Lightning Strike Journal Entries 7-8 May 2019

May 7

8:00a- Joe accidentally scared me away because I was still sleeping and have TBI mtg at 10:00am. I dislike being frightened it puts my nerve ending on fire for a bit. He apologized and gave me hug.

9:00a- almost forgot to take morning meds. Took pain rx too to help me move a little better.

10:30a- arrived late at TBI. Phone’s been busy this morning.  

Told Teresa & Ron about my PT apt at USA. I’m so excited about it. Teresa thanked me for letting me know. Teresa told me about TBI study being done at USA in July for 3 days. She wants me to participate. Lady that’s gonna do my PT will be apart of it. She will let me know more soon. Has conference call about it in next few days.  How cool is that!!?

Ron bought me a physical fitness book. Stay FIT For Life by Joshua Kozak. It has many exercises to restore strength and stability. I need to do something special to show appreciation.

Pixie told me that I looked happier than I had been…like I’m not as sad as before. I told her that I am happier bc I feel like I’m finally getting answers or Dr’s willing to listen. I gave brief explanation about what last neurologist suggested. I told her it caused me to be depressed for a couple weeks afterwards. 

She said he needs to be held accountable and doesn’t need to be in practice.  I told her that my husband stepped in and talked with head Dr of practice and the Dr called to apologize. Joe chewed them both out. 

Told her I refused to see him again and told apt nurse why. She scheduled me to see different neurologist first of June. She told me that I need to be up front and honest about why I’m seeing him instead. To tell him that I want to know what’s going on medically. 

11:25a- I’m so sore all over and quite swollen. Hands swollen and achy. Wedding ring cutting off circulation in finger had to take off for a bit.  Tailbone hurts from sitting on cement floor. All my muscles feel overworked and hurt. Shoulders ache.  Legs throbbing. Headache. 

2:30p- resting from morning adventure. Muscles in left arm spasming/twitching. Light Headache.  Hands swollen and throbbing. Bright lights bothersome. I’m tired. Tailbone aches. Legs ache. Tourniquit feeling on lower left leg. So much to do and I’m ready for a nap. Neck hurts. 

3:00p- tried to tell Joe that my butt feels bruised but it came out my brain feels bruised. He giggled and said it sure is because You’ve repeated yourself four times since you’ve been home.

4:30p- hit my head back on head rest in car it felt like I was being stabbed in head on left side. Touch back of head to check and felt nothing. Did it couple more times each time I feel stabbing pain. Joe checked headrest. Nothing there to stab me. Now I have headache. Rt ear now hurts.

Mom called to check on how I faired from yday. She was on car speaker phone. The background noise hurt my ears!!! Hard to register what they were saying. 

10:26p- my upper hind quarters feel like they’re bruised. Skin itches crazy like. Rt ear throbbing. Put Vicks rub on cotton ball and put in ear to ease pain. Sounds crazy but it works. Headache. Feet ache. Low back hurts. I’m hot.

May 8

5:30a- woke to my hind quarters throbbing. Read my Bible. 

Have to take Joe to work. I do not look forward to driving on hwy. It puts my nerves on edge which inflicts pain. Lord, help. 

Lord was good. He kept a bumper clearance between me and other vehicles while on hwy. 

9:00a- Made pigs-n-blanket for kids end of school party today. Now attempting to balance checkbook. Not going to well. Discovered I wrote a check for three $ more than I was suppose to. Ugh!

6:20p- Eventful day. Kids had end of year skating party from 10:30-12:30. It was strange feeling like the popular kid.

 We then headed to church to try to finish first part of floor in SS room. Now picking up my husband from work. 

Lightning Strikes Journal Entries 5-6 May 2019

May 5

9:35a- stinging pain in back, slight headache

9:50a- No matter how much pain I’m in it tickles my heart pink when the kids come in and make sure they give me hugs. For a brief moment, it eases the pain ever so slightly. 😎

12:00p- when I got up to go play the invitational, a cramp ensued in my rt leg. I thought I was gonna go down on floor!!! I managed to get to piano without incident. 

1:30p- upper torso really hurts right now…stinging burning pain. Rt hip throbbing. Lft leg lower feels like tourniquit is starting to squeeze. Stuffy nose & congestion. Fingers and hands swollen and achy.  

2:30p- tried to lay down to take nap but pain so bad it made it difficult to fall asleep. When I was finally dozing off, my whole body jerked enough it scared me awake never to doze off again. Ugh! 

 5:30- rt hip really throbbing not able to get comfortable.  Neck hurts. Center of chest aches.   Tailbone hurts. Headache. Used pain roller to ease sciatica pain. 

