Category: My Healing Journey

Oct 2

I enjoyed ladies conference last weekend, but it was too too much for me. I’ve been in so much pain since and so tired. Tried to pick up refill of pain med only to find out it has been taken off the $4 list at Wal-Mart. I couldn’t afford it now I’m scramblin to figure out what to do.

Family has been trying to be understanding, but I feel they’re getting tired of it all. If only I could get someone to explain to all of us so we can understand it better. 

Lord, we’re struggling and I’m not even able to afford my meds anymore. Please I need you to supply our needs. What time I am afraid I will trust in thee.

My brain hurts, sinuses are horrible, neck hurts, low back hurts, both hands and wrists swollen and throbbing, rt hip hurts, left eye feels droopy, nose hurts, feet & legs ache, tired but cant sleep…

Oct 3

Don’t know what I’ve done, but I’m in so much pain!!! Both calves are cramping and spazzing. Feet hurt. Hand and arms swollen and aching. Entire back throbbing. Headache. I’ve taken pain rx & it hasn’t touched it. Indigestion. Neck throbbing. Exhausted but still awake.

Waiting to see how He alone is going to turn this present trial into a blesing!

Oct 4

8:19a-I still hurt all over! Left elbow throbbing. Legs and feet hurt. Hands and forearms swollen and achy. Back hurts.

12:00pm- left hand and arm shaking horribly and uncontrollably

7:31a-Calves are throbbing, brain foggy, hands swollen, vision foggy, neck hurts, ears ringing

Sept 28

7.58a A friend is having headaches from fall at work. Praying for him. Able to give advise yp help.

This ONE Ingredient Remedy STOPS Migraines Instantly

2.45p Dr apt – Neurology BP 100/81,  hr 74, temp 99.2

My blood pressure is staying in normal range. PTL!

Dr was a little disappointed that I haven’t improved since my last visit. He told me to keep my chin up because I admitted to him that I get frustrated because I’m not able to do what I used to be able to. He says that nerves take a long time to heal. 

Could order nerve conduction study but he didn’t recommend it for me. While I have nerve damage, he believes most of the damage is in my brain from brain damage.  That’s not to say that I don’t experience nerve pain other that in my head. Believe you me I surely do! Most days it’s a 5 or 7, but I’m learning to adapt and admitting more that I need help. Admitted that my type of injury isn’t studied enough and though our technology has advanced there really isn’t any tests that would help in my case. 

If memory serves me correctly, he said I could walk and do stretches. That’s progress on Dr’s part because before I was told to just live everyday life. That isn’t good enough for me – I need to get at a better level. I want to keep fighting and learning if for no other reason but to help others.

Numbness and tingling in hands, memory loss, headache, brain fog, toes tingly & cold, neck really hurts like I have a knot in it).

I’ll keep researching as I’m able and taking notes along the way (so I’ll remember it later)  🙂

Sept 25

TBI / Brain Game: Verbal Fluency – I didn’t do too good.

Dezirae made me a homemade butterfinger ice cream pie. Yummy! 

A sweet friend surprised me today with flowers! Thank you!

Sometimes this is hard to do especially when you’re in the midst of a storm.

Sept 26

Having half decent day. Body aches, but it’s raining. 

Eyes beginning to get blurry. Sensitive to lights. 

10:25p- woken up to go to bed after crashing around 7:30p  I’m so exhausted and hurt horribly all over. I feel like I was beat up. My feet are freezing! I’m cold, but body is hot to touch. Indigestion bad. I hurt almost to tears.

PS. Joe got a new job today. He starts tomorrow. Have some expenses for his new job (twic card, black shoes, etc)

Sept 27

8:30a- woke in much pain all over body; hard to move, hands, arms & feet numb & tingling, headache

10:15- chiro apt – roller table irritating to lower back

4:27p- still in much pain, lethargic, no energy

4:45p- joe suggested I drnk coffee. I did with D.E. it did nothin for me.

Sept 22

9:00a- woke up late. My whole body aches all over. Hard to move. Hands swollen and achy. Feet tingly. Stabbing pain in rt side just above hip.  Neck throbbing. Head hurts.   

10:00a- burning sensation in throat and down chest after swallowing vitamins/rx & deep chest cough

12:49a- rt ear ringing

Sept 23

7:00a- took me hours to fall asleep. Finally took melatonin around 1:30am

I hurt horribly all over…hard to move. Feel like crying. Don’t feel right. Malaise.

10:00a rt ear ringing

12:00p still feel yucky

5:50p rt eye spazing. Hard to focus. Lasted for good 20-30 minutes.

9:43p – feels like somethings not right with me (more than the “normal” lightning strike symptoms) general malaise, weaker than usual, lethargic 

Going to bed earlier than usual…hope to feel better in morning. Immune roller blend applied I did to feet.

Sept 24

Current symptoms

Facial spasms – lft eye randomly twitching. Rt eye spazing enough to close eye. Both are bothersome.

Digestive upset – random hiccups progressively worse, indigestion after eveything I eat, spasmodic coughing

Muscle weakness – unable to raise arms above shoulder without causing much pain and soreness 

Sept 19

6:50- Woke up aching all over. 

