Month: July 2022

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Sept 1

630 rough night. Trouble sleeping. When I did sleep strange dreams.  Shook me to core. Woke feeling like crying but don’t know why.

Migraine has eased. May need rx for sinus infection. Going to drink thyme tea with peppermint few days first.

917 joints all stiff and hurting. Muscles randomly spasming thru body. Neck and shoulders tense. Bloody nose. Rt ear hurts. Low back throbbing. Body doesn’t feel right. Head hurts. Nose stuffy. Skin hypersensitive – hairs falling out of bun touching neck feel like glass scrapping skin. I just want to cry 😢.

430p finally remember to call atty office. Spoke with assistance. According to their system my case was closed. I have no atty and must reapply. Mixed emotions (relieved, angry, frustrated, sad, etc). At least I know.

630p Watching tv. Commercial about furniture store.

Dezirae asks, ‘’What person keeps their house that clean?’’

I said, ‘’Not mine right now.’’

Dezirae replies, ‘’Oh, just young pretty mom’s.’’

I reply ‘’what? are you saying I’m not pretty?’’

Dezirae says, ‘’No I didn’t mean it that way.’’ Pauses then says “to Daddy you are.”

I reply ‘’you’re digging your own dog house”

Dezirae replies ‘’I’m digging a deeper dog house in my brain.’’

Joe giggles and says ‘’do y’all hear yourselves?’’

I said ‘’what?’’

He replies ‘’you can’t dig a dog house. Lol.’’

Oh the funny things my brain scrambles up. Lol 😂

930p exhausted and feel like I worked out today. Dezirae reminded me that I did in a way bc my washer quit spinning and I had to wring the clothes out by hand. Took me two periods to get thru one load and clothes are still in dryer. Joe asked friend to come look at it. Will be by on Thursday.

Joe still not get his vacation pay. He is stressed out over it. I try to encourage him but don’t think it helped much. Lord please help his bosses fix mess straightaway.

Rt hip throbbing with pain down leg. Hands throbbing. Thirsty. Skin itchy. Feel bloated, but I did eat several Oreos after dinner. Periodic stinging sharp needle pain shooting in feet up legs. Sharp tourniquet tightening feeling mid lft leg. Neck itches. Applied rx to spot on neck & lft arm. Back of tongue feels slightly swollen and as if it has few lesions. Tongue white coated and has few lesions. Hiccups randomly. Stuffy nose. Headache. Tired but not sleepy. Collar bones throbbing. Upper body hurts. Skin crawling

 

Sept 2

630a rough night. Trouble falling asleep. Active dreams – searching for something not sure what. Wake to head pounding dry mouth stuffy nose and wore out as if I had actually running.

Think I’ll ice my head for a bit. Need to get larger ice packs. Morning meds & 2 Tylenol.

5:00p Joe came home and cooked dinner. I put potatoes & green beans in pressure cooker while he was on way home. Presto new seal works and sides all ready.

815p showers are such a workout. I’m wore out.

1026 head pounding. Night meds taken.

Bad thoughts. Satan I’m residing now flee in Jesus’ name and through His blood. Whole body hurts. Chest sore from attempting to trim limbs. Dezirae did more. Low back & rt hip throbbing. Tourniquet tightening feeling mid lft leg to feet. Bad headache. Sinuses congested. Neck throbbing. Hands swollen and achy. Arms throbbing. Feet tingling stinging.

Jakob not feeling well. Some of staff have covid. Jakob had to be tested and quarantined until he gets his results back. Sending him a care package tomorrow.

 

Sept 3

727a nightmare scared me so bad as I gasped at the oncoming car that was about to slam into me I gasped (mentally & physically) and scared myself awake! Began praying to calm spirit within and fell asleep praying.

Need to do more on my blog. Need help with my blog but can’t afford to hire a tutor.

Woke feeling like I was in an auto accident – like I’ve been jostled around and beaten up.

Someone coming today to look at washer. Hoping it’s an easy fix.

1045a crazy morning already. Phone acting up. Very irritable but trying hard to hold tongue. Low back & rt hip throbbing intensely. Attempting to do chores around house little at a time. Have to rest in between. Mind wants to go but body says STOP!!!. Head hurting.

430p body hurts a whole heap. Joe picking up dinner. Day has not gone as planned.

Washer may be on way out. Need to start saving for new one. Ugh!

500p Joe called realized he didn’t have his wallet. Needs me to pick up dinner.

1100 excruciating pain in rt hip biofreeze no help. Pain rub no help. Naproxen no help.

