June 6
5:00a- woke up thinking I was late. Ugh! Horrible pain in center of chest. Toe touch didn’t work. Used pain relief roll on and went back to bed.
7:00a- body aches but not as bad as usual. Think possibly exercises that PT gave me are helping.
7:30- decided to play wholetones mucis “open door” for first set of exercises this morning. Did devotions too while playing.
8:30a- weird tingling chilling sensation from neck down spine to middle of back . Need to ask therapist about it next visit.
11:31p- able to get kids end of year grades done and put in mail today. Having meals planned is a stress relief. Remembered to note what items I needed to get done today.
Started okay playing piano for church but progressively got worse. It was like my brain was too tired to coordinate my hands with my eyes. I wished someone could explain the science of that to me.
Joe preaching on Holy Spirit tonight. I started reading notes in Bible which made me think of other verses about Holy Spirit. I zoned out for little bit but was embarrassed because Joe called on me to agree with him on something but I didn’t hear what he said so I didn’t give reply he was hoping for. Made for giggles in church.
We discussed it afterwards. Joe was okay with it.
Relaxing before sleep I’m hurting all over and skin is prickly itchy. Yeast is trying to rear ugly head again though it’s never gone away comepletely. So wish I could find right combination.
Chest throbbing like toothache. Lifted a box too heavy for me and I felt it immediately. Being restricted in activity is quite a challenge.
I’m freezing though it’s still about 80 degrees outside. Joe says my skin is hot to the touch. Thighs ache.
June 7
7:00a- first woke early morning dreamt someone was at front door ringing door bell, banging on door trying to get it. It seemed so real! When I came to I listened for doorbell but didn’t hear it anymore. Not sure if I should get up and check it out. I got scared. Decided to pray a protective bubble around us to keep it away. Fell back asleep praying for everything I could remember needed prayer.
Able to do exercises and devotions before Joe woke. Exercises are making difference already but my muscles are soar. PT said to expect it.
9:00a- lots to do today. Pay first payment on car. Get insurance. Get tag. Get travel consent papers notarized. Get Joe to Dr for his BP & make apt with for me – changing Drs. I need to for my overall health. Still fighting thrush.
12:30p- we qualify for discount for medical care at the clinic. Joe has Dr apt at 1:30. I will make apt for future. Everyone has been real friendly. That’s plus for me. Uncaring Dr’s I’ve dealt with over past year or so have made me dread going to Dr. So very thankful God opened door for me to get physical therapy. I know it’ll be tough but worth it even to diminish headaches, regain my balance, combat muscles loss and fatigue. Feel like I lost 2 years of my life, but new doors have been opened and new friendships established I never would’ve considered before.
254p Praise report- I’ve been asking my doctor’s for the last two years for phyiscal therapy to no avail. They didn’t think I needed it nor would explain their reasoning. I finally (after horrible experience with neurologist) consulted with the coordinators of my brain injury support group for help. I am so glad I did. They not only were very supportive but were also able to help me get physical therapy thru the local college.
I had second apt this week. This week the therapist showed me four exercises to work on this week. I have already noticed a difference. She said these exercises were actually good for anyone to do.
I also took leap of faith and made apt with a new doctor today. I see him in two weeks.
3:00p- Joe had to see Dr today for his Bp. Joe & I are impressed with Dr’s courtesy and thoroughness. I took leap of faith and made apt with them. I see new Dr in two weeks.
I’m exhausted and really hurting. Feel like a crash is oncoming. Glad things are looking up in medical field.
4:00p- low back throbbing, eyes watering, headache bit much, muscles randomly spazzing
8:28p- made twice baked potatoes tonight for dinner. Though they were delicious I’m almost to tears in pain. Scooping the potatoes out caused too much pain!!
11:32p- still wide awake – pain not letting up. Migraine rx helped ease headache but naproxen not relieve chest pain (Costocondritis). If only I sleep. Tummy hurts too. Taking 4 Ibuprofuen.
