Category: My Healing Journey

Feb 13

0630 rough night…not much sleep. Headache. Whole body aches. Tired.

0720 read Isaiah 23-28

Isaiah 26:3-4 – Thou wilt keep him in perfect peace,  whose mind is stayed on thee:  because he trusteth in thee.   Trust ye in the Lord for ever: for in the Lord Jehovah is everlasting strength: 

0800a ugh! I finally remembered to show Joe the backwards c on my neck lft side. He asked if it itched. No. Periodically I have sharp stabbing pain in neck. Joe suggested I put iodine on it and bandaid. Thought it was stinging a little when I applied but thought nothing of it. I had allergic reaction to bandaid and c looks no different. Nice.

1230 putting dinner in crockpot. Using new recipe. Beef and potatos au gratin.

0100 lower back is throbbing almost to tears. Need to rest a while.

200 How a Sibling struck by lightning became a source of inspiration

https://m.youtube.com/watch?v=Pa4PyxYxbZ4

0315 Jordon wants to stop at store on way to church. Works for me. I need a t-shirt. Making Joe’s present for Valentine’s if I don’t flub it up. Lord, I want it to be special for him.

0330 friend called to check on me to see how I was doing. She has health issues herself…actually dealing with cancer. Lord, please lay Your healing hand on her. Makes me feel loved when a friend calls to check on me. I know I need to do better but that’s partly why I try to check in on so many bc I know how it makes me feel though at times I really don’t know what to say about how I’m doing.

0400 purchased item and walked away. Got to door greeter and realized I forgot my purchase. Sweet door greeter heard me ask Rae to go retrieve it for me. She kindly asked why I’m always forgetting something. Had to blessed opportunity to share that I was struck by lightning 2 yrs ago. She replied, “Bless your soul. God has something special in store for you.” I thanked her and agreed that He certainly does.

Walking out to car told Rae that I must have made an impression on her for her to remember me but I didn’t think I forgot that much. Lol.

0430 stomach hurts not nauceous but just hurts.

0629 I’m plumb wore out.

1130 headache. Low back throbbing. Stinging needle pain in shoulders and upper back. Feet hurt with tingling sensation. Hands ache. Center of chest hurts. Wore out feeling. Prickly needle pain in legs.

Why is the phrase pins and needles? Aren’t they the same?

https://www.urmc.rochester.edu/encyclopedia/content.aspx?ContentTypeID=1&ContentID=58

 

Feb 14

0700 whole body hurts. Tingling in upper back, hands, arms, and feet. Middle back throbbing. Headache slightly. Congested. Very tired. Hard to keep eyes open.

0715 read Romans 9 & 10

Thankful for my Father’s everlasting love.

0750 Tingling chilly semsation in center back that feels almost like frost bite kind of burning. Feet and hands hurt. Just want to sleep it off.

0830 eating breakfast. Stomach hurting something aweful.

0850 Mom, Kids & I going to church to spruce up mission house for guests abd and paint bookshelf in office.

0100 had to pace myself. Arms fatigue quickly. Back throbbs. Have to work then rest a while before continuing. Decided to start small projects back up around church with help of course to keep moving forward. I know I will hurt afterwards but the feeling of getting things accomplished is good.

0530 going on a dinner date with my hubby. I love spending time with him. I miss working with him 24/7.

My stomach is hurting. Took 2 ginger capsules before leaving.

0600 back muscles are stinging. It’s hard not to focus on it. Can’t handle pain anymore. Taking pain pill.

0645 I asked for frozen yogurt instead of chocolates. Joe made it happen on way home. He’s so sweet.

0745 need heating pad

1000 pain rx not helping. I believe the little I’ve done today was too much. Frustrating but I won’t know my limitations unless I try.

Center of chest throbbing. Short breaths. Back is stinging. Arms and hands hurt and sore. Feel bloated. Tired. Feel beat up. Hurts to move. Indigestion. Rt hip throbbing with pain shooting down rt leg. Headache. Lower lft leg tourniquit tighten feeling with some tingling.

Feb 11

0620a I am definitely not a morning person.

Read Psalm 12-14 The Lord truly is!my strength and my song.

Some people would like to scare you into thinking that you need to take vaccinations against the flu or pneumonia to combat the viruses being spread (ie. Corona virus). Truth be told you don’t need to fear. There’s a simple remedy to boost your natural immune response. God has created wonderful masterpieces to heal themselves if given the proper rest and nutrients.

http://orthomolecular.org/resources/omns/v16n06.shtml

0700 interesting that neuropathy means sick nerves.

http://www.doctoryourself.com/neuropathy.html

B vitamins, specifically B-1, B-6, & B-12, Vitamin E and niacin are crucial to nerve health.

I think I’m going to have fun snooping around on this website. The information is backing up my perceived theories to help me.

Currently taking 1 TBS of Diatomaceous Earth. I’ve taken it daily for a week now. Notice that my hip pain has decreased.