9:45p- looking for something else (that which I don’t recall presently) I came across article about treatment for pain “reclaiming your life from fibromyalgia pain”. I have almost all of symptoms.

https://www.debilitatingdiseases.net/fibromyalgia-and-tramadol/

10:50p- pain intense – stinging pain in arms, hands, legs, and feet. Pain in chest increases. Headache same. Muscles feel tight throughout body. If only I could get them to relax, I could sleep. Article very enlightening. Took ibuprofen 800mg & melatonin 3mg. Hope that helps.

11:00p- crazy random hiccups won’t stop

May 6

5:30a- woke to sore throat, muscles spams in rt leg, tailbone throbbing, and headache. Gargled with peppermint mouthwash to ease throat pain. Took rx for pain. Read my Bible and devotional book, and prayed.

www.spine-health.com/wellness/exercise/hamstring-stretching-exercises-sciatica-pain-relief

7:45a- couldn’t fall back to sleep decided to get up. Washed load of towels. Prepared dinner for crockpot. Mailed pkg.  Working on memoirs for blog.

Stretching my hamstring has eased sciatica pain.

8:57a-  almost forgot to take my morning medicine.  Regimen rx for this week = Edarbyclor 40mg 1/2 pill, alpha lipoic acid 300mg 1 pill, MSM 500mg 1 pill, Propranolol 20mg 1 pill, Dexliant 60mg 1 pill, magnesium 400mg 1pill, 1 tbs Colloidial Silver in glass of Switchel in am

9:00a- going to church today to work on finishing floor in SS room. I know it needs to be done but I’m not looking forward to the pain it’ll cause me later.

11:30p- only able to do half the floor today. My entire body is throbbing worse than toothache. Rt ear hurt. Everything is swollen. Soaked in Epsom Salt bath for long time after dinner. Why does physical exertion cause such pain?  Alternating I’m chilled and feet warm but when I warm up my feet are freezing most of evening. Makes no sense at all. Drank cup of Chamomile tea to soothe muscles and help me sleep. Took pain rx. 

Disclaimer: Visitors who use this Site and rely on any information shared do so at their own risk. This site is intended for informational purposes only.  It is not a substitute for professional medical advice, diagnosis, or treatment.  Never ignore professional medical advice.

Lightning Strikes Journal Entries 3-4 May 2019

May 3

6:10a- after attending a funeral this week and learning that a cousin passed away tragically, it dawned on me that I in a sense have the need to grieve – to grieve over the loss of self due to my lightning strike. Some of the lasting effects from my lightning strike have been nerve damage, brain injury, chronic pain, regular migraines, etc. Each of these injuries in and  of themselves are difficult to deal with for any person. Let me tell ya it’s definity not for whimps.  I write this not for self-pity but to help others who may be experiencing the same pains. 

 It dawned on me that I haven’t allowed myself to grieve because I’ve been so consumed in trying to understand and overcome.  Dr’s have no idea how to help and mostly have only been monitering my symptoms.  Some of my symptoms they have no idea how to treat. 

Media usually only covers a lighting strike story of people that die, but there are more people that survive and many of those survivors have lasting side effects. Most of which have no visible injuries. If only more doctors or aspiring doctors would study this phenomenon out to help the thousands of us who are doing their best to continue to live life.

Society (myself included) generally thinks the only reason you need to grieve is over the loss of a loved one.  But that’s not entirely true. You see those who experience traumatic life experiences have a need to grieve too in order to move forward in life. 

 You see I now have a hidden “invisible” injury  that has drastically changed the way I live life. It has not only affected me but also my family and friends around me. 

     I  have struggled with the fact that I am no longer the “energizer bunny” that I was once and now have to pace myself in order to complete even the most medial of tasks. I keep telling myself “I used to be able to do this but now it’s so difficult.” Or “I want to be able to do this but I don’t know how to do it anymore.”  I’m sure it’s not only frustrating for me but also for my family as well.  We’ve all had to make difficult adjustments to the new way of living.  What’s even harder to adjust to is hearing outsiders say, “I’m glad to see you’re doing better” when really I’m doing my best to not show how I’m really feeling. Most of the time I will respond with “I’m working towards getting better.” 

Most days I’m in pain and I’ve learned thru trial and error how to manage the pain. I do have flair ups either bc of weather or I’ve pushed myself too much which causes extreme pain. 

Weather related flair ups I can feel in my bones and nerves when rain is coming especially if it’s going to storm. My body tenses up as if I’m re-living that day all over again. When storms are bad, anxiety kicks in and I feel the need to get in a “safe place” til the storm passes. I get very jumpy especially when I hear lightning. 

Over activity flair ups cause my muscles to tighten and they begin spasming randomly throughout my body. Sometimes it takes days of rest for them to finally loosen enough for relief of extreme pain.

