Lightning Strikes Journal Entries 11-12 May 2021

May 11

800a woah I didn’t think I could hurt worse than last night. Feels like a combination of being beaten up exponentially and a rigorous workout. Every fiber of my being hurts.

Slept pretty good. Only woke couple times. One time woke to old hymn playing in my brain – one I hadn’t heard in a while. Can’t remember it now. Still tired and moving very slow.

Bible Reading: 2 Chronicles 2-5, Ephesians 4:32,

A fellow LS survivor asks the question Why me syndrome? I’m not sure how to answer bc I’ve not asked that. I’m thankful it was me and not my children. I wouldn’t even wish the constant pain and struggles on my enemies.

https://therevealer.org/the-patient-body-chronic-fatigue-syndromes-spiritual-causes-and-cures/

I know God has a purpose and a plan (Jeremiah 29:11) and nothing takes God by surprise (Isaiah 41:22-22, Psalm 139:16-17, Romans 8:28).

Beginning to wean myself off the propranolol. Start by taking only 1/2 pill at night – this starts 2nd week of doing so. If all goes well, I’ll reduce more next week.

Also, alternating reducing bp rx. 1/2 pill & 1/4 pill every other day. Been doing that for 2 weeks. Bp is 122/74 hr 62.

AM meds: Edarbyclor (1/2 & 1/4 pill every other day), Propranolol, Dexilant 30mg every other day, Echinacea, B12, Niacin, C

Pushed myself to transplant tomatoes to container garden so I won’t loose them.

Need to go get my flash drives from church so I can finish end of year grades. Need to get Jordon’s diploma soon.

Another thunderstorm coming, I can feel it.

Twill be down rest of day bc when I hurt this bad moving body is difficult and painful.

250 just finished Jordon’s and most of Raes grades. Brain hurts, head hurts, vision blurring, neck hurts, body hurts, very tired, thirsty, hot. Laying down for 30 minutes or so to rest brain.

900 center of chest hurting like I was punched. Whole body aches but not as bad as when I woke.

1030 finally finished grades for both Jordon & Rae for this school year. What a relief. Now to work on planning next year and submitting enrollment form to new cover school.

Need to focus on planning graduation ceremony to which I’ve never done before. . Lord, please help.

Slight headache, neck hurts, chest pain in center that radiates thru to back, arms, shoulders, and hands ache, hands swollen, legs and feet stinging burning throbbing pain, periodic sharp stabbing pain in arms during day, ears ringing, rt hip aches, tired but awake, cotton taste in mouth

Night meds taken, 3 Tylenol for pain, 1 tsp Colloidal Silver in water, 1 tsp Colloidal Silver swished in mouth. Can’t believe the difference on my tongue.

 

May 12

700 forgot I set alarm. It scared me awake causing muscle spasms on rt side of torso and chest. Deep breathing to calm. Took 5 minutes or so. My body aches deeply all over. Feels like I was badly beat up. Hurts to move.

Bible Reading: 2 Chronicles 6-8, Prob 31:10, 27-28

Balance check book and pay bills through this week.

1200 off to bid friends of MYSEAHOPE a fairwell as they are heading to St Vincent.

Dezirae got to help untie the ropes to help them head off on their voyage.

They gave me their van to help me get the therapy and treatment needed for my recovery. I wasn’t expecting that. It made me want to cry happy tears. I’ll miss them but pray for safe travels and that they’ll reach many souls for Him. Part of me wishes I could go.

3:45 center of chest hurting horribly. Heat pad on chest. Plus 4 Ibuprofen.

4:30 rt ear hurting. Ears ringing.

530 go to pick up van with Joe. I didn’t realize it had a moon roof that works! God is good. Talked with Hailey for while. She wanted me to sing to her several songs. Brain couldn’t think…only thought of few songs. She then requested Amazing Grace. She’s a sweetheart.

930 night meds taken. Tired but wide awake.

Whole body aches deeply. Hands swollen and throbbing. Rt ear hurts. Slight headache. Rt hip stinging throbbing. Stinging burning pain throughout body. Top of left foot feels like it was sliced with sharp knife but there’s nothing there. Center of chest throbbing with periodic sharp stabbing pain thru to back. Sinuses congested.

