Author: Melissa

Oct 22

6a woken by musles spasms in legs. Had nightmare. Headache. Low back throbbing. Pins and needles sensation in hands, forearms, and feet. Very thirsty. EO Pain Relief roller apply to back of neck.

7:09a I guess some sleep helped a little. Bp 133/87 hr 63 currently. 

7.45a Head pounding. Electrical pulsating sensation in arms and legs (almost as if I had tens unit on and turned up tad too high). Pain in left side of chest for brief moment. Whole body aches. I feel miserable. Ears ringing. Lights bothersome. Dizzier than normal.

10:29 mom took me to food pantry. Took Bp after putting food away. Bp 131/93 hr 76

12.00p Bp at Dr office was 141/88 hr 71. Bp with my machine 142/88 hr 72. Mom let them know about the Left Ventricular Hypertrophy. But I can’t remember date of diagnosis. Nurse will let Dr know and give me a call this afternoon.

Interestingly, nurse was able to pull up my records on her screen. Saw the ER report that says patient was struck by lightning. Hmm? I know I was bc I’m dealing with and feeling the after effects. Maybe I should start gathering my records so I can read over them at my pace. It’s important to be an advocate for your health.  

I’m probably confusing Dr’s bc my bloodwork came back normal. Yay me! I think the homeopathic things are helping (eg. Diatomaceous Earth milkshakes with chia seeds, the intermittent fasting, thyme tea, red raspberry leaf tea, green decaf tea, colloidal silver – of course, not all at the same time) keep my organs functioning properly and me off antibiotics.  

Major headache, neck hurts, vision feels blurred on edges of eyes, trouble thinking straight, lightheaded, dizzy, muscles randomly twitching thru body, back aches, lft side hurts like I pulled a muscle, feel like I’m running fever but I don’t

10:00p rt hip throbbing like toothache with sharp pain shooting down leg to foot, low back throbbing, headache bad (I don’t know what to take to get rid of it), lower lft leg just below chin tourniquet tightening feeling with some tingling to foot, upper back hurts, random sharp stabbing pains in rt elbow, eyes & brain feel blurry, neck throbbing, tingling in lower legs, hands ache, tired but awake. Night rx taken.

Oct 23

7:15 woke with a bad headache. Sinuses congested. Whole body aches. Low back & rt hip throbbing…at least no shooting pain presently. Nightmare – trying to escape from somewhere. 

I need to get better. I need to be able to function properly. Sipped some Thyme tea with peppermint and copabia oils. 

9.00 Bp 151/92 have horrible headache. Took Tylenol sinus.

11:30 Need some food in house. Decided to go to Sam’s with Jordon. No way I can walk Sam’s yet used wheelchair. Just that little bit wore me out. Legs throbbing. Sinuses in face hurt horrible. Buttock ache, arms soar. Couldn’t lift 6lb box of spaghetti noodles. Had to get Jordon to do it. Nerves pulsating thru body as if injured and wanting attention. Rt hip aches. Toes cold. Eyes watery. Tired. Neck hurts. Need to rest a while.

4.50p face feels flushed and cheeks feel like they’re burning, headache still bad, short of breath after making batch of stain remover (recipe on my botlle) & helping Dezirae put tablecloth on table, nerves in hands and arms stinging, muscles randomly twitching in legs Bp 146/99

5:07 Told Joe I couldn’t get rid of headache. Joe said to take 2 aspirin. Doing so.

6:30 head still pounding. Lights bright. I feel like I’m burning up. Going to lay down in dark room for while. Took migraine rx. 

7:00 dinner. not hungry eating bc I need to been drinking mostly fluids. 

7:30 applying ice pack to head and heating pad to throbbing rt hip. 

11:00 having trouble going to sleep 

Marker exercise and x to x making headache worse PT. If doc don’t do anything tomorrow I’m going back on Edarbyclor. Maybe once bp is back down to normal I can cut pill in half. Indigestion kicking in. Chewing papaya enzymes. Sinuses severly congested.

Back muscles stinging. Hands swollen and achy rt wrist throbbing. Lower lft leg tourniquit tighten feeling. Low back aches. Heart feels like its racing. I’m exhausted. Feel like I’m falling apart from inside out. Ears ringing. 

Lord lead me to the Rock that is higher than I for thou has been a shelter for me. Please give me sweet rest tonight. This poor soul is weary and heavy laden and I need rest from this pain. Lull me to sleep with Your sweet lullabys so I may wake tomorrow rested and ready for another day. Thank you, Lord. 

Oct 24

8.00 slept until 5am then off an on rest of night. Strange dream. Woke up very tired at 7.30a. Hit snooze few times. Hard time waking up. 

Read Bible & devotion book on phone. Prayed a while.

Galatians 6:9 – And let us not be weary in well doing: for in due season we shall reap, if we faint not. 

Still have headache but not as bad as yday. Ydays was causing tears. Neck tight and hurting. Chilling tingly sensation in back of head, neck, upper back, and back of upper arms. Ears ringing. Whole body stiff and achy. Low back & rt hip hurting.

10.00 bp 161/101 hr 64 

Decided to try to rest a bit. Did morning PT exercises. Laid on chase lounge for while in livingroom. 

2:00 almost forgot to eat lunch. Chose to eat ham & cheese with tomato and lettuce tortilla wrap & hb egg. 

