My Healing Journey - Charitymaeprosper

630a took while to fall asleep. Strange dream. Whole body stiff and achy. Hot but clammy feeling. Arms numbish. Rt hip throbbing. Sinuses congested. Fingers tingling.

Bible Reading: 2 Chronicles 21-24, Psalm 89:24-37

Brain feels weird. Vision off. Peripheral vision off. Brain hurts. Headache.

I asked Joe a question (rationality of addictions). It didn’t come out right and made him extremely mad. Guess I’ll keep my distance til he calms down.

Later apologized for upsetting him it wasn’t my intention. I just don’t understand. Still don’t.

Purposely drank a soda for lunch to see if off feeling will improve. It didn’t. Not my sugar.

Search internet for possible answers…blood sugar…stroke

Go to CVS to use bp machine. Not allowed to use it. Tell pharm tech that I need to check bp to see if I need to go to hospital. He offers no help. Go to car to search other pharmacy in area that’s open. Called Walgreens. Talk with pharmacist. She gladly offers to take bp for me.

Allows me to sit 5 minutes to get accurate reading. Bp is 122/86. Pharmacist suggests I call my Dr to let them know what’s going on.

I ask question on support group if others have same issues. Several say they do.

Is your brain on fire? Symptoms of brain inflammation

654 sharp stabbing pain in rt temple for a minute. Hands stinging.

1050 exhausted. Sinuses congested. Headache. Brain still hurts and body off. Nerves sting thru body. Skin itchy. Neck hurts. Ears popping. Rt ear hurts. Lower lft leg tourniquet tightening feeling with tingling. Rt temple throbbing. Low back aches. Rt hip aches. Toes tingling. Lights bothersome. Muscles randomly spasming thru body

August 25, 2023August 24, 2023

Lightning Strikes Journal Entries 13-14 May 2021

May 13

Broken sleep. Woke with both arms and hands numbish and tingling. Sinuses congested. Thirsty. Whole body stiff and achy. Legs throbbing. Tired. Surface of mid and upper back stinging. Low back throbbing.

Bible Reading: 2 Chronicles 9-22, Proverbs 31:30

Interesting tidbit Solomon’s downfall possibly began when he started multiplying 666 pieces of gold in a year (9:13). Did the $ or the women turn his heart from God?

Slow moving today. Sorted pots and pans to take some to church to use there.

Decided I was hungry for Raisin Bran. Used 1% milk. Instant sinus congestion. Hope I can get this under control soon.

Try to work on blog and can’t find Joe’s laptop. I need it for the PowerPoint program. Ugh.

Legs hurt so bad they feel like they’re about to fall off.

300p taking 30 minute nap. I’m tired. Center of chest starting to throb with sharp pains keeping me awake. Remembered that I forgot to take ibuprofen today. Took some.

500 dinner didn’t cook right. Ugh. Have to cook the meatballs in microwave.

600 scatterbrained and having difficulty understand what people are saying. Having to make them repeat it several times.

700p rt hip throbbing. Head hurts.

Managed to get pkg in mail (which mailman didn’t bother to pick up. Grr!), & Homecoming postcards labeled and stamped.

1109o sharp pains in chest again. I’ve got to figure out how to remember to take the ibuprofen regimen consistently so I don’t have to go to Drs.

May 14

600 woke momentarily not knowing were I was nor what day it was. Center of chest sharp pain. Took Naproxen.

Whole body sharp achy pain. Sinuses congested. Arms throbbing like I worked out. Eyes watery. Headache. Very tired. Hands swollen and achy. Mouth dry and thirsty. Rt hip aches. Toes tingly.

Bible Reading: 2 Chronicles 13-17, Psalm 139:13-14

400p put tea on to make sweet tea for company, but forgot about it. I burned the water. So embarrassed. Lol. It was funny though bc Joe said he smelled bread. I said I wasn’t making bread. Then I smelled something burning.

930p neck popped. Rt ear clogged and ringing instantly.

August 24, 2023

Lightning Strikes Journal Entries 11-12 May 2021

May 11

800a woah I didn’t think I could hurt worse than last night. Feels like a combination of being beaten up exponentially and a rigorous workout. Every fiber of my being hurts.

Slept pretty good. Only woke couple times. One time woke to old hymn playing in my brain – one I hadn’t heard in a while. Can’t remember it now. Still tired and moving very slow.