Aug 29

1050 I’m exhausted and hurting. Need to take nap to recharge batteries.

Commented that I don’t know why I’m sooo tired.

Dezirae says well you’re not used to making breakfast, a birthday cake, and frosting.

I argued that I didn’t do much.

Dezirae replies, You haven’t done that much at one time since your lightning strike.

I thoght a moment – true.

It has also been a rough of extra pain and migraines from the two Hurricanes that came thru Gulf this week! When I feel this drained, I must rest a while before I can do anything else.

Need to go get items for Joe’s bday dinner. He wants fried chicken, mashed potatoes, asparugus, peanut butter cake with peanut butter icing.

215 exhausted and head pounding. Joe got ice pack for my head. Laying down a bit. Gotta get better unable to get much done in this state

 

https://www.healthline.com/health/dehydration-headache#symptoms

 

https://www.healthline.com/health/ice-packs-for-headache

 

955p icing head once again bc it’s pounding.

 

Aug 30

630 every inch of me hurts greatly. Head pounding. Fingers feel like they’ll explode. Stinging needle pain throughout. No energy.

 

https://store.draxe.com/blogs/all/best-supplements-vitamins-for-energy?

 

8300 clouds getting dark. Looks like it’ll rain any moment.

900 rain let’s loose and down pours. I’m soaked. Good thing I not curl hair this morning. Mascara burning my eyes. Shoes soaked. Ugh!

1120 much trouble playing piano this morning. Can’t seem to coordinate my brain and hands. Eyes are very heavy. No energy.

Three visitors in church this morning. PtL!

345 took a 2.5 hr siesta. I wanted to stay longer but knew I needed to get up.

530 daughter reminded me her shoes broke this morning and she was barefoot. Took her to DG up the road. Not much to pick from. Thankful they had totes everywhere getting ready to restock. Asked if any of totes had shoes. They had cutest pretty lacey looking shoes and had her size.

600 forgot to pick offertory hymn for evening service. Started to look for one but got distracted. Service started.

Difficulty playing some of hymns not that familiar with. I know them (I Want that Mountain) but my brain is saying it doesn’t remember much of it. Some hymns I look at and go completely blank trying to play interlude before starting hymn (I can’t even recall the name of hymn – so frustrating at times). Intro is terrible. Once I start playing hymn, brain says Oh I know this one and I do fairly well job most of time.

Some days my brain is so tired and overstimulated that no matter what I just can’t seem to coordinate my brain, fingers, and keys. Today I had to just stop playing on last stanza bc I just couldn’t get it and though I asked God for help. It was more help to keep me from having a meltdown that help play it even fairly.  Of course, it didn’t help that I have been dealing with extreme pain and debilitating migraines all week.

Never mind that my house is a mess, behind on laundry, grass needs mowing (can’t mow wet grass), need to log grades, haven’t planned meals for week yet, and a long list of other things needing to be done. But God in His rich mercy put me in the path of a great chiropractor that not only recognizes the pains and multiple things I’m dealing with but is also able to help me. I felt immediately relief upon my visit Friday and am continuing to get relief from migraines. Still have headache but at least I can function some now. Need to slowly steady my pace but I will survive with God’s help.

 

No thoughts about it again until hymn just before offering. What ever am I going to do? Mind wants to panic. Heart asks God for help. Can’t blame no one but myself. Decide to play hymn next to hymn just sung. Whew!

 

Rabbit trails are strange at times. Lol.

 

1047p whole body aches. Feet tingling. Low back throbs. Legs achy burn. Hands tingly and swollen. Rt nostril slightly bloody but at least I can breathe clearly without congestion. Headache. Night meds taken.

 

Lord, please help me rest in Your arms tonight and wake tomorrow refreshed and renewed in You.

 

1152 wide awake leg muscles spasming

 

Aug 31

730 rough night. Joe woke up with vertigo kicking in. Dizzy. Vomiting. Woke me periodically during night. Felt bad for him. Gave him two.ginger capsules around 530.

Low back throbbing like toothache. Hands swollen & hurting. Rt nostril stuffy & slight bloody. Headache.

230 thunderstorm come thru.

430 decided to clean wall by trash can. Hot soapy water and bonami. Wiped wall and floor maybe 5 minutes and arms started cramping. Pushed till hurt too much maybe couple more minutes. Rt hand and wrist swollen twice size. Arms burning and cramping. Need to rest before I can do more. Headache.