4:00 Bp 156/94 hr 74

Headache. Upper back stinging. Feeling flushed. Cheeks feel like their on fire. Upper chest feels like it has itchy hives. Look in mirror upper chest is splotchy. Hands throbbing. Rt hip & low back throbbing. Bloated majorly – jean skirt that’s normally loose is almost too tight. Legs ache.

9.26 muscles in rt side spasming. Headache worsening. Lights bothersome. Feet getting cold & I have socks on. Cheeks feel hot. Bloated.

Oct 19

7a- I’m in so much pain!!! It feels like if I inflame any more I’ll explode out of my skin! Headache. Pain level 8/9.

7.30- took Naproxen 500mg. 

8.00- Bp 128/82 hr 59 Bp slowly rising. Sharp pains in my abs, chest, & rt side when I sneeze. I think this new Drs instructions are going to be the death of me.

8:57a pain rx not touching it. Nerves feel like they’re randomly jolting thru body. Physical hard to move. Headache worsening. Going to sip on thyme tea to see if that’ll help.

10.25a I don’t think I’m going to last the week without my bp rx. I have beginning migraine now and bp is 144/85 hr 59.

10.40 called Drs office. Msg being relayed to Dr. Stinging needle pain all over. Headache is now migraine. Took Rx. Toes tingling & cold. Cold slowly expanding over feet. Tingling burning sensation in back. Legs, rt hip, & low back throbbing. Neck hurts. Lips extra dry. Mental cloudy (can’t think straight).

11.11a Just got call from on call Dr. Explained what’s going on and that I’m a lightning survivor. He said my Bp is currently not high enough to do anything. Asked how high it needs to be. He said 160/100 before he can warrant starting me on Bp rx. Have to call Dr Meadows on Monday to ask what to do. Can take migraine rx for the migraine. 

Dr I spoke with doesn’t think Hydrochlorothiazide is a sulfa drug. I told him it was a sulfa drug and I’m allergic. Yet my pharmacist said it was and the info on internet says it is and my body reacted as if it was. Hmm?? 

Even the paper that comes with it precautions “may contain inactive ingredients such as sulfites”. Case closed.

So frustrating!! I need personal Dr in private practice that will care. God please help!

https://www.everydayhealth.com/drugs/hydrochlorothiazide

Joe talked to pharmacist. She said sometimes Drs will do this to see how bad the blood pressure issue really is to try to give better diagnosis. Need to stay away from caffeine & salt. Drink lots of water.

5:18 soaked in hot Epsom Salt bath for quite a while. Wore out. Arms & hands ache. Rt arm cramped washing hair…had to take breaks. Hands feel crampy. Short of breath. Headache eased some. Neck sore. Legs ache. Checked Bp 129/77 hr 65. At least bp is down for now.

10.50p- bp 116/91 hr 80 going to bed. Praying tomorrow is a better day. 

Toes tingly and hurting. Legs ache. Rt hip & low back hurting. Upper back pins and needles chilly burning sensation. Shoulders & neck ache. Arms and hands throbbing. Rt ear throbbing. Headache. Rt jaw throbbing. Muscles randomly twitching in legs. Indigestion so bad I feel nauceous. Took 15ml m.o.m. out of desperation.

Oct 20

6.30 Fell asleep sometime after 1am. I’m so tired.

7.56a I have bad headache. Whole body aches. Nose congested. Eczema spot on belly red andbbothersome. Rt ear throbbing! Bp 129/82 hr 68

9.00 getting ready for church wore me out. My rt jaw throbbing. I feel like I need nap. Tylenol not help headache.

11.00 brain feels weird today – it feels foggy but also unstable like the inner crystals knock out of place. I’m dizzy feeling easily to knock over.

1.30p exhausted. Glad when I get the gerd rx in. Seems like everything I eat caused severe burning indigestion. Lft side sensitive. Blanket twisted under me felt like knife stabbing side. Wish I could figure out the affiliate marketing thing to make money from home.

Pins & needles sensation in back, arms, and legs. More prominent in back. Feels like I’m being electrocuted multiple times.  

10.00p Bp 130/89 hr 73

I’ve had headache all day. Brain felt like it fell off pedestal and was floating in water. Rt ear throbbing most of day. Rt jaw throbbing like toothache. 

Rt hip throbbing with intense sharp pain shooting down rt leg! Toes cold make that freezing. Have heating pad on them now. Legs ache. Muscles randomly twitching in legs. Red eczema spot near belly button hurts.

11.00p legs are cramping been sneezing like crazy trying not to bc sneezing hurts my whole body like the dickens when I do. Congested. Took benadryl seems to be helping

Oct 21

8.30a Bp 136/89 hr 56 

Fell asleep sometime after midnight. Woke with headache and muscles in legs spasming. Whole body aches and stiff. Hard to get moving. Don’t really feel like moving much. Neck & rt shoulder throbbing. Feet cold. Took Tylenol for headache.

9:46a put dinner in crockpot. My hands and arms are throbbing. Head pounding. Lights and noises bothersome. I feel plain aweful. Low back throbbing. Legs & feet ache. I’m wore out and breathing is heavier than usual like I’m out of breath. Now laying down in dark room to rest. Need to get rid of headache. Bp 133/89 hr 65 

10:00a Tylenol not helping. Taking migraine rx.

