Author: Melissa

June 1

7:30- tired of waking up to hurting all over but need to be thankful I woke up and have one more day to serve the Lord.

9:30- throat & jaw hurt from singing. Ugh! 

June 2

7:00a- whole body aches, trouble getting up bc every move I make inflicts more pain, severely congested, headache

8:45a- keeping journal of all my pains is depressing. Hope I don’t have to do it much longer. 

9:20p- good day overall. Talked with Jakob for while, visitor at church, sweet fellowship at church too

10:30p- I’m exhausted and aching. Feels like I’m gonna crash.

June 3

3:00a- woke to severe stomach cramping…ended up curled up in ball to fall back asleep

5:00a- woke to intense lower back & rt hip throbbing and muscle randomly twitching throughout body…repositioned to ease pain so I could get back to sleep

7:30a- whole body aches

5:14p- been trying to type up notes for Drs next couple days in between chores. 

May 30

8:00a- body hurts all over. Hurts to move. 

8:50a- bloody nose – only thing different doing is taking flexeril for muscle spasms at night before bed. Ugh! Bp 118/74

9:00a- getting ready (makeup & hair) causes horrible muscle spasms in my rt arm & hand. It’s almost as if it’s stuck in perpetual spasm mode. 

1:00p- took kids to Wendy’s for lunch. All the different patterns made me dizzy. Had to hold onto Jordon’s arm to keep me from falling. Upon ordering, I had to have the cashier repeat herself 3 times and I still didn’t understand her verbiage. Had to have Dezirae repeat what she said. 

3:00p- tried to go to Payless to get shoes but they already closed permanently. Shoes for kids. Stopped at Goodwill, Dirt Cheap, & Ross’s. Found $100 shoes for Dezirae for $9, but nothing for Jordon yet.

Anxiety kicks in horribly when driving especially on interstate/highways. Have to listen to classical music and pray a protective bubble around us to keep it to minimum. Have to have kids help me bc I don’t have good turning range in neck anymore.

10:24p- I’m exhausted from day but can’t sleep. 

https://www.healthline.com/health/musculoskeletal-disorders#treatment

May 31

8:30a- rough night. Severe stomach cramping woke me up at 1:45am. Took long time to get back to sleep. Whole body aches and musclez randomly twitching/ spasming throughout body. Need to get up to distract brain from pain.

https://medlineplus.gov/ency/article/003296.htm

10:37 headache, neck and shoulders hurt

2:57 – I have no energy today. Pushing myself to wash clothes, went to bank to get register to balance checkbook (that took over an hour) so I can pay month’s end bills. Feel lethargic and weak. Body hurts all over.

Trouble with vision (blurry) and speech  (words not coming out I was going to say “why you shaking your head” instead of “hand”?)

It’s been really hard to keep two journals going. 

5:24p- making dinner. Most activity brings on pain. Knowing now that I have musculoskeletal problems answers why I hurt but I’m not sure if or how to fix it. I’ll find out more next week. Doesn’t make it any easier.

On days it seems as if everything is a hassle, remember that the sweetest victories come often after the greatest challenges. Lord, help me to listen to You gently whispering, “Don’t quit, my child. Don’t quit now.”

Hebrews 12:1 Wherefore seeing we also are compassed about with so great a cloud of witnesses, let us lay aside every weight, and the sin which doth so easily beset us , and let us run with patience the race that is set before us,

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May 27

7:00a- rough night – sharp pain in rt hip couldn’t get comfortable. Had Joe rub it – said it felt like it was out of place and swollen

Trouble getting motivated to move – whole body aches

4:23p- kids are bowling

May 28

7:00a- whole body aches feels like I got beat up, don’t want to move. 

Today we return home. I’ll miss my Bubba.

Today is bitterwseet. Enjoyed spending time with Jakob, meeting his girlfriend & her family. Don’t want to leave him behind, but looking forward to getting home.

6:40p- arrived home

9:27p- I’m exhausted and ready to collapse. Every inch of me is throbbing! I’ll have to take pain pill & muscle relaxer to sleep tonight.