0730 Don’t understand it but lately if I take my morning meds before I eat breakfast it makes me nauceous. Ugh!

On positive note, I’ve been swishing with the Dr Tinchers Peppermint mouthwash at least once a day and my tongue is almost back to normal!!!

0745 meeting friend at church to go over book working to try to figure things out and do some filing.

1200 going to do some grocery shopping on way home. Produce at lil Brian’s and groceries at Walmart. Jordon’s helping me.

0500 thankfully Dezirae is making dinner tonight. I like her sautéed green beans.

0830 Rae suggested Epsom salt bath. I told her that would be nice but at this point I’d probably drown bc Id fall asleep in tub. lol

0915p crashed about 630ish for 20 minutes or so. Couldn’t push myself anymore.

Only able to do two things today. They wiped me out. Thinking gave me bad headache, blurry vision, & dizziness. Grocery shopping caused fatigue in muscles, muscle cramping in legs & arms, hands swollen and throbbing, whole body hurts. Center of chest hurting. Pain level 9. It’s hard for me to get up and down. Going to bed early.

1045 pain is keeping me awake. Body hurts like I just did hard core workout or something. I hurt from head to toe. Ringing in lft ear. Don’t want to take muscle relaxer if I can help it. Those pills cause aweful horrid nightmares.

Think I’ll pray  a while and count my blessings  instead of sheep

 

Feb 12

0600 every ounce of me hurts. It.hurts to move. Think I’ll take a little while to get up.

1000 couple moms talking about feeling depressed in winter. I so wanted to say there’s a natural remedy for that…meditate on Scripture and Vitamins…but my brain went blank and couldn’t remember info.

Include more raw foods in your diet, multivitamin, B12 2mg, & Niacin 300mg daily.

http://www.doctoryourself.com/depreviews.html

1030 my helper in sign came to share story with me. She’s so intrigued with sign now that she wants to get more involved with deaf community. Her husband and son went door knocking week ago Saturday. They met a lady that works in public school system (Causey) that tries to sign to the deaf students to help them understand what’s going on better. Long story short the two met up and are excited that God directed their steps to meet up.

130p coop so wears me out but it’s one of the highlights of our kids week.

0330 decided to put some clothes away in my room. Low back throbbing, chest hurting, and arms fatigued. Laid down on bed to rest a minute and fell asleep for 30 minutes.

0445 called friend to check on her. Miss having friends to talk with at coop.

0745 center of chest is throbbing like I pulled a muscle. Pain level 8. Lethargic. Feels like storms coming. Wind strong.

0800 question asked in LS support group about having trouble with feet burning? Several chimed in on what they deal with or not. I responded as follows:

My feet hurt horribly with partial numbness, tingling, burning pins and needles depending on how much I do or how long I’m on my feet but not just in my feet. It varies and can be in hands, arms, & legs too.

I’ve tried Gabapentin. It helped ease the pain, but the dizziness side effect just added to the vertigo I already deal with and couldn’t handle it.

For me, I’ve found taking the following vitamins help: B complex, B12, multivitamin, magnesium daily helps for me.

Recently came across following website that is full of information…

http://www.doctoryourself.com/neuropathy.html

1039 dandruff is flaring up

http://www.seborrheic-dermatitis-cure.com

Feb 9

06.34 woke with migrane. Lights bothersome. Had nightmare.

Bp 133/88 hr 64. Bp is slightly up.  Feet freezing. Low back hurts. Rt hip aches.

1100a stomach not feeling so good.

Kids came and gave me hugs during hand shaking. Made me feel encouraged.

1130a feeling very sleepy all sudden. Had to take migraine pill to ease headache. Don’t like having to take them.

Worked hard on preparing bulletin and signup sheet. Joe decided to change it up to chili cook off. Ugh! Now gotta change it again.

Forehead hurts where I dropped the dehydrator on my head. It’s bruised. Thankfully it’s not visible.

Enjoyed SS this morning though I was a bit slow. Love when people interact that’s where faith grows.

Still need peace about specific Bible Study to start with ladies. Love coming to church even when I’m down bc it gives me the encouragement to keep pressing for the mark.

My body may bare invisible injuries and chronic pain but my faith gives me the hope I need to keep moving forward.

1.30 feel like I’m about to pass out. Going to lay down a piece to rezt.

0330 odd noise woke me from bad dream. Feel kind of dazed. Whole body aches. Woke to arms and hands numb and stinging tingly

0400 finally feel awake enough to do some things at church (work on archiving 2018 files. Need another box for 2019. Need to find my church keys.)

0600 stinging needle pain in upper back.

https://drsoph.com/blog/6-ways-to-switch-off-the-fight-or-flight-response

1150p decided around 0900p to try to start taking s&s nails off it’s been seven weeks. I’m tired of same nail color. Thought soaking nails with acetone cotton balls and aluminum foil would make it come off easily. Not for me. Had to ask Rae to help me. Took at least two hour to get seven off. I’m tired and want to go to bed.

Frustrated decide to wash few dishes in sink. Forgot how much pain that inflicts on my back and shoulders. Ugh!

