Nov 19
1023a Rough night. Didn’t sleep well…hurting a lot. Rt hip throbbing. Upper back aches. Lower back throbbing. Toes cold. Eyes watery. Finger tips cold. Center of chest aches. Base of neck aches. Slight headache. Stomach innards ache.
1131p Whole day thrown off. Decided to change sheets but couldn’t find top sheet. Spent few hours trying to locate it…never did. Had to improvise. Did manage to get window covering up with mom & Dezirae’s help. Some how cut my pinky finger and don’t remember how I did it. It hurts like dickens right now. Did too much today hurting all over for it. I’m exhausted. Mayb3 tonight be better for sleeping.
10:43 Jakob called to chat. Looking forward to seeing him for Thanksgiving.
Nov 20
6:30am woke with headache. Seems as if I’m gonna have to get migraine rx filled again. Can’t really afford it right now. Headaches regular not helping either.
10:30 TBI Support Group Session – Group of college students from South Alabama come once a month to help & learn
Minute to win it (puzzles of cereal boxes)
* I was thinking this ought to be interesting. I know I won’t win because I can’t even suduko right now. I got cocoa puffs puzzle. It was a struggle but I was able to get 3/4 of puzzle done in a minute. They deemed me winner because I had most done. Who knew?!
Left right center game
*This game was actually fun. After two rounds, I had a bad headache and didn’t really want to play anymore.
Push the yam
*This one not only was just silly but I think it also tests hand eye coordination. I won!!
Leisure Studies for Occupational therapy (Misty) *She told me what it was, but I’ve already forgotten
ASCCA camp off hwy 280 Must have buddy
Spoke with Susie (person in charge of South Alabama students) They come out to help one a month. Had good conversation. She seemed very intrigued with my rare situation. Seemed upset that my drs only tell me to live every day life when I ask for therapy.
Physical therapy /neuropsychologyBe my own advocate. Tell dr that I need pt because I’ve lost strength and am struggling to get it back.
2:00 had melt down when I got home after discovering unexpected charge on our bank account. I struggle with remembering dates, appointments, etc. When unexpected events occur, it throws me off my game for a bit. Have a cry and then try to find positives. Lady at bank was very understanding and helped walk me through it all.
11:00pm – trouble with muscles cramping and spazing off an on today. Chest hurting and swollen. Headache. Took muscle relaxer & pain rx. Also my pm supplements. Cuddling up with heating pad. Hopefully, I’ll get decent amount of sleep tonight.
Nov 21
8:30 fell asleep after midnight. A whole muscle relaxer knocks me out. I don’t like taking them bc of the bad dreams that come with it. Dreamt I was fighting for my life…so though I slept that long it wasn’t very restful & woke up tired. Hands swollen and achy, headache…
9:00am need to cook pumpkin pie today. Have to find easy way to make pie crust without all the upper body work. Found website that gave instructions on how to make in bread maker. Sweet.https
https://www.breadmakermachines.com/recipes/pie-crust-recipe/
It took 30 minutes til paddle stopped (I know bc I set stop watch to know how long to make notes for remembering later). Now refrigerating for 30 minutes or so.
1:35pm – Mom called to see if I had any cool whip for tomorrow. Oh, no! I completely forgot! Asked to borrow her car to go get some – can’t have pumpkin pie without cool whip. Jakob’s bday is tomorrow too. I’m making pineapple upside down cake. I remember he likes pineapples. 😊Wish I could figure out how to export my journal logs from phone – sure would make life simpler for updating my blog/website.
Symptoms: have had headache most of day. Chewing gum helps ease it.
8:30pm Jakob made it home from college. Glad he able to come home for holidays.
9:02pm I’m wiped but wide awake. Made cinnamon rolls for tomorrow morning. Thank the Lord for bread makers. Made 2 pumpkin pies. Used bread maker to make pie crusts. Made 6 homemade coasters for Christmas presents. Dezirae found pillow cases I was suppose to fix for a friend, but completely forgot about them. So I sewed them this evening. Most of activited had to rest in between.
Symptoms:Center of chest throbbing & chilly hot sensation. Shoulders hurt. Slight headache most of day. Muscle cramps in legs periodically today. Fingers ache. Eyes feel blurry. Feet feel cold even though I have socks on. Neck hurts.