May 29

7:20a- whole body hurts, hands numb and tingly left side more than right, neck hurts, muscles twitching randomly throughout, thirsty, nasty taste in mouth, congested, head hurts, stomach muscles hurt, upper back aches, tired.

8:47a- low back throbbing

2:30p- put food in slow cooker (swedish meatballs).

3:00p- migraine ensuing – all lights bothering and hurting eyes, noises hurt too, eyes watery – had kids turn off all lights and close all blinds – need to sleep it off

5:00p- Joe helped me finish dinner once he got home. 

10:00p- managed to wash 5 loads clothes today but had to have help. Got most of clothes put away but had to do it in spurts and have help. 

May 25

5:48p- sitting outside waiting for table. Rt arm throbbing and cramping. Joe massaged arm to ease pain. Heat getting to me not feeling well.

9:27p- noise inside restaurant too much for me. I couldn’t focus on any one conversation too many loud noises coming at me in all directions and the music was loud.  I wanted to initially run away but didn’t want to ruin meeting for Jakob & Brianna. Not feeling well. Think meeting went well. Jakob & Brianna are offically a couple. 

11:14p- I’m exhausted.  Feet freezing. Having to right down all my pain whay and how I got rid of it is a bit much for me. Low back hurting.

Mary’s Praise
Luke 1:46-47 – And Mary said, My soul doth magnify the Lord, And my spirit hath rejoiced in God my Saviour.

Mary’s faith allowed her to be joyful in the journey.

May 26

3:00a- woke up suddenly. Got up to use restroom. Stomach hurting. 

7:00a- whole body hurts!!! Trouble having motivation to get up today. Know pain will only ease some if I start moving. 

8:00a- went to bkfast holding Joe’s arm. Forgot to grab cane. Joe was sweet. He seated me at table and got my food. Not hungry but know I can’t take meds/supplements on empty stomach. Held Joe’s arm back to room. Rested a bit before fixing makeup. Arm throbbing. Applied pain roller. Drank green tea to take meds.  Rested arm a few moments.

6:19

Sharp pain shooting up forearm from tip of middle finger – sitting in church- not much I can do

Crossing rt leg over lft leg – shoots pain from mid lower leg to top of thigh- subsides after reshift of leg about 10 min

Ankles swollen and throbbing- layibg in bed don’t know reason for bed- guess I’ll have to sleep it off

May 23

7:00a- having hard time waking up, Body sore.

8:00a- just found out Yanna’s graduation is today at 9:30. Need to go.

9:30a- made it. Low back throbbing. Headache.   It’s also Jackie’s graduation. Music is loud. I can feel it in my bones.  Sitting on benches hurts tailbone. The longer I sit the more parts of my body hurt- neck, low back, ears, arms, upper legs, stomach, hands, butt, middle back, shoulders, lower legs, ankles, feet, elbows, 

6:28p- rt hip hurts (sitting down. Very upset because floor I worked hard to refinished now has gauge in it bc son not taking his time dropped heater on floor. I want to scream. Tried to talk to husband. Attitude is nonchalant. Ugh!)   

Headache- upset because of floor, Low back pain- bent over to pick up something off floor

8:30p- Rt ear & jaw hurt- sitting in car- 

Low back hurts- standing/walking behind buggy in store

11:10- stresses out trying to finish packing for trip. Brain not cooperating. Stressing Joe & family out. Not trying too…I’m just not getting things (dark blue vs dark pink glasses). 

Rt ear throbbing. Had to replace temp filling. Nerve exposed. Putting Vicks cotton ball in ear to ease pain. Pain rx hasn’t touched it yet.

May 24

5:15a- I’m hurting all over!!! Stress does not suite me all at.  I’m exhausted.

5:30a- Today we’re going to see our son at college. I’m excited but not looking forward to pain trip will cause.

https://www.webmd.com/pain-management/guide/musculoskeletal-pain

4:06p- made it to hotel safely. Enjoyed a dip in pool. Now relaxing/resting for a bit

11:36p- think I’m fairing well. Ate dinner at Applebee’s. Not impressed though burger tasted good. Shopping and then ice cream at Chick-fil-a. Met Brianna. Jakob’s co-workers seemed nervous to meet us. Now at room. Guys watching weird movie. Think I’m going to try to sleep. Starting to hurt more.