 

Feb 10

1230a I am in so much pain!!! Feel like I’m being big baby. Like to tell myself to suck it up and get over it but it’s not that easy. Took pm meds, naproxen, and quarter pill muscle relaxer. Hope pain eases soon so I can get to sleep.

Headache. Congested. Face hurts. Ears itch. Tongue bumpy white patches. Neck hurts. Shoulders and back burning, throbbing pain. Rt hip throbbing. Calves cramping. Toes numish and tingly. Fingers tingly. Sleepy. Center chest hurts.

https://draxe.com/nutrition/9-signs-magnesium-deficiency/

0800 read Joshua 21-24. If we cleave to the Lord and strive to do His commands, He will fight our giants for us. We must be very courageous.

0900 have list of things I want/need to get done. Input grades, finish posting revival info, newsletter, call cpa, make meal list for week.

1000a almost forgot to put dinner in crockpot -Potato Corn Chowder.

1230p decided to work on starting to input grades. Hard to believe 3rd quarter half over already. Took me most of morning to get Rae’s grades written down. Hard to stay focused even with goals for day written down.

Focusing on things of this sort hurt my brain. It not only wears me out mentally and physically, but also makes me dizzy and gives me headache more than normal. I have headache most days but have learned certain vitamins help minimize and make headache tollerable.

0130 didn’t realize the time. Tell kids to eat lunch. I’m not hungry. Mostly thirsty.

0230 talking with mom while waiting for clothes to wash. She told me about some videos she’s been watching and how certain vitamins can cure alot of diseases but the pharma companies don’t want us little people to know about it. Doctoryourself.com is good website with lots of info on natural healing.

0700 all of a sudden feel grouchy. Wore out.

0724 showers still wear me out and make me short of breath. Ugh! Now have bad headache. Brain hurts too.

0800 need to relax a bit my low back is throbbing.

1043 low back throbbing. Rt hip aches. Hands swollen and achy. Legs below knees ache. Lower lft leg tourniquit tighten feeling with some numbness and tingling. Feet tingling. Upper back and shoulders ache and tingly. Bruise on lft forehead itches. Rt groin area hurts like I pulled a muscle. Center chest aches

https://www.brainline.org/tbi-basics/interactive-brain

Feb 7

1240 finally starting to get sleepy. In Jesus’ Name We Press On repeating in head. Whole body aches aches. Periodic sharp stabbing pain in rt side head or lft side neck. Hands swollen and achy. Lft elbow itches. Tongue has raised lessions again. Headache. Low back and rt hip throbbing. Leg lower lft tourniquit tighten feeling with some numbness. Took benadryl for itchy. Cheeks feel flushed.

0600 too early. Must get up to take Jordon to work. Joe & Rae hunting this morning. Praying they get something. I have such a headache! Lights bothersome.

0711 They got something! Praise the Lord for meat for freezer.

I’m slowly working on packing up Jakob’s stuff he left behind so it’s not in Jordon’s way. Have to push myself in moderation bc I’d rather just go back to bed. Things get done at much slower pace these days not because I don’t want to do it but bc my body hurts and wears down much more quickly. Learning to set small goals. And I definitely have to remind myself not to compare myself to other moms bc that’s a downward slope I don’t want to slip on and definitely not wise (2 Corinthians 10:12).

0800 found mold in boys window. Ugh! Surprised I’m not sick. Spraying it with tea tree & water. Allow to sit few minutes then wipe off. Ended up accidentally knocking blinds down then sat on floor cleaning blinds. Back was hurting anyways.

0900 I’m plumb exhausted and hurting. Time to rest a while and apply heating pad to lower back.

0430 Fell asleep in livingroom for hour or so. Still have bad headache. I think its possible migraine. Felt Joe checking my forehead couple times to see if I was okay.

1050 whole body aches. Bad headache won’t go away. Made same dent in boys room but not get much else done.

Low back and rt hip throbbing. Calves burning. Sharp pins and needles pain in shoukders. Skin itchy. Center of chest hurts. Exhausted. Night rx taken plus migraine rx & muscle relaxer.

 

Feb 8

0800 woke with headache. Center chest rt side hurts.

0121p still struggling with walking much curious if cycling would be a possibility? Need to try to loose weight. My limited mobility is affecting me greatly.

https://www.livestrong.com/article/387574-which-is-better-exercise-walking-or-biking/

0400 helping Joe prepare dinner and cutting veggies for the chicken soup. Have two stalks left. Think I’ll prep them for dehydration later tonight. No room on counters right now.

Ouch! I tried to get dehydrator off top of fridge without asking for help and dropped it on my head. Now my head hurts!!!

0600 face started flushing during dinner. Cheeks got to feeling hot like on fire and they look sunburnt. Don’t know cause…just remember it started after LS.

1150p I have such a headache. Oh, bother! I almost forgot about turning dehydrator on for the celery. Must get up and go turn it on.