No one wants to accept the fact that they are stuck with lifelong changes. Take the TBI for instance, TBI patients have continuing short term memory losses, cognitive difficulties, slow processing (conversations are a challenge), speech difficulties, etc. It has been very difficult challenge for me to accept who I am verses who I was. Learning to accept the new way of life is an important step to moving forward.

With the nerve damage & pain, I’ve had to re-learn how to do some things and how to make things simpler in order to accomplish daily tasks. I’ve also had to learn how to ask for help more when I can not do the task myself. 

10:59a- today has been very eventful. Woke at 5:30ish and couldn’t get back to sleep. Decided to get up and work on making picnic dinner items for kids field trip this afternoon. Washed load of clothes, folded and put away load of clothes (most of it), posted journal entries to blog thru end of Dec 2017. Had to call about getting car towed to repair shop. Three phone calls and several hours later I’m talking to a case manager bc towing co not showed yet. Suppose to leave for field trip at 2 didnt get to leave until 30 minuet afterwards. Nerves stretched thin. Guy with towing co gave no explanation or apology. 

I’ll have to finish in am. I’m flat wore out.

Met a lady at festival who’s husband is a lightning survivor. He was struck in 70s in Germany. Able to tell her about lightning survivor support group.

Also met a specialized chiropractor. Practice in Pensacola, Fl.  I purposely didn’t tell him that I was a lightning survivor. I wanted to see what the neck scan would show and what his reaction would be. My scan for nerve interference/damage was almost off the chart!!! He was shocked. He asked me what catastrophic event happened to cause my symptoms. When I told him, he was more shocked!!! He began asking lots of questions. He did confirm that my body isn’t healing like it’s suppose to bc of the nerve damage/issues in my spine. (Honestly, that’s a relief to finally hear a Dr agree with my thinking. Gut & brain are connected. My connections are distorted presently. Gotta figure out help to fix it.) 

Scheduled an apt for end of June. Looking forward to see what answers he may be able to provide.

Music way too loud…felt vibrations through my bones. Determined to see the balloons up. Took forever seemingly. I guess they had to see if wind would calm. Prayed it would and it did. Jordon said it was hurting his ears. I apologized and prayed for music to stop. Decided to start heading to car. Thanked God for the disability transport. They didn’t have it last year. Music stopped. 

Balloons began filling up as we headed to car. It was amazing! Ate picnic dinner at car while watching all the balloons fill up. Thankful we waited. 

Stopped at Buccees. It’s huge. Asked what time they close. Were told they don’t. Woah! It’s a huge souvenirs convenience shop on steroids!!!

Good day overall. I’m beyond exhausted and know I’ve overdone it but happy I was able to make memories with the kids. Wish Joe could’ve come.

May 4

5:00a- Joe woke me bc he recvd call from Jakob at midnight and was having hard time understanding his voice mail. I couldn’t make it out either. Hope everything’s okay. 

Joe asked about my mtg with specialized chiropractor. Told me he looked up safety stats on lightning and trains. Found stat that 51% of lightning survivors eventually die from it. Intriguing.

I have such a headache and I’m so sore all over. Think I walked more yday with many breaks than I have in a whole month. Any kind of extra activity causes me great pain afterwards. 

https://www.nbcbayarea.com/news/health/lightning-strike-survivors-268939381.html?amp=y

https://www.livescience.com/38313-how-to-survive-a-lightning-strike.html

7:00 Charliehorse of cramping in legs. Had to stand up to ease some. Bad headache. 

11:57a- raining outside…storms brewing. Legs painfully ache, rt ear hurts, muscles in back tingly achey sensation, hands swollen and achy, headache, throat hurts

2:29a- as the thunder & lightning increase my pain levels increase

11:34p- muscle tension pretty tense thru body, random twitching throughout, turniquet feeling on left leg returns, sore throat all day, exhausted, lethargic feeling, rt ear hurts, hands swollen and achy, shoulders tight, stinging needle sensation in back and center of chest  

Disclaimer: Visitors who use this Site and rely on any information shared do so at their own risk. This site is intended for informational purposes only.  It is not a substitute for professional medical advice, diagnosis, or treatment.  Never ignore professional medical advice.

Lightning Strike Journal Entries 1-2 May 2019

May 1

12:15a- hip pain & tailbone getting worse. Can’t get comfortable. Rt ear hurting.

7:00a- 2 Samuel 22:2-4

And he said, The Lord is my rock, and my fortress, and my deliverer;  The God of my rock; in him will I trust: he is my shield, and the horn of my salvation, my high tower, and my refuge, my saviour; thou savest me from violence.  I will call on the Lord, who is worthy to be praised: so shall I be saved from mine enemies.

No matter what circumstances you may be facing God is always worthy to be praised! 