Bible Reading: 2 Chronicles 2-5, Ephesians 4:32,

A fellow LS survivor asks the question Why me syndrome? I’m not sure how to answer bc I’ve not asked that. I’m thankful it was me and not my children. I wouldn’t even wish the constant pain and struggles on my enemies.

https://therevealer.org/the-patient-body-chronic-fatigue-syndromes-spiritual-causes-and-cures/

I know God has a purpose and a plan (Jeremiah 29:11) and nothing takes God by surprise (Isaiah 41:22-22, Psalm 139:16-17, Romans 8:28).

Beginning to wean myself off the propranolol. Start by taking only 1/2 pill at night – this starts 2nd week of doing so. If all goes well, I’ll reduce more next week.

Also, alternating reducing bp rx. 1/2 pill & 1/4 pill every other day. Been doing that for 2 weeks. Bp is 122/74 hr 62.

AM meds: Edarbyclor (1/2 & 1/4 pill every other day), Propranolol, Dexilant 30mg every other day, Echinacea, B12, Niacin, C

Pushed myself to transplant tomatoes to container garden so I won’t loose them.

Need to go get my flash drives from church so I can finish end of year grades. Need to get Jordon’s diploma soon.

Another thunderstorm coming, I can feel it.

Twill be down rest of day bc when I hurt this bad moving body is difficult and painful.

250 just finished Jordon’s and most of Raes grades. Brain hurts, head hurts, vision blurring, neck hurts, body hurts, very tired, thirsty, hot. Laying down for 30 minutes or so to rest brain.

900 center of chest hurting like I was punched. Whole body aches but not as bad as when I woke.

1030 finally finished grades for both Jordon & Rae for this school year. What a relief. Now to work on planning next year and submitting enrollment form to new cover school.

Need to focus on planning graduation ceremony to which I’ve never done before. . Lord, please help.

Slight headache, neck hurts, chest pain in center that radiates thru to back, arms, shoulders, and hands ache, hands swollen, legs and feet stinging burning throbbing pain, periodic sharp stabbing pain in arms during day, ears ringing, rt hip aches, tired but awake, cotton taste in mouth

Night meds taken, 3 Tylenol for pain, 1 tsp Colloidal Silver in water, 1 tsp Colloidal Silver swished in mouth. Can’t believe the difference on my tongue.

May 12

700 forgot I set alarm. It scared me awake causing muscle spasms on rt side of torso and chest. Deep breathing to calm. Took 5 minutes or so. My body aches deeply all over. Feels like I was badly beat up. Hurts to move.

Bible Reading: 2 Chronicles 6-8, Prob 31:10, 27-28

Balance check book and pay bills through this week.

1200 off to bid friends of MYSEAHOPE a fairwell as they are heading to St Vincent.

Dezirae got to help untie the ropes to help them head off on their voyage.

They gave me their van to help me get the therapy and treatment needed for my recovery. I wasn’t expecting that. It made me want to cry happy tears. I’ll miss them but pray for safe travels and that they’ll reach many souls for Him. Part of me wishes I could go.

3:45 center of chest hurting horribly. Heat pad on chest. Plus 4 Ibuprofen.

4:30 rt ear hurting. Ears ringing.

530 go to pick up van with Joe. I didn’t realize it had a moon roof that works! God is good. Talked with Hailey for while. She wanted me to sing to her several songs. Brain couldn’t think…only thought of few songs. She then requested Amazing Grace. She’s a sweetheart.

930 night meds taken. Tired but wide awake.

Whole body aches deeply. Hands swollen and throbbing. Rt ear hurts. Slight headache. Rt hip stinging throbbing. Stinging burning pain throughout body. Top of left foot feels like it was sliced with sharp knife but there’s nothing there. Center of chest throbbing with periodic sharp stabbing pain thru to back. Sinuses congested.

Thankful for…

My own vehicle
My family
God’s grace

July 29, 2023

Lightning Strike Journal Entries – 9-10 May 2021

May 9, 2021

5:30a it’s too early to wake up. Pictures in brain going 100 mph. My whole body stinging throbbing pain.

Bible Reading: 1 Chronicles 25-27

Song – It’s a good thing to give thanks to the Lord

It hurts to move. I feel like I’ve been beaten horribly. I would stay in bed all day if it were up to me. Bad headache.

6am Joe gave me bouquet flowers & card, Jordon gave me an encased glass light up rose, dk chocolates, & card, Dezirae gave me plaque, dk chocolate covered almonds, bracelet, & card. Sweet.