Headache. Face hurts. Ears ring periodically thru day. Low back and rt hip throbbing. Lower lft leg & ankle tourniquit tighten feeling with some numbness. Feet cold, achy, and tingly. Center of chest hurts. Arms ache. Hands swollen and achy. Whole body feels swollen. Shoulders burning aching. Eyes sensitive to lights & periodically watery thru day. Tired. Short breath.

 

 

Feb 4

9:30 woke up late. Apparently I needed the sleep. Crazy dreams (bit by tick & got lyme.

https://blog.radiantlifecatalog.com/the-5-supplements-that-healed-my-acne?utm_source=hs_email&utm_medium=email&utm_content=77922038&_hsenc=p2ANqtz–UXwjzEzSgTQuuJqVym3zk_FeTJm8tplvQYnNdt9GS4KyrhJiIiIhmQuHegf3tf6c-LsTibtkIhutGx-FgBlT3Kdv2sQ&_hsmi=77922038

Today went smoother than yday though I had trouble staying focused on one task. Brain seems to think I’m so far behind in all my tasks that I need to make up for lost time (2.5 yrs). I know it’s not possible…I’d hurt myself. Still learning where my balance is between doing enough and too much without overdoing it.

Rt hip throbbing. Low back aches. Headache. Tired but wired.

Feb 5

0700 woke tired. Hands tingly.

Bdnf deficiency?

https://pubmed.ncbi.nlm.nih.gov/32222968/#:~:text=Deficiency%20of%20activity%2Dinduced%20expression,differently%20across%20ages%20remains%20unclear.

 

0616 vision blurry and some dizzy. Cheeks burning feeling. Feel flushed. Upper back & middle of shoulder blades burning. Stressed over getting info ready for cpa. Thankful we have someone certified to do it. I’ve forgotten how

 

Dizzy. Tired. Whole body aches. Thunderstorm caused anxiety to flare but I think I managed okay. Center of chest costo hurting. Shoulders & in between shoulder blades burning. Hands swollen and achy. Rt hip throbbing – chose to walk behind grocery cart in grocery store for few items. Headache. Skin itchy.

Attempted to brain my own hair for first time. Got it done. Bit messy but doesn’t look too bad. My arms and hands are burning & cramping something aweful. Mixed emotions…I want to cry  bc it hurts so bad and it lets me know that I’m not there yet, but it make me proud  of my progress and glad that I have a daughter who knows how when I want it done next. (Pst I had to google proud emoji. Most of them make no sense to me. Lol).

Current P.T. goal is to work up to 2 reps of 5 each exercise (Chin tuck? Knee rock, Half squat to chair, Clamshells, Bridges, Marker, X to X, Hand to knee push, Rows w/ theraband, & Cat/camel). Feels like a heavy duty cardio workout to me. I’m exhausted, aching, & out of breath by session end but I’m making progress.

Friend shared video of her children singing in church this past Sunday. They were singing “Press On”. I enjoyed listening to uplifting message. I sure can use it from time to time.

It really gets hard to press on towards the mark when you feel all alone in a battle that not many understand nor do I know how to express it in words. How do I help others when or put into words what I’m going through? I just know without the help of my Almighty Father who is with me each step of the way and the loving support of my family I couldn’t have progressed as I have. I lean on the everlasting arms of Jesus. I meditate on His Word. Listen to uplifting, soothing music. I pray a lot. I’m thankful and humbled that God would use me to be a vessel for His glory. I pray that my story will help others to press on and maybe someday the medical field will be interested enough to study this phenomenon out to help others who are experiencing the struggle of surviving being struck by lightning.

 

“Press On” Lyrics by Selah

 

• When the valley is deep
• When the mountain is steep
• When the body is weary
• When we stumble and fall

 

• When the choices are hard
• When we’re battered and scarred
• When we’ve spent our resources
• When we’ve given our all

 

• In Jesus’ name, we press on
• In Jesus’ name, we press on
• Dear Lord, with the prize
• Clear before our eyes
• We find the strength to press on

 

• In Jesus’ name, we press on
• In Jesus’ name, we press on
• Dear Lord, with the prize
• Clear before our eyes
• We find the strength to press on
• To press on

 

1100 still wide awake

 

Feb 6

0700 rough night. Awake every couple hours. Whole body aches. Hands and arms numb and tingly. Lower legs and feet tingly. Strange dreams. Low back throbbing. Rt hip throbbing. Headache not easing up. Ears ringing periodically. Legs & ankles burning. Stomach aches. Tired.

1230 just finished gathering items for CPA. Just need two more items. Brain tired and foggy. Vision blurry. Neck hurts. Its thunderstorming now. Away from electronics for a while. Body tensing. Need a break.

0400 letting Jordon drive for practice. Heading to pickup rx before heading to church. Forgot it’s begin of go home traffic. Too stressed to handle it. Jordon doing good job but explained I can’t handle it right now. Took over after pick up rx.

0630 Mom talked about her Chiropractic apt today. Dr did a cranial adjustment. Asked if she could tell difference. She said she felt more clarity.

https://www.lifesystemschiropractic.com/services/cranial-adjustment-therapy/

https://www.back2health4you.com/cranial-therapy/

0725 brain too fogged and blurry to focus on piano. Flubbed horribly but managed to push through song while yelling in my head help Lord I just want to run and hide.

