I hurt all over. Touched up walls in Dezirae’s room. I’m exhausted. Upper back stinging needle pain. Hands swollen and achy. So lethargic must lay down for a piece.

12:16p- Atty called. Court getting ready to schedule hearing. Atty collecting additional info to build my case. Sending me paperwork to take to doctor. 

4:11p- center of chest hurting with a chilly tingling sensation, stomach hurts, made dr apt for Thursday re thrush is getting worse again 10:00p- gotta remember to get more MSM. Muscle twitching in legs. Center chest pain increasing. 

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Lightning Strikes Journal Entries 2019 Feb 10-12

Feb 10

2:18a- woke up at 6:30. My alarm didn’t go off as normal my phone just vibrated but I heard it. Snoozed like 3 times before getting up. Took shower. Got ready. Took rx. Swished with coconut & oregano oil for thrush. Tongue looking much better just a little more to go. I’m feeling better.

9:00a- went to check on mission house to make sure it was ready for a missionary this afternoon. My world was turned upside down and off kilter. Looked like someone got in house left crumbs on table & stove that molded. Someone turned off a/c units and mold was everywhere! I told Dezirae we were gonna have to clean it. Went & told Joe. Entire family jumped in to help wipe whole house down & clean it back up. Need a better vacuum & dust pan. Got it clean but am exhausted and hurting! 

1:00p- Upper back is stinging needles. Can’t sleep when it hurts like that. Have to also start decorating for Valentine’s dinner on Thursday. 

11:00p- I’m exhausted but having trouble falling asleep. Whole body hurting. Hands swollen and achy and tingling. Skin itchy, eyes watering, rt hip throbbing like toothache, low back throbbing. 

Had dinner with missionaries. Enjoyed listening to everyone talking. I’m ready to crash just wish I could.

Feb 11

7:00a- woke with headache. hands swollen, achy, & tingly. Rt hip & back aches. Muscles twitching throughout body. Eyes watery. Chilling sensation in center of chest. Face itches. Center of chest hurts. Neck hurts. Slightly congested. 

9:00a- kids were sweet and brought me breakfast in bed.

10:30a- able to get Valentine’s care package in mail for Jakob today.

11:30- working on next item for taxes…my brain and eyes are already feeling blurry and my speech is messed up (making up words, reversing letters & numbers, etc). Called tuna “turkey” and told the kids to squinch it to make it go farther. Jordon asked what that meant. I told him I had no idea just made it up. I meant to tell them try to make it go farther but couldn’t remember word to use. Lol!

*It’s important to learn to laugh at ones self or you’ll die of frustration and embarrassment. Don’t misunderstand bc I do get quite embarrassed at times especially in public, but I’m working on learning how to love myself inspite of my shortcomings.  

12:30- turned wrong and whole body cramping. Severe cramping on right side. Oh, it hurts so!!! Joe told me to check to make sure I’m taking enough calcium and magnesium. Told him I expected it bc  I overdid it this weekend with walking too much on Saturday, having to clean mission trailer unexpectedly on Sunday and decorating for Valentine’s dinner. 

2:59- need to rest a bit. Brain is swimming & headache in beginning to surface. Upper back is throbbing and stinging slightly. Neck hurts. Legs and feet are freezing. It’s 71 inside. Craving fried lentils. Weird. 

8:00p- spot on head hurting bad. Checked in mirror. Barely touched and it popped. Ugh! Cleaned it as best I could. Can only hold my arms up for a short while before they throb like a toothache. Applied Frankincense oil to keep infection away. 

11:49p- stinging pain in hands, skin feels itchy, headache, and head hurts, chest feels like my ribs are caught together. My body feels hot to touch but I’m freezing.

It’s really hard to fall asleep when there’s stinging pain. When I overdo it, I suffer for next two or three days depending on how bad I overdo. It’s just my new normal. 

Not complaining in the least. I pray God can use this for His glory. If I can bring awareness and help others along the way then so be it. Tonight is one of the nights I’ll probably have to take pain rx & relaxer to get to sleep. 

Feb 12

7:00a- woke from a nightmare! Hands numb & tingling. Neck hurts. Tired. Cold.