Thankful for…

  1. My own vehicle
  2. My family
  3. God’s grace

Lightning Strikes Journal Entries 4-6 May 2021

May 4

Broken sleep. Woke at 3 to use restroom

5am, 7:15a, 7:35a

Still feeling weird and stinging needle burning throbbing pain increases. Eyes hurt. Headache. Sciatica pain eased some. Going back to bed. Ears hear sound of ocean like I’m holding conch shell up to them but I’m not. Sinuses congested. Sneezing.

Bible Reading: 1 Chronicles 9-11, Psalm 30

Weather aware day… thunderstorming pretty bad. Under flash flood advisory.

Took night meds plus PEA & Gaba. Helps relax and keep migrai at bay.

May 5 

600a woken by thunderstorm. Nerves are screaming thru body. Woke from pleasant dream with song on mind (The Way of the Cross Leads Home).

720 had to wake Dezirae to go babysitting with Grandma. She overslept.

Sat in recliner looking up curriculum possibilities for Dezirae in fall.

Nerves stinging greatly thru pbody. Rt hip throbbing. Hands swollen and achy. Cotton mouth. Skin sensitive to touch. Lower abdomen aches thru to back. Low back throbbing. Headache. Feet & legs ache.

Put load of clothes in wash.

Bible Reading: Psalm 32:8-10, 1 Chronicles 12-14

Worked on planning meals for week, chat with my sister, printed cards for Mother’s day.& Laminated them, washed few dishes, meandered through house doing odd chores picking up here and there (I know I did it but I couldn’t tell you what they were).

Had house to myself until around 3pm. It was nice and quiet – except I had radio on most of day.

Joe rubbing me wrong way today. Nothing he’s doing wrong in particular. I dislike when I get in this mood. Ugh! Lord, please help me think lovely thoughts.

Psalms 19:14 Let the words of my mouth, and the meditation of my heart, be acceptable in thy sight, O LORD, my strength, and my redeemer.

A/C is freezing up. Had to turn it off. I’m hot so it’s going to take a bit to fall asleep.

1030 don’t know where I put my charger for my tablet, but found different way to charge keyboard 4 tablet. I hurt all over. Center of chest hurts. Headache not so bad. Extremely tired. Stinging needles feeling randomly thru body. Periodic muscles spasming thru body. Low back throbbing. Arms tingly.

 

May 6

Didn’t sleep very well at all. I hurt all over. Headache mild. Feet feel like I’m stepping on broken glass. Stinging pain thru body. Lower abdomen hurts.

Song on mind: “In Christ I Am Forgiven”.

Bible Reading: 1 Chronicles 15-17, Psalm 34:8, Proverbs 23:15-21

Sinuses congested. Tongue more covered in lesions.

Can’t find my flash drives. It’s hindering me know getting things done. Ugh. Frustrating. Later discovered that I mistakenly put them in SS teaching bag.

Tired. Hurting all over.

LS Journal Entries: 28-30 April 2021

April 28

Bible Reading: 2 Kings 20-22

Woke to much pain throughout body.

April 29

300 woken by intense burning pain in arms, hands, legs, and feet. Sinuses severely congested. Bad headache. Had to take tylenol and 1/2 Benadryl to get some relief.

Took couple hours to fall back to sleep.

700 woke thinking I overslept. Still in much pain. At least headache has eased a little.

Bible Reading 2 Kings 23-25, Psalm 51

1200 worked on completing Jordon’s grades and submitting them for graduation. Brain is tired, legs below knees tingling and burning, feet & ankles freezing. Need to rest.

Just went on trip last weekend and haven’t been able to rest and recoup. I’m hurting quite a bit, but praise I’ve not had a migraine since I started taking a Palmitoylethanolamide (PEA) supplement.

Dezirae and I finished up at Lawana’s house for her daughter, Gaynor, this week. The Estate Sales people take over now. It’s seams surreal and bittersweet.