This is ridiculous. I can’t get anything done down in bed all the time. Gotra find a natural remedy for migraines. Cold pack applied to head.

3.10 bp 153/106 hr 69 bad headache and short of breath when try to do something. Legs throbbing. Can’t think straight. Called Dr to let them know. Explained what’s going on. Asked if I could just take my old Bp rx to get Bp down. She said she’d ask.

https://www.healthline.com/health/high-blood-pressure-low-pulse#causes

4:22- Nurse called to say Dr was going to put me on Lisinopril 20mg. Had to tell them that I couldn’t take it bc it caused bad cough. She’s going to talk to Dr & call again.

4:45p Nurse called asked about Amlopidine. Told Dr at Victory tried that but it caused severe swelling in legs and feet. She asked what other bp rx I’d been on. Told her I knew it was 4 but not remember. Told her I’d call pharmacy to ask.

4:47p called Publix to find out what Bp Rx’s I’d been on prior.

4:53p Nurse called. Said Dr said to come in for BP check and bring machine. Told her I just got off phone with pharmacy. Previous meds were Lisinopril, Amlodipine, Losartan & Propranolol that I’m on for migraines. Said she get this in my file and call in am. 

5:00 Bp 166/109 hr 68 Thinking about it. I never got answer about taking Edarbyclor. This is ridiculous! Need to tell them about lft ventricular hypertrophy.   

7.00p- even the littlest physical effort causes fatigue, general feeling of unwellness, shortness of breath. Currently experiencing chilling burning sensation in center of chest. Legs tingly.

10:28p- I feel horrible. Head pounding, sneezing, neck hurts, hands ache, rt side cramping, low back throbbing, heart feels like its beating hard, short of breath, center of chest aches, arms ache, rt hip aches, legs throbbing, muscles in legs twitching, pins and needles sensation in lower legs to tips of toes as if being electrocuted, wore out tired, skin extra sensitive, lights and noises bothersome, thoughts scattered, can’t seem to think straight

I’m scared. I don’t want to end up in ER again. I need a Dr that will care. Lord, what time I am afraid I will trust in thee, feeling jittery

https://fox28media.com/news/local/doctor-explains-how-a-lightning-strike-can-damage-the-body

Oct 16

3a- woken from nightmare by feeling heart beating in chest. Have pounding headache. Rt hip throbbing with pain shooting down rt leg to knee. Went to bathroom. Decided to take bp rx (edarbyclor 1/2 pill) to see if that’ll help. Feels like bp headache no fun! 

5:40a bp 138/89 still have pounding headache. Still awake wishing I could sleep. Rt hip throbbing with pain shooting down to thigh. Muscles spasming in legs and arms. Burning stinging nerve pain in back and legs. Neck throbbing rt side. Chest aching. Low back throbbing. Lower lft leg tourniquit tighten feeling with some numbness & tingling. Took 1/2 pill bp rx and pain rx. 

Good news I think my stomach has calmed down. Water tastes good and isn’t upsetting it so far. 

Brain singing “Oh I want some sleep wishing it in my head there Id be able to rest this weary body and my tired head then my symptoms might just calm down a piece cares all past hope at last if I’d get some sleep.” Lord, please make it so.

6:30a- think I doze off for 2 minutes then jerked awake thinking I overslept.

7:20 cancelled appointment for today. 🙁 

8:30a- still awake. Unable toget comfortable. Pain in head and nerves still screaming. Decided to steep some chammomile tea to ease muscles. Lights bright even with screen brightness all way down and night owl activated. Seems like I’m hearing all the noises in neighborhood. Turned on box fan for white noise to hopefully drown out all other noises. 

10a head not pounding but still have headache. Chilling burning sensation down spine. Bp 124/93 hr 74

3:53p Bp 125/93 hr 99 trying to get ready for church. Getting dressed wore me out. Laid down for 10 minutes. Legs cramping. Feel flushed. Still have headache. Rt hip hurts. Nerves tingling burning. Random muscle spams in legs.

9:00 Bp 133/88 hr 85 still have bad headache

11:07p- believe I have paperwork ready for hearing tomorrow. I’m so nervous. The idea of having to admit publicly to strangers regarding my physical limitations has been so humiliating. 

All this added stress has exasperated my symtpoms. Its so draining having to try to remember everything it hurts my brain so so much. Time limits how long can you sit, stand, walk is so exhausting. Who takes the time to time how long you can do any of those things for periods of time anyways?

My whole body is throbbing. I’m crying bc I’m stressed out. Muscles randomly twitching thru body. Low back throbbing. Rt hip throbbing. Hands ache. Stomach aches. A. Flow showed up tonite. Neck throbbing. Feet freezing. At least Im no longer nauceous…just need to get bp back down. No matter the outcome God is in contol. 

I need to destress and relax so I can sleep at least a little. Psalm 62:2; Lamentations 3:22-23, I Timothy 1:7

Psalms 18:3 – I will call upon the Lord, who is worthy to be praised: so shall I be saved from mine enemies.

Oct 17

6:00a- woke exhausted and hurting all over – bones, muscles, joints hurt. Have bad headache. Indigestion. 

My hearing is today. I’m nervous but have put it in God’s hands. 

Verse of day:

Psalms 25:14 – The secret of the Lord is with them that fear him; and he will shew them his covenant.