Woke to lower back and rt hip throbbing, lft hand and arm numb, rt ear hurts, sore throat, slight headache

 9:10 a.m.-  woohoo! Got new battery for my laptop computer speed is faster now.  message when I turn computer on before battery is critically low

12:00p- attended funeral of veteran today. Quickest funeral I remember attending. Funeral attendees hurried us through bc they had another one scheduled right behind. Almost unable to give grieving widow my condolences. It kind of irritated me. A kind woman said she was glad to see I was doing better. I don’t even know how to respond bc I’m not better. It’s an invisible injury. I usually say I’m trying to work towards it. 

3:00 struggling with accepting I’m not same person as before. Feels as if I expect too much and others do to. Feel like I’m mourning and that upsets me more makes me lash out unknowingly towards my husband. When he doesn’t know what’s going on it causes us to get in argument. I don’t know how to process it all nor do I know who to talk to.

4:00p- Chiro apt. My right sciatica is severely inflammed. Left lower leg severely bruised. Dr says numbness and pain is probably from pinched nerve. Should receive relief from adjustments.  Need to try to walk more as I can endure. Given stretching exercises to do in am. Go back in a week. Dr says this is the hardest this is the hardezt thing I have to fight through. I need to accept that I won’t get better (meaning that I’ll never be the same as I was before).

7:00p- decided to talk things out with  Joe about how I was feeling. Had good long talk. I guess I’m stuck in limbo.  I need to learn to accept the new me but I’m not ready to give up fighting to overcome. What the neurologist suggested I do really hurt me. If I’m honest with myself it made me consider what ifs and that scares me because I never would’ve considered it before. How do you get over mourning the loss of one’s self when you’re still living? What’s the next step? How do I help others when I’m having hard time helping myself?  It helped to talk things out.  I feel little better about things.  

https://www.psychologytoday.com/us/blog/the-resilient-brain/201403/brain-injury-awareness-grieving-the-loss-self

May 2

4:44p – had to take Joe to work to use the car. Able to get Dezirae’s grades done for year and most of Jordon’s.  Dezirae has all A’s. Yeah!

Called Dr’s bc my headache rx (Propranolol) hasn’t been filled yet and it’s been at least two weeks. Dr’s office was nice. Will get it taken care of.

Went to bargain thrift store to look for goodies. Joe msgd me that he’s getting off at noon instead. Jordon found an 18 speed bike for $15. He’s been wanting a bike.  Dezirae found mirror for her room. I found some t-shirts for Joe. Found some nice gifts too. While shopping my back started throbbing, I needed to rest. Seats were all taken so I sat on cement floor for a while next to buggy. After resting, I was able to proceed.

Ran out of time. Have to drop bike off at home and go pick up Joe. Will stop at store to pick up few needed items after picking up Joe. 

I am so hurting!!! I’ve done as much walking as I can today. Dezirae had to pull buggy to help guide me along. I need to rest but it won’t happen bc we need to leave for church. Joe needs to see if he can fix lawnmower. 

Asked Dezirae to put linens in mission house. Discovered a whole colony of swarmer ants in kitchen. Ugh!  I’m not up to this. Dezirae and I commence to cleaning up the kitchen. I so hurt!

Going to lay down in nursery for a bit before church. Tailbone is throbbing. Neck hurts. Headache. Fingers sting. Lft leg aches. Rt hip hurts.

Trouble falling to sleep. Back throbbing.

10O5p Ways to beat thrush

https://draxe.com/oral-thrush/

https://draxe.com/how-to-boost-your-immune-system/

Lightning Strikes Journal Entries 29-30 April 2019

April 29

7:30a- woke to alarm. Muscles in legs spasming. Still sleep. Arms and hand pins and needle pain. Rt ear hurts. Throat hurts. Sleep a little more.

8:45a- rt hip throbbing. Toes stinging. Weird dreams. Still groggy. Rt ear hurts. Rt hip throbbing. 

9:55a- outer part of my left leg where I fell and hurt it feels numb down to my toes

10:43a- popovers made for the kids, load of clothes washed, cucumbers sliced and on dehydrator, breakfast eaten, lft lower outer leg still feels numb, I’m not feeling well…need to rest a while.

9:30p- lft lower leg is still numb feeling, 

11:05p I’m not sure how to ask but has anyone noticed it seems to take longer to heal from bruises and booboos after lightning or electrical injuries?

I remember being a quick healer prior to my strike now it seems like it takes forever to heal. The area that I wacked on my leg when I fell last week is still swollen and feels numb sometimes. The bruising seems to be healing in right stages. It’s strange to me.

Just curious???