May 21

 4:30a- woke just before Joe’s alarm (funny, I don’t ever remember hearing it before). Decided to research how many time I can use thyme leaves.

www.medicalmedium.com/mm101/medical-medium-thyme-tea-water.htm&ved=2ahUKEwiYotHcqaziAhXrguAKHZXDBR8QFjARegQICRAB&usg=AOvVaw1TFvR-FlGo29Fja3qNgg48&cshid=1558431835646

5:25a- sinuses are amuck. Joe says it’s about that time. I have trouble every couple of months. I thought it was just in Spring & Fall -apparently not. Took Tylenol Sinus.  Hope it helps soon, I can hardly breathe with all the mucus and congestion.

6:00a- whole body aches, ankles and wrists throbbing, muscles twitching in left leg, low back throbbing, eyes watery

8:30a- a new friend messaged me that she was praying for me. She used a term that I don’t recall Dr’s using to date. I looked up term. I fit description.  I now have something else to shew my Drs. Hopefully, they’ll be receptive.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3669472/

Article has several medical terms I can relate too that haven’t even been discussed with me…keraunoparalysis,  urinary retention, etc.

10:18a- have blister on tip of thumb. I keep hitting it and it hurts! Don’t know how I got it.

10:50a-Praise Jesus! I found black DMC floss!!! Looking for something else trying to get ready for our trip.

11:30a- Thrush continues to baffle. I have to watch what I eat to and not overdo too much to keep flair ups to minimum. Best we can figure is it has to do with the lightning strike and my immune system. 

2:45p- just finished posting week of journal entries to blog. Now have headache.  Low back throbbing. Feet freezing. Putting socks on and resting with heating pad. 

8:00p- trying to figure out how to shorten t-shirt sleeves. I know I’ve done it before but can’t remember how. Thought I saved tutorial on Pinterest but can’t find it. Decided to give it a try. Kind of messed up…now trying to fix my mistake. Ugh! Guess I better take break and try again tomorrow. 

10:28p- Been in bed for over an hour. Enjoying talking with Joe. Joe says certain parts of my skin feels hot to the touch like they have fever. It’s weird. He’s now sleeping and I’m wide awake. Guess I’ll write a piece or something.

Low back throbbing. Sciatica and rt hip throbbing. Feet tingly. Rt ear itches. Headache. Lymph node swollen at base of left neck. Lower lft leg feels like tourniquit is tightening.

May 22

10:00a- first mtg with PT. Excited but nervous. 

11:30a- Blair specializes in neurologic physical therapy and teaches at the college. She had two students with her observing and interjecting their thoughts. She may even video some of sessions for training purposes and to gage progress. She did series of tests to check strength, dizziness, muscles, and musculoskeletal issues. It was determined that I have musculoskeletal issues, vertigo, fatigue, gait issues, multitasking issues to start. She has more tests she wants to do but didn’t want to overtax me. She took notes whole time and will put together an action plan to discuss next time. For now, I have homework. 1. Note every pain, what I was doing to cause the pain, & what I did to ease pain. 2. Note every time I get dizzy, what caused it, & what I did to ease it. Whew. I thought my notes were already long.  She said I was very organized with my notes. Wished all her patients were that way.  One of tests I had difficulty on. I had to walk and name different animals as I walked. I couldn’t do it. 3/4 way through I admitted I was embarrassed cuz I couldn’t remember any names of animals. It was so hard to talk and walk. I’m exhausted and need to rest a bit.

3:45 lower left leg tourniquit tighten feeling – out running errands (pick up rx), Dizzy, Center of chest hurts, low back hurts, 

10:27- I’m exhausted and wore out. Brain taxed and hurts. Low back aches. Lower left leg squeezing feeling easing. 

Feel like because I didn’t get packed and didn’t take route just right I didn’t do good enough. Frustrating.  