Migraine. Facial sinus pain. Sinus rx taken. No work. Drink stress relief tea. Sleepy getting. Take relpax. Hope pain in brain help go.

Aug 26

1:30 had trouble swallowing food and choked. Trouble breathing. Choking hurt chest and upper body something fierce. Took while to stop. Felt weak and much pain once stopped. Had to sit a while. Drinking didn’t help either.

400 in great pain. Head pounding. Feeling funny. Nose slightly bloody. Sinuses congested. Hurrican Laura now Cat 4. Will hit LA tonight sometime. Wrists severely swollen & throbbing. Back throbbing. Rt hip stinging throbbing. Muscles periodically spasming. Legs ache deeply to bones. Feet throbbing & tingling. Feel as if I’m crashing. Laying down a piece.

520 took pain rx

530 sudden gush of bloody nose rt nostril

540 Asked Dezirae to get a veggie ready for dinner. Need to sit.

She offered to draw an Epsom salt bath for me after dinner since I was hurting so much. She’s a sweetheart💕

Wouldn’t think that a storm that’s over 300 miles away would have any effect on me so

830 2nd bloody nose while in tub. Lasted couple minutes. Head pounding.

900 head still pounding. Taking migraine pill to ease headache.

1038 still have bad headache.

Curious if my headaches/migraines and nosebleeds can be related?

https://www.healthline.com/health/headache-and-nosebleed#TOC_TITLE_HDR_1

It’s not overly dry outside. In fact it’s quite the opposite due to Hurricane Laura in the Gulf. It’s very humid. My BP is under control with rx though I haven’t checked it in a while. I’m pretty sure I don’t have a nose infection. Unsure about anemia. I don’t inhale chemicals nor do I take wage in or any other blood thinners. I do have a TBI.

 

Aug 27

645 woke to another bloody nose. Makes me feel very weak and drained of all energy. Headache.

1045 headache increasing. Sudden sharp stabbing pains in center of chest. Stop me in my tracks.

100 feeling very weak again. Inside of me feels very spasmodic and trembling. Tired. Laying down a piece. Very tired.

600p bloody nose again. My nose hurts. Feeling weak and drained. Face hurts. Head hurts.

730p Feeder bands from hurricane causing periodic storms today. Storming now.

950 migraine now rages. I’m irritated and very moody. Trying to talk with me sister on phone but having trouble hearing bc hubby talking. Throws me his phone telling me to read his text to my sister. His phone blinds me and hurts my eyes bc brightness all way up. My brightness all way down and is still too bright. Ugh!

Sipping stress relief tea to see it’ll ease headache and calm my nerves. Wanted chammolie but I’m out.

Mom offered me an ashwaghanda in church but I had to decline bc I’m allergic. She forgot. It’s okay.

Looks like I need to schedule Dr apt. Spot on neck is more welty and lump on lft arm looks like it’s growing. Ugh!

I guess its good I’m spacing out. Have chiro apt tomorrow. Can let him see what’s going on.

Tired of the nosebleeds. Nose hurts. Put vasoline in end of nostrils to soothe. Feels weird. Head pounding even in dark room. Whole body hurts.

1100 felt nerves easing slowly first then headache beginning to ease…no longer migraine but major headache. Eyes watering. Sinuses congested.

Applied pain rub to back of neck, temples, & forehead liberally. Took 2 Tylenol. Put phone on eclipse mode

 

Aug 28

530 woke to nosebleed and migraine. Took migraine rx (relpax).

745a Dr apt. Dr concerned about my needing to wear sunglasses inside. Told him have bad headache and been dealing with migraines this week. Also been in great pain bc of the Hurricane. Oh, and bloody noses. He agreed there’s a great change in barometric pressure with the hurricane. He said bloody noses could be related.

Definitely in a bad way this week. Every point he touched was severely sensitive. Admitted I had water leaking from my eyes.

Acupuncture (2 in back of neck, 2 in tops of shoulders, 2 in mid back, 2 in each hand).

Adjust neck & upper back. Iced head. Go back in one week.

930 feel crash on comin6. Going to lay down a piece

145 Joe woke me. Wow! I didn’t plan on sleeping that long. Must have needed it. I’m still tired, but headache has eased enough that lights aren’t hurting. Bright lights are different story.

530 Dezirae curling my hair for my date.

Joe and I are going on a double date tonight, but it’s with a couple I’ve never met before and will actually be a marriage counseling session. I can’t give details but the husband suffered through a very traumatic experience recently. Joe thought that I might be able to help due to some of the issues I’ve dealt with from my LS.