Decided to go to Chiropractor today. Dr said my sciatica nerve was severely inflamed. I deeply bruised my leg and hip. He was able to adjust me quite well. I think my hip was slightly out of joint bc it popped quite loudly. I’m feeling a little better though still sore. I go back in a week. Glad I went. Thanks.

11:59p- upper back throbbing, muscles twitching throughout body, slight.headache. 

April 30

5:45a- woke to muscles spasming in legs, rt hip hurts, cottony mouth

6:00a- doing am exercise while in bed my rt hip feels bruised. Ouch! 

8:30a- dozed back to sleep for an hour. Strange dreams. Need some thyme tea. Left leg feels like a tourniquet is lightly squeezing it.  I don’t know what to think but it feels weird.

1:30p- had to help kids move stone table to where I could use it too. Not good idea. Now hurting pretty bad.

2:00p- need to rest. Frustrating computer won’t connect to internet. Have to reset dns. Nope. Clear winsock. Nope. Change router connection. Nope. Duh! Forgot to run cmd prompt in admin mode. Have to run thru steps again. Thanks for Google or I couldn’t remember. 45 minutes later it works!

Leaned back while sitting on floor bc back was hurting. Ouch!! Wrong choice – sharp stabbing pain in rt hip & tailbone area. Think I need to get checked out. It’s been a week since I fell.   

Now to force myself to rest while watching movie. 

11:15p- rt hip throbbing, stabbing pain in tailbone area, feet hurting and cold, lower left leg still slight swollen & it feels as if it’s being squeezed, trouble speaking thoughts and remembering what things are called.

Got word today that local college willing to help with some therapy. Next step is setting up appointment for initial evaluation. Thank you, Lord.

Still need to find a mechanic that has time to fix car and is budget friendly. God knows need.

Took a bit but managed to post few things to blog today.   

Lightning Strikes Journal Entries 27-28 April 2019

April 27

12:10a- not sure what’s going on, but I’m hurting more than I have in a while (I think). Just took rx pain & muscle relaxer. Hopefully, that’ll help me sleep. Calf muscles cramping, neck throbbing, noticed lft side of chest is swollen and upper torso throbbing. Hands swollen and achy. Eyes sensitive to lights. Rt ear aches. Rt toothaches. Low back aches. 

Please, Lord, provide for our needs. Car broken down and not enough $ to fix. 

Lost my craft needle and not sure where to find it. Good news is I finally found Joe’s Valentine’s gift but it won’t do him any good til he finds his keys. lol

4:30a- sore throat and still hurting all over. Muscles twitching throughout body. Feel like I’m burning up!

7:30a- I’m exhausted. Still hurt all over. Hard to get moving…everything’s stiff, swollen, and more than achy.

8:00a- while putting make up on I accidentally poked myself in the eye with the mascara wand. I didn’t even feel it! Only way I knew I did so was the black dot on white of my eye. Scarey! Joe says I was a hot box last night bc when he went to rub my back this morning it was clammy. 

10:12a- felt scab on top of head rt. 2nd spot on head keeps oozing yellowish gunk and bleeds periodically.  Guess I’ll have to use frankincense until I can get to dr. Not sure when I’ll be able to afford it since our car is broke down again. God sees the need. I’m trusting Him to supply.

1:00- picked up rx from pharmacy. While waiting I asked for pharmacist opinion about my “thrush” issue. She suggested I see an ENT bc it’s quite possible I have infection stuck in tonsils. Lymph nodes swollen in neck, rt ear ache, tooth pain, headache, neck hurts, sore throat, periodic chills. 

In thinking about what was said, I don’t think the Dr’s once checked for strep or tonsillitis. I so need second opinion.

3:15p- strawberries on dehydrator trays, pork chops divided and put away, food from lunch put away. I’m exhausted. Need to rest a while. 

7:28z sharp pain in rt side of lip. Felt like I waz being zapped. Ouch!

11:59p- whole body still hurts but pain is subsiding some. Rt ear hurts. Rt toothache. Sore throat. Lumps on back of throat. Tongue coated white. Headache. Hands swollen and achy and tingly. Feet ache. Muscle spams randomly throughout body all day.   

Found out that the previous pastor of the church passed away this morning. Mixed emotions sad bc I know his wife will miss him but glad he’s no longer suffering and know he’s in a better place. 

April 28

7:00a- calves cramping

9:15a- Bro Billy brought lg box of assorted greeting cards for me to use at church. What a sweet surprise!

11:35a- rt hip throbbing, muscles spasming in legs, cramping in stomach, slight headache, rt ear hurts

3:00p- working on next Scripture Journaling theme. Decided to double check verses chosen. Glad I did. Had to make a few changes. Now to remember how I saved it last time to post on blog as pdf. 