Vestibular Disorders

https://vestibular.org/understanding-vestibular-disorder/symptoms

May 19

 7:30a- In lots of pain did too much yday. Upper torso throbbing. Bp 125/77. Tummy upset. Slight nauceaous. Actually lost the ice coffee I drank this morning. Vomiting makes me hurt worse.

9:00- stomach calming, mildly wobbly

3:30- thoroughly enjoyed music and preaching. Had 30 today. One person joined church. Able to give him a Bible. My highlight was being asked to join singing group on stage to sign chorus with them. I ended up singing and signing. I almost started crying because I remembered something I had forgotten about…a life time dream was fulfilled…since I was a teenager I’ve wanted to singing with a travelling group. #God is good!

On way home, Joe told me that one of singers commented that I was a miracle. I asked why? Joe said because even though you were struck by lightning you’re still able to play the piano, sing, and keeping going. I just replied, “Oh.”

4:30a- came home flat exhausted. Tailbone throbbing. Sat on heating pad for a while. It helped ease it some. Crashed for two hours. Kids told me to sit an rest and they would put things away.

Dinner was fend for yourself leftovers.

10:54p- I’m exhausted and throbbing in pain. During church, Joe leaned over kissed me on forehead and told me he was proud of me. It finally registered once home after my nap so I asked why. He replied for all you’ve done that last several days and for keeping pushing forward. I said thanks.

Tailbone throbbing so bad have to lay on belly, arms going numb, hands swollen and achy, shoulders hurt, feet cold, chest hurts, low back throbbing. Positive I didn’t get a headache until now.  Lower left leg from 4″ above ankle down to toes tourniquit tightening feeling. 

May 20

6:00a- I’m so tired and just woke up. Oh my aching body!  At least I woke one more day.  Tailbone not hurting as bad as it did last night.  Ankles and feet feel numbish and chilled. Arms were numbish when I first woke. Stomach hurts. Congestion. Sneezing. 

7:28a- why do my arms have to hurt so much just for trying to fix my hair? 

12:30a- took kids to Dr for checkups. Jordon had to have x-ray at hospital for scoliosis. Went to Sams to pick up few items. I’m wiped out. Need to rest a while.

3:45p- Fell asleep for couple hours on chair in living room. Tailbone and neck aching. I feel so wiped out today. Keep trying to do little chores at a time. Kids keep telling me to rest. 

Almost dropped a mason jar on floor able to catch it but in doing so caused left side to cramp. Ouch!

Sinuses acting up. Drank chocolate milk with crushed ice, D.E., chia seeds, & Collodial silver.

Lft hand began cramping trying to clear table for dinner. Told Dezirae it was cramping and I was being a baby. 

8:00p- D.E. only gave me little energy for couple hours. I’m wiped. Low back aching. Lower left leg feels like tourniquit is tightening from middle below knee to foot. Rt ear aches.  Throat scratchy. White marks on tongue more prominent. Lymph nodes on side neck swollen. 

Drinking thyme tea with oil of oregano, peppermint oil, copabia oil, and stevia.  Swish inside mouth then swallow.  

10:45p- still awake. I hurt all over. Tourniquit feeling on lower left leg increaseth. Low back throbbing. Constiation. Hands  and wrists hurt, actually whole back throbbing. Need some sleep. Center of chest hurts.knb

May 17

5:30a woken by extreme sharp pain in rt side! Rt hand numb. Feel like I broke fever.

8:00a- whole body aches with pain. Gotta get moving to see I can forget about some of pain. Taking shower was painful and got me out of breath this am. I not understand why it pains me so to raise my arms above my heart.

11:13a- put meat in crockpot for dinner. 1/2 hour later realized that I forgot to plug in crockpot. Think I figured out how to make hydroponics 5 gallon bucket. Had kids help get it put together. Needed to transplant tomato plants. Hope it works.

Hung 2 loads of clothes on line (I know I’ll feel that later. Need to rest a piece I’m already wore out!

2:00p- watched movie. Sweet Inspirations – made me cry. I want to make difference in people’s lives like that woman did. 

3:00- worked on putting visitor bags together for Sunday. Kept messing. Had to ask Dezirae to help me. 