11:30 – head aches

1:00p- bad headache, vision blurry, information overload, brain foggy need rx & rest

11:19p- Can’t sleep. Headache eased slightly but not enough to not bother me. Muscles randomly spazing. Legs, arms, & belly itch. Calves throbbing. Random stabbing itchy pain causing me to jerk.

Difficulty swallowing causing me to choke on most things I eat. Just about everything causes indigestion. Frequently choking on food. Often hurts to swallow.

Sept 20

7:00a- back pain pulsating likke a toothache. Rt hip throbbing! Headache! Neck throbbing.

10:00p- had a meltdown tonight. Managed to hold it together somewhat until going to bed. Frustrated. People cracking jokes while I was playing offertory easily distracting me from the music. I kept messing up. I tried to hush them, but it didn’t work. Next time…I’m just gonna stop. 

Sept 21

Mom & Dezirae permed my hair today. I like the perm, but Im so tired from it. My back is throbbing, my rt ear aches, hands ache, head hurts

Able to get two loads of laundry done today, but not much else. No energy even after drinking a plexus slim. Ugh!

Sept 16

7:00a- woke on stomach hands not numb but whole back is throbbing. Joe said that during the night I acted as though something was crawling all over me and trying to get it off. Hed ask me what’s wrong. I’d say nothing.

10:00a- left eye twitching

11:00a- headache

11:21p- at one point today my rt leg felt as is it was being strangled and losing life. Random sharp stabing pain in legs today. Random ear ringing. Neck hurts. Headache. Brain fog & blurred vision. Low back throbbing. Chest aching. Exhausted but still awake.

Sept 17

7:30a-Woke to sweating like crazy, back aches, eyes hard to open, feet hurt, arms ache. Strange dream…dreamt I went for walk and got lost. In my dream, I began noticing colors so vivid I had never seen before a spider spinning a golden web, swan on deep blue river with sapphire gem in middle of head, rainbow in ocean full of colorful creatures.

8:00a- mild bloody nose, feeling weak

1:00p- sneezed and bloody nose gushed

10:00p- bad headache. Bp 119/81. Neck hurts

Sept 18

Indigestion is a daily thing now no matter what I eat or drink.  Discovered rash on belly today. I was itching it earlier without knowing it was there. Headaches. Whole body aches from doing too much today. 

Sept 13

8:00a- rough night, much pain, woke with both hands numb & tingling, low backntgrobbing, head hurts, rt ear hurts, feet hurt, calves aches, stomach cramping, ears ringing, light is bothering my eyes

10.46a- Rcvd ltr yday from DDS informing me tjat dr last week found something that needed immediate attention. Called Dr and have apt at 10:15

Dr apt. Bp 111/78, temp 98.7

When I close my eyes I see kaleidoscope spinning counterclockwise with one band going clockwise. Its dizzy time. Head hurts.

At least my bp is low. 

Lord please keep those in path of nc hurricane safe. Dissipate hurrocane so it doesn’t do much damage.

Dr didn’t know why I was there.  Dr said they say that to get you to follow up with primary Dr. Norhing new to treat. 

I asked for copy of the report. I also showed her the note of items the Dr suggested. She is going to order labs because it’s been a while. She said to ask neurologist about the other items when I see him next.

Dr kindly gave me back my money which was a blessing!

According to their Drs notes there should be nothing wrong with me. Frustrating. 

I was upset at first, but then I thought if God’s allowing me to go through this to help others then I need to know how they feel so I can better know how to help. 

I do know if my attorney didn’t think they could win they wouldn’t have taken me on. We’ll just have to see what happens.

11:25a- Dr apt was perplexing. Dr didn’t know why I was there. Says that most letters from them state that to get you to follow up with Dr. Showed Dr note from last weeks visit of what their Dr suggested I ask my primary about. My Dr said they’d checked my thyroid it was fine. She asked don’t you see neurologist? Yes.

Asked for copy of CE report. Note from what I gather note says I should be able to walk without assistance. 

2:04p- muscles in rt leg near knee are twitching.

6.01p- Things I wish I knew before my SSI exams:

https://web.archive.org/web/20170925175607/https://howtogeton.wordpress.com/2017/01/19/how-to-hang-with-the-social-security-doctor/

https://www.disabilitysecrets.com/dnewsblog/2008/09/mental-evaluation-for-social-security.html

7:29p- brain feels dizzy & foggy, rr leg muscle still twitching

Sept 14

Woke from a nightmare…

9:00a-Woke with both hands and arms numb and tingly.  Low back aching. Rt hip hurts. Tummy hurts. Slight headache. Eyes crusty on edges. Rt leg hurts. Calves ache.

4:50p- left eye twitching off and on all dsy. Its annoying. Calves throbbing.

10:30p- noticed lymph node on left side of neck very swollen again. Lft ear ringing. Toes tingly. calves throbbing. Buttock aches. Exhausted. Feel like I’m gonna pass out. Headaches. Rt ear hurts.

11:35p- still wide awake. Sharp stabbing pain in left index finger…shots from knuckle to tip of finger 

Sept 15

7:00a- woke with arms & hands slightly numb but very tingly. legs feel tingly. Rt hip hurts. Low back aches. 