0730 feeling flushed. Cheeks burning. Headache. Rt hip throbbing. Vision blurred. Neck hurts.

1100 lft elbow itches like crazy

Feb 1

0130 woke in a sweat. I’m so hot! Had to change clothes but struggled keeping balance

0800 read Romans 5&6 on my Bible app. While it is good that I have learned to adapt by reading my Bible on the app on my phone. Took me long while to figure out why I could do that but struggled reading in a Book I could hold. Due to my eyes skipping from TBI it made difficult to focus let alone keep eyes on same page. Too much reading causes blurry vision and dizziness even today. Praise God I can read little longer now. I sure do miss holding my actual Bible and being able to read it. Goal to start being able to read hand held Bible for few minutes at a time.

1150p wonder if there’s correlation between overtaxing brain and back pain. Only been able to stand maybe five minutes at a time before excruciating pain in back too much. Been sitting on heating pad off and on all day.

Entire back throbbing!!! Headache. Periodic ringing in ears. Hands swollen, achy, & tingly. Skin itchy. Legs ache. Feet freezing. Abdominal pain. Grouchy. Easily frustrated. Blurred vision. Dizzy. Unstable feeling. Lethargic. Left palm itches. Lft inner ear itches. Center of chest hurting.

 

Feb 2

0600 read Gen 12-15

0630 need to get up to print bulletin. My back is throbbing! It hurts to move.

Putting lunch together in crockpot. Can’t find recipe and can’t remember how to assemble it. Ugh!

0645 printer keeps wanting to jam. Frustrated. Rt hip paining me something aweful! Headache.

0700 oh bother! I just remembered that I still needed to download and print SS lesson for adult class. I’m running out of time. Brain blurring. Leave me alone devil. I’m resisting so flee.

0835 on way to church. Light flashing in between trees are bothering my eyes today…too bright or something.

0900 forgot to pack my music paper. Wrote offertories on it now gotta try to remember them…something about consecration?

Don’t have that book at church? Thought for sure I did. Asked Jordon to go check SS bldg. Asked Rae to help finish getting lunch in crockpots.

0905 Jordon found similar book. Yay! Now to see if something clicks. Finally locate song picked…Zion’s Hill. Brain more blurry & dizzy. I need a rest.

0915 sat down at desk and remembered I need to put SS lesson together. Lord, help me get through this bc my brain is overloaded. Some of papers didn’t copy right. Need to copy back sides. Need to copy whole book and give to teacher to do.

1230 Joe asked me what was matter. Took me a bit to spit it out…I’m so overwhelmed and confused. Not remembering things correctly and it’s upsetting me. Feel like I’m losing grip on hold I did have. Too much stress. Not enough rest time. Don’t need to take on too many monkeys.

My abilities are severely challenged at the moment. Need to rest more. I’m exhausted going to take a nap. Brain swimming.

0350 had alarm set for 3p but I was so tired needed more rest. Laying flat on stomach seems to ease my hip pain some. Suddenly woken by loud chainsaw noise and thump of tree limb hitting ground. Scared me. Hands swollen and painful numb and firey tingling.

0500 worked on writing scripture journaling devotional for blog. This month’s challenging one for me…Peace.

0600 good services and sweet spirit amongst people. Rt hip starting to throb again. Wish I could figure out trigger and learn to adapt better.

1145 rt hip throbbing. Low back throbbing. Lower lft leg tourniquit tighten feeling. Rt ankle throbbing with some numbness. Toes tingly. Hands swollen, achy with lft hand tingly. Upper back aches with some burning sensation. Brain cloudy.

 

Feb 3

0745 had rough night. Yrobule getting this morning. Need more sleep. Woke with lftcarm and hand numb and tingly. Center of chest hurts.

1000 started putting dinner in crockpot.

1030 Joe asked to run errand for him when I go to bank. Decide to take soup to couple widows in church.

0500 stop at store to get milk. Chicken on sale $2.90/10lb. Got 2.

0600 burnt the soup!  Joe came to my rescue and cooked chicken in air fryer with mashed potatoes and mixed veggie.

0730 I’m plumb exhausted. Feel crash oncoming. Short of breath and feeling weak. Muscle in body burning. Brain tired and foggy.

0930 apparently I fell asleep in livingroom. Joe woke me up to go to bed. My whole body hurts. Realize I forgot to take morning meds. Probably one reason I conked out early. Lethargic. Hurting from head to toe. Stinging needle pain thru body. Just want to cry.

Skin itchy. Upper back stings. Calves burning. Thirsty. Abdomen crampibg. Headache. Hands swollen and achy.

Jan 30

1230a heard strange noise out back of house. Sounded like someone shooting an air pistol. Woke Joe & told him. It happened again. Joe goes to check things out. Didn’t see anything nor hear noise again.

0200 Joe woke me bc I was keeping him awake. Ugh! Awake most rest of night.

0600 finally fell asleep

0700 alarm went off. Don’t want to get up…need sleep.