640 took pain rx to take edge off. Laying back down til 7am to see if it’ll help.

7:20 headache eased. Pain still much.

900 head is swimming. Eyes hurt. Lights bothersome. Whole body aches from top of head to tippee toes.

3:30pm decided to try to trim up the azalea bush out by road. Got maybe 1/3 done and noticed bunch of dogs wandering across property. Bull dog noticed me and started to run towards me growling. I screamed bloody murder!!! Dog stopped in his tracks. Decided to pick up my cane laying near me so I’d have some defense. As I did he began running towards me growling again. I screamed bloody murder again causing him to stop. When I stopped for a breath he came towards me. I chose to scream until someone came out. Joe came running. I told him what was up. Joe got between me and the dog. The movement startled the dog causing him to lose his focus off me.

When Joe reached me, I told him I was done for today. I don’t want to get attacked by no dog. Besides my back is killing me.

Once back inside and things put away, I sat for few moments to rest and remembered that I was supposed to be working on the banners for homecoming. It didn’t take long. Makes me want a circuit so I can do the vinyl myself.

1000p it’s been a full day. Services were great today. I was even able to sing with a few of the songs though not very long. It’s challenging enough to play piano with nystagmus (it severely hinders the eye hand coordination) let alone try to sing at same time. I’m always glad when I can sing.

https://medlineplus.gov/ency/article/003037.htm

May 10, 2021

520a tummy tore up. Up and down several times since about 2:30a. Woken by thunderstorm around 4:30. Strange dream.

Bible Reading: 1 Chronicles 28-2 Chronicles 1

Whole body hurts. Sinuses congested. Tummy tore up. Exhausted.

2pm went shopping at thrift stores.

Had to put earplugs in while at 1st thrift store bc the music was too loud and hurting my nerves and ears.

500p while in grocery store my costochondritis started flaring up. Hurt so bad I had to grab my chest and hunch over cart for a bit. All I could do was moan for the pain. Dezirae, Tara, & Holly helped with the shopping to get it done quicker. Tara was hurting too. Pain was a 9.75!! I just wanted to sit on floor and cry. I’ve overdone too much.

600p glad dinner was in crockpot – potato corn chowder. Sat to rest for quite a while.

1030 going to bed in much pain. Using heating pad & took Naproxen. Every inch of me throbbing pain. Hope GABA kicks in quick so I can fall asleep.

Headache. Sinuses congested immediately after eating dinner. Stinging pain thru body. Gassy. Tummy feels bloated. Scalp itches. Skin itchy most of day. Hands swollen and throbbing. Arms ache deeply. Severe pain in chest area. Back stinging. Stinging pain in lower and middle back. Legs throbbing. Lower left leg tourniquet tightening feeling. Feet hurt & chilly. Tingling in feet. Vision blurring. I want to scream!

June 12, 2023June 10, 2023

Lightning Strikes Journal Entries 7-8 May 2021

May 7

700 woke in much pain – stinging needle pain thru body. Moderate headache. Neck hurts. Shoulders ache. Low back throbbing. Tired. Legs ache. Sinuses congested. Feet hurt.

Bible Reading: 1 Chronicles 18-21, Psalm 18:46

Song on mind: Bless the Lord Oh my soul…

Psalm 18:3 & 46

Have lots to do today…prepare graduation invitations to mail out, homecoming invitations, newsletter, bulletin, guy coming to fix the a/c, termite inspector coming, care pkg for Jakob, etc. It’s a bit overwhelming to say the least, but I’ll do what I can as I can.

Brain fried and vision blurring by noon, but not stop to eat lunch until about 1:30. Headache. Not hungry just eating for sustenance.

Went on walk with sister around 11am. Made it about 1/2 mile which is little farther than last time.

Dezirae helped label and stamp invitation envelopes. Trouble staying focused on one task.

1100m going to bed. Headache. Brain hurts. Neck hurts. Shoulders & chest ache. Hands swollen and throbbing. Back stings. Low back throbbing intensely. Rt hip hurts. Legs burn and throb. Stinging burning pain from calves to feet. Feet ice cold & tingling. Exhausted. Muscles randomly spasming in legs

May 8

600 woke thinking I overslept. Woke several times in the night. One time I sat up too fast I suppose and got dizzy. Had to hold on to furniture to get to the bathroom without falling.