10:30a- unexpected goose bumps up and down legs, low back throbbing, hands swollen and achy

11:09p- hands and arms numb and tingly, low back aches, rt hip hurts, lymph nodes on left side of neck quite noticeably swollen, neck hurts & sore

Sept 10

So I found out why neurologist asked me to spell “world” backwards. It’s to test my attention, memory, & cognitive impairment.

http://www.thisisms.com/forum/general-discussion-f1/topic15582.html

Did you know?
There are two types of lightning, negative strikes and positive strikes. Positive strikes are 5 times more powerful than negative strikes.
*https://churchillsc.co.uk/n…/10-interesting-facts-lightning/

Sept 11

7:20- had trouble opening eyes this morning almost as if some swollen, hands and fingers were numb, feet hurt, center of chest huring, left temple twitching

2.53 So today…at my TBI mtg, I finally mustered up enough courage to ask for help in pointing me in the right direction with setting up my blog/website because I’m stuck and my brain isn’t comprehending it all. I did my best to explain to the directors of what I wanted to accomplish and why. One of the ladies (I don’t remember her name)  offered to ask some of her techy friends if they’d be willing to volunteer to help.  Lord willing, I’ll finally pass this hurdle.

Thankful for God’s faithfulness along this journey. It’s definitely been a hard row to hoe.  A friend  reminded me yesterday of the chorus “My Lord knows the way through the wilderness all I have to do is follow.”  In following, I hope that I may be able help other’s along the way. 

8.16p https://www.google.com/amp/s/www.hellolovelyliving.com/blog/2015/10/20/a-migraine-natural-remedy-that-actually-works%3fformat=amp

Evelyn M tagged me with info on Facebook

8:17p- rt eye twitching

8:47p- lft leg muscles twitching

Sept 12

Everything I eat gives me indigestion. Ugh!

Co-op went well but wore me out

Had trouble falling asleep to take nap slept for 30 minutes

5pm- received tr from ssd telling me to contact my dr asap. Concerning. At least it’s not a denial yet.

10:47- low back aches, rt hip hurts, rt  upper arm aches, finger tips on both hands tingly. Tired but having trouble falling asleep. 

Sept 7

8:00am-I don’t hurt as bad as I thought I would after the stress of two SSI apts yesterday. Ended up taking my time and cleaning up the laundry room. 

Earlier in the week, I decided to cook the turkey in the freezer so we’d have meat options since we’re low on meat in our freezer. Really hope my husband can get a deer or two this winter.

12:30pm- Boy, I didn’t think that idea through. I’m only one home after lunch. I haven’t been able to pick up 20lbs since my lightning strike without hurting myself (its causes severe pain later-Costocondritis pain). I guess we’ll find out. It took some effort, but I managed to get it out of fridge and into oven. It’s heavier than I remembered. Had to google how to cook it because I forgot. Ugh! I almost forgot to take out the innards. Oops! If only my memory would cooperate better.

6:00pm- I’m begining to feel the effects of my efforts today. Chest is beginning to throb and so is my right arm & elbow. I also have. Headache.

Sept 8

7:30a woke in great pain. Hard to move. Hands numbish & tingly, very swollen. Rt wrist and arm ache. Neck throbbing. Headache. Feet hurt. Back throbbing. Rt hip aching. Nightmares last night. If I could cry, I would.

Stayed home. Fell back to sleep. Scared awake around 11am by a mower.

I guess I now know not to clean laundry room again anytime soon. Have to figure out how I can managed to get things done without hurting myself. 

Sept 9 – no entry

Sept 4

1:19am- upper arms hurt, hands going numb, wide awake…not good

1:48- still wide awake…ears hurt, rt hip aches, center of chest burning periodically. Took melatonin & pain med.

 10.46p LATE AFTERNOON UPDATE ON GORDON: Gordon is expected to make landfall tonight just west of Dauphin Island, near the Alabama/Mississippi border, as a category one hurricane. Gordon now is packing sustained winds of 70 mph, and the pressure is right at 1000 mb. Some strengthening is still possible before it reaches the coast tonight.

10:47- my whole body hurts! I have a headache. Power has been out for an hour now. Don’t know when it’ll come back on. Storm is making me tense.  

Sept 5

My whole body still hurts. Hard to move. Entire back throbbing. Rt ear hurts. Hands swollen and achy. Sharp pain under rt middle finger that shoot up entire hand. Arms hurt.

12pm- tried to clear kitchen table by putting paint in Dezirae’s closet. I accidentally dropped one jar. The lid  popped off and split gray paint on tan floor! Ugh! Joe used paint thinner to get up as much as possible. House stinks. I wasn’t thinking and washed Dezirae’s blanket with rags!  

Sept 6

• Dog & lion
• Current governor
• Mayor
• Month & year
• Envelope addressed sealed stamped
• Orange & banana
• Spell world backwards

https://www.verywellmind.com/ocd-and-traumatic-brain-injury-2510479

https://www.capegazette.com/article/what-do-lion-and-dog-have-common/1142