0800 decide to get up. Whole body hurts. Low back throbbing. Muscles in body very tight.

0154 finally sitting down for lunch break. My entire back stinging needle pain. Brain fogged. Vision blurring on edges.

0715p difficult to focus & see music notes. Look up and away from piano and see two of Joe! Woah! Not good. Need brain rest.

0720 upper back & shoulders throbbing. Short of breath. Actually getting warm.

Worried about my mom. She has migraine like headache. Gave her list of things that help me. Think she may be having allergy reaction to flouride. Praying for healing. Debilitating pain no fun.

Headache, sinus congestion, eyes hurt and sensitive to lights. Loud noise cause my jump. Tongue feels swollen and is lumpy. Sensitive to things touching my skin. Skin itchy all over…getting worse as I’m attempting to relax before sleep. Hands swollen and achy. Upper arms ache & crampy. I’m exhausted and sleepy. Bloody nose slightly. Stinging needle pain in back. Feet cold. Legs ache. Muscles randomly twitching thru body.

1000 I’m plumb exhausted.

JAN 31

0800 entire back in much pain hard to move. Bad dreams. Rt hip hurts. Hands swollen and achy. Feet little stingy. Hands and lft arm numbish upon waking. Hands, legs, back, and toes stinging needle pain.

0830 attempt to work a wordsearch puzzle. Able to find about five words before vision starts blurring. Now have headache.

0900 decide to fold load of clothes. Arms hurt. Hands ache and tingly. Back throbbing. Laying on back to help ease pain. Tired.

1100 bp at pt 112/78. Tis good. Pt apt review exercises to make sure I’m doing them correctly. Checked vestibular with exercises that would make me dizzy. Walk with head to side then turn head to opposite side. Walk forward with bars doing same. Walk backwards. Side in between bars holding try to stand heal to toe while alternating feet…then add turning head side to side. Had difficulty following instructions. Also eyes didn’t want to follow with head – eyes kept wanting to stay forward. Too too dizzy eyes very blurry on edges. Instructed to rest a while til dizziness subsides but don’t close eyes. My brain was telling me it had enough and just go to sleep. It was hard keeping eyes open. Tried fixating on one thing but eyes didn’t want to cooperate. Told that keeping eyes open while dizzy will help the brain to learn to readjust – which in time will help me somewhat overcome the tbi.

0130 think pt was a little intense today. I’m plumb wore out. Chest hurting. Feel crash oncoming.

0500 apparently fell asleep for couple hours. Still tired. Joe ready to go eat.

0600 ate at Newks. It was nice not having to worry about what to cook. Went to Academy’s to window shop afterwards. Rae volunteered to push me in wheelchair. Guys went one way & us girls went another eventually meeting up in hunting section. In clothing section, I saw a woman’s shoe was untied. I was about to let her know when I looked up and realized she had no head – it was a mannequin!

We had good laugh over it.

Jan 28

1145 everything is tingling my tongue. Feels weird almost like a tens unit zapping my tongue.

1220 group from USA showed up to play some games…Blokus, Big Pig?

I know there’s a purpose to playing the games, but I don’t remember it right now.

https://lotsahelpinghands.com/blog/brain-injury-recovery/

0130 mustard enough courage to ask Mrs. Suzie (recreational therapy professor) reason/purpose for the games. From what I can remember, they are to help teach/rebuild fine motor skills, cooperation, working with others, memory, problem solving, work through anger issues, enhance recovery (though I’ve been told recovery from TBI is a life long process depending on severity of the TBI), etc. Just because someone has TBI doesn’t mean they are stupid…it just means that they have to learn to adapt to the new you and things may take longer to do in a day than a regular person would.

Told her that my Chiro told me that I needed to do brain games. Didn’t know he’d passed. She agreed brain games and doing things using fine motor skills will help with recovery. Prefers things to hold in hands like crosswords than computers or games on phone.

Told Susie that one thing the Dr was amazed at was that I could still play the piano. Told her that I cannot explain how it is but there’s times that my brain is so tired and although I’m looking at the music I can’t see my hands or keys. Her eyes lite up and said she could explain. Music is processed in another part of the brain and because I’ve been doing it for so long it’s like rote memory and my brain just knows how to do it. But put a brand new music piece in front of you and you’d struggle. I told her I’ve tried learning new pieces but cannot right now.

She’s seen patients with severe TBI that can still play chess because they had played it for so long. Some patients that can hardly say two words (severe asphixua?) but can actually sing beautifully. One lady she thought of was a very smart lady but after her TBI could only say B’s (Bobbidabibababoo). In her mind she was saying “Where did you get that from?” Those with TBI are not dumb or stupid, it’s just a stigma that comes from people not being properly educated about that particular injury.