5:59p- rt hip hurts, rt ear throbbing & intermittent ringing, feet freezing – I’ve had socks on all afternoon

Stomach cramping

11:10p- feet finally warmed up, rt ear throbbing, rt toothache stabbing, low back throbbing feels like I was punched in back low blow on both sides, stomach cramping, esophagus feels like pills got stuck, rt side of face hurts, hands achy and swollen, feel bloated, legs hurt like I walked 5k without training. Rt ear feels like I need to sleep on a warm cabbage leaf. 

Overall it was a good day. 

Lightning Strikes Journal Entries 25-26 April 2019

April 25

early this am before he went to work Joe rubbed my back. Felt good because my muscles have been twitching/spasming randomly for several hours.

7:00a- I’m freezing. Rt hip throbbing like toothache. Neck hurts. Eyes watery. Throat hurts a little. Rt arm numb when I woke. Upper back hurts.

​ Be merciful unto me, O God, be merciful unto me: for my soul trusteth in thee: yea, in the shadow of thy wings will I make my refuge, until these calamities be overpast. Psalms 57:1

Interesting this was my first verse in Bible reading this morning.

906a My Grandma has been teaching my Mom, daughter, and I how to quilt while she has been visiting. She still quilts by hand!

It takes me a little over an hour to hand stitch this square – that’s just the inner and outer circle til my hands and wrists are too swollen and painful to do any more.

#makingpreciousmemories

3:00- went to Mom’s to help on quilt for a bit. Neck throbbing. Rt hand swelling.

4:28- Neck very painful throb. Upper back hurts. Muscles tense and spazing randomly. Thunderstorm. Laying down in “safe place”. Headache. Bright lights bother eyes. Hands swollen and hurting. Charging phone in case power goes out.

7:15p- last hymn before offeratory I flubbed up big time. I forgot how the tune went so I started playing a different tempo. Ugh! Don’t know where that came from. So embarrassed! At least my church family has been supportive.

Rt hip throbbing. Neck throbbing. 

10:30p- eyes burning and watery, calves throbbing, body aches, neck throbbing, hands swollen and achy, feet cold 

April 26

9:00a- woke around 7:30a but I hurt so bad all over that even my eyelashes hurt! 

1216p – Tried to express a concern at Sam’s Club regarding having to chase wheelchair down at customer service desk instead of them being at front door. (Today is a high pain day for me) Lady tells me I have to call corporate office to complain.

Businesses only think about bottom dollar not customer courtesy. If they want disabled people’s money, they better include them too.

It was suggested that I…”This is completely unacceptable and flies in the face of the Americans with Disabilities Act!!! You better not contact their HQ…you better contact the US DOJ! This will get their attention faster than anything else! Ada.complaint@usdoj.gov – phone 800-514-0301″

1:00p- ate lunch at Sam’s. Frustrated because we had to chase down a wheelchair. Tried to express concern at service desk.  Lady tells me to call home office to complain. Ugh!

1:35p- heading to optical place the clutch goes out again. Have to wait for tow truck. Ugh! Able to call my dad to come pick kids and I up while Joe waits with car. I got my new glasses finally. 

5:25p- dinner at parents. My Grandma tells story of when she was 5. My great grandpa traded his 3 shot guns for boxcar lumber to build a one room house with no plumbing and no electricity for mom, dad, and 6 kids at the time (June, Donna, Ralph, Roger, Bernard,  Evelyn) [Betty, Billy, Edward, Margaret, Elaine]

7:00p- I’m exhausted and hurting. Sitting with heating pad on back. 

10:23p- I was hoping the most painful days were behind me. Apparently not. I hurt all over. Center of chest throbbing !!!

Lightning Strikes Journal Entries 23-24 April 2019

April 23

11:25a- two loads of clothes (folded but not put away), 2 spelling tests generated, history test given – my brain and eyes beginning to feel scrambled

1:00- drop pkg for Jakob at PO. My Grandma treating us to lunch. Stopped at Mission Thrift store. Only able to walk outer paramater. Legs throbbing, hands and arms aching, feel like I’m about to crash. Need to rest a while.

4:30p- slept little over an hour. Wow! Could sleep longer so tired. Low back throbbing. Rt hip throbbing.  Bruise on lft leg is healing but still swollen

6:00p- went to Mom’s to help my Grandma with her quilt. She’s suppose to be showing us but she keeps nodding off even though she took a nap. Think she’s eating to much carbs and sugars. Only about to complete one square until my rt hand swells to double in size and hurts too bad. If I decide to quilt on my own I’d use sewing machine instead of by hand. 

11:12p- I hurt something aweful. Neck hurts to move. Whole body feels swollen. Ugh!  Feet are cold actually I’m freezing. Don’t get it. Wish I could get some one to explain the science of it all to me. Maybe it’d help me accept it better. 