We were able to lead a teenager boy to the Lord during counseling last night. Praise the Lord! I’m hoping he will ring the bell in church tonight.

Today devil is fighting thru some people that know better. The natural man wants to reach out and touch someone, but I know I can’t.

It’s all just catching up and hitting me at the same time. Lol. I’ll be okay just need a day to rest and relax.

Was supposed to attend another funeral tomorrow, but Joe is letting me off hook and will take Jordon with him instead so I can rest. He’s even going to cook dinner for me tomorrow

11:00p Praise! The young man that got saved rang the bell in church tonight.

 

April 30

700 saw Dezirae off on her trip with Grandma, cousin, & aunt to see her Great Grandma.

Legs below knees to ankles burning, stinging, throbbing pain. Feet cold and tingling. Eyes watery. Sinuses congested.

Bible Reading: 1 Chronicles 1-2

In much pain and feeling very lethargic today. Thankful to be able to rest today.

Went back to bed until 10am. Probably could sleep longer but won’t.

Thunderstorm began about 11am. Glad we postponed Jordon’s pics.

500 Joe cooked Bbq ribs , mixed veggies, and tator tots.

723 researching benefits of Gaba

https://www.webmd.com/diet/health-benefits-gaba

“various lifestyle and genetic factors can throw GABA out of whack” what about traumatic experiences like a lightning strike? Hehe.

https://www.google.com/amp/s/amp.mindbodygreen.com/articles/gaba-what-is-it

930 going to bed. Exhausted and did hardly anything today.

In so much pain, stinging burning throbbing pain throughout body. Low back throbbing burning. Took Gaba – 1 capsule – to calm brain and nerves. Hoping it helps.

Taking tylenol to ease pain so I can get some sleep.

Tummy hurts from eating sugary foods today. Ugh! They are not my friend.

Thankful for…

  1. A caring, loving family
  2. To be alive
  3. Even on bad days, I can put my trust in Him.

Lightning Strikes Memoirs – 10-11 April 2021

April 10

330a severe thunderstorm woke me again. Nerves on fire. Thunder & lightning making me jump.

400 woken by severe thunderstorm. Nerves are very tight through body causing extreme pain!!! Trying prayer and hymns in my head

600a finally fell back to sleep for half hour then alarm went off ugh.

Bible Reading: 2 Samuel 19-21; Psalm 80

900a thunderstorm suppose to ease by 10 or 10.30a. Men have prayer breakfast today. Mom, Dezirae, & I going out for girl’s day.

300p I decided to push myself while out shopping with Mom & Dezirae instead of using wheelchair. Wanted to see how it’d effect me. I’m exhausted and getting sleepy.

400p came home and went straight to bed. Set alarm for one hour but apparently I shut it off bc next thing I know Joe’s waking me for supper at 7pm. Not feeling too well… grouchy and hurting. Indigestion is horrible.

Pushing myself that much is not good idea. I’m hurting much all over, groggy, exhausted, grouchy, miserable.

724 Holly calls to chat. I’m still trying to wake up. I chat the best I can but not doing so hot. I hand phone over to Joe. She agrees with Joe I did too much today.

1100 gone to bed but still awake. Indigestion is horrible. Took gerd rx, tums, and ginger chew over last few hours. Finally easing up. I feel like I was beat up. Will definitely be using wheelchair on our trip to see Jakob. Took night meds plus pain rx.

Center of chest sharp throbbing pain.

 

April 11

500a woke to nerves in body screaming in pain! Center of chest throbbing. I think why’s the costo flaring up? Then I remember that I worked in garden couple days ago. Ugh. Did too much walking y’day and I’m paying the price.

Bible Reading: 2 Samuel 22-24; Psalm 77:13-15;

600 wish I knew how to turn off the alarm on the clock. I goes off just as I’m dozing back to sleep and wakes me all over again.

1100 sharp shooting throbbing pain in forearms to elbows while playing piano. It’s bad enough I want to quit playing but I continue bc I know that music is important in worship.