I’m flooded with emotions. This is way out of my comfort zone, but I’m humbled and excited how God is allowing this cracked pot to be used for His glory!

1159 awkward at first but Joe broke ice by mentioning that I was struck by lightning three yrs ago. They asked questions and I answered. Once inside restaurant, they knew several people. It was cool. Ended up getting free birthday cake. Joe & I shared a plate. It was hard for me to keep up with the conversations. I’d also got tired. Able to share couple things that help me.

Think it went well. They both need help, but don’t we all.

I’m exhausted and have headache. Night rx taken. Tylenol taken. Headache getting stronger. Whole body aches. Sinuses congested but at least haven’t had another bloody nose since this am. Chiropractor helped.

Aug 23

630 woke from strange dreams. Still very tired. Head pounding. Whole body throbbing. Vision bit blurry.

Joe says that I was belly laughing in my sleep last night. Told him that’s funny I don’t know why I’d be laughing bc I was having bad dreams.

700 preparing for today. Missionaries the Williams. Meeting them for first time today. Giving them a blessing bag. Cooking lunch for them too.

830 got to church realized I forgot the salad and rolls. Ugh!

1230 lunch not quite ready. Have to regroup and change type to cook faster. They don’t eat much bread so it was okay no rolls. Enjoyed listening to them talk though I didn’t catch it all.

700p Sharp stinging in chest

745 my left leg went to sleep and is now very numb & tingly.

 

Aug 24

636 changing sheets and turning bed around took more than 30 minutes. I’m now in severe pain. Low back screaming. Upper body throbbing. Pins & needles sensation through upper torso and in lower legs. Feet tingling. Major headache. Very out of breath. Need to lay down for a while to rest. I’m exhausted.

800 wash load of clothes. Burned breakfast (sweet rice). Dezirae to rescue (home ec 😘).

Trouble figuring out how to fill out transcript info on form provided bc child took more classes than there’s room for. My brain won’t formulate how to process. I ended up using excel to type up info and submit. Hopefully it’ll work. Frustrating. It should be easy.

 

Aug 25

655a strange dreams. The dance is lost at sea…? Where did that come from?

My whole body aches deeply. It hurts to move. Sinuses congested. Thirsty – didn’t drink enough yday. Feel slightly dehydrated.

725 recvd msg from friend about neighbor being severely electrocuted 6 weeks ago and was asking for advise/suggestions.

 

Resources: 

https://www.lightning-strike.org/

https://www.facebook.com/groups/Lightningstrikesurvivors/?ref=share

Nerves when they are damaged will take the longest to heal.

In recovery, it’s most helpful to…

1. Have a good support group
2. Become your own advocate. Learn as much as you can about the disability.
3. Find a doctor willing to listen, work with, and help you.
4. Sense of humor & laughter provide great stress relief.

923 recvd call from Ron, a tbi resource person. Checking on me. Says I need to call my atty to see if he’s done anything else towards my case and let him know I don’t want his services anymore. Need to start getting copies of my records. Also, he’s going to start working towards trying to get me set up for Neuro testing. It give answers to extent of brain injury. Thank you, Lord!

228 rcvd call from Theresa, tbi coordinator. Checking on me. She told me that USA students still wanted to keep in touch to help clients stay socially active. Told me they picked me to participate. Told her I appreciated it but I wanted someone else who could use it more. Mtgs will resume first of year.

Told me she’s retiring mid November. Told her I’ll miss her and not to forget me. She said she could never forget me bc of my strong faith in Christ that I’ve been a blessing and encouragement to her. Awh!

415 rcvd call from scam likely stating there was possibly fraudulent activity on my ss# and if I didn’t answer call they’d consider something…. I didn’t say anything bc I was trying to process what was said. I didn’t catch everything either. Before I could say anything they hung up.

This upset me. I decided to check my ss account online. Found out that somehow my disability case was supposedly postponed. Then few days later it had been appealed and is waiting for a determination. I never filed an appeal. I needed a break to ease my nerves and then pandemic hit.

I was under the impression that I had to start all over. I’m severely confused. Will have to call attorney tomorrow.

Been storming off and on all day. Barometric pressure drop causes extra pain. Head pounding from information overload today. Bright lights bothersome. Rt hip stinging pain. Night meds taken. Naproxen taken.

1019 screaming pain in rt hip & lower back. Feet cold. Sinuses congested and sinus cavities in face throbbing. Head pounding. So tired. Naproxen not touching pain.