Says it sounds like I’m doing fairly well in my discovery stage. Didn’t know there were stages in recovery. Might have to look into that down line. Posting links to read later. If I notate in my journal I might remember later. Lol

https://www.flintrehab.com/2019/games-for-brain-injury-patients/

 

https://msktc.org/tbi/factsheets/Understanding-TBI/What-Happens-During-Injury-And-In-Early-Stages-Of-Recovery

https://msktc.org/tbi/factsheets/Understanding-TBI/Brain-Injury-Impact-On-Individuals-Functioning

https://msktc.org/tbi/factsheets/Understanding-TBI/The-Recovery-Process-For-Traumatic-Brain-Injury

https://msktc.org/tbi/factsheets/Understanding-TBI/The-Impact-On-Family-And-How-They-Can-Help

0230 Stopped at Glasses place to get my glasses fixed

Jan 29

0600 rough night. Slept hard til 0230, 0430, 0530 and wake since then. Trird to fall back sleep butnot working. Rolled out of bed around 0700. It’s been raining most of night. Lethargic & achy all over. Headache.

0715 gotta get kids up an attem. Co-op today. Hopefully it’s an easy day.

1130 It’s been laid back day. I’m so sleepy. Going to need nap once home. Rt hip & low back just throbbing like toothache.

1230 crash in chair in livingroom for thirty minutes. Wish it was longer. Still sleepy.

0830 should’ve taken pain rx before taking meal to church family

1020 turn wrong and right side cramping/spasming. Oh it hurts so much!

1030 absolute pain sitting/leaning on heat pad for bit to ease muscles

1130 took night meds and pain rx. Muscles in lower back and rt hip throbbing worse than toothache. Lft ankle throbbing too.

Jan 25

7.00 Alas, I feel like I was beat up bad last night. Every ounce of my being hurts horribly. It hurts to move…even to try to sit up.

Sister msg me to let me know her daughter feeling better. Found chiropracter in country that she’s going to and it seems to be helpful. PtL!

Decided to look up benefits of acupuncture. Skimming through an article…Read some of benefits to Joe. Said maybe it’d help me. I need to be adjusted. Told Joe I’d call Monday to see what Dr would charge.

https://www.livescience.com/29494-acupuncture.html 

8.00 Brr! It’s cold outside 37°.

6.45 still ache horribly. Hubby says weather is changing.

https://www.outsideonline.com/2394292/how-weather-affects-your-body

11.20 in so much pain…trouble getting at least little comfortable. Stuffy nose.

 

Jan 26

0600 I like I was in a fight.

0713 adjusting hair off neck it feels like something’s crawling on skin. Collar bones in chest crack. Ough! Headache. It hurts to move.

0800 driving two cars today. Don’t want canvases to get messed up. Buddy put my keys in his pocket. I not know. Searching purse & house. Text him. No answer. Joe called later to let me know. Ugh!

1158 lft arm upper cramping and hurt, low back & rt side throbbing

0130 It’s raining outside. I’m tired, hurting, and sleepy. Think I’ll lay down a bit. Hard to focus on one thing right now.

0330 took me quite a while to fall asleep. Jerked myself awake few times for a moment. If I could get restful sleep I’d feel better.

0620 back really hurting

11.30 https://www.inverse.com/mind-body/why-you-need-more-vitamin-d-in-the-winter#:~:text=Vitamin%20D%20helps%20you%20absorb,infection%20and%20inflammation%20year%2Dround 

 

Jan 27

0700 Rough night but got decent amount of sleep. Strange dream.

0800 I think I know why I’m hurting more. Washer broke (beyond repair…tub inside drum fell off) and I’ve been attempting to wash clothes in tub…only get part way through and have to have kids help. Currently laying down bc my back is throbbing!!! Headache too.

Need a break for while. Life is hard sometimes. Kindness, courage, and love will help.

1000 just finished 2nd load and finally making bed for day. I’m exhausted and hurting. Need a nap. Feet are freezing!!

1100 My parents just fussed at me for washing clothes in tub. Siad its no wonder I’m hurting more.

1137 under covers in livingroom trying to get feet warm. Sudden sharp stabbing pain in top lft ft.

0230 Mom came over to massage my feet using reflexology. She asked if I could feel her massaging pituitary gland in big toe. Only feel pressure nothing else. Says that’s not good

0430 dinner on stove – minestrone throw together

0530 hubby on way home

0555 finall have asl lesson typed up…been trying to put it on paper since about 1145ish…can only sit for piece at time. Vision blurred and brain fogged. Time to be done for day.

0830 decided time to take epsom salt soak since I’m hurting so much it hurts to move. Headaches. Brain fogged & verbage not coming out of mouth right.

0900 tired and out of breath just getting dressed. Still missing my tablet. Can’t remember when saw last or where.

0930 frustrated not finding nor remembering. Oh! I found the mouthwash, nail polish, & polish remover I misplaced over a week ago maybe more. Rae found the other polish remover I misplaced even longer ago.

Found a random lid in livingroom. Asked Jordon if he put away the mushrooms. Jordon replies “Mushrooms?” Oh, I meant to say marshmallows. Ugh. Time for b3d that tells me. Brain I must rest.

1000 must do pt night exercises. It still hurts to move. We’ll see how much I can push through.