Song popped in mind…

♫Why should I feel discouraged? Why should the shadows come?

Why should my heart feel lonely And long for heavenly home When Jesus is my portion?

My constant friend is He His eye is on the sparrow And I know he watches me

His eye is on the sparrow And I know He’s watching me

I sing because I’m happy I sing because I’m free For His eye, is on the sparrow

And I know He’s watching me♫

Sang that in my head all way to SS office.

8:30a- There’s a long line in front of SS buliding waiting for doors to open. I hope it’s not too long wait my back is throbbing and I need to sit and rest. Parking was free. PTL!  

Had to sign in upstairs. Thankful for elevator bc I wouldn’t have been able to walk all those stairs! Person in front of me was giving officer hard time. He seems very kind. She had audacity in rude tones to tell him he had bad attitude. Whoah! Not using good manners.

He asked me how I was doing. Told him I was nervous. He assured me there was nothing to be nervous about and explained that it would be just me, my atty, judge in room. Nothing to be nervous about. It was calming somewhat. Chairs were very hard to sit in with all the pain was in. I kept fidgeting trying to get somewhat comfortable. 

I was first on docket. Atty called us into separate room to discuss case. His demeanour was very disturbing to me. He came across smug to me. It was upsetting to me. Basically, since my doctor’s did not notate correctly their findings in my file and did not have proper testing done there was not enough evidence to prove my case. Frustrating!!! Lightning strike injuries are so not understood by the medical field. I wish someone would take interest to study it out. 

The atty was talking way over my head. I used to know the lingo, but I’ve managed to forget it all. Why can’t I understand anymore?? I had to keep having him repeat himself. He gave me impression that he felt like my case was a waste of time. Why couldn’t he tell me before now? Why couldn’t suggest routes to take to help my case? The judge was kind enough to give me options before making final decision that would hurt me in long run. I told myself I wasn’t going to cry but I ended up crying the whole time. I really tried to suck it up but couldn’t.

It didn’t turn out the way I was hoping for, but at least it wasn’t a definite denial. 

Now I’m back to searching for Dr that will work with me, believe me, get the proper testing done, and be affordable. This journey is definitely not for the faint of heart! 

11a- back home again. I’m exhausted hurting and have pounding headache. Laid down on bed to rest. 

11:30a- Joe sweet to make me fried egg sandwhich.

11:45a- got up to recline on heating pad in living room hoping it’ll ease back pain. The warmth feels good on my back.

1:00p- can’t keep my eyes open anymore. My head is pounding and I’m exhausted. Going to go take nap.

4:00p- wasn’t planning on sleeping that long. I’m still tired and hurting. If only I could ease the pain for just a while.

6:00p don’t feel like cooking. Decided to go get pizzas. 

11:59p- pain is keeping me awake. Headache has eased but still there. Neck throbbing. Upper back icy stinging pain. Low back throbbing. Legs throbbing with random muscle pain. Left eyelid little droopy. Hands swollen and achy. Indigestion bad. Sipping on chammomile tea. Lower lft leg tourniquit tighten feeling with some numbness. Toes tingly. Arms ache. Rt ear aches.Basically pain from head to toe.

Oct 18

1a Joe wakes long enough to tell me I need to try to get some sleep. The pain so much it’s hard to sleep. Not sure what time I finally nod off.

4:30a pain wakes from a nightmare. Indigestion is still there but not as bad as before I fell asleep.

 4:54a Indigestion burning sensation in esophagus. Chew 4 papaya.

6:50 Bp 123/74 hr 65 wt 195

Random muscle spasms/twitching mostly in legs. Gotta drop Dezirae off at school. She has volleyball tournament today. I sure wish I was able to go, but my body isn’t able to handle all that yet. I’ll be routing her on in my prayers from home. 

11a- since my bp is down and my headache has eased decided to slice celery so I don’t lose it. Slicing celery made chest hurt horrible with beginning stabbing pain. Had to take ibuprofen to ease pain. 

10:27p I have pain from head to toe! Bp 128/77 hr 72 Headache, neck throbbing, shoulders throbbing, back hurts, arms ache, hands swollen and achy, low back & rt hip throbbing, legs ache, feet ache, Indigestion, period pain aweful. Currently sitting on heating pad hoping it’ll ease lower back pain. Keeping close eye on bp this week. Muscles in legs spasming/twitching randomly. Tips of feet Butt are twitching randomly.

Oct 13

7:19a- didn’t hardly sleep last night tossed & turned all night trying to get comfortable. Whole body hurts. Sinuses severly congested. Hard to breath. Face hurts. Rt hip throbbing. Chest pain has eased some. Neck hurts. Had nightmare when I did sleep. 

Don’t want to get up.

2:00p- I’m exhausted and hurting. Taking a nap…or trying at least. 

3:00p- Keep tossing and turning. Hard to sleep when you hurt so much. 

Thyme tea apparently has a lot of benefits.

Haven’t read artilce yet but I did feel better less dizzy when I was drinking it.

5:30p- rt hip throbbing 7/8 can’t sit comfortably or stand comfortably. Took 3 ibuprofen. Apply cold pack on hip. 

Headache 5; Neck 5. Applied pain roller to back of neck 

8:30p- headache now 9/10. Taking migraine rx and going to bed. Indigestion. Taking 4 papaya enzymes.