Enjoyed chatting about this & that with Joe for little while.

Bible Reading: Psalm 37:3, 1 Chronicles 22-24

Song: Psalm 18:3 & 46

Arms and hands ache like I did rigorous workout. Only thing I did yday was cut gift tags and postcard invites with paper cutter. Ugh! Sinuses congested. Took nasal spray and Tylenol sinus. Morning meds taken.

730 Mother/Daughter outing today. I’m not feeling up to it but will push myself so others can have a good time.

330 exhausted when we got home.

450 Joe said he’d cook dinner. Went to room to use restroom. Bed inviting so I laid down to rest head a moment ended up falling asleep. Next thing I know Joe’s waking me letting me know it’s time for dinner.

630 time to clean up from dinner. Wish we had a dishwasher. Can only stand for maybe 5 minutes at sink before back is hurting so bad that I can not stand back pain anymore. Need to sit & rest before I can do more.

Feel like I could crash again…so exhausted.

930 took me three attempts to get dishes washed. Dezirae dry and put away.

Girls helped with assembling mother’s day gifts.

Headache moderate. Hands and arms ache. Sinuses congested. Chest hurts. Back throbbing like toothache. Skin itchy. Legs ache. Feet cold and tingling. Exhausted. Going to bed.

Night meds taken plus Gaba, PEA, & 1 tsp Colloidal Silver in 8oz water. Also swished a tsp Colloidal Silver in mouth for a minute and spit out.

Colloidal Silver benefits:

https://www.marsillochiropractic.com/colloidal-silver/

June 11, 2023July 18, 2023

Lightning Strikes Journal Entries 4-6 May 2021

May 4

Broken sleep. Woke at 3 to use restroom

5am, 7:15a, 7:35a

Still feeling weird and stinging needle burning throbbing pain increases. Eyes hurt. Headache. Sciatica pain eased some. Going back to bed. Ears hear sound of ocean like I’m holding conch shell up to them but I’m not. Sinuses congested. Sneezing.

Bible Reading: 1 Chronicles 9-11, Psalm 30

Weather aware day… thunderstorming pretty bad. Under flash flood advisory.

Took night meds plus PEA & Gaba. Helps relax and keep migrai at bay.

May 5

600a woken by thunderstorm. Nerves are screaming thru body. Woke from pleasant dream with song on mind (The Way of the Cross Leads Home).

720 had to wake Dezirae to go babysitting with Grandma. She overslept.

Sat in recliner looking up curriculum possibilities for Dezirae in fall.

Nerves stinging greatly thru pbody. Rt hip throbbing. Hands swollen and achy. Cotton mouth. Skin sensitive to touch. Lower abdomen aches thru to back. Low back throbbing. Headache. Feet & legs ache.

Put load of clothes in wash.

Bible Reading: Psalm 32:8-10, 1 Chronicles 12-14

Worked on planning meals for week, chat with my sister, printed cards for Mother’s day.& Laminated them, washed few dishes, meandered through house doing odd chores picking up here and there (I know I did it but I couldn’t tell you what they were).

Had house to myself until around 3pm. It was nice and quiet – except I had radio on most of day.

Joe rubbing me wrong way today. Nothing he’s doing wrong in particular. I dislike when I get in this mood. Ugh! Lord, please help me think lovely thoughts.

Psalms 19:14 Let the words of my mouth, and the meditation of my heart, be acceptable in thy sight, O LORD, my strength, and my redeemer.

A/C is freezing up. Had to turn it off. I’m hot so it’s going to take a bit to fall asleep.

1030 don’t know where I put my charger for my tablet, but found different way to charge keyboard 4 tablet. I hurt all over. Center of chest hurts. Headache not so bad. Extremely tired. Stinging needles feeling randomly thru body. Periodic muscles spasming thru body. Low back throbbing. Arms tingly.

May 6

Didn’t sleep very well at all. I hurt all over. Headache mild. Feet feel like I’m stepping on broken glass. Stinging pain thru body. Lower abdomen hurts.

Song on mind: “In Christ I Am Forgiven”.

Bible Reading: 1 Chronicles 15-17, Psalm 34:8, Proverbs 23:15-21

Sinuses congested. Tongue more covered in lesions.

Can’t find my flash drives. It’s hindering me know getting things done. Ugh. Frustrating. Later discovered that I mistakenly put them in SS teaching bag.

Tired. Hurting all over.