Brain is getting blurry and aching. Makes it difficult to focus and coordinate my eyes, brain, and hands. Feels like brain is starting to swim in a myriad of numbers and letters trying to figure out which way is up. Momentarily forget tune of song and make mistakes. My flesh wants to throw my hands in the air and quit, but my spirit is willing to keep trying. I say quick prayer saying “Lord help.” Quickly the fog begins to fade away and I remember tune and am able to correct myself though I still fumble in spots through music. Thank you Lord.

530 choir practice was a chore. Brain blurry and I feel cross-eyed. Balance is off. Unable to focus enough to do word find in bulletin presently.

600p Joe told me to take break from playing

Had difficulty singing hymns at first. I couldn’t find the right note. Closed my eyes to visualize the correct note but not working well. Looked up to see Joe signing to me to sit down. Apparently I started wavering when my eyes were closed and didn’t realize it. Once I sat down and gained stability, I was able to hit the right notes. Hmm? Wonder if there’s any correlation?

After church, Joe picked up dinner from Zaxby’s so I wouldn’t have to cook. I adore his thoughtfulness sometimes.

Brain hurts. Headache. Whole body aches deeply. Hands swollen and throbbing. Nose itches. Rt ear aches. Sinus drainage. Back aches and stings. Low back throbbing. Rt hip hurts. Legs ache with periodic stinging and itching. Feet cold. Toes icy. Joe’s arm feels like lead balloon. Tummy bloated and hurting.

 

Lightning Strikes Memoirs 14 – 16 August 2020

Aug 14

630 woke from horrible nightmares and in severe pain thru body. Arms & hands numb & tingly. Rt hip throbbing. Whole back throbbing. Legs stinging. Toes tingly. Head hurts.

700 Read Bible Daniel 1-4; Rev 3:19-20; Acts 16:30-31

If only we as Christians would collectively have the boldness to take a stand as Daniel, Shadrach, Meshack, & Abednigo did.

730 started straightening the living room & kitchen area. Carpets dirty…put them to wash.

800 pain level 7/8 today. Laying down to rest a bit.

1100 Mom asked us to check out Ollies with her. We agreed. Found Cmas present for Jordon. Hide in room only to hope I remember where I put it later. Lol.

12:45 Stopped at grocery store to get the ribs & cheesecake for dinner. Found BOGO deal on ribs but forgot the cheesecake 🤦.

2:00 Jakob said Dad forgot the cameras. Ugh. He was asked to bring them to them. Asked Jakob to get the cheesecake for me. Whew! Almost blew that one. Celebrating Joe’s SP Bday. It’s hard to be excited when you’re hurting.

Friend was suppose to stop by to pick up books but she explained she was having high pain day. I completely understand.

Naproxen hasn’t touched it.

230 severe thunderstorm ensues. Keeping myself preoccupied with movies I haven’t seen before.

930 going to bed. Hurt from head to toes. Headache. Severe pain in low back. Rt hip aches. Throat feels like I have frog stuck and it won’t clear. Lower legs throbbing. Toes & feet tingling & stinging. Hands swollen and throbbing. Lft collar bone area throbbing. Sinuses congested.

Hopefully, Joe’s paycheck will be fixed come Tuesday. Thankful we had $ saved to be able to pay mtg in Nick of time but will have to replace it come Tuesday. Lord willing.

Vitamins/Rx taken:

Magnesium Complex, Propanolol, Turmeric, Zyrtec, Vitamin C.

Drinking Chamomile Tea to help me sleep.

 

Aug 15

745 horrible thunderstorm during night woke me out of sleep. Body tensed causing more than than I was in. Kept me awake for little while. Joe started rubbing my back to help.

When will thunderstorms stop inflicting so much more pain in my body? I just so bad I just want to cry.

1145 didn’t do much of anything today. I hurt so bad. Able to do some things to keep mind off but it only worked for short while.

 

Aug 16

6am woke sometime in middle of night freezing to death. Got frustrated trying to find covers. Joe helped. Later told me as he tried helping me cover up his hand touched my body and it felt like ice! Took bit to warm up to fall back to sleep.