9:00p- migraine still bad. Applying heating pad to head & ice pack to back of neck. Still in bed. Had kids get them for me. Indigestion burning. Chewing 1 tums.

10:30p- migraine beginning to ease. Pain in rest of body from neck to toes increasing. Now 9/10. Taking cyclobenzaprene (sp?). I know it as Flexiril easier to spell too. Still have indigestion. Taking 4 more papaya enzymes.

11:10p- pain in body feels like I’m being stung all over!!! Taking 2 Ibuprofuen. Hoping the muscle relaxer kicks in soon bc that will knock me out of my misery for little while.

Oct 14

7:00a- woke at 4ish tossing and turning to get comfortable. Fell back asleep. Woke at 7am. Whole body stiffy and achy. Trouble waking still tired. Muscles randomly twitching thru body. 

Went to bathroom and laid back down.

9:00a- brewed cut of hot tea. Sat on chase lounge to sip. Back hurting 5 – low back throbbing, upper back stinging

10:00a- chest starting to throb 6, rt hip throbbing 5. Taking Naproxen. Applying ice pack. 

Neck aching 5 – applying pain roller

11:30- morning PT exercises. Tired afterwards laid down to rest a bit.

12:30p- son prepared lunch. I ate.

1:30p- son put laundry on bed. daughter helped fold laundry and put it away. Wore out.

Back and arms throbbing. Have headache 5. Need to take Tylenol before it gets worse.

2:15p- Whole body aches. Brain hurts and bit foggy. Legs cramping. Hands swollen and achy. Neck hurts. Low back hurts. Tired. Need to lay down a while to rest.

4:00p- chilly, burning sensation in center of back. Trying to help with dinner just made it worse. Resting on heating pad.

6:00p- rt hip throbbing like toothache. Applying cold pack. Have to keep fidgeting trying to get comfortable. Heads starting to hurt.

9:00p- full blown headache. Feet getting cold. Neck hurts rt side. Rt hip throbbing with pain shooting down rt leg. Back & rt side cramping. Hands ache.

10:20p- Head still pounding. Taking Tylenol. Took night meds (Propranolol, Gabapentin, Cyclobenzaprene, magnesium, calcium d3, & turmeric). 

I don’t like the Cyclobenzaprene. It may help ease the muscle spasms and help me sleep, but I feel like it makes the nightmares wores. 

Oct 15

5:30a- woke around 4:30 from bad dream. Have bad headache. Whole body aches. Rt hip hurting. I’m so tired. If only I could fall back to sleep for a while longer.

6:45a- headache turned migraine. Lights bothersome. Nauseous. Taking migraine rx. Applying cold pack to back of head & heat pad to feet. Feet cold. Laying down in dk room for while.

Ears ringing. Stinging needle pain in forearms & calves area. Rt hip throbbing. Butt hurting.

9:00- I’m very tired & sleepy. Headache has eased though to tolerable range. I’m still nauseous. Sipping on herbal tea hoping it’ll help.

10:00- still nauseous. Trying piece of burnt toast. 

11:00a- a storm must be on coming. I so hurt thru my whole body!!! It feels like all my nerve endings are tingling and I’m being poked with needles eveywhere!!!

My Mom came over to help me prepare a little for my hearing on Thursday. I’ve gotten used to living with this daily pain and trying to work thru it. It’s hard trying to focus on it again to explain to judge why and how it has affected my daily life. It hurts my brain to think so much. My headach is bad again. Ugh!

Leaning on heating pad. Taking Tylenol sinus. Drinking water. Closing eyes for while.

12:00p- put tea on stove to brew and forgot about it. Forgot to put timer on to remind me. Thankfully, Dezirae noticed and turned it off. Jakob willingly finished making it for me. 

12:30p- I need a nap. Probably should eat lunch first. 

1:00p- had daughter make pbj sandwhich bc I’m not feeling well and dizzy. Sandwhich not agreeing with me. Still nauceous. Taking ginger to see if that helps. Oh, I’m out. Ugh!

1:23p- called pharmacy. I’m having allergic reaction to rx. Have to call Dr.

Dry heeving. Laying down for now.

1:30- dry heeving has caused center of chest to hurt and icy sensation to begin in center. Whole body aches. Head hurts. Ears ringing. Mom suggested papaya enzymes.

2:40p- chilling tingling sensation in upper body, arms, and head.

3:50a- bad headache still have, arms and hands stinging pain, dizzy, feet freezing w/socks on, legs throbbing, rt hip aches, stomach hurts, nauseous still slightly. Muscle cramping mid section, throat hurts, sleepy

Dr not read file why not? Allergic to sulfa drugs not she see?? Lord, please help!!

4:07p- Dr finally called back. I’m to stay off the hydrothoro… (can’t recall name) & come in for BP check in one week. Asked so I’m not suppose to take any bp rx or do I go back on the other rx. Answer no stay off the Hydrochlorothiazide (it popped up in auto select) and come in for BP check. Do I need to make apt? No just tell them at front desk you’re here for BP check. 

Decided to check bp. It is currently 135/90 hr 64. 

I just got Bp regulated and doing good. Now this!!! Ugh!! 

6:42p- able hold down dinner so far. Still have bad headache. Nerves stinging thru body. Rt hip throbbing. Face feels flushed. 