1021 pushed through. Quite dizzy. Stinging needle pain in back. Lower lft leg tourniquit tighten feeling with some numbness. Toes tingling. Tummy hurts.

Ok in am. Pain 5. By afternoon much pain 9/10. Lay down to rest. Deep breaths to reduce pain to 6/7. Headache. Any activity causes much pain & must rest after few minutes or so. Collar bone & chest areas popping cause pain. Costo flairing maybe? Rt hip & low back throbbing!

1050 Is it possible that my pituitary glands were injured in LS causing all the symptoms and chronic pain???

https://www.healthline.com/health/hypopituitarism

https://pituitary.org/medical-resources/integrative-medicine-mind-body-spirit/naturopathic/naturopathic

http://cyberdoktor.org/en/holistic-medicine/214-healing-the-pituitary-gland-with-nutrition-and-natural-remedies

Jan 22

3.30 woke to stomach hurting horribly. Rt hip throbbing.

5.00 stomach still hurting. Rt hip throbbing and I’m cold.

6.00 trouble falling back to sleep. I’m freezing. Get cold easily since being heated up by the lightning. So many questions still unanswered yet God is seeing fit to answer them in His timing. Some questions may never be answered this side of Heaven.

7.00 29°outside 60°inside

Stomach finally stopped cramping. Rt hip still hurts.

7.30 muscles in back & rt side cramping/spasming. Making it difficult to move.

8.30 co-op today. Allowing Jordon to drive there.

12.00 driving home. Back still spasming/cramping. I’m exhausted. Need rest.

3.00 crashed on my chair in livingroom not sure how long I was out. Back still hurting. Guess I’m down for the day.

10.20p back cramping eased around 7ish. Skin itches all over again. It’s gotta be nerves. I only itch at night once I’m relaxing or trying to.

Praying for my church family. Lots of needs. Headache. Exhausted.

 

Jan 23

7.00 woke from strange dreams all night. Hands and arms numb and tingly. Congested. Muscles twitching in back. Tired. Upper back & shoulders pins & needles stingy slightly.

2.00 Exhausted. Overdone it. Low back throbbing. Short of breath. Feet freezing!

4.30 running late heading to church. Rae had hard time finding something at store. Decided to use google maps for fastest way to church from my location. Wrong choice! It took me on highway during go home traffic then wanted me to get off very next exit from whence I just got off. Chose to stay on highway but about had panic attack bc I didn’t remember how to get to church. Thankfully, Jordon was excellent navigator.

5.45 brain past fried…cannot talk right. Told Joe he was pulling my goat. I was actually trying to say he was pulling my chain. Corrected and told saying is supposed to be pulling my leg. Gave the whole church a good laugh. I just wanted to crawl under the pew in corner and hide. Ugh!

10.00 Upset about not remembering when Joe says he tells me stuff. I adamantly says he doesn’t bc I don’t remember him saying it. I’m really trying to remember. I just don’t comprehend why I struggle to remember some things and other things I remember better.

Trying to quote bible verse to Joe about loving God with heart, soul, strength, and mind (Luke 20:27). Except I messed it up and said we’re suppose to worship God with our body, mind, soul, and spirit. He said it doesn’t say that. I disagreed. I know it has 4 in it. Had to look it up. Found out I was misquoting it. Ugh! We chuckled. I knew there was 4.

I guess I can only take so much then I have meltdown moments which range in emotions from anger, anxiety, or crying…tonight’s meltdown was anger. Angry bc I have trouble remembering things. Angry bc I misplace things easily and cannot recall where I put them. Angry bc my brain struggles to get verbiage in mind spoken correctly. And I struggle articulating how other’s can help. Angry bc I don’t feel like I’m doing a good enough job expressing my struggles to others and don’t have clue how to correct it. Angry bc sometimes I feel like others don’t understand nor care to understand. Angry bc it seems like there’s lack of reverence towards the things of God.

Jordon asks when Bible says let not the sun go down upon your wrath does that mean don’t go to bed angry. I replied basically yes.

Some would say that means in relationships (Ephesians 4:26). It’s good practice to not go to bed angry at your spouse, but it doesn’t mean we cannot have righteous anger. Being angry in itself is not a sin, but most times it’s how you handle the anger that results in the sin.

11.30 skin itchy like crazy!!! Low back & rt hip throbbing. Brain fried. Headache.

 

Jan 24

10.28 sudden loud noise? Windows & doors in house shook. Scared me. I thought someone was trying to come in unexpected. Grabbed phone and made sure doors were locked.

1.40pm finally finished sorting thru and writing down church expenses for last year. I’m exhausted and hurting. Headache. Time for break.

7.30 learned that others in area felt and heard loud boom this morning. Speculation of sonic boom but NAS Blue Angels are out of town. Bad enough to bad news at noon. Hugh?

8.00 I’m really hurting. Neck throbbing. Hands swollen and achy. Rt side & hip throbbing.

9.00 rt side cramping. Muscles spasming in left side. Back of rt leg/knee throbbing. Unable to get comfortable. Extremely tired. Eyes watering.