7:59a- sitting in bed reading. Nose starts bleeding. So wish I could figure out cause. Nerves are tingly thru body.

8:05a- nosebleed lasted about 3 minutes. Now I have a headache.

🎶It’s a good thing to give thanks to the Lord and sing praises to His name🎶 (if only I could remember rest of the song). 

10:07a- having seemingly allergy attack this morning – major trouble with sinuses all of a sudden. Only things I’ve had so far is my medicine/vitamins (Edarbyclor, probiotic, alpha lipoic acid, b complex, propranolol, b-12), grits n egg, water. I don’t understand. Drinking cup of hot green decaf tea with peppermint and copabia oils to see it’ll help. Gotta figure out how to heal my neurological system. 

11:19a- Just finished posting rest of journal entries for September 2017. Need to rest my brain. Eyes & brain feel blurry and swimish. 

11:45a-  I have a headache. I have a headache. hey-hey-hey-hey

12:43p- serious indigestion. Eating yogurt to calm it.

3:00p- managed to paint 2nd wall in Dezirae’s room, but I’m done for rest of day. Out of breath, brain swimming, unable to focus much, gait off, need to rest.

5:00p- trouble getting rice to cook. Forgot to replace lid so it took like forever to cook – way past 30 minutes. Kids had my kitchen hijacked to work on their valentine boxes for co-op tomorrow. I have no idea what we’re going to bring.

6:49p – Second wall painted today. I know pic isn’t very good. It’s coming along.

11:19p- lower back is throbbing like toothache. Took rx & melatonin. May need heating pad, but I’m really hot so I’m trying to avoid more heat. Even turned on box fan which I’m not feeling much of. It’s on Joe’s side. Head hurts. Hands tingly. Skin itchy. Feet hurt. Neck hurts. Diffusing Lavendar oil.

Thrush still not completely gone but it’s much better. Taking Echinacea. Though I think I forgot to today. Did swish with oil of oregano & coconut oil this morning. Upper chest aching & tense. Rt side cramping. Feet throbbing. Hiccups?  

Posted on

Lightning Survivor Journal Entries 7-9 Dec 2018

Dec 7

7:00am -Joe scared me awake around 6:30. Woke me up from bad dream…

Chest hurts, rt side cramping, headache (wish I could get rid of them for good). Muscles twitching in left side.

11:30a- got stressed over typing up Dezirae’s Bible quiz & both kids needing my help at the same time. Needed to pick up my rx at pharmacy. Told Joe I needed some therapy & I’m going to the Thrift store. Found a few Christmas presents. Rx ended up being more than I expected. Back home before Joe had to leave for work. 

1:42p- getting chilling sensation at base of brain down back of neck & left ear – second time today

11:50p- had a decent day not too much pain unless I was doing too much. Vaccumed under part of bed. Had to have Jordon move bed back even though it was on wheels bc my back was hurting. Hurt my rt arm trying to reach object under bed. Had to have Dezirae get it out for me. Frustrating bc I used to be able to rearrange & deep clean my room in one day. Not anymore. It’s been over a year since my room was deep cleaned. Now I have to do it in spurts. Oh bother.

Headache.  Stuffy nose. Muscles randomly twitching in legs. Skin itches. Eyes watery. Tailbone just popped. Low back aches. Rt hip hurts. Feet freezing though I have socks on. Neck aches. Upper back stinging needle pain. Wide awake. Ringing in ears.

Dec 8

12:11a- stabbing pain in center of rt thigh. I need a new doctor specialist. Need one that cares enough to learn with me or try to research answers.

1:57 still wide awake

https://emedicine.medscape.com/article/433682-treatment#d9

9:20a- so much pain!!! Rt arm & hand numb but tingly, swollen hands & pain. Upper back stinging needle pain. Low back throbbing. Feet tingly and pain. Upper arms ache. Stuffy nose..trouble breathing. It’s raining outside so I’m sure that’s part of it. At least my toes are warm. Oh, the pain.

2:27p neck is all knotted and hurting. Headache won’t go away. Bp is 100/73 at least that’s good. Last time I remember seeing it that low was before children. Yes! 