My nerves are stinging burning in torso. Wish I knew how to explain the screaming nerve pain pulsating thru my body right now. 

11:00p- just as my headache was easing a thunderstorm decided to roll through causing migraine to flare up. Nerves tensed causing burning sensation in body. I’m so exhausted and hurting. Took 2nd Benadryl still slight nauceous. Took 2nd relpax bc migraine came back. Hope to sleep soon. Lightning keeps making me jump. 

Oct 10

6:00a- broken sleep. Tossed and turned all night trying to get comfortable.

Woke to rt hip throbbing and low back hurting. 

8:00a- Jordon made me breakfast in bed. So sweet!

Had to have help changing sheets on bed. Headache worse and I’m exhausted and out of breath. Need to lay down a while. Hands and wrists swollen and throbbing. Rt hip & lower back throbbing. Pain shooting down rt leg. Feet cold. Toes tingly.

1:00p- Jordon’s been helping with laundry. Helped make bed. I’m tired. Rt arm throbbing. Head feels foggy. Neck hurts. Rt hip throbbing. Low back aches.

10:50p- I’m exhausted and hurting all over. Rt hip throbbing, back aches, feet cold & tingly, neck tingling in neck.

Took pm meds.

Oct 11

6:00-woken by rt hip pain. Slight headache. 

6:30- went to bathroom. Decided to read Bible on phone. Tired. Rested.

7:00- alarm went off. Hit snooze for 10 minutes. Decided to do morning exercises. 

9:00a- left for Dr apt. 

Bp 100/67 hr 62 oxygen 98 w 199

Dr very confusing to me today. Not for certain she believes me. Thinks some of my symptoms are not lightning strike related. Not sure what that means. Bp is now too low. Changing my rx up. Uncertain what she’s changing bp rx to. Changing tramadol back to naproxen bc of the inflammation issues. Told her I was okay with that. She seemed surprised. Told her it only relieve part of pain anyways. Nothings taken it all away post strike. Mentioned something about muskoskeletal issues not sure what she’s referring to. 

Asked if I was getting any physical therapy. Told her yes. Asked what exercises. Did best to remember (deep breathing, chin tuck, knee rock, half squat, marker exercise, x to x to help with the vertigo, clamshells, bridge but can only do 2). 

Dr asked about headaches. How often take relpax? Had to take 3 migraine relpax in last couple weeks. Asked how often getting headaches. Told her daily but I try not to take anything unless it gets too bad. She said that’s good. Asked what I take. Told her Tylenol. If it gets severe, then the relpax.    

She ended up requesting cbc and comp blood panel. I suspect she thinks I might have diabetes. I wasn’t ready to have blood drawn. I’m tired of that being their go to. I don’t have diabetes. Ugh! I just had blood drawn 3 or 4 months ago. Everything was fine then. 

12:00p- Joe took me to lunch at Chick fil A. Only tables open were by window. Had to wear sunglasses bc sun too bright. It was hurting eyes. Joe has us move away from window. 

1.30p- home again and I’m hurting and exhausted. Laying down for a bit. Pins and needles sensation in back, neck hurts, slight headache, lemonade gave me indigestion. Took papaya. Need a nap. Buttock hurts. Muscles twitching in legs. My whole body aches right now. Oh!! That reminds me. Vehicle pulled out in front of us on Cody rd! It had just rained and road was slippery. Joe slammed on breaks to try to avoid hitting her. I grabbed handle and froze. I just knew we were going to collide. Breaks kept jumping. We came within inches of hitting her. She drove off like nothing happened. Praising the Lord for His protection!!! I need a nap.

**Note to self…I was chewing gum prior to blood draw today. It helps calm my nerves and/or ease pain. It could effect blood sugar results.

https://www.mayoclinic.org/tests-procedures/complete-blood-count/about/pac-20384919

https://www.webmd.com/a-to-z-guides/comprehensive-metabolic-panel

5:00p-Dezirae helped with dinner. Tried to make biscuits look like pigs for the pigs n blankets. Lol. 

11:30p- really tired. Pain widespread. 

Rt hip throbbing. Headache. Chilly. Hands swollen and achy. Neck hurts. Elbows hurt.

Oct 12

6:50a- I ache all over. Strange dreams. Stuffy nose. I don’t want to move.

Not feeling well. Manage to do morning PT exercises. Rest a while.

11:00a- Dezirae went with me to grocery store to get a few items. Using wheelchair. Got dizzy going around corner. Need to be more careful. Chest starting to hurt just picking up cans of spaghetti sauce off shelf. Ugh! Kind of glad Dr switching me back to naproxen. Tramadol not helping the inflammation issues.

2:00- laying down to rest. Very tired. Need to check notes on what I did for energy. I have none.

3:30p- slept for over hour. Could sleep longer.

7:00p- made myself eat dinner. Not hungry.

8:30p- I’m not feeling too good. Headache. Eyes watery. Hands ache. Lft elbow feels bruised. Feet freezing. Chest burning and throbbing. Rt hip hurting. Nose stuffy. I feel chilled. Joe says forehead is warm. I’m going to bed.

9:30- tossing & turning to get comfortable. I hurt so much. Took pain rx

Hearing Questions: What does your “average day” look like?