Lord, You know better than I. You know the way.

April 24

8:00a-Had headache so I checked my bp. It’s not that. Bp 105/72 hr 70 Middle of back stinging. Hands and wrists swollen and achy.

8:30a- ?

10:30- working on grading tests for school. It’s almost summer break time. I am so ready. My brain hurts and feels foggy.

2:00p- eating late lunch while watching movie. Do some movies kind of make you feel dizzy at times? Backgrounds that move too fast mess with my balance. What’s worse is I’m sitting.

4:00- trying to work on quilt. My hand eye coordination is way off today. Frustrating. Just gotta keep trying. Managed to get another square down.

6:00p- left leg from middle lower to foot feels weird again. It’s knid of numb but feels like it’s being choked. Not sure how to explain. Probably need to prop it up. Feet are getting cold.

7:00p- talking to Joe I open my mouth to answer him and in flies a gnatt! Yuck!! Now I’m choking!!! Not staying outside. Ugh! Feet are freezing. Under blankets I go. 

10:23p- neck is throbbing like toothache. Low back throbbing. Rt hip hurts. Feet freezing. Socks put on. Hands and wrists swollen and achy especially rt one. Left foot stingy tingles. Weird. Calves ache.

Need to email Neuro PT person about apt in May. Praying they can help me even a little.

Lightning Strikes Journal Entries 21-22 April 2019

April 21

5:00a- Its too early. I’m still tired. Muscles twitching throughout body. I hurt all over even headache.

6:00a- I don’t like my outfit. My blouse is wrong shade of blue. Dezirae to rescue. She remembers dk blue top in spring tote. 

Joe asked Dezirae to help me roll my hair. My arms ache so much.

9:30a- hope I remembered everything. Praying for visitors at church today. 350+ eggs filled with candy for the kids. Wow! 

Trouble concentrating on playing the music. Keep messing up! Ugh!  

Lord, thank you for this day. Thank you for your sacrificial love! Thank you for loving this cracked pot that You are molding into Your likness that others may know You. 

2:30p- just getting home from church. Headache and sore from head to toe. Feeling faint…crashing for a little while no phone included.

5:45p- Joe picking on me because he thought I was playing a game on my phone. I replied “No! Someone emailed me so I’m checking my texts!” Lol!

7:19p- found out that my great great grandma moorehouse used to play piano for church. 

821p Thought I’d share a funny store in case you need a laugh…

Yesterday Joe, my husband, asked me if I needed anything (He was at work). I told him I still needed a few things for tomorrow (Easter Sunday). He asked what we need. Told him I was making a list as I go (I was cooking ahead for Easter Dinner at church) and texted him list I had so far…which included socks.

Joe asked me what I needed socks for. Told him for kid’s Easter baskets. He told me that I made him laugh. (I laughed but was serious because I forgot to give them socks for Christmas.)

Joe told me that when he was laughing another officer walked by and asked why he was laughing. Officer asked him to tell him why he was laughing.

Joe asked officer what is suppose to be in Easter basket?

Officer replies, “Candy, of course.”

Joe says, “Well, my wife wants to put socks in our kids Easter basket.”

Officer asked, “Why does she want to do that?”

Joe proceeded to explain to officer that I had forgotten to give the socks at Christmas.

Officer asked,” Who forgets to give out Christmas presents?”

Joe says, “My wife.” He proceeds to explain about my being struck by lightning and have a brain injury and forgets alot. She bought me a Valentine’s day present but can’t find it.

Officer cracked up laughing. Officer told Joe, “Thanks, I needed a laugh today.”

At least in my confussion and memory lapses, we can laugh it off. Glad it’s helping others too. 😁

11:00p- I’m freezing all over!!! Feet like ice. Joe says my body is burning up as if I’m running fever but my forehead is cold to touch. Makes no sense.

April 22

6:28a- lft hand numb and tingly

7:30- rt arm numb and tingly, cotton mouth, headache, body aches, low back throbbing, rt hip throbbing

10:00a- I almost forgot to take my am rx & vitamins. Gorgeous day outside. Decided to hang sheets online. My arms are cramping! Feeling kind of shaky and weak now.

Lightning Strikes Journal Entries 19-20 April 2019

April 19

4:00a- woke to sharp stabbing pain in lower rt back & hip, headache, eyes watering, left foot and ankle throbbing.

5:56a- hands swollen and achy, lft hand numb, pain shooting down both legs

6:30a- not falling back to sleep guess I’ll get up. Wash load clothes, made waffles for breakfast, made more diy bisquick mix, 

10:00a- 4 generations went together to get our nails done today. This is treat. It’s been several years for me and Dezirae’s first time!