5:59p- forgot to put rice in crockpot. Had to cook stove top. Made too much. At least we have leftovers. My gait is quite wobbly today. Tired and ready for nap. 

7:00p- attending graduation at FCS…while watching videos parents put together for the 10 graduate, I became emotional basket case. Our Joe Jr would’ve graduated tonight.  Been thinking about Joe Jr and Charity more lately. Not sure why or what it all means. Kind of feels like I’m reliving it again. 

Excited to see crowd turn out. House was packed. Had to put out additional seating. Got kick out of Bro. Aaaron get excited over the crowd. Thought they did good job handling it all.

10:38p- a little taken back by people asking how I’m doing as well as a couple even said they enjoy following my posts. I guess I need to figure way to do better on keeping up with posts on progress. Currently looking for new Dr’s but funds are limited. If I could get just one Dr who cares to listen and learn with me towards healing and affordable. I’d be grateful.

Maybe need to think of how to post without gory details. Maybe indicate trigger warning. I’ll have to pray about it. I didn’t realize people were actually following me that closely. Wozerz! 

A lady said she loved how we redid floor at church. Asked how I came up with it. Told her I was just trying to use resources we had around church. Another lady couldn’t believe it so I shewed her a picture. 

I didn’t think people paid much attention to me. I’m kind of stunned. Don’t know what to think but to God be the glory! Not wanting to sound all spiritual bc I’m not. Lord knows the battles I’ve been facing. I’m just a sinner saved by grace who wants to point others to Him. He alone is my strength and shield

Psalms 28:7

The Lord is my strength and my shield; my heart trusted in him, and I am helped: therefore my heart greatly rejoiceth; and with my song will I praise him.

I’m exhausted and feel like crashing soon. Entire back aches, rt hip aches, dizzy, slight headache, lft eye feels droopy, stuffy nose with congestion, hands achy and swollen, lft lower leg feels like it’s being choked, shoulders ache, neck hurts, arms hurt, legs ache

May 18

6:25a- strange dreams. Legs, feet, and arms throbbing. Rt hip hurts. I’m cold. 

About choked on my meds this morning. Guess my throat is a bit swollen. Upper torso aches, neck hurts. Slight headache. Maybe  if I get moving I’ll be distracted from the pain.

9:50a- realized that I forgot to finish preparing food for dinner. Beans soaking in crockpot on counter not plugged in & meat in microwave to thaw. Ugh! I’m not even gonna be home for several hours. I guess the stew is going to be more hoboish than planned. What a mess. Lol.

11:00a- though frustrated and scared, God allowed Jordon & I to lead a man to Christ today. Jordon did great keeping me calm and moving forward when I wanted to panic and run away when we encountered large dog barking even though he was chained and fenced! 

I’m exhausted and hurting but have to keep going. Have to direct church people in helping me get church spruced up for our Homecoming tomorrow. So wish Joe could be here but he also needs to work to provide for family. He does his best and for that I’m thankful though I don’t show my appreciation as I should at times.

1:00a- out to pick up cake for tomorrow. Decided to stop home to put food in crockpot so I don’t lose meat and grab my steam mop I forgot to grab earlier. Brain is not working right.

6:30p- discoverd I put slow cooker on low instead of high. Have to tranfer to pot on stove. 

I’m so ready to be done for day. I hurt all over. Feet freezing. I’m under a blanket.

I can choose to sulk or make lemonade from my dropped lemons.

10:00p- family jumped in to help me make fluffed eggs, coleslaw, and purify water for tomorrow while I finished worship bulletins. Dezirae helped with kids puzzle and fillers in bulletin. She wants to learn to be able to help me (what a sweetie). Whole family is so thoughtful…they’re learning my stress triggers and jumping in more to ease the anxiety. Thankful for their daily help.

11:30p- sharp pin point stabbing pain in rt lower leg enough to make me jump! Overall aches. Lower back throbbing. Ears hurt. Skin itches. Neck & shoulders hurt. Center of chest aches. Arms hurt. Thirsty. 

Still have thrush. I don’t get it. Trying ACV twice a day for a while to see if that helps.