Oct 7

5:00a- woke crying from nightmare – dreamt I was struck by lightning amd I felt it!!! Woke to fiery pins and needles sensation all over body especially on left side. Joe comforted me until I fell back to sleep. 

7:00a- I have headache and whole body aches. Hands and arms numb and tingly. Neck throbbing. Toes tingly. Low back aches. Tired. 

5:30p- just folded load of laundry while sitting on bed. I’m exhausted. Arms, hands, back and butt are stinging. Neck hurts. Feet from ankles down stinging. Out of breath. Need to lay down to rest a bit.

10:44p- today has been quite a stressful day and I can feel it so in my whole body!!! I’m hurting quite horribly. Need to destress and find a way to calm my nerves.

Oct 8

2:30a- woken to very sharp stomach pains. Back stinging needle pain. Took me long time to fall back to sleep

7:00a- woke with hands and arms numb and tingly, low back throbbing, lower lft leg tourniquit tighten feeling with some tingliness, toes tingly, rt hip aches, and tired

11:30a- worked on bulletin a little for Sunday = headache. Folded clothes on bed – arms ache, back pins and needles, very tired. Need to rest a bit.

12:21p- laid down for 45 minutes. Still have headache, sinuses congested, hands throbbing, low back hurts, feet cold, and I’m shivering. 

Sitting in chase lounge in LR under blanket to warm up. Took cat nap for 15 minutes.

1:30- attempting to balance checkbook – after several minutes brain gets cloudy causing vision blurry. Muscles in back stinging. Hands swollen and throbbing. Have to take breaks to complete bc it’s giving me headache.

Decide what to make for dinner. Been horrible at meal planning lately. Tell Dezirae she’s going to help me with dinner. 

Errors in writing something twice and forgetting to write things in checkbook. Ugh! Takes me almost two hours to balance checkbook.

3:40p- nerves in arms, hands, legs, feet stinging. Took pain rx. Laying down a while til it kicks in.

4:45p- called atty to discuss hearing. Answered his questions from last phone call that I couldnt answer. Asked if he dealt with brain injury patients before. He asked more questions. I answered to what I thought I understood. Wanted to know why I have nerve pain answered I don’t know. Apparently that’s the wrong answer. Joe was able to be there for last part of call. He asked couple questions. I don’t remember them though. 

Prayers please. Apparently I’m going to need a miraculous intervention to get approved at my disability hearing. If I’m understanding correctly, the doctors at victory did not document everything in my records. Nor did they do proper testing required to prove my disability even though at a friend’s suggestion I requested them (nerve conduction study, etc.). I’m even having trouble understanding questions to answer correctly. The added stress is magnifying my symptoms to which I have trouble explaining why. I am not suppose to answer “I don’t know.”

My faith is certainly being tested and I can only lean on Him because I can no way fix this. 

The fact of having to admit publically that I need help has been really hard for me. It’s been hard enough admitting it to my family and friends. I just want to cry!!! Wait, I already am. 

All of this has caused my pins and needles sensation to magnify all over my body. I end up laying down on chase lounge next to Joe bc I need comforting. I desire as a little child to be told my booboos will be all better soon and everything is going to be okay. 

5:15p- Dezirae is graciously fixing dinner. Taco mac and corn casserole. I partially supervise as I need to sit periodically to ease back pain.  

6:00p- Joe suggests I sit next to him. Jakob rented a movie. We eat dinner a lot in the livingroom because though I like our kitchen table it is very difficult for me to sit on wooden benches for long. I’m not able to sit in same position for long periods of time so I keep fidgeting.

8:00p- I’m so exhausted from pain today that I decide to go to bed early. 

8:05p- I decide to do my night PT exercises to see if it’ll help ease some of pain. 

8:30p- fat chance of pain easing soon. 

8:47p- decide to reach out to couple friends and ask for prayers about upcoming hearing. I’m distraught over it and will be glad when it’s over.

10:57p- still wide awake and hurting from head to toe. Took pain rx amd melatonin. Hopefully, I’ll sleep soon.

11:28p- still awake. 

2 Timothy 1:7 – For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.

Philippians 4:6 – Be careful for nothing; but in every thing by prayer and supplication with thanksgiving let your requests be made known unto God.

Luke 1:37 – For with God nothing shall be impossible.

Lamentations 3:22-23 – It is of the Lord’s mercies that we are not consumed, because his compassions fail not.  They are new every morning: great is thy faithfulness.

Oct 9

Fell asleep sometime after midnight. Woke around 4am. Whole body aches. Headache. Took long time to fall asleep. Woke again at 7:00. Hit snooze. Woke at 7:30.

Read few verses on bible app. Got up and used restroom. Sat back on bed. Took morning meds. Got up to get dressed. Told son it was time to get up. Feeling tired so sat on bed to rest. Remembered I needed to do morning exercises. Did morning pt exercises. Tired sat on bed to rest few minutes. Got up to pick hair.

3:00- went grocery shopping with kids. They did shopping. I rode around in wheelchair. Got eyeglasses adjusted. I’m exhausted and out of breath. Slight Headache. Hands swollen, tingly, and throbbing. Low back aches. Legs & feet hurt. Muscles randomly twitching thru body. Back aches. Muscles in arms to elbow burning. Need a nap. 