Lady was very nice. Color I picked wasn’t color I thought it was so she let me pick two colors to get effect I desired. Nail filing process was a bit painful for me. I managed to not holler. When she got to middle lft finger, it shot sharp pain up arm! I thought I would jump out of my skin. Held it together though.

340p Praise report: A couple times a month I attend a TBI (Traumatic Brain Injury) support group. I was told that most TBI’s are sustained from auto accidents, domestic abuse, etc., but I was first one they encountered that was from a lightning strike. The group gladly accepted me. It’s been challenging at times, but rewarding to be able to exchange experiences and people actually get where you’re coming from to an extent.

Anyways, I’ve been expressing my concern about the need for physical therapy to help with balance issues and help knowing type of exercises that would help me regain some of strength I’ve lost. Dr’s have been telling me to just live everyday life because they don’t know what to tell me.

This past week I requested mtg with the cordinators of the TBI group. I let them know what had been going on. They told me they might have an avenue with local college professors and students in physical therapy dpt. I received word today that they are willing to help me! Their schedule is busy right now, but I’m to call to make an appointment for initial evaluation and then work from there.

This is a HUGE answer to prayer! I’m not certain of expense just yet, but I’m praying God will touch their hearts and do it pro bono.

If you feel like no one is listening, keep on sharing your story. The right people will hear eventually!!!

Suggested that it could be a gait issue:

Update: I rcvd email today confirming that they are willing to help me with some physical therapy. They asked what specifically I would like help with (I don’t know how to express what’s all going on). Next step is to set up an appointment for initial evaluation. This is HUGE for me! I feel like I’m finally being heard. Thank you, Lord!   An appt has been officially set for May 22nd! Even better they’re going to do couple sessions pro bono! Thank you, Lord!

6:56p- busy day. Kids play about to begin. They’re so excited! Excitement is contagious.

10:27p- why do toothache pain have to hurt so much?! 

April 20

6:30a- woke bc I dreamt i forgot to set alarm. Ugh!

7:00a- I’m exhausted. Sore all over. I don’t want to get up yet I know there’s lots to do for tomorrow. 

7:05: alarm goes off. I’m too tired.  Turned alarm off. 

7:14a- reset alarm for 7:30

7:30- read Bible and prayed

7:50a- I have to get up. Lots to do for tomorrows services. Lord help. 

8:00a- started bulletin

10:00a- such a headache!!

11:27a- we managed to cover 3 roads knocking doors. I’m flat exhausted! Follow up visit as well. I need a nap. 

Lower back and hips throbbing. Legs ache and muscles twitching.

12:30p- visiting with my Grandma Shunk. Found out that my Aunt’s sister was struck by lightning and killed when my Aunt was little.  Wow!

Think I need to figure out a resource pg.

1:45p- low back throbbing, hands ache, lft arm hurts, hands feel swollen and ache, feet freezing cold, feeling faint. Need to crash for a bit.

3:30a- crashed for almost 2 hours. Still tired. Need to finish prepping foods 4 tomorrow.

4:30p- making Joe laugh bc I plan on putting socks in kids Easter baskets. I wanted to do for Christmas but forgot. Still can’t find Joe’s Valentine’s present. 

7:00p- Joe told me that when he was laughing another officer walked by and asked why he was laughing. Officer asked him to tell him why he was laughing.

Joe asked officer what is suppose to be in Easter basket?

Officer replies, “Candy, of course.”

Joe says, “Well, my wife wants to put socks in our kids Easter basket.”

Officer asked, “Why does she want to do that?”

Joe proceeded to explain to officer that I had forgotten to give the socks at Christmas.

Officer asked,” Who forgets to give out Christmas presents?”

Joe says, “My wife.” He proceeds to explain about my being struck by lightning and have a brain injury and forgets alot. She bought me a Valentine’s day present but can’t find it.

Officer cracked up laughing. He asked Joe how he was handling it all.

Joe told him that he’s handling it okay. Ever so often I get fed up with it all blow up and then I’m fine for a while.

Officer was surprised how well Joe’s handling it all. Officer told Joe, “Thanks, I needed a laugh today.”

At least in my confussion and memory lapses, we can laugh it off. Glad it’s helping others too. 😁 

10:23p- back muscles stinging, cramp in lft toes and foot outside.

Just noticed two bruises on rt leg. Don’t know how they got there. 

Bruise on lft leg mid calf is more prominent. Outer lower leg still swollen and kind of lumpy. Lower back & rt hip aches. Headache still there. I’m exhausted. Feet aching. Legs throbbing. Looking forward to resting tomorrow afternoon. Arms aching. Hands swollen and achy.

10:50p- center of chest starting to hurt, skin itches

11:05- oh my aching body. Lord please help me sleep tonight. Have to get up early.

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