I hurt so bad it hurts to move. Rt hip throbbing. Both hands and arms numb & tingling. Whole body deep stinging pain. Headache. Grumpy.

Not looking forward to starting school Monday. Had a certain way it was going to go bit

345 got up from resting. Hurt worse than before laying down. Pins & needles feeling in legs and feet making it painful to walk.

400 I’m freezing again. Put sweater on til I warmed up.

Not sure if hormones are out of balance or its a nerve issue or both

Lightning Strikes-Journal Entries 22-23, 2020

June 22
Woke around 630 couldn’t fall back to sleep. Low back throbbing. Sinus severely congested and difficulty breathing. Upper back stinging slightly. Hands swollen & throbbing. Arms achy and little tingly. Legs throbbing. Feet hurting. Headache.
Made waffles for breakfast. Burnt tip of rt ring finger on chocolate chip causing blister instantly.
900 it’s been thundering off an on most of morning.
1030 just finished making bed. Wore out and exhausted. Arms throbbing. But able to do it slowly by myself. Need to rest a bit before next task.
930p in bed early tonight. I’m wore out from day’s events. Able to fold two loads laundry half way thru arms started fatiguing and cramping. Rested a little while & finished.
Kids helped me clean & rearrange pantry. Found file cabinet at thrift store. Took most of day.
Whole body aches. Rained off and on all day. Didn’t hurt as bad as usual to start think the pain rub on bottom of feet helped. Arms & hands numb & tingling. Low back throbbing. Rt hip aching with pain shooting down leg. Lft ankle hurts. Ears itch. Nerves crawling. Lft neck to me doesn’t look like it’s getting better but Joe says it does.
June 23
700 woke to much pain thru body. Definitely overdid it yday. Sharp stabbing pain in lower lft leg starting just above ankle & shooting upward thru leg. Hands swollen & stinging throbbing. Pain pulsating thru body. Feet hurt to stand on.
930 Dezirae cleaning house today. It’s been thundering & raining on and off most of morning. I can feel it too. My body hurts horribly all over.
230 I need a nap but need to make pit stop at store to get few misc items & items for dinner. High pain days wear me out easily. Doesn’t help I’ve pms too.
245 store out of wheelchairs. Legs are burning & back is stinging. Must push to walk behind buggy. Dezirae sweet. Told me to walk as slow as I needed. Bless her heart.
330 Muscles thru body stinging & I’m exhausted.
830 hurting head to toes. Stomach cramping horribly. Headache. Going to bed early to curl up in ball with heating pad.

Lightning Strikes Journal Entries 18-19 June 2019

June 18

8:00a- rough night. Didn’t fall asleep until after 1am so much pain. Woke every about two hours. 

9:30a- made pineapple upside down pancakes for Jakob. They were delicious.

10:36a- its thunderstorming! Every nerve hurts. Extra unbalanced. Sinuses congested in overdrive. Brewing some thyme tea with oil of oregano to help.

1:53p- need to pick up few items from store. Sitting on floor in Wal-Mart. I’m wore out from shopping for few items. No wheelchairs available. Realized I forgot to drink my tea.

2:30p- came home, ate lunch, and crashed for about hour. 

10:29p- kids finally home. Whole body aches. Lower left leg numbish. 

Rt hip aching. Headache – was migraine earlier but took rx to ease it. Low back aches. Muscles randomly twitching throughout body. Neck hurts. Muscles fewl tight. Having trouble remembering to do things.

June 19

Had tough day trying to get things accomplished. Scatter brained today even with list. 

Head & brain on the dizzy side most of day. If move head too fast .

Recvd bad new that my chiropractor had massive heart attack over weekend. Next 24  hrs critical. Prayers for his survival and comfort for the family.

Rt hip throbbing intensely. Arms and lft hand numb. Headache. Lower left leg numbish with tourniquit feeling. Hands swollen and achy. Whole body aches. Upper shoulders burning and sting.

Took walk with Joe short ways. Had to stop part way to catch up with sea tossed brain. Felt like I was about to tumble.  Happened at store couple times too. 

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