6:30- Joe & Jordon cooked dinner tonight. Food tasted delicious even though tongue is hurting most of day. Spots on tongue irritated and painful. Head hurts. Pins and needles sensation thru body making me quite tired.

8:00p- took Epsom Salt bath. It’s quite a chore to bathe. Washing hair causes muscles to cramp in arms. Have to take breaks. Washing body hurts arms too. When done, it wears me out and causes shortness of breath. 

Rt hip is throbbing like toothache. Left elbow feels like piece glass stuck in it! Have headache. I’m exhausted. Going to bed am I.

Oct 4

6:30a- woke to lft arm & hand tingling, much pain in back, & rt ear hurting. 

7:40a- back pain increaseth, neck & shoulder muscles tight causing pain, hands tingly (lft more than rt), muscles randomly spasming in back, butt aches, feet hurt, legs ache, lower lft leg and foot tingly, rt hip hurts

Deep breathing while listening to wholetones music transformation 528.

 11:00a- icy burning sensation in my back, neck muscles very tight and hurting, headache, toes tingling, eyes blurry

12:20p- went to bank & store. Legs throbbing, wore out, nerves pulsating thru body, whole body aches, headache. Icy burning sensation still in back. It hurt my legs to push gas pedal. Low back throbbing. Out of breath.

https://www.healthline.com/health/dysesthesia

2:50

https://howtogeton.wordpress.com/2017/09/19/how-to-answer-the-question-why-cant-you-work/

3:00 whole body hurts. Headache worsening. Taking pain rx. Laying down with eyes covered.

4:00p- pain still there. Hard to lay still. Eyes covered with pillow. Taking migraine rx.

5:00p- pain still there. Not diminished. Migraine still there. Lights bothersome. Rt ear throbbing.

7:00p- Joe & Jordon cooked dinner tonight. Thankful bc I wasn’t up to it. Hurting muchly.

9:00p- chest really hurting. Putting ice on my chest. Headache still there. 

10:59 

http://www.michaeltyrrell.com/life-love-lullabies

These are suppose to help you go to sleep. Playing through samples now. Sound pretty, but with my massive headache not sure if they’re helping. 

Ouch! Sharp pain in elbow. Chest center throbbing. Both feet tingly and hurting. Lower lft leg tourniquit tighten feeling. Low back throbbing. Hands swollen and achy. Joints hurt throughout. Neck hurts.

Oct 5

7:00a- had trouble waking. Had nightmare last night. Apparently it was bad enough that I screamed in my sleep…thought I dreamed it. Joe said he asked if I ok. When I didn’t answer, he hugged me and I told him I had a nightmare. Woke hurting all over as if I’d been in a fight. Muscles very tight. Joe sweet and rubbed my back for a bit. It’s like my muscles are in tension mode and won’t let go. 

Have a funeral to attend today – Sullivan. Hopefully the pain rx will take edge off enough to endure.

1:30p- didn’t think there would be bunch of people at funeral. Started getting anxious. Went and found seat away from crowds. Always leary of being bumped in a crowd and not being able to keep balance and falling. Service went well. Family glad we were there to represent the church. Family thanked us for putting life back into the church.

Back and legs started throbbing. Legs started feeling like lead balloons and throbbing. Low back throbbing. Headache ensued…so many voices. It was hard to focus on person talking in front of me. 

Laying down resting now. Just that little bit wore me out. Nerves tingling thru body. Rt hip aches. Hands swollen and achy. Lft hand tingly. Low back aches. Ringing in lft ear. 

3:30p- ended up sleeping for two hours. Could’ve slept more. 

11:00p- feet freezing. Feel icy to touch. Lower lft leg tourniquit tighten feeling with some numbness. Tingly in lower left leg and all 10 toes. Hands ache. Brain foggy. Rt ear aches. Neck itches and aches.  

Oct 6

12:10a- nerves stinging in neck, back, arms, & hands. Sharp dull pain in rt back as if I’ve been punched. Feet freezing. Toes tingling. Lft hand tingly. Headache. Thirsty. Muscles randomly twitching thru body. Rt hip throbbing. Trouble falling asleep. Taking muscle relaxer.

6:00a- think I finally fell asleep sometime after 1:30a. Both arms and hands numb and tingly. Whole body aches. Headache. Neck hurts. I don’t want to get up.

9:30a- head pounding, rt ear & jaw throbbing, head swirling making balance more unstable, rt hip throbbing, hands and fingers pins and needles, headache

11:30a- headache, brain feels foggy, eyes hurting, trouble focusing, dizzy, eyes feel heavy, exhausted, pins and needlez in hands, rt hip aches, pins and needles in feet, lower lft leg tourniquit tighten feeling with some numbness, neck throbbing

5:30p- brain hurts. Fogg is great. Headache strong. Know I have things that need to be done but I have no clue what they should be. 

9:57p- 82° outside and I I’m freezing like a popsicle!!! I’m shiverring under covers. Hands like icy. Feet & ankles like ice. PJ pants on, socks, and two tops one long sleeved and I’m under a sheet, a blanket, and a comforter. Rt hip throbbing. Head pounding – headache most of day. Lights bothersome. Screen resolution down all way and it’s still too bright. Eyes hurt. Rt side cramping. Neck hurts. Ears periodic ringing. Took pain rx, migraine, & muscle relaxer. Calves cramping.