11:30p turned in bed caused extreme painful cramp in right side couldn’t move for a few minutes

Dec 9

8:00a woke with headache. Neck hurts to turn. Tired of headaches

9:30- having trouble playing Christmas hymns today. They’re gonna be the death of me so frustrating. Lord, please send us a pianist that can play better than me. Eyes blurry. Toes freezing. 

2:00p took kids to Bayou la Batre Christmas parade. Went into store while waiting for parade to start. Parade was kind of cute and short. Been a rainy month so all others had been rained out.

3:30p – sharp stabbing pain in center of chest. Tensed up and wanted to hunch over from the pain but knew I couldn’t bc iz driving. Oh in need of neck massage. Neck muscles so tight shoots pain down neck and body. I’m so tired.

9:18p – center of chest stabbing pain. Chilling sensation at base of neck and shoulders area.

Posted on

Journal Entries 23-24 October 2018

October 23

7:00am – had trouble sleeping last night.  Woke at 7:00am.  Have TBI group today.  Can only stay till 12:30 bc Joe has to work midday.

Once I got there, spoke with Theresa about paperwork from ss oho?  Let atty know about attending tbi mtg.  She said she’d write a leter if needed.  I asked her for biz card bc I lost her info.

Two guys & a gal from USA came today.  They come to help us out but are also learning from us.  Stephen drew picture of brain and broke down different areas trying to explain each units functions.  I was surprise that several of other attendees knew what part of their brain was injured.  I must’ve had a lot of areas inured bc I resonate with several things.

I told them I’d like to pick their brains sometime.  I have lots of questions I’d liked answered but can’t seem to remember them when necessary or how to word them to make sense.

They had us play a new game to me.  I think it’s called Two Truths and a Lie.  I didn’t understand what they were asking at first.  Jameson gave example.  I don’t remember all I wrote, but when it came to my second fact I wrote…I survived being struck by lightning.  They were both shocked at that one.  They started asking a bunch of questions.  I answered the best I could before getting interrupted.  I figure I can just print out list of symptoms to help them out.  Had to set alarm on phone so I wouldn’t be late leaving.  Arrived at home a few minutes before Joe had to leave for work. 

My brain hurts after all that workout.

Need to rest.  Sat for 30 minutes or so in livingroom.  Not working.  Can’t focus.  Brain hurts all over.  Fingers and hands numb, tingly, and aching.  Legs and feet hurt.  Whole body aches.  Neck tingly burning up and down spine.  Feel like I’m going to pass out.  Feeling weekish.  Need to go lay down for a while. 

Ended up sleeping for 65 minutes.  Woke up to phone ringing.  Brain foggy  couldn’t figure out where phone was though on bed next to me.  Time to make the cookies.

Symptoms: brain hurts & foggy, neck chilly tingly, hands swollen and achy, calves crampy, whole body aches to bones, tired but wide awake.

11:17p – stinging nerve pain in legs from waist to toes, low back pain, hands swollen and achy, brain hurts, eyes sensitive to lights, tired but wide awake, every wrinkle in clothing is agitating my skin, rt neck hurts.

https://jnnp.bmj.com/content/64/6/763

October 24

8:36a – woke up later that usual whole body aches. Made bed.  Not hungry but ate bowl of cereal.   Started research for Joe.  Thirsty so I go to get drink. Decide that cabinets are dirty.  In cleaning them, decided they need fresh paint.  It was very hard to stir paint.  It hurt my arms.  Need to take a break.  Started load of laundry.  Stir paint again.  Brush not working well.  Found small roller.  Took off handles.  Painted four cabinet doors above stove.  My arms are throbbing and I’m out of breath.  Load of wash is done.  Throw in dryer.  Stared water for new load.  Not enough clothes need more.  I’m tired and need to rest.  It’s a little after 12 kids need to eat.  Made Dezi pb&j. Made Tara chicken sandwich.  Made myself pb&j.  Sat to eat.  I’m exhausted.

Holly came over to see if we were ready to go.  Told girls to get ready to go.  We’re going to Orange Beach.  Enjoyed my “earthing” time at beach.  Tara fed bird from her hand.  I’m plum exhausted.  My body aches and I’m starting to get a headache.  Hands swollen and ache.  Feet ache to bones.  Skin itchy.  Indigestion.

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